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Nonprofit · EIN 25-1852548

HEREDITARY ANGIOEDEMA ASSOCIATION INC

Tax-exempt · FAIRFAX, VA 22030

Financials

$10.2M$7.2M2023$10M$5.5M2024
Revenue Expenses · by fiscal year end
Financials of HEREDITARY ANGIOEDEMA ASSOCIATION INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$9,963,196$5,527,827$4,435,369$21,869,496$654,083$21,215,413
December 31, 2023990$10,200,149$7,232,856$2,967,293$16,392,496$598,961$15,793,535
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$9,297,902
Program service revenue
$0
Investment income
$657,655
Net gain from sales of assets
$13,673
Other revenue
$7,639

Expenses

Grants and similar amounts paid
$675,261
Compensation of officers, directors and key employees
$646,443
Other salaries and wages
$1,718,584
Salaries, compensation and benefits (total)
$2,662,832
Professional fundraising fees
$0
Legal fees
$7,804
Accounting fees
$45,878
Occupancy
$24,128
Travel
$386,695
Program services (functional)
$5,104,918
Management and general (functional)
$380,435
Fundraising (functional)
$42,474

Balance sheet and other

Total assets, start of year
$16,392,496
Total assets, end of year
$21,869,496
Total liabilities, end of year
$654,083
Net assets, end of year
$21,215,413
Publicly traded securities
$11,761,803
Net assets without donor restrictions
$20,650,641
Net assets with donor restrictions
$564,772
Gross receipts
$10,222,478
Employees
21
Volunteers
1,000
Year formed
2005
State of legal domicile
VA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
MICHELLE CUEVASFORMER SENIOR EXECUTIVE VPCOO
Former
20$336,688
ANTHONY CASTALDOCHAIRCHIEF EXECUTIVE OFFICER
Trustee or director, Officer, Highest-paid employee
40$245,295
LEIGH FARRAREXECUTIVE VPCHIEF FINANCIAL OFFICE
Key employee
40$225,004
CHRISTINE SELVASENIOR DIRECTOR HEALTH & RESEARCH
Key employee
40$180,963
LARRY SALUSDIRECTOR
Trustee or director
2$7,800
DR ERIC PHILLIPSDIRECTOR
Trustee or director
2$0
HENRIK BALLE BOYSENPRESIDENT
Trustee or director
20$0
KAREN BAIRDDIRECTOR
Trustee or director
2$0
LOIS PERRYDIRECTOR
Trustee or director
2$0
990 for the year ended December 31, 2023: 9 people
NameTitleHours / weekCompensation
ANTHONY CASTALDOCHAIRCHIEF EXECUTIVE OFFICER
Trustee or director, Officer, Highest-paid employee
40$244,846
MICHELLE CUEVASFORMER SENIOR EXECUTIVE VPCO
Former
40$241,122
LEIGH FARRAREXECUTIVE VPCHIEF FINANCIAL
Key employee
40$181,676
CHRISTINE SELVASENIOR DIRECTOR HEALTH & RESE
Key employee
40$170,873
LOIS PERRYDIRECTOR
Trustee or director
40$151,378
LARRY SALUSTREASURERCHIEF COMPLIANCE OF
Trustee or director, Key employee
20$71,495
DR ERIC PHILLIPSDIRECTOR
Trustee or director
2$0
HENRIK BALLE BOYSENPRESIDENT
Trustee or director
20$0
KAREN BAIRDDIRECTOR
Trustee or director
2$0

Address and contacts

Address (IRS master file)
10560 MAIN ST STE PS40, FAIRFAX, VA 22030-7114
In care of
% ANTHONY CASTALDO
Principal officer (990 for 2024)
ANTHONY CASTALDO, 10560 MAIN STREET STE PS40, Fairfax, VA 22030
Signed the 990
ANTHONY CASTALDO, CHAIRCHIEF EXECUTIVE OFF
Phone
(866) 580-8178
Website
HAEA.ORG
Return prepared by
Allan Smith and Company CPAs PC

Mission

SEE SCHEDULE O COMMENT.

990 for the year ended December 31, 2024

Program accomplishments

  • THE HAE ASSOCIATIONS OVERALL OBJECTIVE IS TO SAVE LIVES AND RAISE THE QUALITY OF LIFE FOR PATIENTS WITH THE RARE, DEBILITATING, AND POTENTIALLY FATAL RARE DISEASE HEREDITARY ANGEODEMA. WE PROVIDE PATIENTS AND PHYSICIANS WITH ESSENTIAL, AUTHORITATIVE INFORMATION AIMED AT INCREASING DIAGNOSIS RATES AND HELPING PATIENTS FIND AN APPROPRIATE TREATMENT. WE OFFER AN ARRAY OF PROGRAMS, SERVICES, AND ACTIVITIES THAT INCLUDE CONTINUING MEDICAL EDUCATION, IN PERSON AND WEB BASED SEMINARS, PATIENT AND SCIENTIFIC CONFERENCES, SUPPORT GROUPS, AND INDIVIDUAL COUNSELING. THE HAEA WEBSITE AND EXTENSIVE SOCIAL MEDIA PRESENSE ENHANCES OUR ABILITY TO REACH AND DISSEMINATE INFORMATION TO THE PATIENT AND PHYSICIAN COMMUNITIES. WE ARE STAUNCH ADVOCATES FOR (1) PATIENT ACCESS TO AND SUFFICIENT INSURANCE REIMBURSEMENT FOR CURRENTLY AVAILABLE THERAPIES, AND (2) RESEARCH DIRECTED TOWARDS HELPING PATIENTS IMPROVE THEIR QUALITY OF LIFE AND, ULTIMATELY, FINDING A CURE. THE HAEA ALSO CONDUCTS NATIONAL PATIENT AND PHYSICIAN MEETINGS, AND OFFERS A VARIETY OF SERVICES TO INDIVIDUALS AND FAMILIES THAT INCLUDE PHYSICIAN AND CLINICAL TRIAL REFERRALS AND ASSISTANCE IN DEALING WITH DISEASE-RELATED EMERGENCIES.
    Expenses $5,104,918 · revenue $9,297,902

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
25-1852548
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2007
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Health care (E99)
Assets (IRS master file)
$21,869,496
Income (IRS master file)
$10,222,478

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$9,963,196$5,527,827$21,869,496IRS
990December 2023$10,200,149$7,232,856$16,392,496XML
990December 2022$7,898,783$4,828,602$11,968,085IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS
990December 2017–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 25-1852548).

Questions about HEREDITARY ANGIOEDEMA ASSOCIATION INC

What is the EIN of HEREDITARY ANGIOEDEMA ASSOCIATION INC?
The employer identification number (EIN) of HEREDITARY ANGIOEDEMA ASSOCIATION INC is 25-1852548.
Is HEREDITARY ANGIOEDEMA ASSOCIATION INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2007.
Are donations to HEREDITARY ANGIOEDEMA ASSOCIATION INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does HEREDITARY ANGIOEDEMA ASSOCIATION INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of HEREDITARY ANGIOEDEMA ASSOCIATION INC due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did HEREDITARY ANGIOEDEMA ASSOCIATION INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of HEREDITARY ANGIOEDEMA ASSOCIATION INC?
The 990 for the year ended December 31, 2024 names ANTHONY CASTALDO.
Who are the officers and directors of HEREDITARY ANGIOEDEMA ASSOCIATION INC?
The 990 for the year ended December 31, 2024 lists 9 people; 5 received compensation from the organization, the highest $336,688 (MICHELLE CUEVAS, FORMER SENIOR EXECUTIVE VPCOO).
How much revenue does HEREDITARY ANGIOEDEMA ASSOCIATION INC have?
On its 990 for the year ended December 31, 2024 it reported revenue of $9,963,196, expenses of $5,527,827 and total assets of $21,869,496 at year end.

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