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Nonprofit · EIN 33-1029337

NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM

Tax-exempt · YORBA LINDA, CA 92886

Financials

$216K$143K2023$434K$437K2024
Revenue Expenses · by fiscal year end
Financials of NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$433,762$437,177-$3,415$511,624$0$511,624
December 31, 2023990$215,829$142,994$72,835$515,039$0$515,039
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$125,540
Membership dues
$28,329
Program service revenue
$210,906
Investment income
$27,120
Net income from fundraising events
$70,196
Other revenue
$70,196

Expenses

Grants and similar amounts paid
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Accounting fees
$1,050
Occupancy
$5,320
Travel
$4,720
Program services (functional)
$392,201
Management and general (functional)
$39,558
Fundraising (functional)
$5,418

Balance sheet and other

Total assets, start of year
$515,039
Total assets, end of year
$511,624
Total liabilities, end of year
$0
Net assets, end of year
$511,624
Publicly traded securities
$358,224
Net assets without donor restrictions
$491,624
Net assets with donor restrictions
$20,000
Gross receipts
$438,507
Employees
0
Volunteers
30
Year formed
2005
State of legal domicile
MN

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
DEONA KALALAPRESIDENT
Trustee or director, Officer
3$0
DAVE O'BRIENVICE PRESIDENT
Trustee or director, Officer
3$0
NATALIE ERBSECRETARY
Trustee or director, Officer
3$0
KEVIN HIGHTTREASURER
Trustee or director, Officer
3$0
HEATHER BAHORICHDIRECTOR
Trustee or director
1$0
WARREN BROWNDIRECTOR
Trustee or director
1$0
KATHERINE CLAXTONDIRECTOR
Trustee or director
1$0
ILANA DAVLINDIRECTOR
Trustee or director
1$0
THOMAS FREYDIRECTOR
Trustee or director
1$0
JENNIFER LITTLEDIRECTOR
Trustee or director
1$0
KIP ORENDIRECTOR
Trustee or director
1$0
DAX NORTONDIRECTOR
Trustee or director
1$0
LAYTON SHAFFNERDIRECTOR
Trustee or director
1$0
ELLIOTT SHERRDIRECTOR
Trustee or director
1$0
JASMIN TURNERDIRECTOR
Trustee or director
1$0
2 more people on this return
NameTitleHours / weekCompensation
LEANN SCHOUTENDIRECTOR
Trustee or director
1$0
MIKE MOLETTIEREDIRECTOR
Trustee or director
1$0
990 for the year ended December 31, 2023: 19 people
NameTitleHours / weekCompensation
LYNN SNYDERPRESIDENT
Trustee or director, Officer
3$0
KIP ORENVICE PRESIDE
Trustee or director, Officer
3$0
NATALIE ERBTREASURER
Trustee or director, Officer
3$0
AL CORDASCOSECRETARY
Trustee or director, Officer
3$0
KATHERINE CLAXTONDIRECTOR
Trustee or director
1$0
DON PETERSONDIRECTOR
Trustee or director
1$0
WARREN BROWNDIRECTOR
Trustee or director
1$0
ORLY RUMBERGDIRECTOR
Trustee or director
1$0
MIKE MOLETTIEREDIRECTOR
Trustee or director
1$0
LAYTON SHAFFNERDIRECTOR
Trustee or director
1$0
MARYLEE O'BRIENDIRECTOR
Trustee or director
1$0
ELLIOTT SHERRDIRECTOR
Trustee or director
1$0
THOMAS FREYDIRECTOR
Trustee or director
1$0
LEANN SCHOUTENDIRECTOR
Trustee or director
1$0
KEVIN HIGHTDIRECTOR
Trustee or director
1$0
IIANA DAVLINDIRECTOR
Trustee or director
1$0
STEVE JENKINSDIRECTOR
Trustee or director
1$0
DEONA KALALADIRECTOR
Trustee or director
1$0
JENNIFER LITTLEDIRECTOR
Trustee or director
1$0

Address and contacts

Address (IRS master file)
18032 LEMON DR STE C PMB 363, YORBA LINDA, CA 92886-3386
In care of
% LYNN K PAUL
Principal officer (990 for 2024)
DEONA KALALA
Signed the 990
DEONA KALALA, PRESIDENT
Phone
(714) 813-1393
Return prepared by
MAULDIN & JENKINS LLC

California records

California keeps its own records of charities and corporations. Search them by EIN 33-1029337 or by the name NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM.

Attorney General, Registry of Charities and Fundraisers
Registration status and filed reports (CT-TR-1, RRF-1)

Mission

THE NODCC HAS BECOME THE LEADING NONPROFIT ORGANIZATION FOR THE DISORDERS OF THE CORPUS CALLOSUM AND IS DEDICATED TO RAISING THE PROFILE, UNDERSTANDING AND ACCEPTANCE OF THESE DISORDERS THROUGH EDUCATION, NETWORKING, ADVOCACY AND BEING A CATALYST FOR RESEARCH.

990 for the year ended December 31, 2024

Program accomplishments

  • THE NODCC HAS SEVERAL OUTREACH PROGRAMS TO HELP RAISE THE AWARENESS AND IMPROVE EDUCATION AMONG THE STAKEHOLDERS IN THE COMMUNITY. WE HOST EDUCATIONAL EXHIBITS AT PROFESSIONAL MEDICAL CONFERENCES & HOST MONTHLY VIRTUAL MEETINGS FOR PARENTS/CAREGIVERS AND ADJULTS WITH DCC IN OUR COMMUNITY.
    Expenses $32,920 · revenue $1,301
  • THE NODCC IS DEEPLY COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY A DISORDER OF THE CORPUS CALLOSUM BY PROVIDING DIRECT SUPPORT AS WELL AS EDUCATIONAL RESOURCES IN COLLABORATION WITH A WIDE RANGE OF STAKEHOLDERS TO RAISE AWARENESS AND KNOWLEDGE. IN 2024, NODCC STAFF PROVIDED ONE ON ONE SUPPORT THROUGH PHONE CALLS, EMAILS AND INTERACTIONS ON SOCIAL MEDIA. WE PROVIDED WELCOME PACKETS TO NEWLY DIAGNOSED FAMILIES. WE MAINTAIN AN INCREASING NUMBER OF RESOURCES ON OUR WEBSITE, BROCHURE, EDUCATIONAL BOOKLETS, AND EDUCATIONAL VIDEOS ON YOUTUBE.
    Expenses $62,895
  • THE NODCC CONFERENCE AND REGIONAL MEETINGS ARE A WAY OF PROVIDING SUPPORT AND COMMUNITY TO OUR FAMILIES AFFECTED BY DCC.
    Expenses $296,386 · revenue $209,605

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
33-1029337
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2003
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H48)
Assets (IRS master file)
$511,624
Income (IRS master file)
$438,507

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$433,762$437,177$511,624XML
990December 2023$215,829$142,994$515,039XML
990December 2022$339,472$360,614$435,215IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS
990December 2017–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 33-1029337).

Questions about NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM

What is the EIN of NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM?
The employer identification number (EIN) of NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM is 33-1029337.
Is NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2003.
Are donations to NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM?
The 990 for the year ended December 31, 2024 names DEONA KALALA.
Who are the officers and directors of NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM?
The 990 for the year ended December 31, 2024 lists 17 people; 0 received compensation from the organization.
How much revenue does NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM have?
On its 990 for the year ended December 31, 2024 it reported revenue of $433,762, expenses of $437,177 and total assets of $511,624 at year end.

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