Nonprofit · EIN 43-1642150
CHARGE SYNDROME FOUNDATION INC
Tax-exempt · BUFFALO GROVE, IL 60089
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $539,340 | $544,100 | -$4,760 | $1,718,691 | $102,854 | $1,615,837 |
| December 31, 2023 | 990 | $1,127,763 | $922,660 | $205,103 | $1,592,023 | $10,880 | $1,581,143 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $289,907
- Membership dues
- $22,284
- Program service revenue
- $0
- Investment income
- $48,824
- Net gain from sales of assets
- $187
- Net income from fundraising events
- $198,320
- Other revenue
- $200,609
Expenses
- Grants and similar amounts paid
- $181,620
- Compensation of officers, directors and key employees
- $135,196
- Other salaries and wages
- $86,737
- Salaries, compensation and benefits (total)
- $248,689
- Professional fundraising fees
- $0
- Program services (functional)
- $460,754
- Management and general (functional)
- $62,224
- Fundraising (functional)
- $21,122
Balance sheet and other
- Total assets, start of year
- $1,592,023
- Total assets, end of year
- $1,718,691
- Total liabilities, end of year
- $102,854
- Net assets, end of year
- $1,615,837
- Net assets without donor restrictions
- $1,351,696
- Net assets with donor restrictions
- $264,141
- Gross receipts
- $812,633
- Employees
- 4
- Volunteers
- 443
- Year formed
- 1993
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LISA CUNNINGHAM | EXECUTIVE DIRECTOR Trustee or director | 40 | $135,196 |
| NEAL STANGER | PRESIDENT Trustee or director, Officer | 20 | $0 |
| BEN DAIGLE | DIRECTOR Trustee or director | 5 | $0 |
| MINNIE LEE LAMBERT | DIRECTOR Trustee or director | 8 | $0 |
| LILY SLAVIN | DIRECTOR Trustee or director | 5 | $0 |
| SARA ESPANET | DIRECTOR Trustee or director | 5 | $0 |
| PENNI ECHOLS | VICE PRESIDENT Trustee or director, Officer | 10 | $0 |
| JOANNE LENT | SECRETARY Trustee or director, Officer | 10 | $0 |
| AMRIT MEHTA | TREASURER Trustee or director, Officer | 10 | $0 |
990 for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LISA CUNNINGHAM | EXECUTIVE DIRECTOR Trustee or director | 40 | $124,762 |
| DAVID WOLFE | PRESIDENT Trustee or director, Officer | 20 | $0 |
| NEAL STANGER | VICE PRESIDENT Trustee or director, Officer | 15 | $0 |
| JOANNE LENT | SECRETARY Trustee or director, Officer | 10 | $0 |
| AMRIT MEHTA | TREASURER Trustee or director, Officer | 10 | $0 |
| BEN DAIGLE | DIRECTOR Trustee or director | 5 | $0 |
| MINNIE LEE LAMBERT | DIRECTOR Trustee or director | 8 | $0 |
| PENNI ECHOLS | DIRECTOR Trustee or director | 5 | $0 |
| LILY SLAVIN | DIRECTOR Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 318 HALF DAY RD STE 305, BUFFALO GROVE, IL 60089-6547
- In care of
- % MARION A NORBURY
- Principal officer (990 for 2024)
- NEAL STANGER, 318 HALF DAY RD STE 305, BUFFALO GROVE, IL 60089
- Signed the 990
- NEAL STANGER, PRESIDENT
- Phone
- (516) 684-4720
- Website
- WWW.CHARGESYNDROME.ORG
- Return prepared by
- SNODGRASS OF NE OHIO INC
Mission
WE LEAD AND PARTNER TO IMPROVE THE LIVES OF PEOPLE WITH CHARGE SYNDROME LOCALLY, NATIONALLY, AND INTERNATIONALLY THROUGH OUTREACH, EDUCATION, AND RESEARCH.
Program accomplishments
- PROVIDE INFORMATION ABOUT CHARGE SYNDROME THROUGH PUBLICATION; PROVIDE SUPPORT TO FAMILIES WITH AN INDIVIDUAL WITH CHARGE; PROVIDE BIENNIAL CONFERENCES; SUPPORT RESEARCH RELATED TO CHARGE SYNDROME.Expenses $460,754 · grants $181,620
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 43-1642150
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1993
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Philanthropy, voluntarism and grantmaking foundations (T70Z)
- Assets (IRS master file)
- $1,718,691
- Income (IRS master file)
- $812,633
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $539,340 | $544,100 | $1,718,691 | XML |
| 990 | December 2023 | $1,127,763 | $922,660 | $1,592,023 | XML |
| 990 | December 2022 | $502,106 | $355,542 | $1,432,888 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 43-1642150).
Questions about CHARGE SYNDROME FOUNDATION INC
- What is the EIN of CHARGE SYNDROME FOUNDATION INC?
- The employer identification number (EIN) of CHARGE SYNDROME FOUNDATION INC is 43-1642150.
- Is CHARGE SYNDROME FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1993.
- Are donations to CHARGE SYNDROME FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CHARGE SYNDROME FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CHARGE SYNDROME FOUNDATION INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CHARGE SYNDROME FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of CHARGE SYNDROME FOUNDATION INC?
- The 990 for the year ended December 31, 2024 names NEAL STANGER.
- Who are the officers and directors of CHARGE SYNDROME FOUNDATION INC?
- The 990 for the year ended December 31, 2024 lists 9 people; 1 received compensation from the organization, the highest $135,196 (LISA CUNNINGHAM, EXECUTIVE DIRECTOR).
- How much revenue does CHARGE SYNDROME FOUNDATION INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $539,340, expenses of $544,100 and total assets of $1,718,691 at year end.
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