Nonprofit · EIN 23-7376197
HUNTINGTON S DISEASE FOUNDATION
Tax-exempt · NEW YORK, NY 10032
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $4,081,669 | $4,326,391 | -$244,722 | $23,135,759 | $2,314,242 | $20,821,517 |
| December 31, 2024 | 990 | $7,899,221 | $4,524,145 | $3,375,076 | $21,978,294 | $2,828,419 | $19,149,875 |
| December 31, 2023 | 990 | $2,578,841 | $4,738,635 | -$2,159,794 | $18,234,308 | $3,091,412 | $15,142,896 |
| December 31, 2021 | 990 | $3,846,649 | $2,967,624 | $879,025 | $18,145,612 | $2,330,017 | $15,815,595 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $3,254,595
- Program service revenue
- $52,500
- Investment income
- $634,776
- Net gain from sales of assets
- $138,594
- Other revenue
- $139,798
Expenses
- Grants and similar amounts paid
- $3,152,522
- Compensation of officers, directors and key employees
- $370,448
- Other salaries and wages
- $184,852
- Salaries, compensation and benefits (total)
- $618,915
- Professional fundraising fees
- $0
- Accounting fees
- $38,000
- Occupancy
- $41,152
- Program services (functional)
- $3,796,690
- Management and general (functional)
- $284,027
- Fundraising (functional)
- $245,674
Balance sheet and other
- Total assets, start of year
- $21,978,294
- Total assets, end of year
- $23,135,759
- Total liabilities, end of year
- $2,314,242
- Net assets, end of year
- $20,821,517
- Publicly traded securities
- $20,950,224
- Net assets without donor restrictions
- $4,315,422
- Net assets with donor restrictions
- $16,506,095
- Gross receipts
- $11,041,255
- Employees
- 4
- Volunteers
- 45
- Year formed
- 1968
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SARAH HERNANDEZ PHD | DIR. OF RESEARCH PROGRAMS Highest-paid employee | 40 | $155,000 | $61,927 |
| JULIE PORTER | DIR. OF ADMINISTRATION Highest-paid employee | 40 | $124,000 | $33,541 |
| KAREN NEWMAN | CHAIR Trustee or director, Officer | 24 | $72,000 | $0 |
| MEGHAN DONALDSON | CEO Trustee or director, Officer | 40 | $50,000 | $0 |
| TIM KELLEHER | CFO Officer | 6 | $31,521 | $0 |
| NANCY S WEXLER PHD | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| ANNE B YOUNG MD PHD | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| BRUCE DONALDSON | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| ALICE WEXLER PHD | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| C FRANK BENNETT PHD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ROBI BLUMENSTEIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SANDY FOX | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TACIE FOX | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BERTA A GEHRY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| FRANK O GEHRY | DIRECTOR (THROUGH 12/5/25) Trustee or director | 1 | $0 | $0 |
6 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DAVID HOUSMAN PHD | DIRECTOR Trustee or director | 1 | $0 |
| THOMAS OBERSTEINER | DIRECTOR (JOINED 4/25) Trustee or director | 1 | $0 |
| LAUREN BAKER PINKUS | DIRECTOR Trustee or director | 1 | $0 |
| LESLIE M THOMPSON PHD | DIRECTOR Trustee or director | 1 | $0 |
| DAVID ZWALLY | DIRECTOR Trustee or director | 1 | $0 |
| MELISSA MOSER | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 23 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SARAH HERNANDEZ | DIR. OF RESEARCH PROGRAMS Highest-paid employee | 40 | $143,929 | $55,917 |
| JULIE PORTER | DIR. OF ADMINISTRATION Highest-paid employee | 40 | $116,065 | $30,005 |
| MEGHAN DONALDSON | CEO Trustee or director, Officer | 40 | $110,000 | $0 |
| ERICA MATISZ | DIR. OF DEVELOPMENT Highest-paid employee | 40 | $108,500 | $0 |
| TIM KELLEHER | CFO Officer | 6 | $42,765 | $0 |
| KAREN NEWMAN | CHAIR Trustee or director, Officer | 24 | $12,000 | $0 |
| NANCY S WEXLER PHD | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| ANNE B YOUNG MD PHD | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| BRUCE DONALDSON | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| ALICE WEXLER PHD | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| C FRANK BENNETT PHD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ROBI BLUMENSTEIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SANDY FOX | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TACIE FOX | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BERTA A GEHRY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| FRANK O GEHRY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID HOUSMAN PHD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOAN LEIMAN PHD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| HERBERT PARDES MD | DIRECTOR (THROUGH 4/24) Trustee or director | 1 | $0 | $0 |
| LAUREN BAKER PINKUS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LESLIE M THOMPSON PHD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID ZWALLY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MELISSA MOSER | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 22 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SARAH HERNANDEZ | DIR. OF RESEARCH PROGRAMS Highest-paid employee | 40 | $125,220 | $41,237 |
| JULIE PORTER | DIR OF ADMINISTRATION Highest-paid employee | 40 | $112,648 | $16,953 |
| MEGHAN DONALDSON | CEO Trustee or director, Officer | 40 | $110,000 | $0 |
| TRAVIS CAREY | CFO Officer | 6 | $43,995 | $0 |
| ALICE WEXLER PHD | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| KAREN NEWMAN | CHAIR Trustee or director, Officer | 15 | $0 | $0 |
| NANCY S WEXLER PHD | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| ANNE B YOUNG MD PHD | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| BRUCE DONALDSON | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| C FRANK BENNETT PHD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ROBI BLUMENSTEIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BARRY EVENCHICK | DIRECTOR THRU 9/23 Trustee or director | 1 | $0 | $0 |
| SANDY FOX | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TACIE FOX | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BERTA A GEHRY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| FRANK O GEHRY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID HOUSMAN PHD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOAN LEIMAN PHD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| HERBERT PARDES MD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LAUREN BAKER PINKUS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LESLIE M THOMPSON PHD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID ZWALLY | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2021: 17 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MEGHAN DONALDSON | CEO Trustee or director, Officer | 40 | $110,000 |
| TRAVIS CAREY | CFO Officer | 3 | $7,700 |
| NANCY S WEXLER PHD | PRESIDENT Trustee or director, Officer | 7 | $0 |
| DAVID ZWALLY | CHAIR Trustee or director, Officer | 1 | $0 |
| ANNE B YOUNG MD PHD | VICE CHAIR Trustee or director, Officer | 1 | $0 |
| BRUCE DONALDSON | TREASURER Trustee or director, Officer | 1 | $0 |
| ALICE WEXLER PHD | SECRETARY Trustee or director, Officer | 1 | $0 |
| ROBI BLUMENSTEIN | DIRECTOR Trustee or director | 1 | $0 |
| BARRY EVENCHICK | DIRECTOR Trustee or director | 1 | $0 |
| SANDY FOX | DIRECTOR Trustee or director | 1 | $0 |
| BERTA A GEHRY | DIRECTOR Trustee or director | 1 | $0 |
| FRANK O GEHRY | DIRECTOR Trustee or director | 1 | $0 |
| KELLY POSNER GERSTENHABER PHD | DIRECTOR Trustee or director | 1 | $0 |
| DAVID HOUSMAN PHD | DIRECTOR Trustee or director | 1 | $0 |
| JOAN LEIMAN PHD | DIRECTOR Trustee or director | 1 | $0 |
| KAREN NEWMAN | DIRECTOR Trustee or director | 1 | $0 |
| HERBERT PARDES MD | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- ATTN MEGHAN DONALDSON, NEW YORK, NY 10032-0000
- In care of
- % MEGHAN DONALDSON
- Principal officer (990 for 2025)
- MEGHAN DONALDSON, 601 WEST 168TH STREET 54, NEW YORK, NY 10032
- Signed the 990
- MEGHAN DONALDSON, CEO
- Phone
- (212) 928-2121
- Website
- WWW.HDFOUNDATION.ORG
- Return prepared by
- SAX ADVISORS LLC
Mission
TO FUND TRANSFORMATIVE RESEARCH TO FIND TREATMENTS, AND ULTIMATELY A CURE, FOR HUNTINGTON'S DISEASE.
Program accomplishments
- HUNTINGTON'S DISEASE FOUNDATION (HDF) ADVANCES PARADIGM-CHANGING HUNTINGTON'S DISEASE (HD) RESEARCH THROUGH A COLLABORATIVE APPROACH TO SCIENTIFIC DISCOVERY. WE INVEST IN RESEARCH BY PROVIDING SENIOR SCIENTISTS WITH GRANTS, INCLUDING OUR MILLION-DOLLAR TRANSFORMATIVE RESEARCH AWARDS, WHICH BEGAN IN 2023, AND FUNDING THE WORK OF EARLY CAREER SCIENTISTS THROUGH POSTDOCTORAL FELLOWSHIPS. WE CHAMPION COLLABORATIVE SCIENCE BY ORGANIZING BOTH SMALL THINKTANK-STYLE WORKSHOPS AND LARGE SCIENTIFIC CONFERENCES WHICH ENABLE EXPERTS IN HD TO SHARE THEIR LATEST DISCOVERIES, EXPLORE CUTTING-EDGE TECHNOLOGIES, AND FORM COLLABORATIONS. WE HIGHLIGHT FOR THE PUBLIC NOTABLE WORK OF SCIENTISTS THROUGH OUR WEBINARS.(CONTINUED ON SCHEDULE O)IN ITS EARLY YEARS, RESEARCH ORGANIZED AND FUNDED BY THE HDF WAS THE CATALYST FOR THE WORK THAT ISOLATED THE GENE THAT CAUSES HUNTINGTON'S DISEASE. THIS FINDING LED TO THE DEVELOPMENT OF A GENETIC TEST FOR HD AND LAUNCHED MODERN RESEARCH EFFORTS. THE HUNTINGTON'S DISEASE FOUNDATION SUPPORTS RESEARCH THROUGH SEVERAL FUNDING OPPORTUNITIES.HDF RESEARCH GRANTS: ONE-YEAR GRANTS PROVIDE SENIOR RESEARCHERS WITH SEED FUNDING TO ENABLE THEM TO COLLECT THE PRELIMINARY DATA NEEDED TO OBTAIN MAJOR, LONG-TERM FUNDING FROM OTHER ORGANIZATIONS, INCLUDING THE NIH.HDF POSTDOCTORAL FELLOWSHIPS: TWO-YEAR FELLOWSHIPS FUND THE WORK OF EARLY-CAREER SCIENTISTS. THESE FELLOWSHIPS ARE INTENDED TO ENCOURAGE AND CULTIVATE INTEREST IN HUNTINGTON'S DISEASE RESEARCH.TRANSFORMATIVE RESEARCH AWARDS: THESE MILLION-DOLLAR RESEARCH AWARDS, HDF'S LARGEST GRANTS, FUND COLLABORATIVE RESEARCH TEAMS TO CREATE INNOVATIVE WAYS TO STUDY NEW PATHOGENIC DISEASE MECHANISMS AND TREATMENT MODALITIES IN HUNTINGTON'S DISEASE.HD CAREER ADVANCEMENT GRANTS: THESE ARE OUR NEWEST AWARDS WITH GRANTS BEGINNING IN 2025. THIS INCUBATOR PROGRAM SUPPORTS YOUNG INVESTIGATORS BY PROVIDING RESOURCES AND TOOLS TO BUILD THE NECESSARY SKILLS TO BRIDGE THE TRANSITION FROM POSTDOCTORAL POSITION TO TENURE-TRACK PRIMARY INVESTIGATOR. OUR GOAL THROUGH THIS PROGRAM AND OUR POSTDOCTORAL FELLOWSHIPS IS TO ENGAGE AND RETAIN THE BRIGHTEST MINDS IN HD RESEARCH BY FUNDING AND MENTORING EARLY-CAREER SCIENTISTS.HDF-FUNDED RESEARCHERS HAVE MADE SIGNIFICANT STRIDES IN APPLYING ADVANCED TECHNIQUES SUCH AS ARTIFICIAL INTELLIGENCE (AI), CRISPR AND BRAIN MAPPING, LEADING TO TREMENDOUS PROMISE FOR POTENTIAL TREATMENTS FOR HUNTINGTON'S DISEASE.Expenses $3,796,690 · grants $3,152,522 · revenue $52,500
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 23-7376197
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1974
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H200)
- Assets (IRS master file)
- $23,135,759
- Income (IRS master file)
- $11,041,255
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $4,081,669 | $4,326,391 | $23,135,759 | IRS |
| 990 | December 2024 | $7,899,221 | $4,524,145 | $21,978,294 | IRS |
| 990 | December 2023 | $2,578,841 | $4,738,635 | $18,234,308 | XML |
| 990 | December 2022 | $4,522,686 | $2,603,305 | $16,776,193 | IRS |
| 990 | December 2021 | $3,846,649 | $2,967,624 | $18,145,612 | XML |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 23-7376197).
Questions about HUNTINGTON S DISEASE FOUNDATION
- What is the EIN of HUNTINGTON S DISEASE FOUNDATION?
- The employer identification number (EIN) of HUNTINGTON S DISEASE FOUNDATION is 23-7376197.
- Is HUNTINGTON S DISEASE FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1974.
- Are donations to HUNTINGTON S DISEASE FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does HUNTINGTON S DISEASE FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of HUNTINGTON S DISEASE FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HUNTINGTON S DISEASE FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of HUNTINGTON S DISEASE FOUNDATION?
- The 990 for the year ended December 31, 2025 names MEGHAN DONALDSON.
- Who are the officers and directors of HUNTINGTON S DISEASE FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 21 people; 5 received compensation from the organization, the highest $155,000 (SARAH HERNANDEZ PHD, DIR. OF RESEARCH PROGRAMS).
- How much revenue does HUNTINGTON S DISEASE FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $4,081,669, expenses of $4,326,391 and total assets of $23,135,759 at year end.
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