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Nonprofit · EIN 27-3646193

GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS

Tax-exempt · TULSA, OK 74127

Financials

$661K$840K2023$723K$1.2M2024
Revenue Expenses · by fiscal year end
Financials of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$722,979$1,194,522-$471,543$254,047$78,424$175,623
December 31, 2023990$660,533$840,138-$179,605$680,018$39,939$640,079
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$671,239
Program service revenue
$16,050
Investment income
$3,049
Net income from fundraising events
$24,539
Net income from sales of inventory
$2,788
Other revenue
$32,641

Expenses

Grants and similar amounts paid
$92,768
Compensation of officers, directors and key employees
$167,480
Other salaries and wages
$178,219
Salaries, compensation and benefits (total)
$377,140
Professional fundraising fees
$0
Accounting fees
$55,671
Occupancy
$18,022
Travel
$338,765
Depreciation
$2,691
Program services (functional)
$927,803
Management and general (functional)
$99,587
Fundraising (functional)
$167,132

Balance sheet and other

Total assets, start of year
$680,018
Total assets, end of year
$254,047
Total liabilities, end of year
$78,424
Net assets, end of year
$175,623
Land, buildings and equipment
$6,275
Net assets without donor restrictions
$175,623
Gross receipts
$745,845
Employees
3
Volunteers
120
Year formed
2010
State of legal domicile
OK

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
MADELEINE BRYCEDIRECTOR OF DEVELOPMENT
Officer
40$76,923
MELISSA BRYCEEXECUTIVE DIRECTOR 1/1-8/31
Officer
40$62,115
RYAN MAPLEEXECUTIVE DIRECTOR 9/1-12/31
Officer
40$28,442
CHRIS OSTERTAGCHAIR
Trustee or director, Officer
1$0
CHAD JOHNSONSECRETARY
Trustee or director, Officer
1$0
CORIN CHAPMANVICE CHAIR
Trustee or director, Officer
1$0
RYAN MAPLETREASURER 1/1 - 8/31
Trustee or director, Officer
1$0
SARA KEARTREASURER 9/1-12/31
Trustee or director, Officer
1$0
NATALIE CLOUSEDIRECTOR
Trustee or director
0.5$0
MADELINE CORRIGANDIRECTOR
Trustee or director
0.5$0
BRIAN TIMSDIRECTOR
Trustee or director
0.5$0
KELLY DAUER-HUBSCHMITTDIRECTOR
Trustee or director
0.5$0
DAVID LAPIDUSDIRECTOR
Trustee or director
0.5$0
JULIE GACNIKDIRECTOR
Trustee or director
0.5$0
ISABELLA PINADIRECTOR
Trustee or director
0.5$0
8 more people on this return
NameTitleHours / weekCompensation
LAUREN DRAPERDIRECTOR
Trustee or director
0.5$0
MEGHAN MEYERSDIRECTOR
Trustee or director
0.5$0
ANDREW LONGENECKERDIRECTOR
Trustee or director
0.5$0
DAN BURNSDIRECTOR
Trustee or director
0.5$0
CHRISTINE QUINNDIRECTOR
Trustee or director
0.5$0
CHARINA RAMIREZDIRECTOR
Trustee or director
0.5$0
KIM MARTINELLIDIRECTOR
Trustee or director
0.5$0
MELISSA BRYCEDIRECTOR 9/1 - 12/31
Trustee or director
0.5$0
990 for the year ended December 31, 2023: 20 people
NameTitleHours / weekCompensationOther / benefits
MELISSA BRYCEEXECUTIVE DIRECTOR
Officer
40$85,000$10,836
CHRIS OSTERTAGCHAIR
Trustee or director, Officer
1$0$0
RYAN MAPLEVICE CHAIR, TREASURER
Trustee or director, Officer
1$0$0
CHAD JOHNSONSECRETARY
Trustee or director, Officer
1$0$0
ANDREW LONGENECKERDIRECTOR
Trustee or director
0.5$0$0
BRIAN TIMS CPADIRECTOR
Trustee or director
0.5$0$0
CHARINA RAMIREZDIRECTOR
Trustee or director
0.5$0$0
CHRISTINE QUINNDIRECTOR
Trustee or director
0.5$0$0
CORIN CHAPMANDIRECTOR
Trustee or director
0.5$0$0
DAN BURNSDIRECTOR
Trustee or director
0.5$0$0
DAVID LAPIDUSDIRECTOR
Trustee or director
0.5$0$0
ISABELLA PINADIRECTOR
Trustee or director
0.5$0$0
JULIE GACNIKDIRECTOR
Trustee or director
0.5$0$0
KELLY DAUER-HUBSCHMITTDIRECTOR
Trustee or director
0.5$0$0
KIM MARTINELLIDIRECTOR
Trustee or director
0.5$0$0
LAUREN DRAPERDIRECTOR
Trustee or director
0.5$0$0
MADELEINE CORRIGANDIRECTOR
Trustee or director
0.5$0$0
MEGHAN MEYERSDIRECTOR
Trustee or director
0.5$0$0
NATALIE CLOUSEDIRECTOR
Trustee or director
0.5$0$0
SARA KEARDIRECTOR
Trustee or director
0.5$0$0

Address and contacts

Address (IRS master file)
3306 CHARLES PAGE BLVD SUITE 273, TULSA, OK 74127-8234
Principal officer (990 for 2024)
RYAN MAPLE, 5663 SOUTH PITTSBURG AVENUE, TULSA, OK 741357812
Signed the 990
RYAN MAPLE, EXECUTIVE DIRECTOR
Phone
(918) 998-5798
Return prepared by
EIDE BAILLY LLP

Mission

THE MISSION OF THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS IS TO IMPROVE THE LIVES OF INDIVIDUALS WITH PEROXISOMAL DISORDERS BY FUNDING RESEARCH, CHAMPIONING SCIENTIFIC COLLABORATION, AND EMPOWERING FAMILIES AND PROFESSIONALS THROUGH EDUCATIONAL PROGRAMS AND SUPPORT SERVICES.

990 for the year ended December 31, 2024

Program accomplishments

  • FAMILY AND SCIENTIFIC CONFERENCETHE 2024 FAMILY AND SCIENTIFIC CONFERENCE WAS HELD IN WASHINGTON, D.C., WHERE THE GFPD HOSTED THE FDA FOR AN EXTERNALLY-LED PATIENT-FOCUSED DRUG DEVELOPMENT (EL-PFDD) MEETING. THE MEETING WAS ATTENDED BY 281 INDIVIDUALS, INCLUDING 35 DIAGNOSED PATIENTS, 82 PRIMARY CAREGIVERS, AND OTHER ADVOCATES AND PROFESSIONALS. THIS MEETING WAS THE FOCAL POINT OF THE CONFERENCE AND UNDERSCORED THE NEED FOR BETTER TREATMENTS THAT ADDRESS THE BROAD SYMPTOMS AND IMPACTS OF PEROXISOMAL DISORDERS. A FINAL VOICE OF THE PATIENT REPORT WILL BE PUBLISHED IN 2025 AS AN ANALYSIS OF THE EL-PFDD MEETING. THE CONFERENCE ALSO PROVIDED FAMILIES WITH MEDICAL AND RESEARCH UPDATES FROM OUR MEDICAL AND SCIENTIFIC ADVISORY BOARD (MSAB), AS WELL AS ONE-ON-ONE PROFESSIONAL POP-INS WITH MANY OF THE MSAB MEMBERS.
    Expenses $617,916 · revenue $24,152
  • RESEARCH AND MEDICINETHE GFPD CONTINUES TO MAINTAIN AND GROW A STRONG COMMITTEE OF PHYSICIANS AND SCIENTISTS AS PART OF OUR MSAB. THESE INDIVIDUALS CURRENTLY COMPRISE RESEARCHERS, CLINICIANS, AND EXPERTS FROM NORTH AMERICA AND EUROPE WHO TREAT AND ASSIST PEROXISOMAL PATIENTS THROUGH CLINICAL MEDICINE AND RESEARCH. PRIMARY RESEARCH PARTNERS INCLUDE MCGILL UNIVERSITY, BAYLOR COLLEGE OF MEDICINE, UNIVERSITY OF SOUTHERN CALIFORNIA, UNIVERSITY OF AMSTERDAM, THE KENNEDY KRIEGER INSTITUTE, AND MONTCLAIR STATE UNIVERSITY. ADDITIONALLY, THE GFPD HAS CLINICAL ADVISORS FROM A NUMBER OF CHILDREN'S HOSPITALS THROUGHOUT NORTH AMERICA. TO FURTHER GFPD AWARENESS AND NETWORKING, REPRESENTATIVES HELD MEETINGS WITH THE NATIONAL ORGANIZATION FOR RARE DISORDERS, GLOBAL GENES, THE AMERICAN COLLEGE OF MEDICAL GENETICS, THE NOTRE DAME RARE DISEASE SYMPOSIUM, THE WORLD ORPHAN DRUG CONGRESS, AND THE AMERICAN ASSOCIATION FOR THE STUDY OF LIVER DISEASE.
    Expenses $275,789 · grants $92,768
  • WEBINAR AND VIRTUAL EVENT SERIESTHE GFPD IS THE PREMIER RESOURCE FOR INFORMATION, CLINICAL DIRECTION, TREATMENT GUIDELINES, NETWORKING, MEDICAL LINKAGE, AND ONLINE LEARNING FOR PATIENTS, FAMILIES, CAREGIVERS, CLINICIANS, PHYSICIANS, AND SCIENTIFIC PROFESSIONALS WITH A RANGE OF FAMILIARITY AND EXPERTISE IN PEROXISOMAL DISORDERS AND THEIR CO-MORBIDITIES. ONE OF THE GFPD'S FLAGSHIP PROGRAMS IS ITS WEBINAR AND VIRTUAL EVENT SERIES. THIS PROGRAM PROVIDES YEAR-ROUND EVENTS FOR PATIENTS, FAMILIES, AND PROFESSIONALS. THE PROGRAM IS OFFERED AT NO COST TO PATIENTS, FAMILIES, AND CAREGIVERS, AND PROVIDES CRUCIAL SUPPORT, EDUCATION, ADVOCACY TOOLS, AND RESOURCES. THE VIRTUAL ENVIRONMENT ENABLES MORE FLEXIBILITY IN SCHEDULING, RECORDING, AND DISSEMINATING INFORMATION TO PATIENTS, FAMILIES, AND CAREGIVERS, WHICH INCREASES ACCESS TO OUR COMMUNITY. THE GFPD WEBINAR AND VIRTUAL EVENT SERIES PROVIDES OPPORTUNITIES FOR CONSISTENT AND DIRECT ENGAGEMENT WITH THE COMMUNITY WE SERVE, AND SHAPES OUR STRATEGY FOR IMPROVING WEBINARS, OTHER FAMILY PROGRAMS, AND RESEARCH COLLABORATIONS. IN OCTOBER, A FIRST-TIME EVENT PROVED THE PERFECT EXAMPLE OF THE IMPACT OF VIRTUAL WEBINARS AND EVENTS. A "RELAX AND RELATE" VIRTUAL GATHERING WAS HOSTED FOR OUR EXTREMELY SMALL ADULT PATIENT COMMUNITY, IN WHICH EIGHT INDIVIDUALS MET, MANY FOR THE FIRST TIME. THE PATIENTS SHARED THAT THEY HOPED TO GAIN A CONNECTION TO OTHERS, TO NOT FEEL ALONE," TO LEARN FROM ONE ANOTHER ABOUT THEIR EXPERIENCES, AND WHAT HAS AND HAS NOT HELPED WITH SYMPTOM MANAGEMENT. THERE WAS UNANIMOUS INTEREST IN PARTICIPATING IN FUTURE SIMILAR GATHERINGS, AS WELL AS HAVING THEMED TOPICS AND GUEST PRESENTERS ON VARIOUS SUBJECTS. OVERALL, IN 2024, THE GFPD HOSTED 28 EVENTS AND HAD AN AVERAGE NET PROMOTER SCORE OF 89.2.
    Expenses $34,098

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
27-3646193
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2011
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$254,047
Income (IRS master file)
$745,845

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$722,979$1,194,522$254,047IRS
990December 2023$660,533$840,138$680,018XML
990December 2022$815,854$1,150,024$851,736IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2019–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 27-3646193).

Questions about GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS

What is the EIN of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS?
The employer identification number (EIN) of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS is 27-3646193.
Is GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2011.
Are donations to GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS?
The 990 for the year ended December 31, 2024 names RYAN MAPLE.
Who are the officers and directors of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS?
The 990 for the year ended December 31, 2024 lists 23 people; 3 received compensation from the organization, the highest $76,923 (MADELEINE BRYCE, DIRECTOR OF DEVELOPMENT).
How much revenue does GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS have?
On its 990 for the year ended December 31, 2024 it reported revenue of $722,979, expenses of $1,194,522 and total assets of $254,047 at year end.

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