Nonprofit · EIN 22-2480896
CHARCOT-MARIE-TOOTH ASSOCIATION
Tax-exempt · GLENOLDEN, PA 19036
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $6,864,031 | $7,355,825 | -$491,794 | $8,112,362 | $2,054,372 | $6,057,990 |
| December 31, 2024 | 990 (amended) | $5,778,743 | $5,791,669 | -$12,926 | $9,548,719 | $0 | $9,548,719 |
| December 31, 2023 | 990 | $5,761,508 | $6,291,966 | -$530,458 | $9,566,018 | $0 | $9,566,018 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $5,717,540
- Program service revenue
- $810,547
- Investment income
- $287,629
- Net income from fundraising events
- $4,777
- Other revenue
- $48,315
Expenses
- Grants and similar amounts paid
- $3,342,651
- Compensation of officers, directors and key employees
- $715,088
- Other salaries and wages
- $668,628
- Salaries, compensation and benefits (total)
- $1,566,784
- Professional fundraising fees
- $0
- Legal fees
- $37,243
- Accounting fees
- $126,050
- Program services (functional)
- $6,673,543
- Management and general (functional)
- $340,433
- Fundraising (functional)
- $341,849
Balance sheet and other
- Total assets, start of year
- $9,548,719
- Total assets, end of year
- $8,112,362
- Total liabilities, end of year
- $2,054,372
- Net assets, end of year
- $6,057,990
- Publicly traded securities
- $6,921,397
- Net assets without donor restrictions
- $3,578,464
- Net assets with donor restrictions
- $2,479,526
- Gross receipts
- $7,058,095
- Employees
- 14
- Volunteers
- 125
- Year formed
- 1983
- State of legal domicile
- PA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SUZANNE BRUHN | CHIEF EXECUTIVE OFFICER Trustee or director, Officer | 40 | $300,000 | $10,996 |
| JEANA SWEENEY | CHIEF ENGAGEMENT AND GIFT OFFICER Highest-paid employee | 40 | $144,515 | $5,664 |
| KATHERINE FORSEY | CHIEF RESEARCH OFFICER Highest-paid employee | 40 | $135,441 | $6,571 |
| LAUREL RICHARDSON | DIRECTOR OF COMMUNITY OUTREACH Highest-paid employee | 40 | $108,061 | $3,840 |
| GILLES BOUCHARD | BOARD CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| KEVIN SAMI | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| HERBERT BERON | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| WENDY ARNONE | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAVID APPLE | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAN CHAMBY | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAVID COLDIRON | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| BERNARD COULIE | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| GARY J GASPER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| CATHERINE ILLINGWORTH | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| KEVIN MARKS | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
6 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JON PASTOR | BOARD MEMBER Trustee or director | 1 | $0 |
| DR STEVEN SCHERER | BOARD MEMBER Trustee or director | 1 | $0 |
| DR MICHAEL SHY | BOARD MEMBER Trustee or director | 1 | $0 |
| DAVID STARK | BOARD MEMBER Trustee or director | 1 | $0 |
| JOHN SVAREN | BOARD MEMBER Trustee or director | 1 | $0 |
| CRAIG ZELTSAR | BOARD MEMBER Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 26 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SUZANNE BRUHN | CHIEF EXECUTIVE OFFICER Trustee or director, Officer | 40 | $300,000 | $11,016 |
| JEANA SWEENEY | CHIEF ENGAGEMENT AND GIFT OFFICER Highest-paid employee | 40 | $140,000 | $5,515 |
| KATHERINE FORSEY | CHIEF RESEARCH OFFICER Highest-paid employee | 40 | $125,404 | $6,552 |
| LAUREL RICHARDSON | DIRECTOR OF COMMUNITY OUTREACH Highest-paid employee | 40 | $101,520 | $3,724 |
| KIMBERLY MAGEE | DIRECOT OF FINANCE AND ADMIN Officer | 40 | $98,400 | $3,676 |
| ALAN KOROWITZ | BOARD MEMBER (THRU 2/24) Trustee or director | 0 | $0 | $0 |
| BERNARD COULIE | BOARD MEMBER (EFF 2/24) Trustee or director | 0 | $0 | $0 |
| CRAIG ZELTSAR | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAN CHAMBY | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAVID APPLE | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAVID COLDIRON | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DR MICHAEL SHY | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DR STEVEN SCHERER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DR THOMAS DUBENSKY | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| GARY J GASPER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| GILLES BOUCHARD | CHAIRMAN Trustee or director, Officer | 1 | $0 | $0 |
| HERBERT BERON | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| JOHN SVAREN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| JON PASTOR | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| KEVIN MARKS | BOARD MEMBER (EFF 2/24) Trustee or director | 1 | $0 | $0 |
| KEVIN SAMI | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| PARTRICIA VERDUIN OHD | BOARD MEMBER (EFF 4/24) Trustee or director | 1 | $0 | $0 |
| PHYLLIS SANDERS | BOARD MEMBER (THRU 2/24) Trustee or director | 1 | $0 | $0 |
| WENDY ARNONE | BOARD MEMBER (EFF 3/24) Trustee or director | 1 | $0 | $0 |
| STEVEN O'DONNELL | BOARD MEMBER (THRU 12/24) Trustee or director | 1 | $0 | $0 |
| DAVID NORCOM | BOARD MEMBER (THRU 9/24) Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 25 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JEANA SWEENEY | CHIEF ENGAGEMENT AND GIFT OFFICER Highest-paid employee | 40 | $212,500 | $7,262 |
| AMY GRAY | CHIEF EXECUTIVE OFFICER (TIL 03/2023) Officer | 40 | $149,038 | $2,346 |
| KATHERINE FORSEY | CHIEF RESEARCH OFFICER Highest-paid employee | 40 | $113,555 | $7,239 |
| LAUREL RICHARDSON | DIRECTOR OF COMMUNITY OUTREACH Highest-paid employee | 40 | $102,375 | $3,774 |
| KIMBERLY MAGEE | DIRECTOR OF FINANCE AND ADMIN Officer | 40 | $99,375 | $3,659 |
| SUZANNE BRUHN | CHIEF EXECUTIVE OFFICER (FROM 11/2023) Officer | 40 | $47,307 | $1,749 |
| GILLES BOUCHARD | CHAIRMAN Trustee or director, Officer | 0 | $0 | $0 |
| KEVIN SAMI | TREASURER Trustee or director, Officer | 0 | $0 | $0 |
| HERBERT BERON | SECRETARY Trustee or director, Officer | 0 | $0 | $0 |
| DAVID APPLE | DIRECTOR (FROM APR. 2023) Trustee or director | 0 | $0 | $0 |
| DAN CHAMBY | DIRECTOR Trustee or director | 0 | $0 | $0 |
| DAVID COLDIRON | DIRECTOR Trustee or director | 0 | $0 | $0 |
| DR THOMAS DUBENSKY | DIRECTOR Trustee or director | 0 | $0 | $0 |
| PETE FOLEY | DIRECTOR (UNTIL DEC. 2023) Trustee or director | 0 | $0 | $0 |
| GARY GASPER | DIRECTOR Trustee or director | 0 | $0 | $0 |
| ALAN KOROWITZ | DIRECTOR Trustee or director | 0 | $0 | $0 |
| DAVID NORCOM | DIRECTOR Trustee or director | 0 | $0 | $0 |
| STEVEN O'DONNELL | DIRECTOR Trustee or director | 0 | $0 | $0 |
| CHRIS OUELLETTE | DIRECTOR (UNTIL AUG. 2023) Trustee or director | 0 | $0 | $0 |
| JONATHAN PASTOR | DIRECTOR Trustee or director | 0 | $0 | $0 |
| PHYLLIS SANDERS | DIRECTOR Trustee or director | 0 | $0 | $0 |
| DR STEVEN SCHERER | DIRECTOR Trustee or director | 0 | $0 | $0 |
| DR MICHAEL SHY | DIRECTOR Trustee or director | 0 | $0 | $0 |
| DR JOHN SVAREN | DIRECTOR Trustee or director | 0 | $0 | $0 |
| CRAIG ZELTSAR | DIRECTOR Trustee or director | 0 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 105, GLENOLDEN, PA 19036-0105
- Principal officer (990 for 2025)
- SUZANNE BRUHN, PO BOX 105, GLENOLDEN, PA 19036
- Signed the 990
- SUZANNE BRUHN, CHIEF EXECUTIVE OFFICER
- Phone
- (800) 606-2682
- Website
- WWW.CMTAUSA.ORG
- Return prepared by
- BARBACANE THORNTON AND COMPANY
Mission
CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECEIPIENTS OF THE RESEARCH FUNDING AND TP WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.
Program accomplishments
- CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE. IT ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A SCIENTIFIC ADVISORY BOARD OF RESEARCH AND CLINICAL EXPERTS TO OVERSEE THE SELECTION OF THE RECIPIENTS OF THE RESEARCH FUNDING AND TO WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.Expenses $4,969,990 · grants $3,342,651 · revenue $810,547
- CMTA ORGANIZES AND CONDUCTS SUPPORT GROUPS, CONFERENCES, A CAMP FOR CHILDREN AGES 10-18 WITH CMT AT 2 U.S. LOCATIONS, AND EDUCATIONAL WEBINARS FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO SHARE KNOWLEDGE AND PROMOTE AWARENESS OF CHARCOT-MARIE-TOOTH DISEASE.CMTA ALSO PUBLISHES A BI-MONTHLY NEWSLETTER AND OTHER EDUCATIONAL PUBLICATIONS WHICH ARE AVAILABLE TO THE PUBLIC.CMTA ALSO MAINTAINS A WEBSITE FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO ASSIST IN UNDERSTANDING AND TREATING CHARCOT-MARIE-TOOTH DISEASE.Expenses $1,703,553
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 22-2480896
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1986
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G8XZ)
- Assets (IRS master file)
- $8,112,362
- Income (IRS master file)
- $7,058,095
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $6,864,031 | $7,355,825 | $8,112,362 | IRS |
| 990 | December 2024 | $5,778,743 | $5,791,669 | $9,548,719 | XML |
| 990 | December 2023 | $5,761,508 | $6,291,966 | $9,566,018 | XML |
| 990 | December 2022 | $10,398,940 | $6,545,390 | $9,861,023 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-2480896).
Questions about CHARCOT-MARIE-TOOTH ASSOCIATION
- What is the EIN of CHARCOT-MARIE-TOOTH ASSOCIATION?
- The employer identification number (EIN) of CHARCOT-MARIE-TOOTH ASSOCIATION is 22-2480896.
- Is CHARCOT-MARIE-TOOTH ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1986.
- Are donations to CHARCOT-MARIE-TOOTH ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CHARCOT-MARIE-TOOTH ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CHARCOT-MARIE-TOOTH ASSOCIATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CHARCOT-MARIE-TOOTH ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CHARCOT-MARIE-TOOTH ASSOCIATION?
- The 990 for the year ended December 31, 2025 names SUZANNE BRUHN.
- Who are the officers and directors of CHARCOT-MARIE-TOOTH ASSOCIATION?
- The 990 for the year ended December 31, 2025 lists 21 people; 4 received compensation from the organization, the highest $300,000 (SUZANNE BRUHN, CHIEF EXECUTIVE OFFICER).
- How much revenue does CHARCOT-MARIE-TOOTH ASSOCIATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $6,864,031, expenses of $7,355,825 and total assets of $8,112,362 at year end.
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All nonprofits in GLENOLDEN · Pennsylvania · Voluntary health associations and medical disciplines