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Nonprofit · EIN 26-4560897

COALITION FOR USHER SYNDROME RESEARCH

Tax-exempt · WESTFORD, MA 01886

Financials

$250K$285K2023$378K$437K2024$417K$360K2025
Revenue Expenses · by fiscal year end
Financials of COALITION FOR USHER SYNDROME RESEARCH by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$416,783$360,200$56,583$238,700$1,273$237,427
December 31, 2024990$378,430$436,862-$58,432$188,331$8,002$180,329
December 31, 2023990$250,204$284,874-$34,670$240,348$1,587$238,761
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$400,646
of which government grants
$5,000
Program service revenue
$14,931
Investment income
$663
Other revenue
$543

Expenses

Grants and similar amounts paid
$1,700
Compensation of officers, directors and key employees
$93,682
Other salaries and wages
$135,588
Salaries, compensation and benefits (total)
$250,904
Professional fundraising fees
$0
Legal fees
$3,500
Accounting fees
$9,004
Occupancy
$135
Travel
$8,849
Program services (functional)
$307,473
Management and general (functional)
$52,727

Balance sheet and other

Total assets, start of year
$188,331
Total assets, end of year
$238,700
Total liabilities, end of year
$1,273
Net assets, end of year
$237,427
Net assets without donor restrictions
$237,427
Gross receipts
$416,783
Employees
3
Volunteers
100
Year formed
2009
State of legal domicile
MA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
KRISTA VASIEXECUTIVE DI
Trustee or director, Officer
40$93,682
KATHY ANAMISISDIRECTOR
Trustee or director
1$0
TARA BOWMANDIRECTOR
Trustee or director
1$0
NANCY CORDERMANDIRECTOR
Trustee or director
2$0
SARAH JORDANDIRECTOR
Trustee or director
2$0
STEVE MASONTREASURER
Trustee or director, Officer
1$0
JENNIFER J LENTZ PHDDIRECTOR
Trustee or director
1$0
MONTE WESTERFIELD PHDDIRECTOR
Trustee or director
1$0
DANAY TRESTDIRECTOR
Trustee or director
1$0
SARAH TURNERDIRECTOR
Trustee or director
1$0
990 for the year ended December 31, 2024: 13 people
NameTitleHours / weekCompensation
Krista VasiExecutive Director
Officer
40$78,508
Lanya McKittrick PhDPresident
Trustee or director, Officer
2$0
David AlexanderDirector
Trustee or director
1$0
Danay TrestDirector
Trustee or director
1$0
Kathy AnamisisDirector
Trustee or director
1$0
Margaret Kenna MD MPHDirector
Trustee or director
1$0
Monte Westerfield PhDDirector
Trustee or director
1$0
Nancy CordermanDirector
Trustee or director
2$0
Tara BowmanSecretary
Trustee or director, Officer
1$0
Jennifer J Lentz PhDDirector
Trustee or director
1$0
Steve MasonTreasurer
Trustee or director, Officer
1$0
Steven McCoyDirector
Trustee or director
1$0
Eric Wagner PhDDirector
Trustee or director
1$0
990 for the year ended December 31, 2023: 13 people
NameTitleHours / weekCompensation
Krista VasiExecutive Director
Officer
40$72,497
Lanya McKittrick PhDPresident
Trustee or director, Officer
2$0
David AlexanderDirector
Trustee or director
1$0
Danay TrestDirector
Trustee or director
1$0
Kathy AnamisisDirector
Trustee or director
1$0
Margaret Kenna MD MPHDirector
Trustee or director
1$0
Monte Westerfield PhDDirector
Trustee or director
1$0
Nancy CordermanDirector
Trustee or director
2$0
Tara BowmanSecretary
Trustee or director, Officer
1$0
Jennifer J Lentz PhDDirector
Trustee or director
1$0
Steve MasonTreasurer
Trustee or director, Officer
1$0
Steven McCoyDirector
Trustee or director
1$0
Eric Wagner PhDDirector
Trustee or director
1$0

Address and contacts

Address (IRS master file)
9 CORNERSTONE SQ STE 400 PMB 224, WESTFORD, MA 01886-1583
In care of
% JULIA DUNNING
Mailing address (990-N for 2011)
1269 Main Street, Concord MA 01742
Principal officer (990 for 2025)
KRISTA VASI, 9 CORNERSTONE SQUARE SUITE 400-224, WESTFORD, MA 01886
Principal officer (990-N for 2011)
Mark Dunning, 241 Red Acre Road, Stow MA 01775
Signed the 990
KRISTA VASI, EXECUTIVE DIRECTOR
Phone
(800) 946-9203
Return prepared by
BRYTEBRIDGE CONSULTING LLC

Mission

TO RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON GENETIC CAUSE OF COMBINED DEAFNESS AND BLINDNESS, WHILE PROVIDING INFORMATION AND SUPPORT TO INDIVIDUALS WITH USHER SYNDROME.

990 for the year ended December 31, 2025

Program accomplishments

  • THE ORGANIZATION RAISES AWARENESS AND ACCELERATES RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNES, WHILE PROVIDING INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES WITH USHER SYNDROME. THIS IS ACCOMPLISHED THROUGH THEIR CONNECTIONS CONFERENCE WHERE ATTENDEES HAVE THE OPPORTUNITY TO LEARN THE LATEST ON DEVELOPING TREATMENTS WHILE CONNECTING WITH OTHER AFFECTED INDIVIDUALS AND FAMILIES. THE ORGANIZATION PROVIDES INFORMATION AND RESOURCES THROUGH WEBSITE, WEBINARS, ETC. THE ORGANIZATION ADVOCATES FOR INCREASED FEDERAL FUNDING FOR RESEARCH AND HELPS COLLECT DATA TO ACCELERATE RESEARCH. THE ORGANIZATION ALSO CONNECTS OTHERS AFFECTED BY USHER SYNDROME TO HELP PROVIDE A COMMUNITY FORM THEM AND THEIR FAMILIES.
    Expenses $307,473 · grants $1,700 · revenue $14,931

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
26-4560897
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2010
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Health care (E86)
Assets (IRS master file)
$238,700
Income (IRS master file)
$416,783

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$416,783$360,200$238,700XML
990December 2024$378,430$436,862$188,331IRS
990December 2023$250,204$284,874$240,348XML
990December 2022$502,883$415,751$286,985IRS
990-EZDecember 2021–––IRS
990December 2020–––IRS
990December 2019–––IRS
990December 2018–––IRS
990-N for 2011
Officer: Mark Dunning
December 31, 2011≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-4560897).

Questions about COALITION FOR USHER SYNDROME RESEARCH

What is the EIN of COALITION FOR USHER SYNDROME RESEARCH?
The employer identification number (EIN) of COALITION FOR USHER SYNDROME RESEARCH is 26-4560897.
Is COALITION FOR USHER SYNDROME RESEARCH tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2010.
Are donations to COALITION FOR USHER SYNDROME RESEARCH tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does COALITION FOR USHER SYNDROME RESEARCH file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of COALITION FOR USHER SYNDROME RESEARCH due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did COALITION FOR USHER SYNDROME RESEARCH last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of COALITION FOR USHER SYNDROME RESEARCH?
The 990 for the year ended December 31, 2025 names KRISTA VASI.
Who are the officers and directors of COALITION FOR USHER SYNDROME RESEARCH?
The 990 for the year ended December 31, 2025 lists 10 people; 1 received compensation from the organization, the highest $93,682 (KRISTA VASI, EXECUTIVE DI).
How much revenue does COALITION FOR USHER SYNDROME RESEARCH have?
On its 990 for the year ended December 31, 2025 it reported revenue of $416,783, expenses of $360,200 and total assets of $238,700 at year end.

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