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Nonprofit · EIN 22-2596246

MASSACHUSETTS DOWNS SYNDROME CONGRESS INC

Tax-exempt · BURLINGTON, MA 01803

Financials

$2.1M$2.2M2022$2.1M$2.5M2023$4.8M$2.6M2024
Revenue Expenses · by fiscal year end
Financials of MASSACHUSETTS DOWNS SYNDROME CONGRESS INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
June 30, 2025990$4,754,653$2,585,087$2,169,566$7,380,680$745,061$6,635,619
June 30, 2024990$2,102,829$2,478,621-$375,792$4,943,861$767,402$4,176,459
June 30, 2023990$2,115,140$2,208,498-$93,358$5,190,411$823,711$4,366,700
Financial details: 990 for the year ended June 30, 2025

Revenue

Contributions, gifts and grants
$4,421,024
of which government grants
$453,320
Membership dues
$720
Program service revenue
$201,406
Investment income
$146,730
Net income from fundraising events
-$15,613
Net income from sales of inventory
-$533
Other revenue
-$14,507

Expenses

Grants and similar amounts paid
$5,000
Compensation of officers, directors and key employees
$187,588
Other salaries and wages
$984,427
Salaries, compensation and benefits (total)
$1,543,897
Professional fundraising fees
$0
Legal fees
$8,522
Accounting fees
$65,205
Occupancy
$69,619
Travel
$27,477
Depreciation
$7,893
Program services (functional)
$2,162,398
Management and general (functional)
$228,811
Fundraising (functional)
$193,878

Balance sheet and other

Total assets, start of year
$4,943,861
Total assets, end of year
$7,380,680
Total liabilities, end of year
$745,061
Net assets, end of year
$6,635,619
Land, buildings and equipment
$7,892
Publicly traded securities
$6,039,099
Net assets without donor restrictions
$1,034,008
Net assets with donor restrictions
$5,601,611
Gross receipts
$4,783,360
Employees
14
Volunteers
0
Year formed
1984
State of legal domicile
MA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended June 30, 2025, highest compensation first.

NameTitleHours / weekCompensationOther / benefits
MAUREEN GALLAGHEREXECUTIVE DIRECTOR
Officer
40$176,712$14,813
JOSHUA KOMYEROVCOMMUNICATIONS & OP DIRECTOR
Highest-paid employee
40$127,716$33,464
SARAH CULLENFAMILY SUPPORT DIRECTOR
Highest-paid employee
40$112,759$32,850
REAGHAN BIKDEVELOPMENT DIRECTOR
Highest-paid employee
40$108,127$32,696
TAIESE BINGHAM HICKMANDIRECTOR
Trustee or director
2$0$0
JUDSON DECEWPERSONNEL COMMITTEE CHAIR
Trustee or director, Officer
2$0$0
JAMES MOLLACHAIR OF AUDIT AND FINANCE
Trustee or director, Officer
2$0$0
ROXANNE HOKE-CHANDLERDIRECTOR
Trustee or director
2$0$0
STACY LINDBORGCHAIR OF BOARD
Trustee or director, Officer
2$0$0
RICHARD FLEMINGDIRECTOR
Trustee or director
2$0$0
FRANCISCO ZAMUDIODIRECTOR
Trustee or director
2$0$0
SUSAN CANNDIRECTOR
Trustee or director
2$0$0
DAVID GRANFORSDIRECTOR
Trustee or director
2$0$0
JONATHAN TABASKYVICE CHAIR
Trustee or director, Officer
2$0$0
ROBERT MILLSDIRECTOR
Trustee or director
2$0$0
5 more people on this return
NameTitleHours / weekCompensation
STEPHANIE SANTORODIRECTOR
Trustee or director
2$0
CLARE GILLAN HUANGDIRECTOR
Trustee or director
2$0
ADAM DELMOLINODIRECTOR
Trustee or director
2$0
DREW KELLERDIRECTOR
Trustee or director
2$0
MARGARET VEN GELDERDIRECTOR
Trustee or director
2$0
990 for the year ended June 30, 2024: 24 people
NameTitleHours / weekCompensationOther / benefits
MAUREEN GALLAGHEREXECUTIVE DIRECTOR
Officer
40$157,073$16,536
JOSHUA KOMYEROVCOMMUNICATIONS & OP DIRECT
Highest-paid employee
40$121,332$15,931
SARAH CULLENFAMILY SUPPORT DIRECTOR
Highest-paid employee
40$105,970$30,773
REAGHAN BIKDEVELOPMENT DIRECTOR
Highest-paid employee
40$102,670$31,232
ELEANOR AXELRODDIRECTOR
Trustee or director
2$0$0
RICHARD DOWNEYDIRECTOR
Trustee or director
2$0$0
TAIESE HICKMANDIRECTOR
Trustee or director
2$0$0
JUDSON DECEWPERSONNEL COMMITTEE CHAIR
Trustee or director, Officer
2$0$0
JAMES MOLLACHAIR OF AUDIT AND FINANCE
Trustee or director, Officer
2$0$0
MARGARET PULSIFERDIRECTOR
Trustee or director
2$0$0
ROXANNE HOKE-CHANDLERDIRECTOR
Trustee or director
2$0$0
STACY LINDBORGCHAIR OF BOARD
Trustee or director, Officer
2$0$0
BETSY PELZDIRECTOR
Trustee or director
2$0$0
RICHARD FLEMINGDIRECTOR
Trustee or director
2$0$0
FRANCISCO ZAMUDIODIRECTOR
Trustee or director
2$0$0
SUSAN CANNDIRECTOR
Trustee or director
2$0$0
DAVID GRANFORSDIRECTOR
Trustee or director
2$0$0
JONATHAN TABASKYVICE CHAIR
Trustee or director, Officer
2$0$0
ROBERT MILLSDIRECTOR
Trustee or director
2$0$0
STEPHANIE SANTORODIRECTOR
Trustee or director
2$0$0
CLARE GILLAN HUANGDIRECTOR
Trustee or director
2$0$0
ADAM DELMOLINODIRECTOR
Trustee or director
2$0$0
DREW KELLERDIRECTOR
Trustee or director
2$0$0
MARGARET VEN GELDERDIRECTOR
Trustee or director
2$0$0
990 for the year ended June 30, 2023: 21 people
NameTitleHours / weekCompensationOther / benefits
MAUREEN GALLAGHEREXECUTIVE DIRECTOR
Officer
40$150,418$11,084
JOSHUA KOMYEROVCOMMUNICATIONS & OP DIRECT
Highest-paid employee
40$115,580$4,565
ELEANOR AXELRODDIRECTOR
Trustee or director
2$0$0
RICHARD DOWNEYCHAIR OF THE BOARD
Trustee or director, Officer
2$0$0
TAIESE HICKMANDIRECTOR
Trustee or director
2$0$0
JUDSON DECEWPERSONNEL COMMITTEE CHAIR
Trustee or director, Officer
2$0$0
CLARE GILLAN HUANGDIRECTOR
Trustee or director
2$0$0
JAMES MOLLACHAIR OF AUDIT AND FINANCE
Trustee or director, Officer
2$0$0
MARGARET PULSIFERGOVERNANCE COMMITTEE CHAIR
Trustee or director, Officer
2$0$0
ROXANNE HOKE-CHANDLERDIRECTOR
Trustee or director
2$0$0
JEFFREY PALMERDIRECTOR
Trustee or director
2$0$0
STACY LINDBORGCHAIR OF DEVELOPMENT COMMI
Trustee or director, Officer
2$0$0
BETSY PELZDIRECTOR
Trustee or director
2$0$0
RICHARD FLEMINGDIRECTOR
Trustee or director
2$0$0
FRANCISCO ZAMUDIODIRECTOR
Trustee or director
2$0$0
SUSAN CANNDIRECTOR
Trustee or director
2$0$0
DAVID GRANFORSDIRECTOR
Trustee or director
2$0$0
JONATHAN TABASKYDIRECTOR
Trustee or director
2$0$0
ANGELIQUE UHLMANNDIRECTOR
Trustee or director
2$0$0
ROBERT MILLSDIRECTOR
Trustee or director
2$0$0
STEPHANIE SANTORODIRECTOR
Trustee or director
2$0$0

Address and contacts

Address (IRS master file)
20 BURLINGTON MALL ROAD STE 261, BURLINGTON, MA 01803-4127
Principal officer (990 for 2024)
MAUREEN GALLAGHER, 20 BURLINGTON MALL ROAD 261, BURLINGTON, MA 01803
Signed the 990
MAUREEN GALLAGHER, EXECUTIVE DIRECTOR
Phone
(781) 221-0024
Website
MDSC.ORG
Return prepared by
BOLLUS LYNCH LLP

Mission

TO ENSURE INDIVIDUALS WITH DOWN SYNDROME IN MASSACHUSETTS ARE VALUED, INCLUDED, AND GIVEN THE OPPORTUNITIES TO PURSUE FULFILLING LIVES BY PROVIDING INFORMATION, NETWORKING OPPORTUNITIES, AND ADVOCACY FOR PEOPLE WITH DOWN SYNDROME AND THEIR FAMILIES, EDUCATORS, HEALTH CARE PROFESSIONALS, AND THE COMMUNITY-AT-LARGE.

990 for the year ended June 30, 2025

Program accomplishments

  • THE MDSC ADVANCES THE UNDERSTANDING OF DOWN SYNDROME THROUGH IMPLEMENTING PUBLIC AWARENESS INITIATIVES THAT LEAD TO SYSTEMIC CHANGES THAT ENHANCE THE ABILITY FOR ALL INDIVIDUALS WITH DOWN SYNDROME TO HAVE MEANINGFUL FULFILLING LIVES IN THE COMMUNITY. OUR MAJOR PUBLIC AWARENESS AND EDUCATION PROGRAMS INCLUDE THE BUDDY WALK PROGRAM, YOUR NEXT STAR EMPLOYMENT CAMPAIGN, THE ANNUAL CONFERENCE, EDUCATORS FORUM, AND MEDICAL PROVIDER EDUCATION. IN FY25 OVER 6,900 PEOPLE PARTICIPATED IN AND BENEFITED FROM THESE PROGRAMS.
    Expenses $1,540,011 · grants $5,000 · revenue $200,532
  • THE MDSC PROVIDES NETWORKING, SOCIAL/FRIENDSHIP OPPORTUNITIES, AND DIRECT SUPPORTS FOR ALL PEOPLE WITH DOWN SYNDROME AND THEIR FAMILIES ACROSS MASSACHUSETTS. THROUGH OUR NATIONALLY RECOGNIZED PARENTS FIRST CALL PROGRAM, ADVOCATES IN MOTION TEEN AND YOUNG ADULT PROGRAM, ALLEN CROCKER SELF-ADVOCATE INTERN PROGRAM, DADS APPRECIATING DOWN SYNDROME, SERVICES FOR FAMILIES WHO HAVE CHILDREN WITH SPECIAL HEALTH CARE NEEDS, DIVERSITY OUTREACH PROGRAM, SUPPORT GROUP LEADER RETREAT, AND A VARIETY OF OTHER SOCIAL RECREATION PROGRAMS THE MDSC PROVIDED DIRECT SUPPORT TO OVER 4,800 INDIVIDUALS IN FY25.
    Expenses $622,387 · revenue $1,980

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025June 30, 2026November 16, 2026Not due yet
2024June 30, 2025November 17, 2025990 on file
2023June 30, 2024November 15, 2024990 on file

IRS record

EIN
22-2596246
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (509(a)(2))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1985
Accounting year ends
June
Files
Form 990 or 990-EZ
Assets (IRS master file)
$7,380,680
Income (IRS master file)
$4,783,360

Filing history

FormYear endedRevenueExpensesAssetsReturn
990June 2025$4,754,653$2,585,087$7,380,680XML
990June 2024$2,102,829$2,478,621$4,943,861IRS
990June 2023$2,115,140$2,208,498$5,190,411XML
990June 2022$4,347,914$1,771,196$4,722,413IRS
990June 2021–––IRS
990June 2020–––IRS
990June 2019–––IRS
990June 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-2596246).

Questions about MASSACHUSETTS DOWNS SYNDROME CONGRESS INC

What is the EIN of MASSACHUSETTS DOWNS SYNDROME CONGRESS INC?
The employer identification number (EIN) of MASSACHUSETTS DOWNS SYNDROME CONGRESS INC is 22-2596246.
Is MASSACHUSETTS DOWNS SYNDROME CONGRESS INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1985.
Are donations to MASSACHUSETTS DOWNS SYNDROME CONGRESS INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does MASSACHUSETTS DOWNS SYNDROME CONGRESS INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of MASSACHUSETTS DOWNS SYNDROME CONGRESS INC due?
The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did MASSACHUSETTS DOWNS SYNDROME CONGRESS INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended June 2025.
Who is the principal officer of MASSACHUSETTS DOWNS SYNDROME CONGRESS INC?
The 990 for the year ended June 30, 2025 names MAUREEN GALLAGHER.
Who are the officers and directors of MASSACHUSETTS DOWNS SYNDROME CONGRESS INC?
The 990 for the year ended June 30, 2025 lists 20 people; 4 received compensation from the organization, the highest $176,712 (MAUREEN GALLAGHER, EXECUTIVE DIRECTOR).
How much revenue does MASSACHUSETTS DOWNS SYNDROME CONGRESS INC have?
On its 990 for the year ended June 30, 2025 it reported revenue of $4,754,653, expenses of $2,585,087 and total assets of $7,380,680 at year end.

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