Nonprofit · EIN 36-4253176
CITIZENS UNITED FOR RESEARCH IN EPILEPSY
Tax-exempt · CHICAGO, IL 60611
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $4,989,172 | $5,529,185 | -$540,013 | $10,409,120 | $3,714,249 | $6,694,871 |
| December 31, 2024 | 990 | $6,050,647 | $6,196,609 | -$145,962 | $10,689,964 | $3,693,856 | $6,996,108 |
| December 31, 2023 | 990 | $6,183,163 | $5,993,350 | $189,813 | $10,587,072 | $3,627,120 | $6,959,952 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $4,941,461
- of which government grants
- $245,669
- Program service revenue
- $0
- Investment income
- $567,508
- Net gain from sales of assets
- $328,424
- Net income from fundraising events
- -$519,797
- Other revenue
- -$519,797
Expenses
- Grants and similar amounts paid
- $2,274,098
- Compensation of officers, directors and key employees
- $379,849
- Other salaries and wages
- $1,541,279
- Salaries, compensation and benefits (total)
- $2,332,251
- Professional fundraising fees
- $0
- Accounting fees
- $17,200
- Occupancy
- $113,737
- Travel
- $50,898
- Depreciation
- $19,843
- Program services (functional)
- $4,496,228
- Management and general (functional)
- $325,242
- Fundraising (functional)
- $707,715
Balance sheet and other
- Total assets, start of year
- $10,689,964
- Total assets, end of year
- $10,409,120
- Total liabilities, end of year
- $3,714,249
- Net assets, end of year
- $6,694,871
- Land, buildings and equipment
- $126,813
- Publicly traded securities
- $8,185,042
- Net assets without donor restrictions
- $5,235,674
- Net assets with donor restrictions
- $1,459,197
- Gross receipts
- $6,719,515
- Employees
- 20
- Volunteers
- 330
- Year formed
- 1998
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Beth Dean | CEO Officer, Highest-paid employee | 37.5 | $344,007 |
| Laura Lubbers | CSO Officer, Highest-paid employee | 37.5 | $343,883 |
| Alysha Biehl | Director of Development Highest-paid employee | 37.5 | $170,346 |
| Dana Vielmetti | Director of Marketing and Communications Highest-paid employee | 37.5 | $164,251 |
| Priya Balasurbramanian | Director of Research Highest-paid employee | 37.5 | $138,007 |
| Elaine O'Loughlin | Associate Director of Research Initiatives Highest-paid employee | 37.5 | $134,338 |
| John Anderluh | CFO Officer | 30 | $106,400 |
| Angela Mota | Director of Major Gifts Highest-paid employee | 37.5 | $100,904 |
| Lisa Cotton | Immediate Past Chair Trustee or director | 4 | $0 |
| Shalee Cunneen | Secretary Trustee or director, Officer | 4 | $0 |
| Steve Austin | Director Trustee or director | 2 | $0 |
| Irina Colon | Director Trustee or director | 1 | $0 |
| Kim Borden | Director Trustee or director | 2 | $0 |
| Roger Heldman | Treasurer Trustee or director, Officer | 4 | $0 |
| Carrie Garman | Director Trustee or director | 1 | $0 |
9 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Maureen Flood Rabus | Director Trustee or director | 1 | $0 |
| David Reifman | Director Trustee or director | 1 | $0 |
| Walter Kelly | Director Trustee or director | 1 | $0 |
| Matt Schneider | Director Trustee or director | 4 | $0 |
| Kelly Cervantes | Director Trustee or director | 4 | $0 |
| Michael Alexrod | Director Trustee or director | 1 | $0 |
| Greg Mayes | Director Trustee or director | 1 | $0 |
| Jonathan Tuteur | Director Trustee or director | 4 | $0 |
| Justin Gover | Chair Trustee or director, Officer | 6 | $0 |
990 for the year ended December 31, 2024: 20 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Beth Dean | CEO Officer | 37.5 | $329,727 | $39,754 |
| Laura Lubbers | CSO Highest-paid employee | 37.5 | $330,864 | $18,085 |
| Alysha BIehl | Director of Development Highest-paid employee | 37.5 | $164,737 | $13,101 |
| John Anderluh | CFO Officer | 37.5 | $115,356 | $3,884 |
| Lisa Cotton | Chair Trustee or director, Officer | 4 | $0 | $0 |
| Shalee Cunneen | Secretary Trustee or director, Officer | 3 | $0 | $0 |
| Kathy McKenna | Treasurer Trustee or director, Officer | 4 | $0 | $0 |
| Steve Austin | Director Trustee or director | 2 | $0 | $0 |
| Irina Colon | Director Trustee or director | 2 | $0 | $0 |
| Kim Borden | Director Trustee or director | 2 | $0 | $0 |
| Roger Heldman | Director Trustee or director | 2 | $0 | $0 |
| Carrie Garman | Director Trustee or director | 2 | $0 | $0 |
| Maureen Flood Rabus | Director Trustee or director | 2 | $0 | $0 |
| David Reifman | Director Trustee or director | 2 | $0 | $0 |
| Walter Kelly | Director Trustee or director | 2 | $0 | $0 |
| Matt Schneider | Director Trustee or director | 2 | $0 | $0 |
| Hannah Whitten | Director Trustee or director | 2 | $0 | $0 |
| Kelly Cervantes | Director Trustee or director | 2 | $0 | $0 |
| Justin Gover | Chair Elect Trustee or director, Officer | 2 | $0 | $0 |
| Michael Alexrod | Director Trustee or director | 2 | $0 | $0 |
990 for the year ended December 31, 2023: 21 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Beth Dean | CEO Officer | 37.5 | $314,565 | $38,569 |
| Laura Lubbers | Chief Scientific Officer Key employee | 37.5 | $316,541 | $17,360 |
| Alysha Biehl | Sr. Director Development Highest-paid employee | 37.5 | $156,866 | $14,647 |
| Dana Vielmetti | Director, Marketing Highest-paid employee | 37.5 | $146,627 | $3,294 |
| Priya Balasubramanian | Assoc Director of Research Highest-paid employee | 37.5 | $120,444 | $26,176 |
| John Anderluh | CFO Officer | 37.5 | $116,125 | $28,915 |
| Lisa Cotton | Chair Trustee or director, Officer | 4 | $0 | $0 |
| Shalee Cunneen | Secretary Trustee or director, Officer | 3 | $0 | $0 |
| Kathy McKenna | Treasurer Trustee or director, Officer | 4 | $0 | $0 |
| Steve Austin | Director Trustee or director | 2 | $0 | $0 |
| Mike Axelrod | Director Trustee or director | 2 | $0 | $0 |
| Kim Borden | Director Trustee or director | 2 | $0 | $0 |
| Marilynn Gardner | Director Trustee or director | 2 | $0 | $0 |
| Carrie Garman | Director Trustee or director | 2 | $0 | $0 |
| Justin Gover | Director Trustee or director | 2 | $0 | $0 |
| David Reifman | Director Trustee or director | 2 | $0 | $0 |
| Tina Sacks | Director Trustee or director | 2 | $0 | $0 |
| Matt Schneider | Director Trustee or director | 3 | $0 | $0 |
| Hannah Whitten | Director Trustee or director | 2 | $0 | $0 |
| Irina Colon | Director Trustee or director | 2 | $0 | $0 |
| Kelly Cervantes | Director Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 420 N WABASH AVE STE 650, CHICAGO, IL 60611-3589
- Principal officer (990 for 2025)
- Beth Dean, 420 N Wabash Ave STE 650, Chicago, IL 60611
- Signed the 990
- Beth Dean, CEO
- Phone
- (312) 255-1801
- Website
- www.cureepilepsy.org
- Return prepared by
- Eccezion
Mission
To find a cure for epilepsy by promoting and funding patient focused research.
Program accomplishments
- Since its inception in 1998, CURE Epilepsy has raised more than 100 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy, post-traumatic epilepsy, treatment resistant epilepsies, sudden unexplained death in epilepsy SUDEP, and sleep and epilepsy advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures, CURE Epilepsy funds grants for young and established investigators and to date has awarded more than 300 grants in 19 countries around the world.Expenses $3,497,893
- CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness.Expenses $998,335
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 36-4253176
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1999
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H125)
- Assets (IRS master file)
- $10,409,120
- Income (IRS master file)
- $6,719,515
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $4,989,172 | $5,529,185 | $10,409,120 | XML |
| 990 | December 2024 | $6,050,647 | $6,196,609 | $10,689,964 | XML |
| 990 | December 2023 | $6,183,163 | $5,993,350 | $10,587,072 | XML |
| 990 | December 2022 | $6,231,376 | $5,793,113 | $10,154,743 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 36-4253176).
Questions about CITIZENS UNITED FOR RESEARCH IN EPILEPSY
- What is the EIN of CITIZENS UNITED FOR RESEARCH IN EPILEPSY?
- The employer identification number (EIN) of CITIZENS UNITED FOR RESEARCH IN EPILEPSY is 36-4253176.
- Is CITIZENS UNITED FOR RESEARCH IN EPILEPSY tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1999.
- Are donations to CITIZENS UNITED FOR RESEARCH IN EPILEPSY tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CITIZENS UNITED FOR RESEARCH IN EPILEPSY file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CITIZENS UNITED FOR RESEARCH IN EPILEPSY due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CITIZENS UNITED FOR RESEARCH IN EPILEPSY last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CITIZENS UNITED FOR RESEARCH IN EPILEPSY?
- The 990 for the year ended December 31, 2025 names Beth Dean.
- Who are the officers and directors of CITIZENS UNITED FOR RESEARCH IN EPILEPSY?
- The 990 for the year ended December 31, 2025 lists 24 people; 8 received compensation from the organization, the highest $344,007 (Beth Dean, CEO).
- How much revenue does CITIZENS UNITED FOR RESEARCH IN EPILEPSY have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $4,989,172, expenses of $5,529,185 and total assets of $10,409,120 at year end.
Other nonprofits in CHICAGO
- STANLEY MANNE CHILDRENS RESEARCH INSTITUTE EIN 36-3357005 · last filed 990 for 2025
- ALLIANCE FOR CLINICAL TRIALS IN ONCOLOGY FOUNDATION EIN 02-0464400 · last filed 990 for 2024
- LUNGEVITY FOUNDATION EIN 36-4433410 · last filed 990 for 2025
- GATEWAY FOR CANCER RESEARCH INC EIN 73-1386920 · last filed 990 for 2025
- AMERICAN SOCIETY FOR TRANSPLANTATION & CELLULAR THERAPY EIN 52-1850793 · last filed 990 for 2024
- AMERICAN BURN ASSOCIATION INC EIN 36-2654533 · last filed 990 for 2024
- AMERICAN BOARD OF MEDICAL SPECIALTIES RESEARCH & EDUCATION F EIN 23-7304902 · last filed 990 for 2025
- AMERICAN FOUNDATION FOR SURGERY OF THE HAND EIN 74-2428242 · last filed 990 for 2024