Nonprofit · EIN 31-1630412
NORTH CAROLINA DOWN SYNDROME ALLIANCE INC
Tax-exempt · RALEIGH, NC 27616
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $655,510 | $633,957 | $21,553 | $273,701 | $58,065 | $215,636 |
| December 31, 2024 | 990 | $660,391 | $658,325 | $2,066 | $305,704 | $111,621 | $194,083 |
| December 31, 2023 | 990 | $420,752 | $419,109 | $1,643 | $206,120 | $10,757 | $195,363 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $633,281
- Program service revenue
- $19,247
- Investment income
- $2,982
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $86,800
- Other salaries and wages
- $161,230
- Salaries, compensation and benefits (total)
- $270,201
- Professional fundraising fees
- $0
- Accounting fees
- $15,387
- Occupancy
- $52,117
- Travel
- $11,094
- Depreciation
- $5,328
- Program services (functional)
- $455,438
- Management and general (functional)
- $94,132
- Fundraising (functional)
- $84,387
Balance sheet and other
- Total assets, start of year
- $305,704
- Total assets, end of year
- $273,701
- Total liabilities, end of year
- $58,065
- Net assets, end of year
- $215,636
- Land, buildings and equipment
- $8,450
- Gross receipts
- $655,510
- Employees
- 8
- Volunteers
- 252
- Year formed
- 1998
- State of legal domicile
- NC
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| AMY NAVEJAS | EXECUTIVE DIRECTOR Trustee or director, Officer | 1 | $86,800 |
| JEFF LINEBERRY | PRESIDENT Trustee or director, Officer | 0 | $0 |
| DIANE CAVANAGH | MEMBER Trustee or director | 0 | $0 |
| ADAM CATO | TREASURER Trustee or director, Officer | 0 | $0 |
| SANTO CAIVANO | VICE PRESIDENT Trustee or director, Officer | 0 | $0 |
| BETH COSGROVE | MEMBER Trustee or director | 0 | $0 |
| VICKI WRIGLEY | MEMBER Trustee or director | 0 | $0 |
| AMBER SCUTT-BROWN | MEMBER Trustee or director | 0 | $0 |
| HEATHER HARRELL | SECRETARY Trustee or director, Officer | 0 | $0 |
| JESSE FOWLER | MEMBER Trustee or director | 0 | $0 |
| BRYAN KING | MEMBER Trustee or director | 0 | $0 |
| PRIYANSH PATEL | MEMBER Trustee or director | 0 | $0 |
| JENNIFER GREEN | MEMBER Trustee or director | 0 | $0 |
| DAVID TRAN | MEMBER Trustee or director | 0 | $0 |
990 for the year ended December 31, 2024: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SANTO CAIVANO | VICE PRESIDE Trustee or director, Officer | – | $0 |
| ADAM CATO | BOD Trustee or director | – | $0 |
| DIANE CAVANAGH | BOD Trustee or director | – | $0 |
| BETH COSGROVE | BOD Trustee or director | – | $0 |
| JESSE FOWLER | BOD Trustee or director | – | $0 |
| JENNIFER GREEN | BOD Trustee or director, Officer | – | $0 |
| HEATHER HARRELL | SECRETARY Trustee or director, Officer | – | $0 |
| BRYAN KING | BOD Trustee or director | – | $0 |
| JEFF LINEBERRY | PRESIDENT Trustee or director, Officer | – | $0 |
| AMY NAVEJAS | EXECUTIVE DI Trustee or director, Officer | – | $0 |
| PRIYANSH PATEL | BOD Trustee or director, Officer | – | $0 |
| AMBER SCUTT-BROWN | BOD Trustee or director | – | $0 |
| KATE WESTMORELAND | BOD Trustee or director | – | $0 |
| VICKI WRIGLEY | BOD Trustee or director | – | $0 |
990 for the year ended December 31, 2023: 15 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DAWN DESOTO | ASSISTANT DI Trustee or director | 40 | $62,365 |
| AMY NAVEJAS | EXECUTIVE DI Trustee or director | 40 | $10,031 |
| JEFF LINEBERRY | PRESIDENT Trustee or director, Officer | 5 | $0 |
| ANTHONY NICHOLSON | VICE PRESIDE Trustee or director, Officer | 5 | $0 |
| ADAM CATO | TREASURER Trustee or director, Officer | 5 | $0 |
| MATT COOPER | SECRETARY Trustee or director, Officer | 5 | $0 |
| DIANE CAVANAGH | BOD Trustee or director | 2 | $0 |
| KATE WESTMORELAND | BOD Trustee or director | 2 | $0 |
| JASON HO | BOD Trustee or director | 2 | $0 |
| SANTO CAIVANO | BOD Trustee or director | 2 | $0 |
| BETH COSGROVE | BOD Trustee or director | 2 | $0 |
| VICKI WRIGLEY | BOD Trustee or director | 2 | $0 |
| NOEL MARSHALL | BOD Trustee or director | 2 | $0 |
| HEATHER HARRELL | BOD Trustee or director | 2 | $0 |
| TARA MOORE | PAST PRESIDE Trustee or director, Officer | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 2621 SPRING FOREST RD STE 102, RALEIGH, NC 27616-1830
- Principal officer (990 for 2025)
- AMY NAVEJAS, PO BOX 99562, RALEIGH, NC 27624
- Signed the 990
- AMY NAVEJAS, EXECUTIVE DIRECTOR
- Phone
- (984) 200-1193
- Website
- WWW.NCDSALLIANCE.ORG
- Return prepared by
- HAIGH BYRD & LAMBERT LLP
Mission
TO EMPOWER, CONNECT, AND SUPPORT THE LIFE SPAN OF INDIVIDUALS WITH DOWN SYNDROME, THEIR FAMILIES, AND THE COMMUNITY THROUGH OUTREACH, ADVOCACY, AND EDUCATION IN NORTH CAROLINA.
Program accomplishments
- OUR ORGANIZATION EDUCATES THE PUBLIC ABOUT DOWN SYNDROME, PROVIDES RESOURCES, NETWORKING OPPORTUNITIES, AND SUPPORT FOR INDIVIDUALS AND FAMILIES AFFECTED BY DOWN SYNDROME. WE ADVOCATE FOR QUALITY EDUCATION, SELF-ADVOCACY, POLICY CHANGE, MEDICAL SERVICES, RESEARCH, AND A JOYOUS WELCOME FOR BABIES BORN WITH DOWN SYNDROME ACROSS THE STATE.Expenses $455,438
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 31-1630412
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1999
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Human services (P82)
- Assets (IRS master file)
- $273,701
- Income (IRS master file)
- $655,510
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $655,510 | $633,957 | $273,701 | XML |
| 990 | December 2024 | $660,391 | $658,325 | $305,704 | IRS |
| 990 | December 2023 | $420,752 | $419,109 | $206,120 | XML |
| 990 | December 2022 | $454,079 | $421,552 | $203,282 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 31-1630412).
Questions about NORTH CAROLINA DOWN SYNDROME ALLIANCE INC
- What is the EIN of NORTH CAROLINA DOWN SYNDROME ALLIANCE INC?
- The employer identification number (EIN) of NORTH CAROLINA DOWN SYNDROME ALLIANCE INC is 31-1630412.
- Is NORTH CAROLINA DOWN SYNDROME ALLIANCE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1999.
- Are donations to NORTH CAROLINA DOWN SYNDROME ALLIANCE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NORTH CAROLINA DOWN SYNDROME ALLIANCE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NORTH CAROLINA DOWN SYNDROME ALLIANCE INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NORTH CAROLINA DOWN SYNDROME ALLIANCE INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of NORTH CAROLINA DOWN SYNDROME ALLIANCE INC?
- The 990 for the year ended December 31, 2025 names AMY NAVEJAS.
- Who are the officers and directors of NORTH CAROLINA DOWN SYNDROME ALLIANCE INC?
- The 990 for the year ended December 31, 2025 lists 14 people; 1 received compensation from the organization, the highest $86,800 (AMY NAVEJAS, EXECUTIVE DIRECTOR).
- How much revenue does NORTH CAROLINA DOWN SYNDROME ALLIANCE INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $655,510, expenses of $633,957 and total assets of $273,701 at year end.
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