Nonprofit · EIN 20-1947169
INTERNATIONAL WAGR SYNDROME ASSOCIATION
Tax-exempt · MONTGOMRY VLG, MD 20886
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $73,819 | $73,600 | $219 | $77,758 | $718 | $77,040 |
| December 31, 2024 | 990-EZ | $70,360 | $77,118 | -$6,758 | $77,705 | $884 | $76,821 |
| December 31, 2023 | 990-EZ | $64,481 | $63,589 | $892 | $84,557 | $978 | $83,579 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $73,039
- Investment income
- $915
- Net income from fundraising events
- -$335
- Other revenue
- $200
Expenses
- Grants and similar amounts paid
- $1,565
- Compensation of officers, directors and key employees
- $25,935
- Salaries, compensation and benefits (total)
- $28,561
- Professional fees and payments to contractors
- $2,810
- Other expenses
- $40,664
- Program services (functional)
- $58,516
Balance sheet and other
- Total assets, start of year
- $77,705
- Total assets, end of year
- $77,758
- Total liabilities, end of year
- $718
- Net assets, end of year
- $77,040
- Cash, savings and investments
- $77,758
- Gross receipts
- $74,154
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SHARI KRANTZ | EXECUTIVE DIRECTOR | 19 | $25,935 |
| JOHN MORRIS | CHAIRMAN | 5 | $0 |
| KELLY TROUT | SECRETARY | 1 | $0 |
| NIKKI HOFFMAN | TREASURER | 2 | $0 |
| LINDA VAN DE SANDE | DIRECTOR | 1 | $0 |
| ANDREA HARRIS | DIRECTOR | 1 | $0 |
| AARON CALHOUN | DIRECTOR | 1 | $0 |
| BRITTANY GELSOMINO | DIRECTOR (EFF FEB 2025) | 1 | $0 |
990-EZ for the year ended December 31, 2024: 7 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SHARI KRANTZ | EXECUTIVE DIRECTOR | 17 | $21,470 |
| JOHN MORRIS | CHAIRMAN | 5 | $0 |
| KELLY TROUT | SECRETARY | 1 | $0 |
| NIKKI HOFFMAN | TREASURER | 2 | $0 |
| LINDA VAN DE SANDE | DIRECTOR | 1 | $0 |
| ANDREA HARRIS | DIRECTOR | 1 | $0 |
| AARON CALHOUN | DIRECTOR | 1 | $0 |
990-EZ for the year ended December 31, 2023: 7 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SHARI KRANTZ | EXECUTIVE DIRECTOR | 17 | $20,995 |
| LINDA VAN DE SANDE | DIRECTOR | 1 | $0 |
| ANDREA HARRIS | DIRECTOR (BEGINNING MAY 2023) | 1 | $0 |
| TOM COX | DIRECTOR | 1 | $0 |
| JOHN MORRIS | CHAIRMAN | 5 | $0 |
| KELLY TROUT | SECRETARY | 1 | $0 |
| NIKKI HOFFMAN | TREASURER | 2 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 2875, MONTGOMRY VLG, MD 20886-2875
- In care of
- % NIKKI HOFFMAN
- Mailing address (990-N for 2017)
- PO Box 769, Hanover PA 17331
- Principal officer (990-N for 2017)
- Nikki Hoffman, PO Box 769, Hanover PA 17331
- Signed the 990-EZ
- NIKKI HOFFMAN, TREASURER
- Phone
- (717) 968-7703
- Website
- www.wagr.org
- Return prepared by
- STAMBAUGH NESS INC
Mission
THE INTERNATIONAL WAGR SYNDROME ASSOCIATION (IWSA) IS A PATIENT ADVOCACY ORGANIZATION WITH APPROXIMATELY 225 MEMBER FAMILIES, ENGAGED VIA A VARIETY OF SUPPORT AND INFORMATION-SHARING ACTIVITIES. THE MISSION OF THE IWSA IS TO PROMOTE AWARENESS, STIMULATE RESEARCH, AND SUPPORT FAMILIES AFFECTED BY WAGR SYNDROME. THE IWSA BELIEVES IN PLACING PATIENTS AND FAMILIES IN THE FOREFRONT OF ALL ACTIVITIES OF THE ORGANIZATION. THE IWSA HOSTS GATHERINGS OF FAMILIES TO SHARE GENERAL INFORMATION ABOUT WAGR SYNDROME AND TO PROVIDE EMOTIONAL SUPPORT. BOARD MEMBERS AND OTHER LEADERS OF THE ORGANIZATION ATTEND CONFERENCES PERTAINING TO RARE DISEASE RESEARCH AND PATIENT ADVOCACY.
Program accomplishments
- TO PROMOTE AWARENESS, STIMULATE RESEARCH AND SUPPORT FAMILIES AFFECTED BY WAGR SYNDROME.Expenses $58,516
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 20-1947169
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2005
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $77,758
- Income (IRS master file)
- $74,154
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $73,819 | $73,600 | $77,758 | IRS |
| 990-EZ | December 2024 | $70,360 | $77,118 | $77,705 | XML |
| 990-EZ | December 2023 | $64,481 | $63,589 | $84,557 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
| 990-N for 2017 Officer: Nikki Hoffman | December 31, 2017 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-1947169).
Questions about INTERNATIONAL WAGR SYNDROME ASSOCIATION
- What is the EIN of INTERNATIONAL WAGR SYNDROME ASSOCIATION?
- The employer identification number (EIN) of INTERNATIONAL WAGR SYNDROME ASSOCIATION is 20-1947169.
- Is INTERNATIONAL WAGR SYNDROME ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2005.
- Are donations to INTERNATIONAL WAGR SYNDROME ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does INTERNATIONAL WAGR SYNDROME ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of INTERNATIONAL WAGR SYNDROME ASSOCIATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did INTERNATIONAL WAGR SYNDROME ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of INTERNATIONAL WAGR SYNDROME ASSOCIATION?
- The 990-N for 2017 names Nikki Hoffman.
- Who are the officers and directors of INTERNATIONAL WAGR SYNDROME ASSOCIATION?
- The 990-EZ for the year ended December 31, 2025 lists 8 people; 1 received compensation from the organization, the highest $25,935 (SHARI KRANTZ, EXECUTIVE DIRECTOR).
- How much revenue does INTERNATIONAL WAGR SYNDROME ASSOCIATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $73,819, expenses of $73,600 and total assets of $77,758 at year end.
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