Nonprofit · EIN 20-4792248
NEUROPATHY ACTION FOUNDATION
Tax-exempt · SANTA ANA, CA 92705
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $74,132 | $38,177 | $35,955 | $382,192 | $450 | $381,742 |
| December 31, 2024 | 990-EZ | $73,114 | $34,293 | $38,821 | $347,696 | $1,909 | $345,787 |
| December 31, 2023 | 990 | $54,886 | $31,603 | $23,283 | $307,368 | $402 | $306,966 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $65,106
- Investment income
- $9,026
Expenses
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $10,511
- Occupancy
- $3,723
- Printing, publications and postage
- $462
- Other expenses
- $23,481
- Program services (functional)
- $26,724
Balance sheet and other
- Total assets, start of year
- $347,696
- Total assets, end of year
- $382,192
- Total liabilities, end of year
- $450
- Net assets, end of year
- $381,742
- Cash, savings and investments
- $382,192
- Gross receipts
- $74,132
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Dominick V Spatafora | President | 11.5 | $0 |
| Christopher DeSantis | Executive Dir. | 4 | $0 |
| James D Lee JD | Director | 1.5 | $0 |
| Dustin Corcoran | Director | 0.25 | $0 |
| Leslie Macgregor | Director | 1.5 | $0 |
| Jonathan Medeiros | Director | 0 | $0 |
| Christopher Buchanan | Director | 0 | $0 |
| Richard S Zimmerman MD | Director | 0.23 | $0 |
| Kathleen S Creason | Treasurer | 0.23 | $0 |
| Sarah J Fullerton | Secretary | 0 | $0 |
990-EZ for the year ended December 31, 2024: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Dominick V Spatafora | President | 11.5 | $0 |
| Christopher DeSantis | Executive Dir. | 4 | $0 |
| James D Lee JD | Director | 1.5 | $0 |
| Dustin Corcoran | Director | 0.25 | $0 |
| Leslie Macgregor Levine | Secretary | 1.5 | $0 |
| Jonathan Medeiros | Director | 0 | $0 |
| Christopher Buchanan | Director | 0 | $0 |
| Richard S Zimmerman MD | Director | 0.23 | $0 |
| Kathleen S Creason | Treasurer | 0.23 | $0 |
| Sarah J Fullerton | Director | 0 | $0 |
990 for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Dominick V Spatafora | President Trustee or director | 11.5 | $0 |
| James D Lee JD | Director Trustee or director | 1.5 | $0 |
| Dustin Corcoran | Director Trustee or director | 0.25 | $0 |
| Leslie Macgregor Levine | Secretary Trustee or director | 1.5 | $0 |
| Christopher Buchanan | Director Trustee or director | 0 | $0 |
| Richard S Zimmerman MD | Director Trustee or director | 0.23 | $0 |
| Kathleen S Creason | Treasurer Trustee or director | 0.23 | $0 |
| Sarah J Fullerton | Director Trustee or director | 0 | $0 |
| Christopher DeSantis | Executive Dir. Officer | 4 | $0 |
Address and contacts
- Address (IRS master file)
- 1950 OLD TUSTIN AVE, SANTA ANA, CA 92705-7812
- Signed the 990-EZ
- Christopher DeSantis, Executive Director
- Phone
- (714) 550-9155
- Website
- www.neuropathyaction.org
- Return prepared by
- Sacramento Accounting & Advisory Group LLP
California records
California keeps its own records of charities and corporations. Search them by EIN 20-4792248 or by the name NEUROPATHY ACTION FOUNDATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments.
Program accomplishments
- In 2025 the NAF released a white paper titled, Clinical Trials for Neuropathy: Looking Ahead. The paper looks at how clinical trials are developing and why participation remains a critical part of discovering new therapies. We are proud to release Clinical Trials for Neuropathy: Looking Ahead, said Dominick Spatafora, NAF board president. This study helped us take a closer look at whats working, whats emerging, and how we can continue to move toward treating and preventing neuropathy. The report explores the categories that trials are currently underway: medication and biologics, regenerative or gene-related therapies, nerve-stimulation devices, and technology like virtual-reality programs or wearable monitors.The investigation also highlights innovation in the field, including precision medicine, AI tools, and new trial designs that may shorten the time it takes to understand whether a treatment works.Despite the promising aspects of neuropathic treatments, federal funding is a concern. While the biopharmaceutical industry invested more than $200 billion in research and development in 2024, recent federal budget cuts have reduced public funding for neuropathy research. This gap puts greater pressure on private investment and patient participation to keep new therapies moving forward.The study further outlines the importance of patient representation. Many communities especially older adults, women, and people from racial and ethnic minority groups remain underrepresented in neuropathy trials. The paper points out that the reasons are usually practical ones: transportation, lack of clear information, language differences, or simply not knowing a trial exists. Inclusivity is not just a scientific priority; it is a moral one. If we want treatments that work for everyone, then everyone needs a fair chance to participate. Breaking down barriers and expanding outreach will make future therapies stronger, safer, and more effective.The paper closes by encouraging more conversation between clinicians, caregivers, and patients. Community groups and advocates can also help by sharing trustworthy trial information and encouraging more people to ask questions. To access the full white paper, please visit www.neuropathyaction.org.Additionally, since its founding in 2006, the NAF has remained committed to providing neuropathy patients with essential resources to access individualized medications, IVIG, and other treatments through patient empowerment and strategic advocacy. To this end, in 2025 the NAF: Broadened our participation in national and state coalitions to maximize our impact. o To this end the NAF was part of eighteen various state and national coalitions in 2025. Expanded advocacy efforts beyond the states to national issues that impact patient access to medications, impact affordability, and research efforts. o To this end the NAF had over fifty engagements on various federal issues that impacted neuropathy awareness, funding, or access to treatments/medications. Continued our focus on state policy ensuring patients are protected from copay diversion programs, step therapy, prior authorizations, non-medical switching, and other harmful third party (health plan, government, PBM, etc.) practices. o To this end the NAF had over one hundred engagements in the states on various awareness, education, and access issues.Expenses $26,724
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 20-4792248
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2006
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G96)
- Assets (IRS master file)
- $382,192
- Income (IRS master file)
- $74,132
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $74,132 | $38,177 | $382,192 | XML |
| 990-EZ | December 2024 | $73,114 | $34,293 | $347,696 | XML |
| 990 | December 2023 | $54,886 | $31,603 | $307,368 | IRS |
| 990 | December 2022 | $69,500 | $75,326 | $283,966 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2019 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-4792248).
Questions about NEUROPATHY ACTION FOUNDATION
- What is the EIN of NEUROPATHY ACTION FOUNDATION?
- The employer identification number (EIN) of NEUROPATHY ACTION FOUNDATION is 20-4792248.
- Is NEUROPATHY ACTION FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2006.
- Are donations to NEUROPATHY ACTION FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NEUROPATHY ACTION FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NEUROPATHY ACTION FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NEUROPATHY ACTION FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of NEUROPATHY ACTION FOUNDATION?
- The 990-EZ for the year ended December 31, 2025 lists 10 people; 0 received compensation from the organization.
- How much revenue does NEUROPATHY ACTION FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $74,132, expenses of $38,177 and total assets of $382,192 at year end.
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