Nonprofit · EIN 13-3380237
JEFFREY MODELL FOUNDATION INC
Tax-exempt · NEW YORK, NY 10017
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $10,208,043 | $9,266,854 | $941,189 | $46,039,860 | $6,267,167 | $39,772,693 |
| December 31, 2023 | 990 | $9,602,449 | $7,360,289 | $2,242,160 | $42,921,915 | $5,889,326 | $37,032,589 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $8,802,593
- of which government grants
- $3,000,000
- Program service revenue
- $0
- Investment income
- $1,405,450
- Net gain from sales of assets
- $775,269
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $2,165,862
- Compensation of officers, directors and key employees
- $1,667,072
- Other salaries and wages
- $851,725
- Salaries, compensation and benefits (total)
- $2,518,797
- Professional fundraising fees
- $0
- Legal fees
- $90,127
- Accounting fees
- $47,500
- Occupancy
- $775,874
- Travel
- $67,769
- Depreciation
- $4,037
- Program services (functional)
- $8,492,018
- Management and general (functional)
- $506,864
- Fundraising (functional)
- $267,972
Balance sheet and other
- Total assets, start of year
- $42,921,915
- Total assets, end of year
- $46,039,860
- Total liabilities, end of year
- $6,267,167
- Net assets, end of year
- $39,772,693
- Land, buildings and equipment
- $893
- Net assets without donor restrictions
- $39,772,693
- Gross receipts
- $15,043,758
- Employees
- 12
- Year formed
- 1986
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| FREDERICK MODELL | President Trustee or director, Officer | 40 | $716,538 |
| VANESSA TENEMBAUM | EXECUTIVE DIRECTOR | 40 | $354,119 |
| JESSICA QUINN | SCIENTIFIC DIRECTOR | 40 | $200,677 |
| CHRISTOPHER SIMS | CHIEF FINANCIAL OFFICER | 40 | $198,273 |
| ROGER DAVILLA | – | 40 | $197,465 |
| MICHAEL DAVIDSON | Director Trustee or director | 2 | $0 |
| WENDY LEVINE | Director Trustee or director | 2 | $0 |
| HELEN CHAITMAN ESQ | Director Trustee or director | 2 | $0 |
| JENNIFER CHAITMAN DVM | Director Trustee or director | 2 | $0 |
| BETTINA EMDEN | Director Trustee or director | 2 | $0 |
| FRANN ERIC FRANCIS | Director Trustee or director | 2 | $0 |
| ROBBIE ALAN FRANKLINESQ | Director Trustee or director | 2 | $0 |
| ALLYSON ALAN GALISHOFF | Director Trustee or director | 2 | $0 |
| LYNN MANHEIM | Director Trustee or director | 2 | $0 |
| GENE MANHEIM | Director Trustee or director | 2 | $0 |
19 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| HASSAN AHMED | Director Trustee or director | 2 | $0 |
| FELICE AXELROD | Director Trustee or director | 2 | $0 |
| RON SNYDER | Director Trustee or director | 2 | $0 |
| FAISAL KHALID | OVERSEER Trustee or director | 2 | $0 |
| BRENDA GARY LAVIGNA | Director Trustee or director | 2 | $0 |
| LISA STEPHEN LAWRENCE | Director Trustee or director | 2 | $0 |
| DEBBI MAX LEBERSFELD | Director Trustee or director | 2 | $0 |
| DEBBE LONGO STROUT | Director Trustee or director | 2 | $0 |
| JONATHAN MECHANIC ESQ | Director Trustee or director | 2 | $0 |
| CAROL JAMES RANDEL | Director Trustee or director | 2 | $0 |
| JASON SHUMAN | Director Trustee or director | 2 | $0 |
| LISA STEPHEN SHUMAN | Director Trustee or director | 2 | $0 |
| LUCIANA MICHAEL SOLOMON | Director Trustee or director | 2 | $0 |
| SUSAN BARRY STEIN MD | Director Trustee or director | 2 | $0 |
| JODI PULICE | Director Trustee or director | 2 | $0 |
| LISA WILLIAM WEXLER | Director Trustee or director | 2 | $0 |
| GREG SMITH | Director Trustee or director | 2 | $0 |
| RYAN G SMITH | Director Trustee or director | 2 | $0 |
| TAYLOR SMITH | Director Trustee or director | 2 | $0 |
990 for the year ended December 31, 2023: 34 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| FREDERICK MODELL | President Trustee or director, Officer | 40 | $406,346 |
| VANESSA TENEMBAUM | EXECUTIVE DIRECTOR | 40 | $298,371 |
| JESSICA QUINN | SCIENTIFIC DIRECTOR | 40 | $176,948 |
| ROGER DAVILLA | – | 40 | $176,371 |
| CHRISTOPHER SIMS | CHIEF FINANCIAL OFFICER | 40 | $176,179 |
| MICHAEL DAVIDSON | Director Trustee or director | 2 | $0 |
| WENDY LEVINE | Director Trustee or director | 2 | $0 |
| HELEN CHAITMAN ESQ | Director Trustee or director | 2 | $0 |
| JENNIFER CHAITMAN DVM | Director Trustee or director | 2 | $0 |
| BETTINA EMDEN | Director Trustee or director | 2 | $0 |
| FRANN ERIC FRANCIS | Director Trustee or director | 2 | $0 |
| ROBBIE ALAN FRANKLINESQ | Director Trustee or director | 2 | $0 |
| ALLYSON ALAN GALISHOFF | Director Trustee or director | 2 | $0 |
| LYNN MANHEIM | Director Trustee or director | 2 | $0 |
| GENE MANHEIM | Director Trustee or director | 2 | $0 |
| HASSAN AHMED | Director Trustee or director | 2 | $0 |
| FELICE AXELROD | Director Trustee or director | 2 | $0 |
| RON SNYDER | Director Trustee or director | 2 | $0 |
| FAISAL KHALID | OVERSEER Trustee or director | 2 | $0 |
| BRENDA GARY LAVIGNA | Director Trustee or director | 2 | $0 |
| LISA STEPHEN LAWRENCE | Director Trustee or director | 2 | $0 |
| DEBBI MAX LEBERSFELD | Director Trustee or director | 2 | $0 |
| DEBBE LONGO STROUT | Director Trustee or director | 2 | $0 |
| JONATHAN MECHANIC ESQ | Director Trustee or director | 2 | $0 |
| CAROL JAMES RANDEL | Director Trustee or director | 2 | $0 |
| JASON SHUMAN | Director Trustee or director | 2 | $0 |
| LISA STEPHEN SHUMAN | Director Trustee or director | 2 | $0 |
| LUCIANA MICHAEL SOLOMON | Director Trustee or director | 2 | $0 |
| SUSAN BARRY STEIN MD | Director Trustee or director | 2 | $0 |
| JODI PULICE | Director Trustee or director | 2 | $0 |
| LISA WILLIAM WEXLER | Director Trustee or director | 2 | $0 |
| GREG SMITH | Director Trustee or director | 2 | $0 |
| RYAN G SMITH | Director Trustee or director | 2 | $0 |
| TAYLOR SMITH | Director Trustee or director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 780 THIRD AVENUE 47TH FLOOR, NEW YORK, NY 10017-2024
- Signed the 990
- FREDERICK MODELL, President
- Phone
- (212) 819-0200
- Website
- WWW.INFO4PI.ORG
- Return prepared by
- ADEPTUS ADVISORS LLC
Mission
The Foundation is dedicated to the early diagnosis, treatment and ultimate cure of Primary Immunodeficiency Diseases. The Foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The Foundation generates support through contributions from the general public, industry, and government agencies. The Foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.
Program accomplishments
- THE ORGANIZATION CONDUCTED PUBLIC SERVICE ADVERTISING CAMPAIGNS DIRECTED TO THE GENERAL PUBLIC TO CREATE PUBLIC AWARENESS, AS WELL AS TO EDUCATE BOTH TREATING PHYSICIANS AND THE GENERAL PUBLIC ABOUT IMMUNODEFICIENCY DISEASES.Expenses $7,913,425 · grants $5,281,556
- BASIC AND CLINICAL RESEARCH SUPPORT AT NUMEROUS EDUCATIONAL INSTITUTIONS AND HOSPITALS THROUGHOUT THE UNITED STATES AND WORLD-WIDE AS REPORTED IN ACCOMPANYING SCHEDULE F AND SCHEDULE I. IN ADDITION, THE FOUNDATION PROVIDED FUNDING TO REGIONAL AND NATIONAL PATIENT ORGANIZATIONS GLOBALLY.Expenses $578,593 · grants $3,521,037
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 13-3380237
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1987
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $46,039,860
- Income (IRS master file)
- $15,043,758
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $10,208,043 | $9,266,854 | $46,039,860 | IRS |
| 990 | December 2023 | $9,602,449 | $7,360,289 | $42,921,915 | XML |
| 990 | December 2022 | $8,819,209 | $5,875,800 | $38,647,183 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-3380237).
Questions about JEFFREY MODELL FOUNDATION INC
- What is the EIN of JEFFREY MODELL FOUNDATION INC?
- The employer identification number (EIN) of JEFFREY MODELL FOUNDATION INC is 13-3380237.
- Is JEFFREY MODELL FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1987.
- Are donations to JEFFREY MODELL FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does JEFFREY MODELL FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of JEFFREY MODELL FOUNDATION INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did JEFFREY MODELL FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who are the officers and directors of JEFFREY MODELL FOUNDATION INC?
- The 990 for the year ended December 31, 2024 lists 34 people; 5 received compensation from the organization, the highest $716,538 (FREDERICK MODELL, President).
- How much revenue does JEFFREY MODELL FOUNDATION INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $10,208,043, expenses of $9,266,854 and total assets of $46,039,860 at year end.
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