Nonprofit · EIN 43-1709945
SHWACHMAN DIAMOND SYNDROME FOUNDATION INC
Tax-exempt · VAN WYCK, SC 29744
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $87,649 | $102,358 | -$14,709 | $193,847 | $1,477 | $192,370 |
| December 31, 2024 | 990 | $83,670 | $138,602 | -$54,932 | $206,848 | -$231 | $207,079 |
| December 31, 2023 | 990 | $65,182 | $46,769 | $18,413 | $268,839 | $6,828 | $262,011 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $87,605
- Program service revenue
- $0
- Investment income
- $44
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Other salaries and wages
- $2,672
- Salaries, compensation and benefits (total)
- $2,672
- Professional fundraising fees
- $397
- Accounting fees
- $2,000
- Travel
- $10,647
- Program services (functional)
- $96,712
- Management and general (functional)
- $5,249
- Fundraising (functional)
- $397
Balance sheet and other
- Total assets, start of year
- $206,848
- Total assets, end of year
- $193,847
- Total liabilities, end of year
- $1,477
- Net assets, end of year
- $192,370
- Net assets without donor restrictions
- $192,370
- Gross receipts
- $87,649
- Employees
- 0
- Volunteers
- 25
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JOAN MOWERY | FOUNDER Trustee or director, Officer | 5 | $0 |
| CHRISTIAN DEL RE | Vice President Trustee or director, Officer | 5 | $0 |
| MARY BALINT | President Trustee or director, Officer | 5 | $0 |
| JOHN WALL | Treasurer Trustee or director, Officer | 5 | $0 |
| DEANA VALIANTE | Secretary Trustee or director | 5 | $0 |
990 for the year ended December 31, 2024: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JOAN MOWERY | President Trustee or director, Officer | 5 | $0 |
| CHRISTIAN DEL RE | Vice President Trustee or director, Officer | 5 | $0 |
| MARY BALINT | Secretary Trustee or director, Officer | 5 | $0 |
| JOHN WALL | Treasurer Trustee or director, Officer | 5 | $0 |
| BRYAN SAMPLE | Advisor Trustee or director | 5 | $0 |
| DEANA VALIANTE | OUTSIDE DIR Trustee or director | 5 | $0 |
| SHARI ST HILAIRE | OUTSIDE DIR Trustee or director | 5 | $0 |
| TOM DAHLMAN | OUTSIDE DIR Trustee or director | 5 | $0 |
| PAMELA MILLER | Executive Dir. Trustee or director | 5 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JOAN MOWERY | ACTING PRES. Trustee or director, Officer | 5 | $0 |
| CHRISTIAN DEL RE | Director Trustee or director | 5 | $0 |
| MARY BALINT | Secretary Trustee or director, Officer | 5 | $0 |
| BRYAN SAMPLE | TREASURER Trustee or director, Officer | 5 | $0 |
| SAVANNAH LILLYWHITE | Director Trustee or director | 5 | $0 |
| STEPHANIE GREGORETTI | Director Trustee or director | 5 | $0 |
| JENNI WACHTER | Director Trustee or director | 5 | $0 |
| NICOLE SHEN | Director Trustee or director | 5 | $0 |
| SCOTT MILLER | Director Trustee or director | 5 | $0 |
| CAROLINA CORDOVA | Director Trustee or director | 5 | $0 |
| MICHELLE GRENELL | Director Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 124, VAN WYCK, SC 29744-0124
- Signed the 990
- JOHN WALL, Treasurer
- Phone
- (978) 290-1224
- Website
- WWW.SHWACHMAN-DIAMOND.ORG
- Return prepared by
- STOKES VISCA HUCKO & BARONE CPAS LLC
Mission
RAISING AWARENESS OF AND SUPPORT FOR THE SHWACHMAN-DAIMOND SYNDROME DISEASE. THIS IS DONE THROUGH EDUCATIONAL CONFERENCES AND THE PUBLICAITON OF PERIODALCS SUCH AS NEWSLETTERS AND BROUCHURES. RESEARCH GRANTS ARE ALSO AWARDED FOR THE STUDY OF THE SYNDROME.
Program accomplishments
- PROVIDED RESEARCH GRANTS FOR THE STUDY OF THE RARE DISEASE SHWACHMAN-DIAMOND SYNDROMEExpenses $96,712 · revenue $87,605
- SPONSORED AND CONDUCTED VARIOUS EDUCATIONAL CONFERENCES ABOUT SHWACHMAN-DIAMOND SYNDROME
- PUBLISHED NEWSLETTERS,PUBLIC SERVICE ANNOUNCEMENTS AND GAVE FAMILY SUPPORT TO KEEP PUBLIC AWARENESS OF THE DISEASE. CONDUCTED GENERAL OPERATIONS.
- CONDUCTED CAMP SUNSHINE FOR CHILDREN WITH SHWACHMAN-DIAMOND SYNDROME.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 43-1709945
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1995
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Human services (P80)
- Assets (IRS master file)
- $193,847
- Income (IRS master file)
- $87,649
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $87,649 | $102,358 | $193,847 | IRS |
| 990 | December 2024 | $83,670 | $138,602 | $206,848 | XML |
| 990 | December 2023 | $65,182 | $46,769 | $268,839 | XML |
| 990 | December 2022 | $65,663 | $145,719 | $244,899 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 43-1709945).
Questions about SHWACHMAN DIAMOND SYNDROME FOUNDATION INC
- What is the EIN of SHWACHMAN DIAMOND SYNDROME FOUNDATION INC?
- The employer identification number (EIN) of SHWACHMAN DIAMOND SYNDROME FOUNDATION INC is 43-1709945.
- Is SHWACHMAN DIAMOND SYNDROME FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1995.
- Are donations to SHWACHMAN DIAMOND SYNDROME FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SHWACHMAN DIAMOND SYNDROME FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SHWACHMAN DIAMOND SYNDROME FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SHWACHMAN DIAMOND SYNDROME FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who are the officers and directors of SHWACHMAN DIAMOND SYNDROME FOUNDATION INC?
- The 990 for the year ended December 31, 2025 lists 5 people; 0 received compensation from the organization.
- How much revenue does SHWACHMAN DIAMOND SYNDROME FOUNDATION INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $87,649, expenses of $102,358 and total assets of $193,847 at year end.
Other nonprofits in VAN WYCK
- NATIONAL SOCIETY OF THE DAUGHTERS OF THE AMERICAN REVOLUTION EIN 57-6021192 · last filed 990 for 2024
All nonprofits in VAN WYCK · South Carolina · Human services