Nonprofit · EIN 33-2385692
THE MEF2C FAMILY FOUNDATION
Tax-exempt · GLASTONBURY, CT 06033
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| March 31, 2026 | 990 | $265,855 | $93,522 | $172,333 | $181,951 | $0 | $181,951 |
Financial details: 990 for the year ended March 31, 2026
Revenue
- Contributions, gifts and grants
- $265,010
- Program service revenue
- $0
- Investment income
- $845
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $88,911
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $1,593
- Program services (functional)
- $89,866
- Management and general (functional)
- $3,656
Balance sheet and other
- Total assets, start of year
- $9,618
- Total assets, end of year
- $181,951
- Total liabilities, end of year
- $0
- Net assets, end of year
- $181,951
- Net assets without donor restrictions
- $181,951
- Gross receipts
- $265,855
- Employees
- 0
- Volunteers
- 6
- Year formed
- 2024
- State of legal domicile
- CT
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended March 31, 2026, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Aleah Vickers | Board Chair Trustee or director | 10 | $0 |
| Meredith San Antonio | Director Trustee or director | 10 | $0 |
| Caroline Claflin | Director Trustee or director | 10 | $0 |
| Erin Kindrachuk | Director Trustee or director | 10 | $0 |
| Stephanie Fitzpatrick | Director Trustee or director | 10 | $0 |
| Chris Knihnitski | Officer Officer | 10 | $0 |
Address and contacts
- Address (IRS master file)
- 2389 MAIN ST, GLASTONBURY, CT 06033-4617
- Principal officer (990 for 2025)
- Aleah Vickers, 7 Evergreen Way, Sleepy Hollow, NY 10591
- Signed the 990
- Aleah Vickers, Director of Operations
- Phone
- (954) 695-4441
Mission
We connect, support, and empower families who have loved ones with MEF2C-related disorders. We are also advocates for curing this rare disease, and aim to connect clinicians, researchers, and biotech companies with our patient population.
Program accomplishments
- Entered into a Sponsored Research Agreement (SRA) with the University of Texas Southwestern (UTSW) Medical Center to fund preclinical gene therapy research for MEF2C Haploinsufficiency Syndrome. During the tax year, the research team successfully completed Milestone 1 by designing, developing, and validating the novel AAV9fyhr viral vector expressing the MEF2C gene. This work establishes the essential vector construct required for downstream efficacy and safety testing aimed at advancing disease modifying therapies toward clinical trials.Expenses $88,911 · grants $88,911
- Executed educational, promotional, and advocacy initiatives directed to the patient community, clinical stakeholders, and the broader public. Program activities focused on raising awareness of MEF2C Haploinsufficiency Syndrome, advocating for affected individuals and families, expanding patient registry participation, and connecting the rare disease community with critical scientific and medical resources.Expenses $955
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in March, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | March 31, 2026 | August 17, 2026 | 990 on file |
| 2024 | March 31, 2025 | August 15, 2025 | Check at the IRS |
| 2023 | March 31, 2024 | August 15, 2024 | Check at the IRS |
IRS record
- EIN
- 33-2385692
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2025
- Accounting year ends
- March
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $181,951
- Income (IRS master file)
- $265,855
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | March 2026 | $265,855 | $93,522 | $181,951 | XML |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 33-2385692).
Questions about THE MEF2C FAMILY FOUNDATION
- What is the EIN of THE MEF2C FAMILY FOUNDATION?
- The employer identification number (EIN) of THE MEF2C FAMILY FOUNDATION is 33-2385692.
- Is THE MEF2C FAMILY FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2025.
- Are donations to THE MEF2C FAMILY FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE MEF2C FAMILY FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE MEF2C FAMILY FOUNDATION due?
- The return for tax year 2026 (the year ending March 31, 2027) is due August 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE MEF2C FAMILY FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended March 2026.
- Who is the principal officer of THE MEF2C FAMILY FOUNDATION?
- The 990 for the year ended March 31, 2026 names Aleah Vickers.
- Who are the officers and directors of THE MEF2C FAMILY FOUNDATION?
- The 990 for the year ended March 31, 2026 lists 6 people; 0 received compensation from the organization.
- How much revenue does THE MEF2C FAMILY FOUNDATION have?
- On its 990 for the year ended March 31, 2026 it reported revenue of $265,855, expenses of $93,522 and total assets of $181,951 at year end.
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