Nonprofit · EIN 39-3005160
NORTH STAR ALS INC
Tax-exempt · SANTA BARBARA, CA 93101
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $121,787 | $34,822 | $86,965 | $90,237 | $0 | $90,237 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $121,787
Expenses
- Compensation of officers, directors and key employees
- $0
- Occupancy
- $639
- Other expenses
- $34,183
Balance sheet and other
- Total assets, start of year
- $0
- Total assets, end of year
- $90,237
- Total liabilities, end of year
- $0
- Net assets, end of year
- $90,237
- Cash, savings and investments
- $89,237
- Gross receipts
- $121,787
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LINDA MATT | VP & TREASURER | 5 | $0 |
| LORI ANDRE | SECRETARY | 3 | $0 |
| LORI HELLER | MEMBER | 3 | $0 |
| NADIA SETHI | CHAIRMAN | 10 | $0 |
Address and contacts
- Address (IRS master file)
- 10 E YANONALI ST, SANTA BARBARA, CA 93101-1875
- Signed the 990-EZ
- LINDA MATT, CO-FOUNDER
- Phone
- (805) 232-4567
- Return prepared by
- APRIO ADVISORY GROUP LLC
California records
California keeps its own records of charities and corporations. Search them by EIN 39-3005160 or by the name NORTH STAR ALS INC.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
NORTH STAR ALS IS THE INDEPENDENT SCIENCE HUB FOR THE ALS COMMUNITY. NORTH STAR ALS IS DEDICATED TO CONNECTING PEOPLE AFFECTED BY ALS WITH EVERY ASPECT OF RESEARCH.WE HELP ALS FAMILIES:-UNDERSTAND HOW TO ACCESS AND PARTICIPATE IN RESEARCH-ADVOCATE FOR BETTER STUDY DESIGNS-SHARE COMMUNITY INSIGHTS TO ELEVATE LIVED EXPERIENCE THROUGHOUT THE RESEARCH ECOSYSTEM
Program accomplishments
- PATIENT & CAREGIVER RESEARCH EDUCATION - DEVELOPMENT AND DELIVERY OF EDUCATIONAL PROGRAMMING TO HELP INDIVIDUALS AFFECTED BY ALS UNDERSTAND AND NAVIGATE RESEARCH AND CLINICAL TRIAL OPPORTUNITIES. ACTIVITIES INCLUDE WEBINARS, DIGITAL RESOURCES, AND INFORMATIONAL CONTENT THAT TRANSLATE COMPLEX SCIENTIFIC DEVELOPMENTS INTO CLEAR, ACCESSIBLE, AND ACTIONABLE INFORMATION FOR PATIENTS AND FAMILIES.
- PUBLIC EDUCATION & RESEARCH AWARENESS - DISSEMINATION OF EDUCATIONAL CONTENT FOCUSED ON ALS RESEARCH THROUGH NEWSLETTERS, SOCIAL MEDIA, AND OTHER DIGITAL PLATFORMS. THESE EFFORTS INCREASE PUBLIC UNDERSTANDING OF ONGOING RESEARCH, EMERGING SCIENTIFIC FINDINGS, AND OPPORTUNITIES FOR ENGAGEMENT, WITH THE GOAL OF IMPROVING RESEARCH LITERACY AND PARTICIPATION WITHIN THE ALS COMMUNITY.
- PATIENT INSIGHT INTEGRATION & RESEARCH COLLABORATION - FACILITATION OF STRUCTURED OPPORTUNITIES FOR INDIVIDUALS AFFECTED BY ALS TO SHARE LIVED EXPERIENCES AND PERSPECTIVES TO INFORM RESEARCH. ACTIVITIES INCLUDE COLLABORATIONS WITH ACADEMIC AND INDUSTRY RESEARCHERS TO ENSURE THAT PATIENT INSIGHTS ARE INCORPORATED INTO STUDY DESIGN, RECRUITMENT STRATEGIES, AND BROADER RESEARCH EFFORTS, IN ALIGNMENT WITH THE ORGANIZATION'S CHARITABLE AND EDUCATIONAL MISSION.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | Check at the IRS |
| 2023 | December 31, 2023 | May 15, 2024 | Check at the IRS |
IRS record
- EIN
- 39-3005160
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2026
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H50)
- Assets (IRS master file)
- $90,237
- Income (IRS master file)
- $121,787
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $121,787 | $34,822 | $90,237 | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 39-3005160).
Questions about NORTH STAR ALS INC
- What is the EIN of NORTH STAR ALS INC?
- The employer identification number (EIN) of NORTH STAR ALS INC is 39-3005160.
- Is NORTH STAR ALS INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2026.
- Are donations to NORTH STAR ALS INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NORTH STAR ALS INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NORTH STAR ALS INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NORTH STAR ALS INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of NORTH STAR ALS INC?
- The 990-EZ for the year ended December 31, 2025 lists 4 people; 0 received compensation from the organization.
- How much revenue does NORTH STAR ALS INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $121,787, expenses of $34,822 and total assets of $90,237 at year end.
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