Nonprofit · EIN 31-1763110
FOUNDATION FOR PRADER WILLI RESEARCH
Tax-exempt · COVINA, CA 91723
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $6,173,660 | $6,062,339 | $111,321 | $8,871,895 | $3,480,573 | $5,391,322 |
| December 31, 2023 | 990 | $6,535,580 | $6,352,142 | $183,438 | $9,519,457 | $4,227,228 | $5,292,229 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $5,412,703
- Program service revenue
- $186,058
- Investment income
- $495,956
- Net gain from sales of assets
- $36,062
- Net income from fundraising events
- $78,943
- Other revenue
- $78,943
Expenses
- Grants and similar amounts paid
- $3,413,154
- Compensation of officers, directors and key employees
- $132,351
- Other salaries and wages
- $952,360
- Salaries, compensation and benefits (total)
- $1,181,179
- Professional fundraising fees
- $0
- Legal fees
- $2,475
- Accounting fees
- $82,596
- Occupancy
- $53,801
- Travel
- $74,384
- Depreciation
- $2,047
- Program services (functional)
- $5,303,789
- Management and general (functional)
- $396,156
- Fundraising (functional)
- $362,394
Balance sheet and other
- Total assets, start of year
- $9,519,457
- Total assets, end of year
- $8,871,895
- Total liabilities, end of year
- $3,480,573
- Net assets, end of year
- $5,391,322
- Land, buildings and equipment
- $4,850
- Publicly traded securities
- $1,267
- Net assets without donor restrictions
- $5,391,322
- Gross receipts
- $10,397,765
- Employees
- 13
- Volunteers
- 50
- Year formed
- 2001
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| THERESA STRONG | DIRECTOR OF RESEARCH PROGR Highest-paid employee | 40 | $173,430 |
| SUSAN HEDSTROM | EXECUTIVE DIRECTOR Officer | 35 | $132,351 |
| PAUL WISSMAN | CHAIRPERSON Trustee or director, Officer | 1 | $0 |
| JUSTIN NELSON | VICE CHAIRPERSON Trustee or director, Officer | 0.5 | $0 |
| AMBER ROBERSON | SECRETARY Trustee or director, Officer | 0.5 | $0 |
| BRIAN CARUCCI | TREASURER Trustee or director, Officer | 0.5 | $0 |
| ANNAMARIE HUTTUNEN | DIRECTOR Trustee or director | 0.5 | $0 |
| KARINE KABUNDI | DIRECTOR Trustee or director | 0.5 | $0 |
| KRISTIN WHITE | DIRECTOR Trustee or director | 0.5 | $0 |
| MARK JOSEPH | DIRECTOR Trustee or director | 0.5 | $0 |
| MATT BLICKLEY | DIRECTOR Trustee or director | 0.5 | $0 |
| RENEE SNYDER | DIRECTOR Trustee or director | 0.5 | $0 |
| SCOTT ARANT | DIRECTOR Trustee or director | 0.5 | $0 |
990 for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| THERESA STRONG | DIRECTOR OF RESEARCH PROGR Highest-paid employee | 40 | $168,974 |
| SUSAN HEDSTROM | EXECUTIVE DIRECTOR Officer | 35 | $129,671 |
| PAUL WISSMAN | CHAIRPERSON Trustee or director, Officer | 1 | $0 |
| DREW HARMAN | VICE CHAIRPERSON Trustee or director, Officer | 0.5 | $0 |
| AMBER ROBERSON | SECRETARY Trustee or director, Officer | 0.5 | $0 |
| IAN ALBERG | DIRECTOR Trustee or director | 0.5 | $0 |
| SCOTT ARANT | DIRECTOR Trustee or director | 0.5 | $0 |
| BRIAN CARUCCI | TREASURER Trustee or director | 0.5 | $0 |
| JUSTIN NELSON | DIRECTOR Trustee or director | 0.5 | $0 |
| MIKE SIMS | DIRECTOR Trustee or director | 0.5 | $0 |
| RENAY SNYDER | DIRECTOR Trustee or director | 0.5 | $0 |
| KRISTIN WHITE | DIRECTOR Trustee or director | 0.5 | $0 |
Address and contacts
- Address (IRS master file)
- 440 N BARRANCA AVE 3620, COVINA, CA 91723-1722
- In care of
- % ANNE FREIERMUTH
- Principal officer (990 for 2024)
- SUSAN HEDSTROM, 440 N BARRANCA AVE 3620, COVINA, CA 91723
- Signed the 990
- SUSAN HEDSTROM, EXECUTIVE DIRECTOR
- Phone
- (888) 322-5487
- Website
- WWW.FPWR.ORG
- Return prepared by
- KATZ CASSIDY AN ACCOUNTANCY CORPORATION
California records
California keeps its own records of charities and corporations. Search them by EIN 31-1763110 or by the name FOUNDATION FOR PRADER WILLI RESEARCH.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT.
Program accomplishments
- THROUGH THE IMPLEMENTATION OF TRANSLATIONAL RESEARCH PROGRAMS, THE MANAGEMENT OF A WORLD-CLASS GRANTS PROGRAM, AND THE DEVELOPMENT OF PRADER WILLI SYNDROME (PWS) RESEARCH TOOLS, THE FOUNDATION FOR PRADER-WILLI RESEARCH (FPWR) ADVANCES RESEARCH IN ORDER TO DEVELOP NEW TREATMENTS FOR PWS AND IMPROVE THE HEALTH AND WELL-BEING OF THOSE WITH PWS. UNDER THE GUIDANCE OF OUR SCIENTIFIC ADVISORY BOARD THROUGH A CAREFULLY MANAGED GRANTS PROCESS, FPWR SELECTS RESEARCH PROJECTS BASED ON THE COLLABORATIVE INPUT OF RESEARCHERS AND PARENTS, CHOOSING PROJECTS THAT ARE BOTH SCIENTIFICALLY MERITORIOUS AND HIGHLY RELEVANT FOR INDIVIDUALS WITH PWS AND THEIR FAMILIES.Expenses $5,303,789 · grants $3,413,154 · revenue $186,058
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 31-1763110
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2001
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $8,871,895
- Income (IRS master file)
- $10,397,765
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $6,173,660 | $6,062,339 | $8,871,895 | XML |
| 990 | December 2023 | $6,535,580 | $6,352,142 | $9,519,457 | XML |
| 990 | December 2022 | $5,083,937 | $5,088,497 | $8,344,580 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 31-1763110).
Questions about FOUNDATION FOR PRADER WILLI RESEARCH
- What is the EIN of FOUNDATION FOR PRADER WILLI RESEARCH?
- The employer identification number (EIN) of FOUNDATION FOR PRADER WILLI RESEARCH is 31-1763110.
- Is FOUNDATION FOR PRADER WILLI RESEARCH tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2001.
- Are donations to FOUNDATION FOR PRADER WILLI RESEARCH tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FOUNDATION FOR PRADER WILLI RESEARCH file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FOUNDATION FOR PRADER WILLI RESEARCH due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FOUNDATION FOR PRADER WILLI RESEARCH last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of FOUNDATION FOR PRADER WILLI RESEARCH?
- The 990 for the year ended December 31, 2024 names SUSAN HEDSTROM.
- Who are the officers and directors of FOUNDATION FOR PRADER WILLI RESEARCH?
- The 990 for the year ended December 31, 2024 lists 13 people; 2 received compensation from the organization, the highest $173,430 (THERESA STRONG, DIRECTOR OF RESEARCH PROGR).
- How much revenue does FOUNDATION FOR PRADER WILLI RESEARCH have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $6,173,660, expenses of $6,062,339 and total assets of $8,871,895 at year end.
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