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Nonprofit · EIN 30-0585106

ROTHMUND-THOMSON SYNDROME FOUNDATION

Tax-exempt · CHANTILLY, VA 20151

Financials

$48K$53K2023$56K$36K2024
Revenue Expenses · by fiscal year end
Financials of ROTHMUND-THOMSON SYNDROME FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
September 30, 2025990-EZ$55,899$35,560$20,339$74,975$0$74,975
September 30, 2024990-EZ$47,972$53,063-$5,091$54,636$0$54,636
Financial details: 990-EZ for the year ended September 30, 2025

Revenue

Contributions, gifts and grants
$49,079
Program service revenue
$0
Investment income
$0
Net income from fundraising events
$6,820
Other revenue
$0

Expenses

Grants and similar amounts paid
$32,977
Compensation of officers, directors and key employees
$0
Salaries, compensation and benefits (total)
$0
Printing, publications and postage
$291
Other expenses
$2,292
Program services (functional)
$32,977

Balance sheet and other

Total assets, start of year
$54,636
Total assets, end of year
$74,975
Total liabilities, end of year
$0
Net assets, end of year
$74,975
Cash, savings and investments
$74,975
Gross receipts
$61,869

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990-EZ for the year ended September 30, 2025, highest compensation first.

NameTitleHours / weekCompensation
Staci HansonChair10$0
Kara HansonTreasurer5$0
Bekkah BlankersVice Chair10$0
Tamara MadsenDirector5$0
Camille CarlsonSecretary5$0
Lisette RiggleDirector5$0
990-EZ for the year ended September 30, 2024: 10 people
NameTitleHours / weekCompensation
Laurie SperouVice-Chair10$0
Shelley SandersTreasurer10$0
Sylvie PlanteSecretary10$0
Sean McMurrayDirector10$0
Sheila TownsendDirecter5$0
Staci HansonChair15$0
Kara HansonDirector5$0
Bekkah BlankersDirector10$0
Tamara MadsenDirector5$0
Austin KimmelDirector5$0

Address and contacts

Address (IRS master file)
4307 WOODWARD CT, CHANTILLY, VA 20151-3647
In care of
% JOHN P KIMMEL
Mailing address (990-N for 2011)
4307 Woodward Court, Chantilly VA 20151
Principal officer (990-N for 2011)
John P Kimmel, 4307 Woodward Court, Chantilly VA 20151
Signed the 990-EZ
Staci Hanson, Chair
Phone
(703) 802-3167

Mission

Foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes

990-EZ for the year ended September 30, 2025

Program accomplishments

  • Provided a funding to Baylor College of Medicine to sponsor continued research on RTS and to fund RTS clinical studies and transfer of patient registry to Genial.
    Expenses $30,000
  • Sponsor a sharing and caring conference for RTS families and medical professionals.
    Expenses $1,477
  • Paid for a RTS video to be used for education and potential fundraising in the future.
    Expenses $1,500

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025September 30, 2026February 16, 2027Not due yet
2024September 30, 2025February 17, 2026990-EZ on file
2023September 30, 2024February 18, 2025990-EZ on file

IRS record

EIN
30-0585106
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2010
Accounting year ends
September
Files
Form 990 or 990-EZ
Assets (IRS master file)
$74,975
Income (IRS master file)
$61,869

Filing history

FormYear endedRevenueExpensesAssetsReturn
990-EZSeptember 2025$55,899$35,560$74,975XML
990-EZSeptember 2024$47,972$53,063$54,636XML
990-EZSeptember 2023–––IRS
990-EZSeptember 2022–––IRS
990-EZSeptember 2021–––IRS
990-EZSeptember 2020–––IRS
990-EZSeptember 2019–––IRS
990-EZSeptember 2018–––IRS
990-N for 2011
Officer: John P Kimmel
September 30, 2012≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 30-0585106).

Questions about ROTHMUND-THOMSON SYNDROME FOUNDATION

What is the EIN of ROTHMUND-THOMSON SYNDROME FOUNDATION?
The employer identification number (EIN) of ROTHMUND-THOMSON SYNDROME FOUNDATION is 30-0585106.
Is ROTHMUND-THOMSON SYNDROME FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2010.
Are donations to ROTHMUND-THOMSON SYNDROME FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does ROTHMUND-THOMSON SYNDROME FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of ROTHMUND-THOMSON SYNDROME FOUNDATION due?
The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did ROTHMUND-THOMSON SYNDROME FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990-EZ for the year ended September 2025.
Who is the principal officer of ROTHMUND-THOMSON SYNDROME FOUNDATION?
The 990-N for 2011 names John P Kimmel.
Who are the officers and directors of ROTHMUND-THOMSON SYNDROME FOUNDATION?
The 990-EZ for the year ended September 30, 2025 lists 6 people; 0 received compensation from the organization.
How much revenue does ROTHMUND-THOMSON SYNDROME FOUNDATION have?
On its 990-EZ for the year ended September 30, 2025 it reported revenue of $55,899, expenses of $35,560 and total assets of $74,975 at year end.

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