Nonprofit · EIN 20-8423943
CHORDOMA FOUNDATION
Tax-exempt · DURHAM, NC 27702
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $13,413,691 | $6,132,279 | $7,281,412 | $18,010,621 | $2,960,618 | $15,050,003 |
| December 31, 2024 | 990 | $5,362,824 | $6,834,629 | -$1,471,805 | $11,385,145 | $3,665,296 | $7,719,849 |
| December 31, 2023 | 990 | $7,442,618 | $4,597,074 | $2,845,544 | $11,037,912 | $1,830,024 | $9,207,888 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $12,693,381
- Program service revenue
- $0
- Investment income
- $632,789
- Net gain from sales of assets
- $5,785
- Other revenue
- $87,521
Expenses
- Grants and similar amounts paid
- $1,933,755
- Compensation of officers, directors and key employees
- $986,944
- Other salaries and wages
- $1,071,065
- Salaries, compensation and benefits (total)
- $2,343,276
- Professional fundraising fees
- $0
- Legal fees
- $46,920
- Accounting fees
- $35,992
- Occupancy
- $4,576
- Travel
- $121,684
- Depreciation
- $55,801
- Program services (functional)
- $4,828,256
- Management and general (functional)
- $480,563
- Fundraising (functional)
- $823,460
Balance sheet and other
- Total assets, start of year
- $11,385,145
- Total assets, end of year
- $18,010,621
- Total liabilities, end of year
- $2,960,618
- Net assets, end of year
- $15,050,003
- Land, buildings and equipment
- $72,148
- Net assets without donor restrictions
- $5,403,086
- Net assets with donor restrictions
- $9,646,917
- Gross receipts
- $26,149,036
- Employees
- 16
- Volunteers
- 58
- Year formed
- 2007
- State of legal domicile
- NC
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KENNY BRIGHTON | HEAD OF PHILANTHROPY Key employee | 40 | $233,357 | $9,833 |
| DANIEL FREED | CHIEF SCIENTIFIC OFFICER Key employee | 40 | $212,495 | $19,052 |
| JOSH SOMMER | EXECUTIVE DIRECTOR & PRESIDENT Trustee or director, Officer | 50 | $184,139 | $16,421 |
| SARA NICK | HEAD OF ENGAGEMENT, CHIEF OF STAFF Officer | 40 | $150,360 | $7,468 |
| JESSE BONGARTZ | HEAD OF FINANCE/OPS, ASST TREASURER Officer | 40 | $138,214 | $15,605 |
| LEE DOLAT | SENIOR SCIENTIST Highest-paid employee | 40 | $126,910 | $14,048 |
| SHANNON LOZINSKY | DIRECTOR OF PATIENT SERVICES Highest-paid employee | 40 | $119,829 | $16,193 |
| ASHLEY WHITE | OPERATIONS AND PROGRAM MANAGER Highest-paid employee | 40 | $102,219 | $9,259 |
| DAVID SANDAK | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| LESLIE ADLER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| PAUL FELDMAN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| STEVEN GOLICK | DIRECTOR Trustee or director | 2 | $0 | $0 |
| CHRISTOPHER HEERY | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ALICIA JEFFREYS | DIRECTOR (TO 09/25) Trustee or director | 2 | $0 | $0 |
| JOANNE KOTZ | DIRECTOR (FROM 04/25) Trustee or director | 2 | $0 | $0 |
6 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SUSAN MAHONY | DIRECTOR Trustee or director | 2 | $0 |
| STEVEN MANDEL | TREASURER Trustee or director, Officer | 2 | $0 |
| LAUREN MULHOLLAND | DIRECTOR Trustee or director | 2 | $0 |
| SHREYASKUMAR PATEL | DIRECTOR Trustee or director | 2 | $0 |
| MEGAN STEWART | DIRECTOR Trustee or director | 2 | $0 |
| JOHN THERIEN | SECRETARY Trustee or director, Officer | 2 | $0 |
990 for the year ended December 31, 2024: 20 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KENNY BRIGHTON | HEAD OF PHIL Key employee | 40 | $216,428 | $13,189 |
| DANIEL FREED | CHIEF SCIENT Key employee | 40 | $204,345 | $23,214 |
| JOSH SOMMER | EXEC. DIR. & Trustee or director, Officer | 50 | $174,183 | $28,553 |
| SARA NICK | HEAD OF ENGA Highest-paid employee | 40 | $142,821 | $9,699 |
| SHANNON LOZINSKY | DIRECTOR OF Highest-paid employee | 40 | $121,708 | $17,888 |
| LEE DOLAT | SCIENTIST Highest-paid employee | 40 | $112,452 | $15,642 |
| SAI PERVEEN CHEMUDUPATI | DIRECTOR OF Highest-paid employee | 40 | $105,347 | $11,259 |
| JESSE BONGARTZ | HEAD OF FINA Highest-paid employee | 40 | $100,921 | $11,209 |
| LESLIE ADLER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| PAUL FELDMAN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| STEVEN GOLICK | DIRECTOR Trustee or director | 2 | $0 | $0 |
| CHRISTOPHER HEERY | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ALICIA JEFFREYS | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SUSAN MAHONY | DIRECTOR Trustee or director | 2 | $0 | $0 |
| STEVEN MANDEL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LAUREN MULHOLLAND | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SHREYASKUMAR PATEL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DAVID SANDAK | CHAIR Trustee or director | 2 | $0 | $0 |
| MEGAN STEWART | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JOHN THERIEN | DIRECTOR Trustee or director | 2 | $0 | $0 |
990 for the year ended December 31, 2023: 17 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| DANIEL FREED | HEAD OF TARG Key employee | 40 | $183,188 | $14,807 |
| KENNY BRIGHTON | HEAD OF PHIL Key employee | 40 | $164,800 | $6,505 |
| JOSH SOMMER | EXEC. DIR. & Trustee or director, Officer | 50 | $148,892 | $13,116 |
| SARA NICK | HEAD OF ENGA Highest-paid employee | 40 | $123,299 | $4,864 |
| TAMMY SILVERTHORNE | DIRECTOR OF Highest-paid employee | 40 | $106,717 | $15,336 |
| SHANNON LOZINSKY | DIRECTOR OF Highest-paid employee | 40 | $102,804 | $12,704 |
| LESLIE ADLER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| PAUL FELDMAN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| STEVEN GOLICK | DIRECTOR Trustee or director | 2 | $0 | $0 |
| CHRISTOPHER HEERY | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ALICIA JEFFREYS | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SUSAN MAHONY | DIRECTOR Trustee or director | 2 | $0 | $0 |
| STEVEN MANDEL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SHREYASKUMAR PATEL | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DAVID SANDAK | CHAIR Trustee or director | 4 | $0 | $0 |
| MEGAN STEWART | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JOHN THERIEN | DIRECTOR Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 2127, DURHAM, NC 27702-2127
- In care of
- % TAMMY SILVERTHORNE
- Principal officer (990 for 2025)
- JOSH SOMMER, PO BOX 2127, DURHAM, NC 27702
- Signed the 990
- JOSH SOMMER, EXECUTIVE DIRECTOR & PRESIDENT
- Phone
- (919) 809-6779
- Website
- WWW.CHORDOMAFOUNDATION.ORG
- Return prepared by
- CHERRY BEKAERT ADVISORY LLC
Mission
THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.
Program accomplishments
- (RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, WE CONDUCTED, SUPPORTED AND ENABLED HIGH-IMPACT RESEARCH SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE. THIS INCLUDED CARRYING OUT PRECLINICAL STUDIES IN OUR LABORATORY, AWARDING RESEARCH GRANTS TO ACADEMIC INVESTIGATORS, OPERATING REPOSITORIES TO SUPPLY THE RESEARCH COMMUNITY WITH KEY RESEARCH-ENABLING RESOURCES, CONVENING SCIENTIFIC MEETINGS, AND FACILITATING THE DESIGN AND INITIATION OF WELL-JUSTIFIED CLINICAL TRIALS.Expenses $3,893,800 · grants $1,819,778 · revenue $87,521
- (PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES AND PROVIDING FINANCIAL ASSISTANCE TO INDIVIDUALS TRAVELING TO PARTICIPATE IN CLINICAL TRIALS.Expenses $934,456 · grants $113,977
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 20-8423943
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2007
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H30)
- Assets (IRS master file)
- $18,010,621
- Income (IRS master file)
- $26,149,036
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $13,413,691 | $6,132,279 | $18,010,621 | XML |
| 990 | December 2024 | $5,362,824 | $6,834,629 | $11,385,145 | IRS |
| 990 | December 2023 | $7,442,618 | $4,597,074 | $11,037,912 | XML |
| 990 | December 2022 | $4,886,250 | $3,088,769 | $7,599,511 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-8423943).
Questions about CHORDOMA FOUNDATION
- What is the EIN of CHORDOMA FOUNDATION?
- The employer identification number (EIN) of CHORDOMA FOUNDATION is 20-8423943.
- Is CHORDOMA FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2007.
- Are donations to CHORDOMA FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CHORDOMA FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CHORDOMA FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CHORDOMA FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CHORDOMA FOUNDATION?
- The 990 for the year ended December 31, 2025 names JOSH SOMMER.
- Who are the officers and directors of CHORDOMA FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 21 people; 8 received compensation from the organization, the highest $233,357 (KENNY BRIGHTON, HEAD OF PHILANTHROPY).
- How much revenue does CHORDOMA FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $13,413,691, expenses of $6,132,279 and total assets of $18,010,621 at year end.
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