Nonprofit · EIN 33-0879421
NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION
Tax-exempt · FOUNTAIN VLY, CA 92708
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| September 30, 2025 | 990 | $54,564 | $231,431 | -$176,867 | $94,045 | $0 | $94,045 |
| September 30, 2024 | 990 | $69,741 | $197,614 | -$127,873 | $270,912 | $0 | $270,912 |
| September 30, 2023 | 990 | $436,033 | $183,921 | $252,112 | $398,785 | $0 | $398,785 |
Financial details: 990 for the year ended September 30, 2025
Revenue
- Contributions, gifts and grants
- $54,557
- Membership dues
- $5,000
- Program service revenue
- $0
- Investment income
- $7
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Other salaries and wages
- $129,538
- Salaries, compensation and benefits (total)
- $139,672
- Professional fundraising fees
- $0
- Depreciation
- $26
- Program services (functional)
- $70,352
- Management and general (functional)
- $161,079
Balance sheet and other
- Total assets, start of year
- $270,912
- Total assets, end of year
- $94,045
- Total liabilities, end of year
- $0
- Net assets, end of year
- $94,045
- Land, buildings and equipment
- $1,083
- Net assets without donor restrictions
- $94,045
- Gross unrelated business income
- $7
- Gross receipts
- $54,564
- Employees
- 2
- Year formed
- 2012
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended September 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kenneth Price | President Officer | 0 | $0 |
| Karen Frei MD | Chariman Officer | 0 | $0 |
| Sandra Levine | Secretary Officer | 0 | $0 |
| Kenneth Price | Treasurer Officer | 0 | $0 |
| Justin Aquines | Treasurer Officer, Highest-paid employee | 0 | $0 |
990 for the year ended September 30, 2024: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kenneth Price | Treasurer Officer | 0 | $0 |
| Justin Aquines | Treasurer Officer, Highest-paid employee | 0 | $0 |
| Sandra Levine | Secretary Officer | 0 | $0 |
| Kenneth Price | President Officer | 0 | $0 |
| Karen Frei MD | Chariman Officer | 0 | $0 |
990 for the year ended September 30, 2023: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kenneth Price | Treasurer Officer | 0 | $0 |
| Justin Aquines | Treasurer Officer, Highest-paid employee | 0 | $0 |
| Sandra Levine | Secretary Officer | 0 | $0 |
| Kenneth Price | President Officer | 0 | $0 |
| Karen Frei MD | Chariman Officer | 0 | $0 |
Address and contacts
- Address (IRS master file)
- 9920 TALBERT AVE, FOUNTAIN VLY, CA 92708-5153
- In care of
- % JUSTIN AQUINES
- Principal officer (990 for 2024)
- Karen Frei MD, 11370 Anderson St Ste B 700, Loma Linda, CA 92354
- Signed the 990
- JUSTIN AQUINES, Officer
- Phone
- (657) 554-0661
- Website
- www.torticollis.org
- Return prepared by
- Joseph S Yung and Co
California records
California keeps its own records of charities and corporations. Search them by EIN 33-0879421 or by the name NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.
Program accomplishments
- A two-day conference for patients with neurologists and specialists presenting information on spasmodic torticollis, with social activities. Symposium 2025Expenses $40,313
- People who receive the ST Quarterly magazine use it as a continuous source of up-to-date information regarding spasmodic torticollis. From the information they learn through the articles written by medical professionals and people inflicted with ST, they are able to communicate clearly with the medical professionals involved with their healthcare. In addition to information, readers are using the magazine as a source of emotional support. They take comfort knowing there are people who understand what they are going through and there is a place to contact if they should ever need information or support.Expenses $11,333
- Hosted Three Fundraisers with the Parkinsons and Movement Disorder FoundationExpenses $9,820 · revenue $10,073
- Provided email support to people inquiring information on spasmodic torticollis. Provide information on YouTube, Facebook, & NSTA website about the condition.Expenses $8,886
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | September 30, 2026 | February 16, 2027 | Not due yet |
| 2024 | September 30, 2025 | February 17, 2026 | 990 on file |
| 2023 | September 30, 2024 | February 18, 2025 | 990 on file |
IRS record
- EIN
- 33-0879421
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2000
- Accounting year ends
- September
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G50)
- Assets (IRS master file)
- $94,045
- Income (IRS master file)
- $54,564
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | September 2025 | $54,564 | $231,431 | $94,045 | XML |
| 990-T | September 2025 | – | – | – | IRS |
| 990 | September 2024 | $69,741 | $197,614 | $270,912 | XML |
| 990-T | September 2024 | – | – | – | IRS |
| 990 | September 2023 | $436,033 | $183,921 | $398,785 | XML |
| 990-T | September 2023 | – | – | – | IRS |
| 990 | September 2022 | – | – | – | IRS |
| 990-T | September 2022 | – | – | – | IRS |
| 990 | September 2021 | – | – | – | IRS |
| 990 | September 2020 | – | – | – | IRS |
| 990 | September 2019 | – | – | – | IRS |
| 990 | September 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 33-0879421).
Questions about NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION
- What is the EIN of NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION?
- The employer identification number (EIN) of NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION is 33-0879421.
- Is NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2000.
- Are donations to NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION due?
- The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended September 2025.
- Who is the principal officer of NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION?
- The 990 for the year ended September 30, 2025 names Karen Frei MD.
- Who are the officers and directors of NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION?
- The 990 for the year ended September 30, 2025 lists 5 people; 0 received compensation from the organization.
- How much revenue does NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION have?
- On its 990 for the year ended September 30, 2025 it reported revenue of $54,564, expenses of $231,431 and total assets of $94,045 at year end.
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