Nonprofit · EIN 26-0256621
CURE TAY-SACHS FOUNDATION
Tax-exempt · PHOENIX, AZ 85016
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $141,059 | $251,226 | -$110,167 | $1,941,305 | $0 | $1,941,305 |
| December 31, 2023 | 990 | $107,582 | $189,307 | -$81,725 | $2,122,357 | $0 | $2,122,357 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $57,863
- Program service revenue
- $0
- Investment income
- $83,196
- Net gain from sales of assets
- -$24,982
- Tax-exempt bond proceeds
- $71,351
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $200,000
- Compensation of officers, directors and key employees
- $48,000
- Salaries, compensation and benefits (total)
- $48,000
- Professional fundraising fees
- $0
- Accounting fees
- $2,000
- Program services (functional)
- $225,226
- Management and general (functional)
- $26,000
Balance sheet and other
- Total assets, start of year
- $2,122,357
- Total assets, end of year
- $1,941,305
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,941,305
- Gross receipts
- $167,385
- Employees
- 0
- Volunteers
- 0
- Year formed
- 2007
- State of legal domicile
- OH
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| RICK KARL | PRESIDENT Officer | 20 | $48,000 |
| CHERYL BABO | DIRECTOR Trustee or director | 2 | $0 |
| NICKI LUCE | DIRECTOR Trustee or director | 2 | $0 |
| LAURIE TEN BERG | DIRECTOR Trustee or director | 2 | $0 |
| TERRY KARL ESQ | DIRECTOR Trustee or director | 2 | $0 |
| ROBBIE SANDOVAL | DIRECTOR Trustee or director | 2 | $0 |
| BRIAN PLICK | DIRECTOR Trustee or director | 2 | $0 |
| HOLLY MCDONALD | DIRECTOR Trustee or director | 2 | $0 |
| ROYCE STINGER | DIRECTOR Trustee or director | 2 | $0 |
| DEEPA KODALI | DIRECTOR Trustee or director | 2 | $0 |
| BRIANNE ANDERSON | DIRECTOR Trustee or director | 2 | $0 |
| MATT LUNCHICK | DIRECTOR Trustee or director | 2 | $0 |
| BRUCE STEIGER | TREASURER Officer | 8 | $0 |
990 for the year ended December 31, 2023: 13 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CHERYL BABO | DIRECTOR Trustee or director | 2 | $0 |
| NICKI LUCE | DIRECTOR Trustee or director | 2 | $0 |
| LAURIE TEN BERG | DIRECTOR Trustee or director | 2 | $0 |
| TERRY KARL ESQ | DIRECTOR Trustee or director | 2 | $0 |
| ROBBIE SANDOVAL | DIRECTOR Trustee or director | 2 | $0 |
| BRIAN PLICK | DIRECTOR Trustee or director | 2 | $0 |
| HOLLY MCDONALD | DIRECTOR Trustee or director | 2 | $0 |
| ROYCE STINGER | DIRECTOR Trustee or director | 2 | $0 |
| DEEPA KODALI | DIRECTOR Trustee or director | 2 | $0 |
| BRIANNE ANDERSON | DIRECTOR Trustee or director | 2 | $0 |
| MATT LUNCHICK | DIRECTOR Trustee or director | 2 | $0 |
| RICK KARL | PRESIDENT Officer | 20 | $0 |
| BRUCE STEIGER | TREASURER Officer | 8 | $0 |
Address and contacts
- Address (IRS master file)
- 2409 E LUKE AVE, PHOENIX, AZ 85016-2808
- In care of
- % WILLIAM COSTELLO
- Principal officer (990 for 2024)
- RICK KARL, 2409 E LUKE AVE, PHOENIX, AZ 85016
- Signed the 990
- RICK KARL, PRESIDENT
- Phone
- (562) 212-1071
- Website
- WWW.CURETAY-SACHS.ORG
- Return prepared by
- CORRIGAN KRAUSE
Mission
THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.
Program accomplishments
- THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.Expenses $225,226 · grants $200,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 26-0256621
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2007
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H128)
- Assets (IRS master file)
- $1,941,305
- Income (IRS master file)
- $167,385
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $141,059 | $251,226 | $1,941,305 | XML |
| 990 | December 2023 | $107,582 | $189,307 | $2,122,357 | XML |
| 990 | December 2022 | $448,202 | $238,193 | $2,287,110 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-0256621).
Questions about CURE TAY-SACHS FOUNDATION
- What is the EIN of CURE TAY-SACHS FOUNDATION?
- The employer identification number (EIN) of CURE TAY-SACHS FOUNDATION is 26-0256621.
- Is CURE TAY-SACHS FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2007.
- Are donations to CURE TAY-SACHS FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CURE TAY-SACHS FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CURE TAY-SACHS FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CURE TAY-SACHS FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of CURE TAY-SACHS FOUNDATION?
- The 990 for the year ended December 31, 2024 names RICK KARL.
- Who are the officers and directors of CURE TAY-SACHS FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 13 people; 1 received compensation from the organization, the highest $48,000 (RICK KARL, PRESIDENT).
- How much revenue does CURE TAY-SACHS FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $141,059, expenses of $251,226 and total assets of $1,941,305 at year end.
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