Nonprofit · EIN 22-2505819
EPILEPSY FOUNDATION NEW ENGLAND INC
Tax-exempt · LOWELL, MA 01854
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $7,486,018 | $6,800,011 | $686,007 | $15,377,474 | $1,533,044 | $13,844,430 |
| June 30, 2024 | 990 | $7,355,741 | $6,455,357 | $900,384 | $13,877,043 | $1,575,165 | $12,301,878 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $2,116,162
- of which government grants
- $1,096,777
- Program service revenue
- $5,125,409
- Investment income
- $507,561
- Net income from fundraising events
- -$268,908
- Other revenue
- -$263,114
Expenses
- Grants and similar amounts paid
- $227,517
- Compensation of officers, directors and key employees
- $552,448
- Other salaries and wages
- $3,190,472
- Salaries, compensation and benefits (total)
- $4,473,548
- Professional fundraising fees
- $0
- Accounting fees
- $165,608
- Occupancy
- $114,870
- Travel
- $87,842
- Depreciation
- $178,419
- Program services (functional)
- $4,594,903
- Management and general (functional)
- $709,930
- Fundraising (functional)
- $1,495,178
Balance sheet and other
- Total assets, start of year
- $13,877,043
- Total assets, end of year
- $15,377,474
- Total liabilities, end of year
- $1,533,044
- Net assets, end of year
- $13,844,430
- Publicly traded securities
- $12,061,851
- Net assets without donor restrictions
- $13,542,505
- Net assets with donor restrictions
- $301,925
- Gross receipts
- $7,868,112
- Employees
- 124
- Volunteers
- 100
- Year formed
- 1983
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| SUSAN LINN | FORMER PRESIDENT & CEO - EFNE THRU MAY25 Officer | 50 | $278,893 | $0 | $19,136 |
| BRADLEY RICH | PRESIDENT - DC Officer | 1 | $0 | $260,694 | $10,385 |
| JEFFREY GANZ | CHIEF OPERATING OFFICER - Highest-paid employee | 40 | $152,681 | $0 | $6,129 |
| JACQUELYN BREAULT | DIRECTOR OF OPERATIONS - D Highest-paid employee | 1 | $0 | $137,985 | $16,084 |
| CHANDA LINN | VP OF PROGRAMS & SERVICES - EFNE Highest-paid employee | 40 | $100,217 | $0 | $9,212 |
| DAVID SEARLES | VP FOR DEVELOPMENT & COMMUNICATIONS - EFNE Highest-paid employee | 40 | $103,824 | $0 | $3,704 |
| AIMEE STEVENS | FORMER DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| JASON BOURQUE | CLERK Trustee or director, Officer | 0.4 | $0 | $0 | $0 |
| JENNIFER CARDILLO | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| BRETT DOWNING | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| MARC FIRENZE | FORMER VICE CHAIR Trustee or director, Officer | 0.4 | $0 | $0 | $0 |
| PHILIP HAYDON PHD | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| JOHN GAITANIS MD | FORMER DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| DARA FREEDMAN-WEISS | FORMER DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| DON HOLMES | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
10 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ALISON ZETTERQUIST | CHAIR Trustee or director, Officer | 0.4 | $0 |
| TIM YOUNG | TREASURER Trustee or director, Officer | 0.4 | $0 |
| TAMARA SACHARCZYK | DIRECTOR Trustee or director | 0.4 | $0 |
| IKA NOVIAWATY | DIRECTOR Trustee or director | 0.4 | $0 |
| KIMBERLEE SCHUMACHER | DIRECTOR THRU JUN25 Trustee or director | 0.4 | $0 |
| DARLENE WILSON | DIRECTOR Trustee or director | 0.4 | $0 |
| ANDREW COLE MD | DIRECTOR Trustee or director | 1.5 | $0 |
| STEVE SIRAVO | DIRECTOR Trustee or director | 1.5 | $0 |
| JOE SIRAVO | DIRECTOR Trustee or director | 1.5 | $0 |
| KIMBERLEE SCHUMACHER | INTERIM-PRESIDENT & CEO BEGINNING JUN25 Officer | 40 | $0 |
990 for the year ended June 30, 2024: 22 people
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| BRADLEY RICH | PRESIDENT - DC Officer | 0 | $0 | $265,103 | $8,436 |
| SUSAN LINN | PRESIDENT & CEO - EFNE Officer | 50 | $251,751 | $0 | $19,781 |
| JEFFREY GANZ | CHIEF OPERATING OFFICER - EFNE Highest-paid employee | 40 | $117,171 | $0 | $5,065 |
| JACQUELYN BREAULT | DIRECTOR OF OPERATIONS - DC Highest-paid employee | 0 | $0 | $100,483 | $13,037 |
| AIMEE STEVENS | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| JASON BOURQUE | SECRETARY Trustee or director, Officer | 0.4 | $0 | $0 | $0 |
| JENNIFER CARDILLO | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| BRETT DOWNING | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| MARC FIRENZE | VICE CHAIR Trustee or director, Officer | 0.4 | $0 | $0 | $0 |
| PHILIP HAYDON PHD | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| JOHN GAITANIS MD | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| DARA FREEDMAN-WEISS | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| DON HOLMES | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| ALISON ZETTERQUIST | CHAIR Trustee or director, Officer | 0.4 | $0 | $0 | $0 |
| TIM YOUNG | TREASURER Trustee or director, Officer | 0.4 | $0 | $0 | $0 |
| TAMARA SACHARCZYK | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| IKA NOVIAWATY | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| KIMBERLEE SCHUMACHER | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| DARLENE WILSON | DIRECTOR Trustee or director | 0.4 | $0 | $0 | $0 |
| ANDREW COLE MD | DIRECTOR Trustee or director | 1.5 | $0 | $0 | $0 |
| STEVE SIRAVO | DIRECTOR Trustee or director | 1.5 | $0 | $0 | $0 |
| JOE SIRAVO | DIRECTOR Trustee or director | 1.5 | $0 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 175 CABOT ST STE 301, LOWELL, MA 01854-3635
- Principal officer (990 for 2024)
- KIMBERLEE SCHUMACHER, 175 CABOT STREET 301, LOWELL, MA 01854
- Signed the 990
- KIMBERLEE SCHUMACHER, INTERIM PRESIDENT & CEO
- Phone
- (617) 506-6041
- Website
- WWW.EPILEPSYNEWENGLAND.ORG
- Return prepared by
- NON PROFIT CAPITAL MANAGEMENT LLC
Mission
TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION. EFNE'S SERVICES ARE DESIGNED TO PROVIDE HELP FOR TODAY AND HOPE FOR TOMORROW.
Program accomplishments
- FUNDING SUPPORT & DONATION CENTER: EFNE'S DONATION CENTER FUNDS EFNE'S MISSION TO IMPROVE THE LIVES OF PEOPLE LIVING WITH EPILEPSY. THE DONATION CENTER COLLECTS GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO PROVIDE CONNECTION AND RESOURCES TO PEOPLE LIVING WITH EPILEPSY, AND SHOWCASES ADVANCEMENTS IN THE TREATMENTS AND OTHER RESOURCES AVAILABLE FOR PEOPLE LIVING WITH EPILEPSY IN PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN IMPROVING THE LIVES OF PEOPLE LIVING WITH EPILEPSY AND UNDERSTANDING RESEARCH IN EPILEPSY.Expenses $2,021,478 · revenue $5,125,409
- RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES EPILEPSY RESOURCE ROOMS IN ABOUT 13 HOSPITALS ACROSS NEW ENGLAND. THOUSANDS OF CLIENTS RECEIVE ACTIVE LISTENING AND MENTORING, EDUCATION, AND INFO/REFERRALS. IN FISCAL YEAR 2024, EFNE PROVIDED ONE-TIME GRANTS OF $50-$1,000 TO 45 FAMILIES AFFECTED BY EPILEPSY AND IN FINANCIAL CRISIS. EFNE PROVIDES APPROXIMATELY 30 SUPPORT GROUPS PER MONTH, SERVING 400-500 PEOPLE PER YEAR. EFNE PROVIDES EDUCATIONAL PROGRAMS ABOUT EPILEPSY AND SEIZURE FIRST AID TO APPROXIMATELY 5,000 PEOPLE PER YEAR, INCLUDING SCHOOL CHILDREN, SCHOOL PERSONNEL, FIRST RESPONDERS, PARENTS AND THE GENERAL PUBLIC. WE MAINTAIN AN ONLINE KNOWLEDGE CENTER AND RESOURCE LIBRARY.Expenses $2,265,910 · grants $227,517
- YOUTH SERVICES: EFNE PROVIDES SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING MORE THAN 200 PARTICIPANTS EACH YEAR. CLIENTS RECEIVE MENTORING FROM STAFF, VOLUNTEERS, AMERICORPS MEMBER, AND INTERNS. YOUNG ADULT RETREATS PROVIDE TRANSITION AGE YOUTH WITH COMMUNITY BUILDING SKILLS AS THEY TRANSITION TO ADULTHOOD. HUNDREDS OF ONLINE VIRTUAL SUPPORT GROUPS AND MEET-UPS PROVIDE SUPPORT OUR YOUTH. EFNE'S HOPE LION CAMPAIGN HAS REACHED MORE THAN 1,000 FAMILIES TO PROVIDE SUPPORT, EDUCATION, AND COMMUNITY AS THEY MOVE THROUGH THEIR JOURNEY WITH EPILEPSY.Expenses $307,515
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 22-2505819
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1984
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $15,377,474
- Income (IRS master file)
- $7,868,112
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $7,486,018 | $6,800,011 | $15,377,474 | XML |
| 990 | June 2024 | $7,355,741 | $6,455,357 | $13,877,043 | XML |
| 990 | June 2023 | $6,573,455 | $5,905,898 | $10,402,302 | IRS |
| 990 | June 2022 | – | – | – | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-2505819).
Questions about EPILEPSY FOUNDATION NEW ENGLAND INC
- What is the EIN of EPILEPSY FOUNDATION NEW ENGLAND INC?
- The employer identification number (EIN) of EPILEPSY FOUNDATION NEW ENGLAND INC is 22-2505819.
- Is EPILEPSY FOUNDATION NEW ENGLAND INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1984.
- Are donations to EPILEPSY FOUNDATION NEW ENGLAND INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does EPILEPSY FOUNDATION NEW ENGLAND INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of EPILEPSY FOUNDATION NEW ENGLAND INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did EPILEPSY FOUNDATION NEW ENGLAND INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of EPILEPSY FOUNDATION NEW ENGLAND INC?
- The 990 for the year ended June 30, 2025 names KIMBERLEE SCHUMACHER.
- Who are the officers and directors of EPILEPSY FOUNDATION NEW ENGLAND INC?
- The 990 for the year ended June 30, 2025 lists 25 people; 4 received compensation from the organization, the highest $278,893 (SUSAN LINN, FORMER PRESIDENT & CEO - EFNE THRU MAY25).
- How much revenue does EPILEPSY FOUNDATION NEW ENGLAND INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $7,486,018, expenses of $6,800,011 and total assets of $15,377,474 at year end.
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