Nonprofit · EIN 43-1427760
DOWN SYNDROME INNOVATIONS INC
Tax-exempt · MISSION, KS 66202
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $1,978,318 | $2,244,514 | -$266,196 | $3,698,214 | $1,638,953 | $2,059,261 |
| December 31, 2023 | 990 | $1,668,845 | $2,045,972 | -$377,127 | $3,905,067 | $1,583,566 | $2,321,501 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $1,349,753
- of which government grants
- $102,273
- Program service revenue
- $333,515
- Investment income
- $22,867
- Net income from fundraising events
- $253,421
- Other revenue
- $272,183
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $328,054
- Other salaries and wages
- $1,081,406
- Salaries, compensation and benefits (total)
- $1,626,638
- Professional fundraising fees
- $0
- Occupancy
- $9,471
- Travel
- $17,371
- Depreciation
- $159,091
- Program services (functional)
- $1,393,180
- Management and general (functional)
- $715,749
- Fundraising (functional)
- $135,585
Balance sheet and other
- Total assets, start of year
- $3,905,067
- Total assets, end of year
- $3,698,214
- Total liabilities, end of year
- $1,638,953
- Net assets, end of year
- $2,059,261
- Land, buildings and equipment
- $2,838,576
- Publicly traded securities
- $147,218
- Net assets without donor restrictions
- $2,015,065
- Net assets with donor restrictions
- $44,196
- Gross receipts
- $2,265,293
- Employees
- 36
- Volunteers
- 1,000
- Year formed
- 1986
- State of legal domicile
- MO
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JASON DRUMMOND | CHIEF EXECUT Officer | 40 | $209,250 | $19,500 |
| AMY STOLL | CHIEF DEVELO Officer | 40 | $94,339 | $4,965 |
| BOB FAGAN | VICE PRESIDE Trustee or director, Officer | 1 | $0 | $0 |
| AMY FAUSS | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| MIKE FRAZER | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| DEBORAH KASS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MIKE KULP | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ABEL MOJICA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| RUSS REIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOE ROOS | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| SAMANTHA SHEPHERD | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JASON DRUMMOND | CHIEF EXECUT Officer | 40 | $228,365 | $14,992 |
| AMY STOLL | CHIEF DEVELO Officer | 40 | $99,081 | $4,954 |
| BOB FAGAN | VICE PRESIDE Trustee or director, Officer | 1 | $0 | $0 |
| AMY FAUSS | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| MIKE FRAZIER | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| DEBORAH KASS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MIKE KULP | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ABEL MOJICA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| RUSS REIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOE ROOS | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| SAMANTHA SHEPHERD | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 5916 DEARBORN ST, MISSION, KS 66202-3316
- Principal officer (990 for 2024)
- JENNIFER DREILING, 5916 DEARBORN STREET, MISSION, KS 66202
- Signed the 990
- JOE ROOS, TREASURER
- Phone
- (913) 384-4848
- Website
- HTTPS://WWW.KCDSI.ORG/
- Return prepared by
- DANA F COLE & COMPANY LLP
Mission
MISSION IS TO PROVIDED SUPPORT AND RESOUCES FOR INDIVIDUALS WITH DOWN SYNDROME, THEIR FAMILIES AND THE PROFESSIONALS WHO SERVE THEM. DSI SEEKS TO PROVIDE THE ENTIRE COMMUNITY WITH INFORMATION AND EDUCATION TO BROADEN AWARENESS AND FOSTER POSITIVE ATTITUDES REGARDING PEOPLE WITH DOWN SYNDROME. DSI CURRENTLY SERVES 37 COUNTIES IN KANSAS AND MISSOURI. WE PROVIDE SUPPORT TO OVER 1600 INDIVIDUALS WITH DOWN SYNDROME.
Program accomplishments
- PUBLIC AWARENESS - DSI WELCOMES 50-60 NEW BABIES AND THEIR FAMILIES EACH YEAR. OUR PARENT-TO-PARENT PROGRAM PROVIDES A WELCOME BASKET, QUARTERLY SUPPORT BREAKFASTS AND PARENT-TO-PARENT MATCHES. OUR BI-MONTHLY CONNECTIONS NEWSLETTER IS DISTRIBUTED TO 3,500 HOUSEHOLDS AND CONTAINS UPCOMING EVENTS, COMMUNITY GROUP ACTIVITIES, AND UP-TO-DATE ARTICLES ON MEDICAL OR EDUCATIONAL BEST PRACTICES FOR PEOPLE WITH DOWN SYNDROME. DSI SUPPORTS 14 COMMUNITY GROUPS TO HOST 8-10 ACTIVITIES IN THEIR IMMEDIATE GEOGRAPHICAL REGION TO CONNECT MEMBERS ON A SMALLER SCALE. THROUGHOUT THE YEAR, DSI FACILITATES AWARENESS INITIATIVES IN SCHOOLS AND IN THE COMMUNITY OFTEN SHOWING JUST LIIKE YOU-DOWN SYNDROME FILM, TO FOSTER POSITIVE ATTITUDES AND EDUCATE INDIVIDUALS ABOUT DOWN SYNDROME. SHOULD ANY OF OUR MEMBERS EXPERIENCE AN OVERNIGHT STAY IN THE HOSPITAL, DSI PROVIDES A 50 MEAL VOUCHER TO SUPPORT COSTS ASSOCIATED WITH THE STAY. MEMBERS CAN SHOW SUPPORT OF THE DSI BRAND BY PURCHASING BRANDED ITEMS TO GENERATE AWARENESS WITHIN THEIR COMMUNITY. ALL OF THESE PROGRAMS AND OTHERS ARE SHARED IN DETAIL IN THE DSI ANNUAL REPORT.Expenses $1,355,376 · revenue $319,797
- PUBLIC EDUCATION - DSI HOSTS ANNUAL EDUCATIONAL CONFERENCES TO BRING TOGETHER EXPERTS IN THE FIELD TO DISCUSS BEST PRACTICES IN WORKING WITH INDIVIUDALS WITH DOWN SYNDROME. SCHOLARSHIPS ARE AVAILABLE FOR DSI SPONSORED OR NATIONAL SPONSORED CONFERENCES. DSI ALSO HOSTS SEMINARS AND WORKSHOPS THROUGHOUT THE YEAR AS REQESTED BY DSI MEMBERS. DSI PARTNERS WITH 45 LOCAL SCHOOL DISTRICTS WHO HAVE NAMED DOWN SYNDROME SPECIALISTS WHO ACT AS LIAISONS BETWEEN DSI, SCHOOLS, AND FAMILIES IMPACTED BY DOWN SYNDROME. WE OFFER THE SPECAILISTS A RESOURCE MANUAL, FREE REGISTRATION TO DSI CONFERENCES, BI-ANNUAL BREAKFASTS TO EXCHANGE IDEAS AND MAKE DSI AWARE OF SCHOOL DISTRICT NEEDS AND ONGOING UPDATES REGARDING RESEARCH AND BEST PRACTICES FOR EDUCATING STUDENTS WITH DOWN SYNDROM. DSI ALSO OFFERS INDIVIDUALIZED TRAINING AND PRIVATE CONSULTATIONS FOR SCHOOL DISTRICTS WHO HAVE DOWN SYNDROME SPECIALISTS. INFORMATION CAN BE ACCESSED BY ANYONE IN THE COMMUNITY THROUGH DSI'S 24-HOUR PHONE INFORMATION LINE.Expenses $37,457 · revenue $13,718
- SOCIAL EVENTS - DSI SUPPORTS MEMBERS THROUGHOUT THEIR LIFE SPAN BY HOSTING SPECIAL EVENTS TO HELP MEMBERS AND FAMILIES ENGAGE AND CONNECT WITH ONE ANOTHER. SOCIAL EVENTS OFFER UNIQUE OPPORTUNITIES FOR FAMILIES TO MEET, FORM FRIENDSHIPS, AND SHARE RESOURCES. WE HOST 5 ALL GUILD ACTIVITIES THROUGHOUT THE YEAR WHICH WELCOME THE MEMBER WITH DOWN SYNDROME AND IMMEDIATE FAMILTY MEMBERS TO ACTIVITIES LOCATED AROUND THE METRO. ELEMENTARY AGED STUDENTS MEET QUARTERLY AT THE DSI OFFICE FOR EVENTS AND PREPARATION FOR THE S.T.A.R.S. PROGRAM WHICH MEETS WEEKLY ONCE MEMBERS TURN 12 YEARS OLD. ADULTS CAN ENJOY MONTHLY DSG ACTIVITIES IN ADDITION TO REGULAR COMMUNITY EVENTS AVAILABLE TO THEM. EACH MEMBER IS RECOGNIZED DURING HIS/HER BIRTHDAY MONTH THROUGH THE DSI BIRTHDAY BLUB WHICH SENDS A CARD TO EACH MEMBER.Expenses $347
- OTHER
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 43-1427760
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1987
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $3,698,214
- Income (IRS master file)
- $2,265,293
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $1,978,318 | $2,244,514 | $3,698,214 | IRS |
| 990 | December 2023 | $1,668,845 | $2,045,972 | $3,905,067 | XML |
| 990 | December 2022 | $1,538,198 | $2,036,245 | $4,292,775 | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 43-1427760).
Questions about DOWN SYNDROME INNOVATIONS INC
- What is the EIN of DOWN SYNDROME INNOVATIONS INC?
- The employer identification number (EIN) of DOWN SYNDROME INNOVATIONS INC is 43-1427760.
- Is DOWN SYNDROME INNOVATIONS INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1987.
- Are donations to DOWN SYNDROME INNOVATIONS INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does DOWN SYNDROME INNOVATIONS INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of DOWN SYNDROME INNOVATIONS INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did DOWN SYNDROME INNOVATIONS INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of DOWN SYNDROME INNOVATIONS INC?
- The 990 for the year ended December 31, 2024 names JENNIFER DREILING.
- Who are the officers and directors of DOWN SYNDROME INNOVATIONS INC?
- The 990 for the year ended December 31, 2024 lists 11 people; 2 received compensation from the organization, the highest $209,250 (JASON DRUMMOND, CHIEF EXECUT).
- How much revenue does DOWN SYNDROME INNOVATIONS INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $1,978,318, expenses of $2,244,514 and total assets of $3,698,214 at year end.
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