Nonprofit · EIN 26-1316274
CHIARI & SYRINGOMYELIA FOUNDATION
Tax-exempt · STATEN ISLAND, NY 10312
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $1,153,190 | $917,419 | $235,771 | $1,681,948 | $65,797 | $1,616,151 |
| December 31, 2024 | 990 | $982,468 | $846,515 | $135,953 | $1,306,327 | $5,891 | $1,300,436 |
| December 31, 2023 | 990 | $979,400 | $767,618 | $211,782 | $1,100,146 | $8,682 | $1,091,464 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $1,221,585
- Program service revenue
- $0
- Investment income
- $48,456
- Net gain from sales of assets
- $29,302
- Net income from fundraising events
- -$116,851
- Other revenue
- -$116,851
Expenses
- Grants and similar amounts paid
- $1,161
- Other salaries and wages
- $448,839
- Salaries, compensation and benefits (total)
- $562,065
- Professional fundraising fees
- $0
- Legal fees
- $3,950
- Accounting fees
- $29,300
- Occupancy
- $7,991
- Travel
- $10,764
- Program services (functional)
- $645,295
- Management and general (functional)
- $116,388
- Fundraising (functional)
- $155,736
Balance sheet and other
- Total assets, start of year
- $1,306,327
- Total assets, end of year
- $1,681,948
- Total liabilities, end of year
- $65,797
- Net assets, end of year
- $1,616,151
- Net assets without donor restrictions
- $1,616,151
- Gross receipts
- $1,671,340
- Employees
- 5
- Volunteers
- 163
- Year formed
- 2007
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| DOROTHY J POPPE | EXECUTIVE DI Trustee or director, Officer | 40 | $159,988 | $15,789 |
| ROBERT JONES BLACK | TRUSTEE Trustee or director | 1 | $0 | $0 |
| KATHERINE CLAY | TRUSTEE Trustee or director | 1 | $0 | $0 |
| CATHERINE LOUGHIN DVM | TREASURER Trustee or director | 5 | $0 | $0 |
| DOMINIC J MARINO DVM | TRUSTEE Trustee or director | 1 | $0 | $0 |
| CAMERON KIM DAWSON | DIRECTOR Trustee or director | 5 | $0 | $0 |
| PAUL J FARRELL | CHAIR EMERIT Trustee or director | 5 | $0 | $0 |
| PAM FENNER | SECRETARY Trustee or director | 5 | $0 | $0 |
| TYLER GUETTLER | TRUSTEE Trustee or director | 1 | $0 | $0 |
| AMANDA HARRIS | DIRECTOR Trustee or director | 5 | $0 | $0 |
| CODY LAIRD | TRUSTEE Trustee or director | 1 | $0 | $0 |
| CRAIG LIBSON | TRUSTEE Trustee or director | 1 | $0 | $0 |
| TYGH WYCKOFF MD | TRUSTEE Trustee or director | 1 | $0 | $0 |
| MICHAEL N MIKULA | TRUSTEE Trustee or director, Officer | 1 | $0 | $0 |
| JAMES RAINS | CHAIR Trustee or director | 7 | $0 | $0 |
3 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LORY WATSON | VICE CHAIR Trustee or director | 7 | $0 |
| ROBERT WALKER WESTBROOK | TRUSTEE Trustee or director | 1 | $0 |
| MARINA C WHITE | DIRECTOR Trustee or director | 5 | $0 |
990 for the year ended December 31, 2024: 16 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DOROTHY POPPE | EXECUTIVE DIRECTOR Trustee or director, Officer, Key employee, Highest-paid employee | 40 | $163,488 |
| PAUL J FARRELL | CHAIR EMERITUS AND FOUNDING MEMBER Trustee or director, Officer | 5 | $0 |
| CAMERON KIM DAWSON | DIRECTOR Trustee or director, Officer | 5 | $0 |
| LORY WATSON | VICE CHAIR AND FOUNDING MEMBER Trustee or director, Officer | 7 | $0 |
| PAMELA FENNER | SECRETARY Trustee or director, Officer | 5 | $0 |
| CATHERINE LOUGHIN DVM | TREASURER Trustee or director, Officer | 5 | $0 |
| JAMES RAINS | CHAIR Trustee or director, Officer | 7 | $0 |
| MARINA WHITE | DIRECTOR Trustee or director, Officer | 5 | $0 |
| MICHAEL MIKULA | TRUSTEE Trustee or director | 5 | $0 |
| TYGH WYCKOFF MD | TRUSTEE Trustee or director | 1 | $0 |
| TYLER GUETTLER | TRUSTEE Trustee or director | 1 | $0 |
| DOMINIC J MARINO DVM | TRUSTEE Trustee or director | 1 | $0 |
| ROBERT WALKER WESTBROOK | TRUSTEE Trustee or director | 1 | $0 |
| KATHERINE CLAY | TRUSTEE Trustee or director | 1 | $0 |
| CODY LAIRD | TRUSTEE Trustee or director | 1 | $0 |
| AMANDA HARRIS | DIRECTOR Trustee or director | 5 | $0 |
990 for the year ended December 31, 2023: 16 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DOROTHY POPPE | EXECUTIVE DIRECTOR Trustee or director, Officer, Key employee, Highest-paid employee | 40 | $135,488 |
| PAUL J FARRELL | CHAIRMAN, BD OF DIRECTORS Trustee or director, Officer | 8 | $0 |
| CAMERON KIM DAWSON | DIRECTOR Trustee or director, Officer | 7 | $0 |
| LORY WATSON | DIRECTOR AND FOUNDING MEMBER Trustee or director, Officer | 5 | $0 |
| PAMELA FENNER | SECRETARY Trustee or director, Officer | 5 | $0 |
| CATHERINE LOUGHIN DVM | TREASURER Trustee or director, Officer | 5 | $0 |
| JAMES RAINS | VICE-CHAIRMAN Trustee or director, Officer | 5 | $0 |
| MARINA WHITE | DIRECTOR Trustee or director, Officer | 5 | $0 |
| MICHAEL MIKULA | TRUSTEE Trustee or director | 5 | $0 |
| TYGH WYCKOFF MD | TRUSTEE Trustee or director | 1 | $0 |
| TYLER GUETTER | TRUSTEE Trustee or director | 1 | $0 |
| DOMINIC J MARINO DVM | TRUSTEE Trustee or director | 1 | $0 |
| ROBERT WALKER WESTBROOK | TRUSTEE Trustee or director | 1 | $0 |
| KATHERINE REID LAIRD | TRUSTEE Trustee or director | 1 | $0 |
| CODY LAIRD | TRUSTEE Trustee or director | 1 | $0 |
| LADY TRISH MALLOCH BROWN | TRUSTEE Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 29 CREST LOOP, STATEN ISLAND, NY 10312-5632
- In care of
- % DOROTHY POPPE
- Principal officer (990 for 2025)
- DOROTHY J POPPE, 29 CREST LOOP, STATEN ISLAND, NY 10312
- Signed the 990
- DOROTHY J POPPE, EXECUTIVE DIRECTOR
- Phone
- (718) 966-2593
- Website
- BOBBYJONESCSF.ORG
- Return prepared by
- LEHMAN FLYNN VOLLARO NY CPAS PLLC
Mission
TO ADVANCE KNOWLEDEGE THROUGH RESEARCH AND TO EDUCATE THE MEDICAL, ALLIED SCIENCES AND LAY COMMUNITY ABOUT CHIARI MALFORMATION,SYRINGOMYELIA AND RELATED DISORDERS.
Program accomplishments
- THIS CONSISTS OF VARIOUS FUNDRAISING EVENTS IN WHICH DONATIONS WERE RAISED FOR FUTURE RESEARCH AND AWARENESS. THESE EVENTS CONSISTED OF EDUCATING ON CHIARI MALFORMATION, SYRINGOMYELIA AND RELATED DISORDERS THROUGH MEDIA, PRESENTATIONS AND VARIOUS EXPERT SPEAKERS.Expenses $645,295 · grants $1,161 · revenue $18,110
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 26-1316274
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2008
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G96)
- Assets (IRS master file)
- $1,681,948
- Income (IRS master file)
- $1,671,340
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $1,153,190 | $917,419 | $1,681,948 | XML |
| 990 | December 2024 | $982,468 | $846,515 | $1,306,327 | XML |
| 990 | December 2023 | $979,400 | $767,618 | $1,100,146 | XML |
| 990 | December 2022 | $769,207 | $760,382 | $885,796 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-1316274).
Questions about CHIARI & SYRINGOMYELIA FOUNDATION
- What is the EIN of CHIARI & SYRINGOMYELIA FOUNDATION?
- The employer identification number (EIN) of CHIARI & SYRINGOMYELIA FOUNDATION is 26-1316274.
- Is CHIARI & SYRINGOMYELIA FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2008.
- Are donations to CHIARI & SYRINGOMYELIA FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CHIARI & SYRINGOMYELIA FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CHIARI & SYRINGOMYELIA FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CHIARI & SYRINGOMYELIA FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CHIARI & SYRINGOMYELIA FOUNDATION?
- The 990 for the year ended December 31, 2025 names DOROTHY J POPPE.
- Who are the officers and directors of CHIARI & SYRINGOMYELIA FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 18 people; 1 received compensation from the organization, the highest $159,988 (DOROTHY J POPPE, EXECUTIVE DI).
- How much revenue does CHIARI & SYRINGOMYELIA FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $1,153,190, expenses of $917,419 and total assets of $1,681,948 at year end.
Other nonprofits in STATEN ISLAND
- AMERICAN PARKINSON DISEASE ASSOC EIN 13-1962771 · last filed 990 for 2025
- GRACE FOUNDATION OF NEW YORK EIN 13-4131863 · last filed 990 for 2025
- FOUNDATION FOR THE ADVANCEMENT OF AUTISTIC PERSONS INC EIN 06-1277426 · last filed 990 for 2025
- CRIMSONRISE INC EIN 87-1249856 · last filed 990 for 2025
- MICHAELS CAUSE INC EIN 45-2808761 · last filed 990 for 2025
- AIRWAY REVOLUTION FOUNDATION INC EIN 86-3037496 · last filed 990 for 2024
- AMERICAN TAMIL MEDICAL ASSOCIATION EIN 20-2245175 · last filed 990-N for 2025
- ACT CARE FOUNDATION INC EIN 84-2513949 · last filed 990-EZ for 2025
All nonprofits in STATEN ISLAND · New York · Voluntary health associations and medical disciplines