Nonprofit · EIN 42-1130450
ASSOCIATION FOR GLYCOGEN STORAGE DISEASE
Tax-exempt · WATERLOO, IA 50702
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $119,432 | $134,985 | -$15,553 | $492,890 | $440 | $492,450 |
| December 31, 2024 | 990-EZ | $166,840 | $122,281 | $44,559 | $469,029 | $186 | $468,843 |
| December 31, 2023 | 990-EZ | $129,571 | $160,871 | -$31,300 | $398,685 | $259 | $398,426 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $93,511
- Membership dues
- $290
- Program service revenue
- $23,661
- Investment income
- $1,970
Expenses
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $3,791
- Other expenses
- $131,194
- Program services (functional)
- $113,851
Balance sheet and other
- Total assets, start of year
- $469,029
- Total assets, end of year
- $492,890
- Total liabilities, end of year
- $440
- Net assets, end of year
- $492,450
- Cash, savings and investments
- $492,890
- Gross receipts
- $119,432
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kim Burney | President | 10 | $0 |
| Katie Ward | Vice President | 18 | $0 |
| Sosi Krikorian | Treasurer | 5 | $0 |
| Stephen Lui | Secretary | 5 | $0 |
| Irene Helley | Director | 5 | $0 |
| Brian Pawlik | Director | 5 | $0 |
| David Weinstein | Director | 5 | $0 |
| Barbara Owens | Director | 5 | $0 |
| Jason Cash | Director | 5 | $0 |
990-EZ for the year ended December 31, 2024: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kim Burney | President | 10 | $0 |
| Rebecca Lichucki | Vice President | 18 | $0 |
| Heather Edwards | Treasurer | 5 | $0 |
| Irene Helley | Secretary | 5 | $0 |
| Katie Ward | Director | 5 | $0 |
| Brian Pawlik | Director | 5 | $0 |
| David Weinstein | Director | 5 | $0 |
| Barbara Owens | Director | 5 | $0 |
| Jason Cash | Director | 5 | $0 |
990-EZ for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kim Burney | President | 10 | $0 |
| Rebecca LIchucki | Vice President | 18 | $0 |
| Heather Edwards | Treasurer | 5 | $0 |
| Brian Pawlik | Chairman | 5 | $0 |
| Irene Helley | Secretary | 5 | $0 |
| Katie Ward | Director | 5 | $0 |
| David Weinstein | Director | 5 | $0 |
| Jon Burney | Director | 5 | $0 |
| Barbara Owens | Director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 1542 FLAMMANG DR, WATERLOO, IA 50702-4370
- Signed the 990-EZ
- Kim Burney, President
- Phone
- (734) 474-1124
- Website
- AGSDUS.ORG
- Return prepared by
- Barnes Givens & Barnes Ltd
Mission
TO PROVIDE FAMILY SUPPORT AND PROMOTE AWARENESS OF GLYCOGEN STORAGE DISEASE.
Program accomplishments
- TO PROVIDE FAMILY SUPPORT AND PROMOTE AWARENESS OF GLYCOGEN STORAGE DISEASE BY PROVIDING CONFERENCES AND SCHOLARSHIPS.Expenses $113,851 · grants $7,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 42-1130450
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1980
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $492,890
- Income (IRS master file)
- $119,432
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $119,432 | $134,985 | $492,890 | XML |
| 990-EZ | December 2024 | $166,840 | $122,281 | $469,029 | IRS |
| 990-EZ | December 2023 | $129,571 | $160,871 | $398,685 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 42-1130450).
Questions about ASSOCIATION FOR GLYCOGEN STORAGE DISEASE
- What is the EIN of ASSOCIATION FOR GLYCOGEN STORAGE DISEASE?
- The employer identification number (EIN) of ASSOCIATION FOR GLYCOGEN STORAGE DISEASE is 42-1130450.
- Is ASSOCIATION FOR GLYCOGEN STORAGE DISEASE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1980.
- Are donations to ASSOCIATION FOR GLYCOGEN STORAGE DISEASE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ASSOCIATION FOR GLYCOGEN STORAGE DISEASE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ASSOCIATION FOR GLYCOGEN STORAGE DISEASE due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ASSOCIATION FOR GLYCOGEN STORAGE DISEASE last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of ASSOCIATION FOR GLYCOGEN STORAGE DISEASE?
- The 990-EZ for the year ended December 31, 2025 lists 9 people; 0 received compensation from the organization.
- How much revenue does ASSOCIATION FOR GLYCOGEN STORAGE DISEASE have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $119,432, expenses of $134,985 and total assets of $492,890 at year end.
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