Nonprofit · EIN 22-3243677
CYSTIC FIBROSIS FAMILY CONNECTION INC
Tax-exempt · ROCHESTER, NY 14692
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2026 | 990-EZ | $8,559 | $9,384 | -$825 | $78,671 | $0 | $78,671 |
| June 30, 2025 | 990-EZ | $5,294 | $9,024 | -$3,730 | $79,496 | $0 | $79,496 |
| June 30, 2024 | 990-EZ | $6,456 | $5,887 | $569 | $83,226 | $0 | $83,226 |
Financial details: 990-EZ for the year ended June 30, 2026
Revenue
- Contributions, gifts and grants
- $4,260
- Program service revenue
- $0
- Investment income
- $75
- Net income from fundraising events
- $4,224
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Benefits paid to members
- $8,783
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Occupancy
- $50
- Printing, publications and postage
- $551
- Program services (functional)
- $3,313
Balance sheet and other
- Total assets, start of year
- $79,496
- Total assets, end of year
- $78,671
- Total liabilities, end of year
- $0
- Net assets, end of year
- $78,671
- Cash, savings and investments
- $78,671
- Gross receipts
- $11,526
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended June 30, 2026, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Karly Schuhart | President | 2 | $0 |
| Tammy Schuhart | Vice President | 1 | $0 |
| Gregory Smith | Secretary/Treasurer | 6 | $0 |
| Donna Germuga | Director | 1 | $0 |
| Anne Governor | Director | 1 | $0 |
| Chrisanne Mansfield | Director | 1 | $0 |
990-EZ for the year ended June 30, 2025: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Karly Schuhart | President | 0.5 | $0 |
| Tammy Schuhart | Vice President | 0.25 | $0 |
| Gregory Smith | Secretary/Treasurer | 5 | $0 |
| Donna Germuga | Director | 0.25 | $0 |
| Anne Governor | Director | 0.25 | $0 |
| Chrisanne Mansfield | Director | 0.25 | $0 |
990-EZ for the year ended June 30, 2024: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Karly Schuhart | President | 2 | $0 |
| Tammy Schuhart | Vice President | 1 | $0 |
| Gregory Smith | Secretary/Treasurer | 5 | $0 |
| Donna Germuga | Director | 0.5 | $0 |
| Anne Governor | Director | 0.5 | $0 |
| Chrisanne Mansfield | Director | 0.5 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 93328, ROCHESTER, NY 14692-8328
- Mailing address (990-N for 2010)
- PO Box 93328, Rochester NY 14692
- Principal officer (990-N for 2010)
- Gregory Smith, 400 Farrell Road Ext, West Henrietta NY 14586
- Signed the 990-EZ
- Gregory Smith, Secretary/Treasurer
- Phone
- (585) 764-1746
- Website
- www.cffamilyconnection.org
Mission
Provide support to people living with cystic fibrosis.
Program accomplishments
- Financial support to offset personal expenses during hospitalizations (e.g., parking and food). Support packets are delivered to, and distributed by, hospital staff. Due to HIPAA requirements, we are not provided with recipient names. Estimated admissions of 30.grants $1,736
- Sponsoring events to promote the exchange of information relating to cystic fibrosis and coping with the challenges of living with the disease. The target audience are people living with cystic fibrosis, their families and their caregivers. Approximately 50 attendees.Expenses $3,313
- Providing payments to individuals to cover emergency expenses where no other resources are available. Seven grants were made in this fiscal year.grants $3,500
What it must file and when
IRS records say it files Form 990-N (e-Postcard). Gross receipts normally $50,000 or less. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | 990-EZ on file |
| 2024 | June 30, 2025 | November 17, 2025 | 990-EZ on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 22-3243677
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1993
- Accounting year ends
- June
- Files
- Form 990-N (e-Postcard)
- Category (NTEE)
- Housing and shelter (L20Z)
- Assets (IRS master file)
- $78,671
- Income (IRS master file)
- $11,526
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | June 2026 | $8,559 | $9,384 | $78,671 | XML |
| 990-EZ | June 2025 | $5,294 | $9,024 | $79,496 | XML |
| 990-EZ | June 2024 | $6,456 | $5,887 | $83,226 | XML |
| 990-EZ | June 2023 | – | – | – | IRS |
| 990-EZ | June 2022 | – | – | – | IRS |
| 990-EZ | June 2021 | – | – | – | IRS |
| 990-EZ | June 2020 | – | – | – | IRS |
| 990-EZ | June 2019 | – | – | – | IRS |
| 990-N for 2010 Officer: Gregory Smith | June 30, 2011 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-3243677).
Questions about CYSTIC FIBROSIS FAMILY CONNECTION INC
- What is the EIN of CYSTIC FIBROSIS FAMILY CONNECTION INC?
- The employer identification number (EIN) of CYSTIC FIBROSIS FAMILY CONNECTION INC is 22-3243677.
- Is CYSTIC FIBROSIS FAMILY CONNECTION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1993.
- Are donations to CYSTIC FIBROSIS FAMILY CONNECTION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CYSTIC FIBROSIS FAMILY CONNECTION INC file?
- Form 990-N (e-Postcard). Gross receipts normally $50,000 or less.
- When is the next return of CYSTIC FIBROSIS FAMILY CONNECTION INC due?
- The return for tax year 2026 (the year ending June 30, 2027) is due November 15, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CYSTIC FIBROSIS FAMILY CONNECTION INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended June 2026.
- Who is the principal officer of CYSTIC FIBROSIS FAMILY CONNECTION INC?
- The 990-N for 2010 names Gregory Smith.
- Who are the officers and directors of CYSTIC FIBROSIS FAMILY CONNECTION INC?
- The 990-EZ for the year ended June 30, 2026 lists 6 people; 0 received compensation from the organization.
- How much revenue does CYSTIC FIBROSIS FAMILY CONNECTION INC have?
- On its 990-EZ for the year ended June 30, 2026 it reported revenue of $8,559, expenses of $9,384 and total assets of $78,671 at year end.
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All nonprofits in ROCHESTER · New York · Housing and shelter