Nonprofit · EIN 26-1224181
LYMPHATIC MALFORMATION ALLIANCE INC
Tax-exempt · SAINT PETERSBURG, FL 33702
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990-EZ | $118,890 | $153,100 | -$34,210 | $353,825 | $9,279 | $344,546 |
Financial details: 990-EZ for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $113,613
- Program service revenue
- $0
- Investment income
- $5,277
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $26,090
- Compensation of officers, directors and key employees
- $67,733
- Salaries, compensation and benefits (total)
- $0
- Professional fees and payments to contractors
- $109,604
- Printing, publications and postage
- $2,079
- Other expenses
- $15,327
- Program services (functional)
- $112,415
Balance sheet and other
- Total assets, start of year
- $386,253
- Total assets, end of year
- $353,825
- Total liabilities, end of year
- $9,279
- Net assets, end of year
- $344,546
- Cash, savings and investments
- $233,757
- Gross receipts
- $118,890
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LOUISE MURGIA | DIRECTOR OF OPERATIONS | 40 | $64,608 |
| MICHAEL KELLY | EXECUTIVE DIRECTOR | 20 | $3,125 |
| SCOTT WEISNER | PRESIDENT | 2 | $0 |
| SCOTT GOLDFARB | TREASURER | 2 | $0 |
| TIFFANY FERRY | BOARD MEMBER | 2 | $0 |
| MITCH MAERSCH | BOARD MEMBER | 2 | $0 |
| SEAN CHASTAIN | BOARD MEMBER | 2 | $0 |
| KEVIN MARTIN | BOARD MEMBER | 2 | $0 |
| SAMIRA FAROUNI | BOARD MEMBER | 2 | $0 |
| OFELIA RODRIGUEZ NIEVAS | BOARD MEMBER | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 7901 4TH STREET NORTH STE 9153, SAINT PETERSBURG, FL 33702-4305
- In care of
- % JOHN F KELLY
- Signed the 990-EZ
- MICHAEL KELLY, EXECUTIVE DIRECTOR
- Phone
- (262) 227-8453
- Return prepared by
- EASY OFFICE DBA JITASA
Mission
WORLDWIDE PATIENT SUPPORT PROGRAM WHICH INCLUDES A PATIENT REGISTRY, A WEBSITE WITH RARE DISEASE INFORMATION AND PATIENT DISCUSSION FORUM.
Program accomplishments
- OUR PATIENT SUPPORT SERVICES INCLUDED THE MANAGEMENT OF OUR PATIENT REGISTRY TO SUPPORT RESEARCH NEEDS, TRACK VITAL INFORMATION ABOUT CLAS, AND ANSWER QUESTIONS ABOUT THE DISEASES. THE PROGRAMS ALSO SUPPORTS THE MANAGEMENT OF SEVERAL ONLINE SUPPORT GROUPS.Expenses $44,000
- OUR OUTREACH PROGRAM INCREASES AWARENESS OF THE CLAS THROUGH OUR WEBSITE, SOCIAL MEDIA, AND EVENTS SUCH AS CLA AWARENESS DAY AND RARE DISEASE DAY. PARTNERSHIPS WITH OTHER RARE DISEASE ORGANIZATIONS AND FOUNDATIONS. ALSO, COVERS WORK FOR NEWSLETTER AND WORK WITH ADVISORY COUNCILS.Expenses $37,369
- RESEARCH - IN THIS AREA, WE HOST A CLA WEBINAR SERIES FOR RESEARCH. PRESENTATIONS ARE POSTED ONLINE FOR THE GENERAL PUBLIC. RAISED FUNDS FOR RESEARCH GRANTS SPECIFIC TO CLAS. ALSO, LAY SUMMARIES ARE CREATED TO EDUCATE THE PUBLIC ABOUT NEW RESEARCH PAPERS AND DISCOVERIES. THIS AREA ALSO COVERS WORK WITH OUR MEDICAL AND SCIENTIFIC ADVISORY COUNCIL.Expenses $31,046 · grants $26,090
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990-EZ on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 26-1224181
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2008
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G99)
- Assets (IRS master file)
- $353,825
- Income (IRS master file)
- $118,890
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | June 2025 | – | – | – | IRS |
| 990 | June 2024 | $271,042 | $310,725 | $386,253 | IRS |
| 990-EZ | June 2023 | – | – | – | IRS |
| 990 | June 2022 | $321,718 | $319,777 | $579,142 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
| 990-EZ | June 2019 | – | – | – | IRS |
990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.
Questions about LYMPHATIC MALFORMATION ALLIANCE INC
- What is the EIN of LYMPHATIC MALFORMATION ALLIANCE INC?
- The employer identification number (EIN) of LYMPHATIC MALFORMATION ALLIANCE INC is 26-1224181.
- Is LYMPHATIC MALFORMATION ALLIANCE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2008.
- Are donations to LYMPHATIC MALFORMATION ALLIANCE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does LYMPHATIC MALFORMATION ALLIANCE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LYMPHATIC MALFORMATION ALLIANCE INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LYMPHATIC MALFORMATION ALLIANCE INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended June 2025.
- Who are the officers and directors of LYMPHATIC MALFORMATION ALLIANCE INC?
- The 990-EZ for the year ended June 30, 2025 lists 10 people; 2 received compensation from the organization, the highest $64,608 (LOUISE MURGIA, DIRECTOR OF OPERATIONS).
- How much revenue does LYMPHATIC MALFORMATION ALLIANCE INC have?
- On its 990-EZ for the year ended June 30, 2025 it reported revenue of $118,890, expenses of $153,100 and total assets of $353,825 at year end.
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All nonprofits in SAINT PETERSBURG · Florida · Voluntary health associations and medical disciplines