Nonprofit · EIN 20-3733312
TYLERS HOPE FOR DYSTONIA CURE INC
Tax-exempt · ALACHUA, FL 32615
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $519,738 | $587,908 | -$68,170 | $379,919 | $3,525 | $376,394 |
| December 31, 2024 | 990 | $746,640 | $640,863 | $105,777 | $446,360 | $3,306 | $443,054 |
| December 31, 2023 | 990 | $437,587 | $463,888 | -$26,301 | $335,007 | $0 | $335,007 |
| December 31, 2022 | 990 | $376,541 | $504,125 | -$127,584 | $359,448 | $0 | $359,448 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $504,729
- Program service revenue
- $0
- Investment income
- $15,009
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $386,429
- Other salaries and wages
- $60,165
- Salaries, compensation and benefits (total)
- $64,463
- Professional fundraising fees
- $0
- Travel
- $1,073
- Program services (functional)
- $537,427
- Management and general (functional)
- $50,481
Balance sheet and other
- Total assets, start of year
- $446,360
- Total assets, end of year
- $379,919
- Total liabilities, end of year
- $3,525
- Net assets, end of year
- $376,394
- Publicly traded securities
- $24,728
- Net assets without donor restrictions
- $376,394
- Gross receipts
- $519,738
- Employees
- 2
- Volunteers
- 100
- Year formed
- 2005
- State of legal domicile
- FL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| PATRICK BANIS | DIRECTOR Trustee or director | 3 | $0 |
| ALAN CHATMAN | DIRECTOR Trustee or director | 3 | $0 |
| SCOTT COSTELLO | DIRECTOR Trustee or director | 5 | $0 |
| DANIEL R GALASSO | DIRECTOR Trustee or director | 3 | $0 |
| KEVIN GRIFFIN | DIRECTOR Trustee or director | 3 | $0 |
| JOHN HAYES | DIRECTOR Trustee or director | 3 | $0 |
| LISA RUTENBERG KINSELL | DIRECTOR Trustee or director | 1 | $0 |
| MILES KINSELL | VP LEGAL ISSUES Trustee or director, Officer | 2 | $0 |
| DR KELLI ROSS | DIRECTOR Trustee or director | 1 | $0 |
| WJ ROSSI | DIRECTOR Trustee or director | 3 | $0 |
| BRIAN SCARBOROUGH | VP COMM AFFAIRS Trustee or director, Officer | 10 | $0 |
| MICHELLE STAAB | TREASURER Trustee or director, Officer | 10 | $0 |
| RICHARD A STAAB | PRESIDENT Trustee or director, Officer | 20 | $0 |
| MICHELE STREITMATTER | DIRECTOR Trustee or director | 2 | $0 |
| STEPHEN TANNER | DIRECTOR Trustee or director | 1 | $0 |
5 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DWAINE BUSH | DIRECTOR Trustee or director | 3 | $0 |
| PETE SEAGROVES | DIRECTOR Trustee or director | 3 | $0 |
| DAURINE WEHBE | DIRECTOR Trustee or director | 3 | $0 |
| MIKE MITROOK | DIRECTOR Trustee or director | 3 | $0 |
| HEATHER PARKER | DIRECTOR Trustee or director | 3 | $0 |
990 for the year ended December 31, 2024: 20 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| PATRICK BANIS | DIRECTOR Trustee or director | 3 | $0 |
| ALAN CHATMAN | DIRECTOR Trustee or director | 3 | $0 |
| SCOTT COSTELLO | DIRECTOR Trustee or director | 5 | $0 |
| DANIEL R GALASSO | DIRECTOR Trustee or director | 3 | $0 |
| KEVIN GRIFFIN | DIRECTOR Trustee or director | 3 | $0 |
| JOHN HAYES | DIRECTOR Trustee or director | 3 | $0 |
| LISA RUTENBERG KINSELL | DIRECTOR Trustee or director | 1 | $0 |
| MILES KINSELL | VP LEGAL ISSUES Trustee or director, Officer | 2 | $0 |
| DR KELLI ROSS | DIRECTOR Trustee or director | 1 | $0 |
| WJ ROSSI | DIRECTOR Trustee or director | 3 | $0 |
| BRIAN SCARBOROUGH | VP COMM AFFAIRS Trustee or director, Officer | 10 | $0 |
| MICHELLE STAAB | TREASURER Trustee or director, Officer | 10 | $0 |
| RICHARD A STAAB | PRESIDENT Trustee or director, Officer | 20 | $0 |
| MICHELE STREITMATTER | DIRECTOR Trustee or director | 2 | $0 |
| STEPHEN TANNER | DIRECTOR Trustee or director | 1 | $0 |
| BUSH DWAINE | DIRECTOR Trustee or director | 3 | $0 |
| PETE SEAGROVES | DIRECTOR Trustee or director | 3 | $0 |
| DAURINE WEHBE | DIRECTOR Trustee or director | 3 | $0 |
| MIKE MITROOK | DIRECTOR Trustee or director | 3 | $0 |
| HEATHER PARKER | DIRECTOR Trustee or director | 3 | $0 |
990 for the year ended December 31, 2023: 20 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| PATRICK BANIS | DIRECTOR Trustee or director | 3 | $0 |
| ALAN CHATMAN | DIRECTOR Trustee or director | 3 | $0 |
| SCOTT COSTELLO | DIRECTOR Trustee or director | 5 | $0 |
| DANIEL R GALASSO | DIRECTOR Trustee or director | 3 | $0 |
| KEVIN GRIFFIN | DIRECTOR Trustee or director | 3 | $0 |
| JOHN HAYES | DIRECTOR Trustee or director | 3 | $0 |
| LISA RUTENBERG KINSELL | DIRECTOR Trustee or director | 1 | $0 |
| MILES KINSELL | VP LEGAL ISSUES Trustee or director, Officer | 2 | $0 |
| DR KELLI ROSS | DIRECTOR Trustee or director | 1 | $0 |
| WJ ROSSI | DIRECTOR Trustee or director | 3 | $0 |
| BRIAN SCARBOROUGH | VP COMM AFFAIRS Trustee or director, Officer | 10 | $0 |
| MICHELLE STAAB | TREASURER Trustee or director, Officer | 10 | $0 |
| RICHARD A STAAB | PRESIDENT Trustee or director, Officer | 20 | $0 |
| MICHELE STREITMATTER | DIRECTOR Trustee or director | 2 | $0 |
| STEPHEN TANNER | DIRECTOR Trustee or director | 1 | $0 |
| BUSH DWAINE | DIRECTOR Trustee or director | 3 | $0 |
| PETE SEAGROVES | DIRECTOR Trustee or director | 3 | $0 |
| DAURINE WEHBE | DIRECTOR Trustee or director | 3 | $0 |
| MIKE MITROOK | DIRECTOR Trustee or director | 3 | $0 |
| HEATHER PARKER | DIRECTOR Trustee or director | 3 | $0 |
990 for the year ended December 31, 2022: 20 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| PATRICK BANIS | DIRECTOR Trustee or director | 3 | $0 |
| ALAN CHATMAN | DIRECTOR Trustee or director | 3 | $0 |
| SCOTT COSTELLO | DIRECTOR Trustee or director | 5 | $0 |
| DANIEL R GALASSO | DIRECTOR Trustee or director | 3 | $0 |
| KEVIN GRIFFIN | DIRECTOR Trustee or director | 3 | $0 |
| JOHN HAYES | DIRECTOR Trustee or director | 3 | $0 |
| THEODORE B SEAGROVES III | SECRETARY Trustee or director | 1 | $0 |
| FRANKLIN K LENTZ JR | DIRECTOR Trustee or director | 2 | $0 |
| LISA RUTENBERG KINSELL | DIRECTOR Trustee or director | 1 | $0 |
| MILES KINSELL | VP LEGAL ISSUES Trustee or director, Officer | 2 | $0 |
| BRIAN LESLIE | DIRECTOR Trustee or director | 2 | $0 |
| JOHN MARTI | DIRECTOR Trustee or director | 1 | $0 |
| DR KELLI ROSS | DIRECTOR Trustee or director | 1 | $0 |
| WJ ROSSI | DIRECTOR Trustee or director | 3 | $0 |
| BRIAN SCARBOROUGH | VP COMM AFFAIRS Trustee or director, Officer | 10 | $0 |
| KENNETH E STAAB | DIRECTOR Trustee or director | 5 | $0 |
| MICHELLE STAAB | TREASURER Trustee or director, Officer | 10 | $0 |
| RICHARD A STAAB | PRESIDENT Trustee or director, Officer | 20 | $0 |
| MICHELE STREITMATTER | DIRECTOR Trustee or director | 2 | $0 |
| STEPHEN TANNER | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 13301 NW US HIGHWAY 441, ALACHUA, FL 32615-8512
- In care of
- % RICHARD A STABB
- Principal officer (990 for 2025)
- RICHARD A STAAB, 3316 SW 92ND STREET, GAINESVILLE, FL 32608
- Signed the 990
- RICHARD A STAAB, PRESIDENT
- Phone
- (386) 462-5220
- Website
- WWW.TYLERSHOPE.ORG
- Return prepared by
- PIVOT CPAS PA
Mission
THE ORGANIZATION WAS ESTABLISHED TO ADVANCE RESEARCH FOR A CURE, DISCOVER EFFECTIVE TREATMENTS, AND TO PROMOTE AWARENESS AND EDUCATION OF THE NEUROLOGICAL MOVEMENT DISORDER DYT1 DYSTONIA.
Program accomplishments
- CONTRIBUTE FUNDS TO ORGANIZATIONS DEDICATED TO FINDING A CURE, DISCOVER EFFECTIVE TREATMENTS, AND TO PROMOTE AWARENESS AND EDUCATION OF THE NEUROLOGICAL MOVEMENT DISORDER DYT1 DYSTONIA.Expenses $537,427 · grants $386,429
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 20-3733312
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2006
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G128)
- Assets (IRS master file)
- $379,919
- Income (IRS master file)
- $519,738
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $519,738 | $587,908 | $379,919 | XML |
| 990 | December 2024 | $746,640 | $640,863 | $446,360 | XML |
| 990 | December 2023 | $437,587 | $463,888 | $335,007 | XML |
| 990 | December 2022 | $376,541 | $504,125 | $359,448 | XML |
| 990 | December 2021 | $485,740 | $365,889 | $489,534 | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-3733312).
Questions about TYLERS HOPE FOR DYSTONIA CURE INC
- What is the EIN of TYLERS HOPE FOR DYSTONIA CURE INC?
- The employer identification number (EIN) of TYLERS HOPE FOR DYSTONIA CURE INC is 20-3733312.
- Is TYLERS HOPE FOR DYSTONIA CURE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2006.
- Are donations to TYLERS HOPE FOR DYSTONIA CURE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does TYLERS HOPE FOR DYSTONIA CURE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of TYLERS HOPE FOR DYSTONIA CURE INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did TYLERS HOPE FOR DYSTONIA CURE INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of TYLERS HOPE FOR DYSTONIA CURE INC?
- The 990 for the year ended December 31, 2025 names RICHARD A STAAB.
- Who are the officers and directors of TYLERS HOPE FOR DYSTONIA CURE INC?
- The 990 for the year ended December 31, 2025 lists 20 people; 0 received compensation from the organization.
- How much revenue does TYLERS HOPE FOR DYSTONIA CURE INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $519,738, expenses of $587,908 and total assets of $379,919 at year end.
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