Nonprofit · EIN 26-3768711
WAKE UP NARCOLEPSY INC
Tax-exempt · WORCESTER, MA 01606
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $1,370,014 | $1,374,620 | -$4,606 | $619,318 | $12,313 | $607,005 |
| December 31, 2023 | 990 | $767,815 | $771,584 | -$3,769 | $622,313 | $10,799 | $611,514 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $1,307,674
- Program service revenue
- $34,850
- Investment income
- $27,490
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $235,000
- Compensation of officers, directors and key employees
- $96,755
- Other salaries and wages
- $147,184
- Salaries, compensation and benefits (total)
- $264,880
- Professional fundraising fees
- $0
- Legal fees
- $39,414
- Depreciation
- $3,733
- Program services (functional)
- $735,767
- Management and general (functional)
- $102,426
- Fundraising (functional)
- $536,427
Balance sheet and other
- Total assets, start of year
- $622,313
- Total assets, end of year
- $619,318
- Total liabilities, end of year
- $12,313
- Net assets, end of year
- $607,005
- Net assets without donor restrictions
- $607,005
- Gross receipts
- $1,370,014
- Employees
- 6
- Volunteers
- 100
- Year formed
- 2008
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Tammy Anderson | Executive Director Officer | 40 | $60,125 |
| Monica Gow | Former Executive Director Former | 40 | $36,630 |
| Gordon Gow | Emeritus Trustee or director | 1 | $0 |
| David Gow | Director Trustee or director | 2 | $0 |
| Anne Samarawickrama | Director Trustee or director | 6 | $0 |
| Nicole Jeray | Director Trustee or director | 1 | $0 |
| Kevin Guckian | Treasurer Trustee or director, Officer | 4 | $0 |
| Kelsey Biddle | Director Trustee or director | 4 | $0 |
| Mary Beth Guckian | Board Chair Trustee or director | 2 | $0 |
| Gregg Levethan | Director Trustee or director | 1 | $0 |
| Lynn Grisco | Vice Chair Trustee or director | 6 | $0 |
| Kimberly Cassidy | Secretary Trustee or director, Officer | 2 | $0 |
| Todd Grisco | Director Trustee or director | 6 | $0 |
| Prasanna Samarawickrama | Director Trustee or director | 4 | $0 |
990 for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Monica Gow | Executive Director Trustee or director, Officer | 40 | $73,500 |
| Gordon Gow | Emeritus Trustee or director | 1 | $0 |
| David Gow | Director Trustee or director | 2 | $0 |
| Anne Samarawickrama | Director Trustee or director | 6 | $0 |
| Nicole Jeray | Director Trustee or director | 1 | $0 |
| Kevin Guckian | Treasurer Trustee or director, Officer | 6 | $0 |
| Kelsey Biddle | Director Trustee or director | 4 | $0 |
| Mary Beth Guckian | Board Chair Trustee or director | 2 | $0 |
| Gregg Levethan | Director Trustee or director | 1 | $0 |
| Lynn Grisco | Vice Chair Trustee or director | 6 | $0 |
| Kimberly Cassidy | Secretary Trustee or director | 2 | $0 |
| Prasanna Samarawickrama | Director Trustee or director | 4 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 60293, WORCESTER, MA 01606-0293
- In care of
- % WAKE UP NARCOLEPSY
- Mailing address (990-N for 2008)
- PO Box 1441, Brookline MA 02446
- Principal officer (990 for 2024)
- Kevin Guckian, 47 Chandler Road, Chatham, NJ 07928
- Principal officer (990-N for 2008)
- Kevin Cosgrove, 341 Commonwealth Ave Apt 32, Boston MA 02115
- Signed the 990
- Tammy Anderson, Executive Director
- Phone
- (330) 840-1913
- Website
- www.wakeupnarcolepsy.org
- Return prepared by
- CRR LLP
Mission
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.
Program accomplishments
- Provide funding to accelerate a cure for Narcolepsy.Expenses $235,000 · grants $235,000
- Increasing awareness of Narcolepsy.Decreasing time-lapse from symptom onset to proper diagnosis.Providing supportive resources for people with Narcolepsy and their families.Expenses $500,767 · revenue $34,850
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 26-3768711
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2009
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $619,318
- Income (IRS master file)
- $1,370,014
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $1,370,014 | $1,374,620 | $619,318 | IRS |
| 990 | December 2023 | $767,815 | $771,584 | $622,313 | XML |
| 990 | December 2022 | $535,258 | $499,286 | $642,220 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
| 990-N for 2008 Officer: Kevin Cosgrove | December 31, 2008 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-3768711).
Questions about WAKE UP NARCOLEPSY INC
- What is the EIN of WAKE UP NARCOLEPSY INC?
- The employer identification number (EIN) of WAKE UP NARCOLEPSY INC is 26-3768711.
- Is WAKE UP NARCOLEPSY INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2009.
- Are donations to WAKE UP NARCOLEPSY INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does WAKE UP NARCOLEPSY INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of WAKE UP NARCOLEPSY INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did WAKE UP NARCOLEPSY INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of WAKE UP NARCOLEPSY INC?
- The 990 for the year ended December 31, 2024 names Kevin Guckian.
- Who are the officers and directors of WAKE UP NARCOLEPSY INC?
- The 990 for the year ended December 31, 2024 lists 14 people; 2 received compensation from the organization, the highest $60,125 (Tammy Anderson, Executive Director).
- How much revenue does WAKE UP NARCOLEPSY INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $1,370,014, expenses of $1,374,620 and total assets of $619,318 at year end.
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