Nonprofit · EIN 26-4411797
1P36 DELETION SUPPORT & AWARENESS
Tax-exempt · BEND, OR 97701
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $50,273 | $62,045 | -$11,772 | $248,422 | – | $248,422 |
| December 31, 2023 | 990-EZ | $63,315 | $45,486 | $17,829 | $260,194 | $0 | $260,194 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $24,113
- Program service revenue
- $0
- Investment income
- $22
- Net income from sales of inventory
- $4,514
- Other revenue
- $21,624
Expenses
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Printing, publications and postage
- $22
- Other expenses
- $62,023
- Program services (functional)
- $61,319
Balance sheet and other
- Total assets, start of year
- $260,194
- Total assets, end of year
- $248,422
- Total liabilities, end of year
- –
- Net assets, end of year
- $248,422
- Cash, savings and investments
- $248,422
- Gross receipts
- $59,477
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kenneth Shirtcliff | President | 10 | $0 |
| Karen Bess | Treasurer | 5 | $0 |
| Jennifer Winiecki | Secretary | 5 | $0 |
990-EZ for the year ended December 31, 2023: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kenneth Shirtcliff | President | 10 | $0 |
| Karen Bess | Treasurer | 5 | $0 |
| Jennifer Winiecki | Secretary | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 906 NE GREENWOOD AVE STE 1, BEND, OR 97701-4892
- In care of
- % KENNETH SHIRTCLIFF
- Mailing address (990-N for 2015)
- 906 NE Greenwood Ave Ste 1, Bend OR 97701
- Principal officer (990-N for 2015)
- Karen Bess, 48 Cornfield Lane, Warwick NY 10990
- Signed the 990-EZ
- Karen R Bess, Treasurer
- Website
- 1p36dsa.org
Mission
Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community.
Program accomplishments
- The 2023 Annual Conference. This is a conference for caregivers doctors and the rapists to come together to discuss and learn about 1p36 Deletion Syndrome. On average 250-350 attend the 3 days event. Each year it is at a different location in the US to ensure new people can attend the event. This year it was in Colorado.Expenses $60,419
- Communications Outreach - this includes social media website maintenance and other costs required to connect to communityExpenses $900
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 26-4411797
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2009
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Human services (P80)
- Assets (IRS master file)
- $248,422
- Income (IRS master file)
- $59,477
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $50,273 | $62,045 | $248,422 | XML |
| 990-EZ | December 2023 | $63,315 | $45,486 | $260,194 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
| 990-EZ | December 2017 | – | – | – | IRS |
| 990-N for 2015 Officer: Karen Bess | December 31, 2015 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-4411797).
Questions about 1P36 DELETION SUPPORT & AWARENESS
- What is the EIN of 1P36 DELETION SUPPORT & AWARENESS?
- The employer identification number (EIN) of 1P36 DELETION SUPPORT & AWARENESS is 26-4411797.
- Is 1P36 DELETION SUPPORT & AWARENESS tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2009.
- Are donations to 1P36 DELETION SUPPORT & AWARENESS tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does 1P36 DELETION SUPPORT & AWARENESS file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of 1P36 DELETION SUPPORT & AWARENESS due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did 1P36 DELETION SUPPORT & AWARENESS last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who is the principal officer of 1P36 DELETION SUPPORT & AWARENESS?
- The 990-N for 2015 names Karen Bess.
- Who are the officers and directors of 1P36 DELETION SUPPORT & AWARENESS?
- The 990-EZ for the year ended December 31, 2024 lists 3 people; 0 received compensation from the organization.
- How much revenue does 1P36 DELETION SUPPORT & AWARENESS have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $50,273, expenses of $62,045 and total assets of $248,422 at year end.
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