Skip to main content

Nonprofit · EIN 33-2385692

THE MEF2C FAMILY FOUNDATION

Tax-exempt · GLASTONBURY, CT 06033

Financials

$266K$94K2025
Revenue Expenses · by fiscal year end
Financials of THE MEF2C FAMILY FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
March 31, 2026990$265,855$93,522$172,333$181,951$0$181,951
Financial details: 990 for the year ended March 31, 2026

Revenue

Contributions, gifts and grants
$265,010
Program service revenue
$0
Investment income
$845
Other revenue
$0

Expenses

Grants and similar amounts paid
$88,911
Compensation of officers, directors and key employees
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Legal fees
$1,593
Program services (functional)
$89,866
Management and general (functional)
$3,656

Balance sheet and other

Total assets, start of year
$9,618
Total assets, end of year
$181,951
Total liabilities, end of year
$0
Net assets, end of year
$181,951
Net assets without donor restrictions
$181,951
Gross receipts
$265,855
Employees
0
Volunteers
6
Year formed
2024
State of legal domicile
CT

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended March 31, 2026, highest compensation first.

NameTitleHours / weekCompensation
Aleah VickersBoard Chair
Trustee or director
10$0
Meredith San AntonioDirector
Trustee or director
10$0
Caroline ClaflinDirector
Trustee or director
10$0
Erin KindrachukDirector
Trustee or director
10$0
Stephanie FitzpatrickDirector
Trustee or director
10$0
Chris KnihnitskiOfficer
Officer
10$0

Address and contacts

Address (IRS master file)
2389 MAIN ST, GLASTONBURY, CT 06033-4617
Principal officer (990 for 2025)
Aleah Vickers, 7 Evergreen Way, Sleepy Hollow, NY 10591
Signed the 990
Aleah Vickers, Director of Operations
Phone
(954) 695-4441

Mission

We connect, support, and empower families who have loved ones with MEF2C-related disorders. We are also advocates for curing this rare disease, and aim to connect clinicians, researchers, and biotech companies with our patient population.

990 for the year ended March 31, 2026

Program accomplishments

  • Entered into a Sponsored Research Agreement (SRA) with the University of Texas Southwestern (UTSW) Medical Center to fund preclinical gene therapy research for MEF2C Haploinsufficiency Syndrome. During the tax year, the research team successfully completed Milestone 1 by designing, developing, and validating the novel AAV9fyhr viral vector expressing the MEF2C gene. This work establishes the essential vector construct required for downstream efficacy and safety testing aimed at advancing disease modifying therapies toward clinical trials.
    Expenses $88,911 · grants $88,911
  • Executed educational, promotional, and advocacy initiatives directed to the patient community, clinical stakeholders, and the broader public. Program activities focused on raising awareness of MEF2C Haploinsufficiency Syndrome, advocating for affected individuals and families, expanding patient registry participation, and connecting the rare disease community with critical scientific and medical resources.
    Expenses $955

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in March, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025March 31, 2026August 17, 2026990 on file
2024March 31, 2025August 15, 2025Check at the IRS
2023March 31, 2024August 15, 2024Check at the IRS

IRS record

EIN
33-2385692
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2025
Accounting year ends
March
Files
Form 990 or 990-EZ
Assets (IRS master file)
$181,951
Income (IRS master file)
$265,855

Filing history

FormYear endedRevenueExpensesAssetsReturn
990March 2026$265,855$93,522$181,951XML

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 33-2385692).

Questions about THE MEF2C FAMILY FOUNDATION

What is the EIN of THE MEF2C FAMILY FOUNDATION?
The employer identification number (EIN) of THE MEF2C FAMILY FOUNDATION is 33-2385692.
Is THE MEF2C FAMILY FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2025.
Are donations to THE MEF2C FAMILY FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does THE MEF2C FAMILY FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of THE MEF2C FAMILY FOUNDATION due?
The return for tax year 2026 (the year ending March 31, 2027) is due August 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did THE MEF2C FAMILY FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended March 2026.
Who is the principal officer of THE MEF2C FAMILY FOUNDATION?
The 990 for the year ended March 31, 2026 names Aleah Vickers.
Who are the officers and directors of THE MEF2C FAMILY FOUNDATION?
The 990 for the year ended March 31, 2026 lists 6 people; 0 received compensation from the organization.
How much revenue does THE MEF2C FAMILY FOUNDATION have?
On its 990 for the year ended March 31, 2026 it reported revenue of $265,855, expenses of $93,522 and total assets of $181,951 at year end.

Other nonprofits in GLASTONBURY

All nonprofits in GLASTONBURY · Connecticut · Voluntary health associations and medical disciplines