Nonprofit · EIN 41-1596910
TURNER SYNDROME SOCIETY OF THE UNITED STATES
Also known as New Found Friends Iowa
Tax-exempt · HOUSTON, TX 77065
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $692,386 | $686,538 | $5,848 | $1,504,346 | $18,893 | $1,485,453 |
| December 31, 2024 | 990 (amended) | $832,833 | $625,371 | $207,462 | $1,522,139 | $42,534 | $1,479,605 |
| December 31, 2023 | 990 | $1,110,552 | $556,677 | $553,875 | $1,287,754 | $15,611 | $1,272,143 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $461,813
- Membership dues
- $33,836
- Program service revenue
- $155,380
- Investment income
- $60,836
- Net income from sales of inventory
- $14,209
- Other revenue
- $14,357
Expenses
- Grants and similar amounts paid
- $34,066
- Compensation of officers, directors and key employees
- $88,729
- Other salaries and wages
- $187,036
- Salaries, compensation and benefits (total)
- $312,428
- Professional fundraising fees
- $0
- Travel
- $191,428
- Depreciation
- $1,026
- Program services (functional)
- $568,754
- Management and general (functional)
- $46,854
- Fundraising (functional)
- $70,930
Balance sheet and other
- Total assets, start of year
- $1,522,139
- Total assets, end of year
- $1,504,346
- Total liabilities, end of year
- $18,893
- Net assets, end of year
- $1,485,453
- Land, buildings and equipment
- $4,011
- Net assets without donor restrictions
- $1,444,254
- Net assets with donor restrictions
- $41,199
- Gross receipts
- $708,009
- Employees
- 4
- Volunteers
- 100
- Year formed
- 2001
- State of legal domicile
- TX
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Cindy Scurlock | President & CEO Officer | 40 | $88,729 |
| Sarah Bauer | Chairman Trustee or director, Officer | 3 | $0 |
| Dawn Aye | Secretary Trustee or director, Officer | 3 | $0 |
| Elizabeth Dabrowski | Director Trustee or director | 3 | $0 |
| Bria Kelly | Director Trustee or director | 3 | $0 |
| Danielle Smith | Director Trustee or director | 3 | $0 |
| Mary Greenberg | Treasurer Trustee or director, Officer | 3 | $0 |
| Toni Farrell | Director Trustee or director | 3 | $0 |
| Alicia Hernandez | Director Trustee or director | 3 | $0 |
| Laura Palko | Director Trustee or director | 3 | $0 |
| Elizabeth Reader | Director Trustee or director | 3 | $0 |
990 for the year ended December 31, 2024: 12 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Cindy Scurlock | President & CEO Officer | 45 | $85,729 | $4,800 |
| Jeanna Lee | Chairman Trustee or director, Officer | 3 | $0 | $0 |
| Sarah Bauer | Chairman Trustee or director, Officer | 3 | $0 | $0 |
| Dawn Aye | Secretary Trustee or director, Officer | 3 | $0 | $0 |
| Daniel Tompkins | Treasurer Trustee or director, Officer | 3 | $0 | $0 |
| Elizabeth Dabrowski | Director Trustee or director | 3 | $0 | $0 |
| Bria Kelly | Director Trustee or director | 3 | $0 | $0 |
| Kristen McKenney | Director Trustee or director | 3 | $0 | $0 |
| Danielle Smith | Director Trustee or director | 3 | $0 | $0 |
| Jennifer Steele | Director Trustee or director | 3 | $0 | $0 |
| Kimberly Walker-Vanover | Director Trustee or director | 3 | $0 | $0 |
| Laura Wuertele | Director Trustee or director | 3 | $0 | $0 |
990 for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CINDY SCURLOCK | PRESIDENT & CEO Officer | 45 | $90,729 | $4,800 |
| KRISTEN MCKENNEY | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JENNIFER STEELE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DAWN AYE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ELIZABETH DABROWSKI | DIRECTOR Trustee or director | 2 | $0 | $0 |
| BRIA KELLY | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DANIELLE SMITH | DIRECTOR Trustee or director | 2 | $0 | $0 |
| KIMBERLY WALKER-VANOVER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LAURA WUERTELE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JEANNA LEE | BOARD CHAIR Trustee or director, Officer | 3 | $0 | $0 |
| SARAH BAUER | BOARD CHAIR - ELECT Trustee or director, Officer | 2 | $0 | $0 |
| DANIEL TOMPKINS | TREASURER Trustee or director, Officer | 3 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 12620 FM 1960 RD W PMB 210 STE A4 P, HOUSTON, TX 77065-5364
- Mailing address (990-N for 2007)
- 2615 Meadow Glen Road, Ames IA 50014
- Principal officer (990 for 2025)
- Cindy Scurlock, 12620 FM 1960 West A4 210, Houston, TX 77065
- Principal officer (990-N for 2007)
- Mary Kay Polashek, 2615 Meadow Glen Road, Ames IA 50014
- Signed the 990
- Cindy Scurlock, President & CEO
- Phone
- (832) 912-6006
- Website
- www.turnersyndrome.org
- Return prepared by
- Tipton & Company LLC
Mission
Turner Syndrome Society of the United States (TSSUS) advances knowledge, facilitates research, and provides support for all persons touched by Turner syndrome.
Program accomplishments
- Programs consist of organizing national Turner syndrome events for those with TS and their families, creating and maintaining TS content and resources, connecting people to information, sustaining the TS research registry directory, and creating TS awareness.Expenses $568,754 · grants $34,066 · revenue $169,589
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 41-1596910
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Group exemption
- Exempt since
- 1988
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Group exemption
- 9417
- Assets (IRS master file)
- $1,504,346
- Income (IRS master file)
- $708,009
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $692,386 | $686,538 | $1,504,346 | IRS |
| 990 | December 2024 | $832,833 | $625,371 | $1,522,139 | XML |
| 990 | December 2023 | $1,110,552 | $556,677 | $1,287,754 | XML |
| 990 | December 2022 | $522,013 | $350,675 | $723,870 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990-N for 2007 Officer: Mary Kay Polashek | December 31, 2007 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 41-1596910).
Questions about TURNER SYNDROME SOCIETY OF THE UNITED STATES
- What is the EIN of TURNER SYNDROME SOCIETY OF THE UNITED STATES?
- The employer identification number (EIN) of TURNER SYNDROME SOCIETY OF THE UNITED STATES is 41-1596910.
- Is TURNER SYNDROME SOCIETY OF THE UNITED STATES tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1988.
- Are donations to TURNER SYNDROME SOCIETY OF THE UNITED STATES tax-deductible?
- Yes. It is listed in IRS Publication 78 (Group exemption).
- Which annual return does TURNER SYNDROME SOCIETY OF THE UNITED STATES file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of TURNER SYNDROME SOCIETY OF THE UNITED STATES due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did TURNER SYNDROME SOCIETY OF THE UNITED STATES last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of TURNER SYNDROME SOCIETY OF THE UNITED STATES?
- The 990 for the year ended December 31, 2025 names Cindy Scurlock.
- Who are the officers and directors of TURNER SYNDROME SOCIETY OF THE UNITED STATES?
- The 990 for the year ended December 31, 2025 lists 11 people; 1 received compensation from the organization, the highest $88,729 (Cindy Scurlock, President & CEO).
- How much revenue does TURNER SYNDROME SOCIETY OF THE UNITED STATES have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $692,386, expenses of $686,538 and total assets of $1,504,346 at year end.
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