Nonprofit · EIN 13-6093337
CEREBRAL PALSY FOUNDATION INC
Tax-exempt · NEW YORK, NY 10019
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| September 30, 2025 | 990 | $4,490,185 | $5,347,918 | -$857,733 | $2,066,811 | $352,718 | $1,714,093 |
| September 30, 2024 | 990 | $4,686,145 | $4,684,411 | $1,734 | $2,792,533 | $258,325 | $2,534,208 |
| September 30, 2023 | 990 | $4,021,273 | $3,899,013 | $122,260 | $2,675,260 | $242,871 | $2,432,389 |
| September 30, 2022 | 990 (amended) | $2,151,754 | $2,116,457 | $35,297 | $2,336,868 | $68,225 | $2,268,643 |
Financial details: 990 for the year ended September 30, 2025
Revenue
- Contributions, gifts and grants
- $4,046,099
- Program service revenue
- $444,538
- Investment income
- $69,732
- Net gain from sales of assets
- $2,189
- Net income from fundraising events
- -$70,184
- Other revenue
- -$70,184
Expenses
- Grants and similar amounts paid
- $3,230,958
- Compensation of officers, directors and key employees
- $236,250
- Other salaries and wages
- $449,374
- Salaries, compensation and benefits (total)
- $807,982
- Professional fundraising fees
- $0
- Legal fees
- $24,643
- Accounting fees
- $102,059
- Occupancy
- $11,577
- Travel
- $222,497
- Depreciation
- $2,350
- Program services (functional)
- $5,121,556
- Management and general (functional)
- $168,903
- Fundraising (functional)
- $57,459
Balance sheet and other
- Total assets, start of year
- $2,792,533
- Total assets, end of year
- $2,066,811
- Total liabilities, end of year
- $352,718
- Net assets, end of year
- $1,714,093
- Land, buildings and equipment
- $4,243
- Net assets without donor restrictions
- $118,519
- Net assets with donor restrictions
- $1,595,574
- Gross receipts
- $4,581,219
- Employees
- 7
- Volunteers
- 33
- Year formed
- 1955
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended September 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| RACHEL JORDAN | EXECUTIVE DIRECTOR Trustee or director, Officer | 37.5 | $225,000 | $11,529 |
| CYNTHIA FRISINA | VICE PRESIDENT OF PARTNERSHIPS Highest-paid employee | 37.5 | $140,000 | $7,000 |
| REBECCA LAM | VP OF PROGRAMS AND OPERATIONS Highest-paid employee | 37.5 | $122,526 | $19,055 |
| ILA ECKHOFF | CHAIRMAN Trustee or director, Officer | 1 | $0 | $0 |
| JAMES P VOLCKER | V.P & SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| PATRICK DOWNES | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| DR ANDREA DUNCAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DR DEBORAH GAEBLER-SPIRA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| EILEEN FOWLER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| GERALD DUNDON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KARA BUCKLEY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LEVEE BROOKS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LILY COLLISON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MICHELLE KASSNER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PETER W SHAPIRO | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended September 30, 2024: 17 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| RACHEL JORDAN | EXECUTIVE DIRECTOR Trustee or director, Officer | 37.5 | $239,313 | $13,350 |
| CYNTHIA FRISINA | VICE PRESIDENT OF PARTNERSHIPS Highest-paid employee | 37.5 | $142,917 | $7,146 |
| REBECCA LAM | VP OF PROGRAMS AND OPERATIONS Highest-paid employee | 37.5 | $118,927 | $20,245 |
| DEBORAH FINK | VP OF EDUCATION AND INCLUSION Highest-paid employee | 37.5 | $109,482 | $20,074 |
| ILA ECKHOFF | CHAIRMAN Trustee or director, Officer | 1 | $0 | $0 |
| JAMES P VOLCKER | V.P & SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| PATRICK DOWNES | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| DR ANDREA DUNCAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DR DEBORAH GAEBLER-SPIRA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| EILEEN FOWLER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| GERALD DUNDON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KARA BUCKLEY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LEVEE BROOKS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LILY COLLISON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MICHELLE KASSNER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PETER W SHAPIRO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| WENDY GARFINKEL | DIRECTOR (UNTIL 11/2023) Trustee or director | 1 | $0 | $0 |
990 for the year ended September 30, 2023: 16 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| RACHEL JORDAN | EXECUTIVE DIRECTOR Trustee or director, Officer | 35 | $210,250 | $10,469 |
| CYNTHIA FRISINA | VICE PRESIDENT OF PARTNERSHIPS Highest-paid employee | 35 | $142,917 | $7,146 |
| REBECCA LAM | VP OF PROGRAMS AND OPERATIONS Highest-paid employee | 35 | $112,449 | $8,319 |
| DEBORAH FINK | VP OF EDUCATION AND INCLUSION Highest-paid employee | 35 | $107,354 | $8,146 |
| ILA ECKHOFF | CHAIRMAN (AS OF 4/3/23) Trustee or director, Officer | 1 | $0 | $0 |
| JAMES P VOLCKER | V.P & SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| MICHELLE KASSNER | CHAIRMAN (THRU 4/3/23), DIRECTOR Trustee or director, Officer | 1 | $0 | $0 |
| PATRICK DOWNES | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| DR ANDREA DUNCAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DR DEBORAH GAEBLER-SPIRA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| EILEEN FOWLER | DIRECTOR (AS OF 4/3/23) Trustee or director | 1 | $0 | $0 |
| GERALD DUNDON | DIRECTOR (AS OF 1/11/23) Trustee or director | 1 | $0 | $0 |
| LEVEE BROOKS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LILY COLLISON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PETER W SHAPIRO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| WENDY GARFINKEL | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended September 30, 2022: 13 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Rachel Jordan | EXECUTIVE DIRECTOR Trustee or director, Officer | 35 | $194,250 | $10,130 |
| Cynthia Frisina | Vice President of Partnerships Highest-paid employee | 35 | $132,500 | $6,625 |
| Rebecca Lam | VP of Programs and Operations Highest-paid employee | 35 | $105,740 | $7,657 |
| JAMES P VOLCKER | V.P & SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| Michelle Kassner | CHAIRMAN Trustee or director, Officer | 1 | $0 | $0 |
| Patrick Downes | Treasurer Trustee or director, Officer | 1 | $0 | $0 |
| Dr Andrea Duncan | Director Trustee or director | 1 | $0 | $0 |
| Dr Deborah Gaebler-Spira | Director Trustee or director | 1 | $0 | $0 |
| Ila Eckhoff | Director Trustee or director | 1 | $0 | $0 |
| Levee Brooks | Director Trustee or director | 1 | $0 | $0 |
| Lily Collison | Director Trustee or director | 1 | $0 | $0 |
| PETER W SHAPIRO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| Wendy Garfinkel | Director (as of 12/6/21) Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 3 COLUMBUS CIR FL 15, NEW YORK, NY 10019-8720
- In care of
- % RICHARD ELLENSON
- Principal officer (990 for 2024)
- RACHEL JORDAN, 3 COLUMBUS CIRCLE SUITE 15TH FLOOR, NEW YORK, NY 10019
- Signed the 990
- RACHEL JORDAN, EXECUTIVE DIRECTOR
- Phone
- (212) 520-1686
- Website
- WWW.YOURCPF.ORG
- Return prepared by
- CROWE ADVISORY LLC
Mission
THE FOUNDATION DEVELOPS AND SPEARHEADS INITIATIVES DESIGNED TO CHANGE LIVES TODAY FOR PEOPLE WITH CEREBRAL PALSY THROUGH RESEARCH, INNOVATION, AND COLLABORATION.
Program accomplishments
- THE FOUNDATION PROVIDES FINANCIAL SUPPORT TO RIGOROUSLY REVIEWED, SCIENTIFICALLY IMPORTANT RESEARCH RELEVANT TO CEREBRAL PALSY AND OTHER DEVELOPMENTAL DISABILITIES. THE FOUNDATION ALSO PROVIDES MEDICAL EXPERTISE, AS REQUESTED BY OTHER ORGANIZATIONS, AND SERVES AS A RESOURCE FOR THE INTERNATIONAL PUBLIC, CLINICIANS, AND POLICY-MAKERS ABOUT BEST HEALTH CARE PRACTICES, PREVENTION, AND CURATIVE STRATEGIES FOR CEREBRAL PALSY. THE FOUNDATION IS ALSO FOCUSING ITS ATTENTION ON RESEARCH DIRECTED AT ISSUES OF EARLY DIAGNOSIS, MECHANISMS OF NERVOUS SYSTEM INJURY AND REPAIR, REGENERATIVE TREATMENTS, NEUROLOGICAL REHABILITATION, ORTHOPEDIC REHABILITATION AND ENGINEERING SOLUTIONS, AS WELL AS RESEARCH TO PREVENT THE SECONDARY NEUROMUSCULAR, MUSCULOSKELETAL, AND CARDIOVASCULAR COMPLICATIONS SEEN IN ADULTS WITH CEREBRAL PALSY. THERE ARE APPROXIMATELY 1 MILLION CHILDREN AND ADULTS IN THE USA WITH CEREBRAL PALSY AND RELATED DEVELOPMENTAL DISABILITIES, MORE CLINICAL AND BASIC BIOMEDICAL RESEARCH IS URGENTLY NEEDED FOR IMPROVING NEUROLOGICAL FUNCTIONS, PREVENTING MEDICAL COMPLICATIONS, AND OPTIMIZING QUALITY OF LIFE IN THESE INDIVIDUALS FROM INFANCY THROUGH ADULTHOOD.Expenses $5,121,556 · grants $3,230,958 · revenue $444,538
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | September 30, 2026 | February 15, 2027 | Not due yet |
| 2024 | September 30, 2025 | February 16, 2026 | 990 on file |
| 2023 | September 30, 2024 | February 17, 2025 | 990 on file |
IRS record
- EIN
- 13-6093337
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1957
- Accounting year ends
- September
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H23Z)
- Assets (IRS master file)
- $2,066,811
- Income (IRS master file)
- $4,581,219
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | September 2025 | $4,490,185 | $5,347,918 | $2,066,811 | XML |
| 990 | September 2024 | $4,686,145 | $4,684,411 | $2,792,533 | XML |
| 990 | September 2023 | $4,021,273 | $3,899,013 | $2,675,260 | XML |
| 990 | September 2022 | $2,151,754 | $2,116,457 | $2,336,868 | XML |
| 990 | September 2021 | – | – | – | IRS |
| 990 | September 2020 | – | – | – | IRS |
| 990 | September 2019 | – | – | – | IRS |
| 990 | September 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-6093337).
Questions about CEREBRAL PALSY FOUNDATION INC
- What is the EIN of CEREBRAL PALSY FOUNDATION INC?
- The employer identification number (EIN) of CEREBRAL PALSY FOUNDATION INC is 13-6093337.
- Is CEREBRAL PALSY FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1957.
- Are donations to CEREBRAL PALSY FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CEREBRAL PALSY FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CEREBRAL PALSY FOUNDATION INC due?
- The return for tax year 2025 (the year ending September 30, 2026) is due February 15, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CEREBRAL PALSY FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended September 2025.
- Who is the principal officer of CEREBRAL PALSY FOUNDATION INC?
- The 990 for the year ended September 30, 2025 names RACHEL JORDAN.
- Who are the officers and directors of CEREBRAL PALSY FOUNDATION INC?
- The 990 for the year ended September 30, 2025 lists 15 people; 3 received compensation from the organization, the highest $225,000 (RACHEL JORDAN, EXECUTIVE DIRECTOR).
- How much revenue does CEREBRAL PALSY FOUNDATION INC have?
- On its 990 for the year ended September 30, 2025 it reported revenue of $4,490,185, expenses of $5,347,918 and total assets of $2,066,811 at year end.
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