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Nonprofit · EIN 20-5724680

TARLOV CYST DISEASE FOUNDATION

Tax-exempt · KNOXVILLE, TN 37923

Financials

$21K$37K2023$48K$147K2024$250K$36K2025
Revenue Expenses · by fiscal year end
Financials of TARLOV CYST DISEASE FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$249,987$36,272$213,715$3,130,528$335$3,130,193
December 31, 2024990$48,219$147,123-$98,904$2,916,528$50$2,916,478
December 31, 2023990-EZ$21,139$37,221-$16,082$140,459–$140,459
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$162,220
Program service revenue
$0
Investment income
$87,767
Other revenue
$0

Expenses

Grants and similar amounts paid
$0
Compensation of officers, directors and key employees
$15,600
Salaries, compensation and benefits (total)
$15,600
Professional fundraising fees
$0
Legal fees
$7,440
Accounting fees
$4,575
Program services (functional)
$19,407
Management and general (functional)
$16,865

Balance sheet and other

Total assets, start of year
$2,916,528
Total assets, end of year
$3,130,528
Total liabilities, end of year
$335
Net assets, end of year
$3,130,193
Net assets without donor restrictions
$3,130,193
Gross receipts
$249,987
Employees
0
Volunteers
5
Year formed
2006
State of legal domicile
TN

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
ANDREW TOMPSETTINTERIM ExecDir
Officer
20$15,600
IRIS KACHUCKPresident
Trustee or director, Officer
8$0
SANDY A ROOFVice President
Trustee or director, Officer
1$0
CATHY GRAY CARLOMAGNOTreasurer
Trustee or director, Officer
1$0
MICHELLE LEARDirector
Trustee or director
1$0
GAIL NELSONPRESIDENT8$0
990 for the year ended December 31, 2024: 6 people
NameTitleHours / weekCompensation
RETA HONEY HIERS RNCPast Exec Dir
Trustee or director, Officer
20$132,000
SANDY A ROOFSecretary
Trustee or director, Officer
1$0
IRIS KACHUCKVice President
Trustee or director, Officer
1$0
CATHY GRAY CARLOMAGNOTreasurer
Trustee or director, Officer
5$0
MICHELLE LEARDirector
Trustee or director
1$0
GAIL NELSONPresident
Trustee or director, Officer
1$0
990-EZ for the year ended December 31, 2023: 10 people
NameTitleHours / weekCompensation
RETA HONEY HIERS RNCExecutive Dir.60$36,000
DONA DUTCHERVice President5$0
TAMMY ZINSER MINOCHATreasurer5$0
SANDY A ROOFSecretary5$0
JOANNA YURJEVICKDirector0$0
GERALD DILTSDirector0$0
IRIS KACHUCKDirector0$0
CATHY GRAY CARLOMAGNODirector0$0
MICHELLE LEARDirector0$0
GAIL NELSONDirector0$0

Address and contacts

Address (IRS master file)
9111 CROSS PARK DR STE D200 PMB 265, KNOXVILLE, TN 37923-4521
In care of
% RETA HONEY HIERS
Principal officer (990 for 2025)
CATHY GRAY CARLOMAGNO, 9111 Cross Park Dr D200-265, Knoxville, TN 37923
Signed the 990
CATHY GRAY CARLOMAGNO, Treasurer
Phone
(865) 214-7560
Return prepared by
Hezlep Nonprofit Advisors

Mission

The Tarlov Cyst Disease Foundation is a volunteer-based, 501(c)(3) non-profit foundation dedicated to the research, improved diagnosis and development of successful treatments and outcomes for symptomatic Tarlov cysts. The Foundation is incorporated exclusively for scientific, educational, and charitable purposes that will seek to improve the level of understanding, diagnosis and treatment of Tarlov cysts.

990 for the year ended December 31, 2025

Program accomplishments

  • The Tarlov Cyst Disease Foundation is a volunteer-based, 501(c)(3) non-profit foundation dedicated to the research, improved diagnosis and development of successful treatments and outcomes for symptomatic Tarlov cysts.
    Expenses $19,407

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990-EZ on file

IRS record

EIN
20-5724680
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (509(a)(2))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2007
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H50)
Assets (IRS master file)
$3,130,528
Income (IRS master file)
$249,987

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$249,987$36,272$3,130,528XML
990December 2024$48,219$147,123$2,916,528XML
990-EZDecember 2023$21,139$37,221$140,459XML
990-EZDecember 2022–––IRS
990-EZDecember 2021–––IRS
990-EZDecember 2020–––IRS
990-EZDecember 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-5724680).

Questions about TARLOV CYST DISEASE FOUNDATION

What is the EIN of TARLOV CYST DISEASE FOUNDATION?
The employer identification number (EIN) of TARLOV CYST DISEASE FOUNDATION is 20-5724680.
Is TARLOV CYST DISEASE FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2007.
Are donations to TARLOV CYST DISEASE FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does TARLOV CYST DISEASE FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of TARLOV CYST DISEASE FOUNDATION due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did TARLOV CYST DISEASE FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of TARLOV CYST DISEASE FOUNDATION?
The 990 for the year ended December 31, 2025 names CATHY GRAY CARLOMAGNO.
Who are the officers and directors of TARLOV CYST DISEASE FOUNDATION?
The 990 for the year ended December 31, 2025 lists 6 people; 1 received compensation from the organization, the highest $15,600 (ANDREW TOMPSETT, INTERIM ExecDir).
How much revenue does TARLOV CYST DISEASE FOUNDATION have?
On its 990 for the year ended December 31, 2025 it reported revenue of $249,987, expenses of $36,272 and total assets of $3,130,528 at year end.

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