Nonprofit · EIN 13-2992567
NATIONAL DOWN SYNDROME SOCIETY
Tax-exempt · NEW YORK, NY 10017
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $4,702,778 | $5,721,193 | -$1,018,415 | $12,363,529 | $850,986 | $11,512,543 |
| June 30, 2024 | 990 | $4,012,682 | $5,273,290 | -$1,260,608 | $12,985,609 | $1,109,858 | $11,875,751 |
| June 30, 2023 | 990 | $3,354,289 | $4,160,847 | -$806,558 | $13,503,862 | $1,084,010 | $12,419,852 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $3,173,086
- Program service revenue
- $370,245
- Investment income
- $760,829
- Net gain from sales of assets
- $458,564
- Net income from fundraising events
- $326,143
- Other revenue
- $398,618
Expenses
- Grants and similar amounts paid
- $172,025
- Compensation of officers, directors and key employees
- $246,203
- Other salaries and wages
- $1,634,228
- Salaries, compensation and benefits (total)
- $2,277,249
- Professional fundraising fees
- $0
- Legal fees
- $48,196
- Accounting fees
- $188,915
- Occupancy
- $190,261
- Travel
- $412,080
- Depreciation
- $14,631
- Program services (functional)
- $4,593,932
- Management and general (functional)
- $406,281
- Fundraising (functional)
- $720,980
Balance sheet and other
- Total assets, start of year
- $12,985,609
- Total assets, end of year
- $12,363,529
- Total liabilities, end of year
- $850,986
- Net assets, end of year
- $11,512,543
- Land, buildings and equipment
- $36,448
- Publicly traded securities
- $10,984,068
- Net assets without donor restrictions
- $9,328,140
- Net assets with donor restrictions
- $2,184,403
- Gross unrelated business income
- $6,525
- Gross receipts
- $7,120,560
- Employees
- 37
- Volunteers
- 498
- Year formed
- 1979
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KANDI PICKARD | President & CEO Officer | 40 | $197,048 | $42,000 |
| Robert Snow | Disability Adv | 40 | $97,251 | $47,750 |
| Carlo P Frappolli | Chairman Trustee or director, Officer | 2 | $0 | $0 |
| Thomas Warner | Vice President Trustee or director, Officer | 1.5 | $0 | $0 |
| Janet Eissenstat | Secretary Trustee or director, Officer | 1.5 | $0 | $0 |
| John Short | Treasurer Trustee or director, Officer | 1.5 | $0 | $0 |
| Elizabeth F Goodwin | Director Trustee or director | 0.7 | $0 | $0 |
| Kerry Sette | Director Trustee or director | 0.7 | $0 | $0 |
| John Cronin | Director Trustee or director | 0.7 | $0 | $0 |
| Misty Holmes | Director Trustee or director | 0.7 | $0 | $0 |
| Marjorie Shavers | Director Trustee or director | 0.7 | $0 | $0 |
| Mark Johnson | Director Trustee or director | 0.7 | $0 | $0 |
| Debbie Morris | Director Trustee or director | 0.7 | $0 | $0 |
| Lisa Pelham | Director Trustee or director | 0.7 | $0 | $0 |
| Thomas Santos | Director Trustee or director | 0.7 | $0 | $0 |
11 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Schunda Murphy | Director Trustee or director | 0.7 | $0 |
| Robert Siegel | Director Trustee or director | 0.7 | $0 |
| Candace Whiting | Director Trustee or director | 1.5 | $0 |
| Lauren Wang | Director Trustee or director | 0.7 | $0 |
| C Mitch Taylor | Director Trustee or director | 0.7 | $0 |
| Michael Kulma | Director Trustee or director | 0.7 | $0 |
| Victoria Tremonti | Director Trustee or director | 0.7 | $0 |
| Joe Joyce | Director Trustee or director | 0.7 | $0 |
| Courtney Gaines | Director Trustee or director | 0.7 | $0 |
| Ciara Siegel | Director Trustee or director | 0.7 | $0 |
| John McGuire | Director Trustee or director | 0.3 | $0 |
990 for the year ended June 30, 2024: 26 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KANDI PICKARD | President & CEO Officer | 40 | $204,973 | $15,524 |
| SARA GOLDBERG | VP Strategic Dev | 40 | $93,417 | $31,859 |
| Carlo P Frappolli | Chairman Trustee or director, Officer | 1.5 | $0 | $0 |
| Thomas Warner | Vice President Trustee or director, Officer | 1.5 | $0 | $0 |
| Janet Eissenstat | Secretary Trustee or director, Officer | 1.5 | $0 | $0 |
| John Short | Treasurer Trustee or director, Officer | 1.5 | $0 | $0 |
| Elizabeth F Goodwin | Director Trustee or director | 0.7 | $0 | $0 |
| Kerry Sette | Director Trustee or director | 0.7 | $0 | $0 |
| John Cronin | Director Trustee or director | 0.7 | $0 | $0 |
| Misty Holmes | Director Trustee or director | 0.7 | $0 | $0 |
| Marjorie Shavers | Director Trustee or director | 0.7 | $0 | $0 |
| Mark Johnson | Director Trustee or director | 0.7 | $0 | $0 |
| Debbie Morris | Director Trustee or director | 0.7 | $0 | $0 |
| Lisa Pelham | Director Trustee or director | 0.7 | $0 | $0 |
| Thomas Santos | Director Trustee or director | 0.7 | $0 | $0 |
| Schunda Murphy | Director Trustee or director | 0.7 | $0 | $0 |
| Robert Siegel | Director Trustee or director | 0.7 | $0 | $0 |
| Candace Whiting | Director Trustee or director | 0.7 | $0 | $0 |
| Lauren Wang | Director Trustee or director | 0.7 | $0 | $0 |
| C Mitch Taylor | Director Trustee or director | 0.7 | $0 | $0 |
| Michael Kulma | Director Trustee or director | 0.7 | $0 | $0 |
| Victoria Tremonti | Director Trustee or director | 0.7 | $0 | $0 |
| Joe Joyce | Director Trustee or director | 0.7 | $0 | $0 |
| Courtney Gaines | Director Trustee or director | 0.7 | $0 | $0 |
| Ciara Siegel | Director Trustee or director | 0.7 | $0 | $0 |
| Anthony Gostkowski | Director Trustee or director | 0.7 | $0 | $0 |
990 for the year ended June 30, 2023: 22 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KANDI PICKARD | President & CEO Officer | 40 | $168,353 | $4,413 |
| SARA GOLDBERG | VP Strategic Dev | 40 | $88,975 | $20,500 |
| Tiffany Barfield | Chairman Trustee or director, Officer | 1.5 | $0 | $0 |
| Carlo P Frappolli | Vice President Trustee or director, Officer | 1.5 | $0 | $0 |
| Janet Eissenstat | Secretary Trustee or director, Officer | 1.5 | $0 | $0 |
| Anthony J Gostkowski | Treasurer Trustee or director, Officer | 1.5 | $0 | $0 |
| Elizabeth F Goodwin | Director Trustee or director | 0.7 | $0 | $0 |
| Heather Lavallee | Director Trustee or director | 0.7 | $0 | $0 |
| John Cronin | Director Trustee or director | 0.7 | $0 | $0 |
| Misty Holmes | Director Trustee or director | 0.7 | $0 | $0 |
| Brandon Gruber | Director Trustee or director | 0.7 | $0 | $0 |
| Mark Johnson | Director Trustee or director | 0.7 | $0 | $0 |
| Debbie Morris | Director Trustee or director | 0.7 | $0 | $0 |
| Lisa Pelham | Director Trustee or director | 0.7 | $0 | $0 |
| Thomas Santos | Director Trustee or director | 0.7 | $0 | $0 |
| John Short | Director Trustee or director | 0.7 | $0 | $0 |
| Bob Siegel | Director Trustee or director | 0.7 | $0 | $0 |
| Candace Whiting | Director Trustee or director | 0.7 | $0 | $0 |
| Lauren Wang | Director Trustee or director | 0.7 | $0 | $0 |
| C Mitch Taylor | Director Trustee or director | 0.7 | $0 | $0 |
| Michael Kulma | Director Trustee or director | 0.7 | $0 | $0 |
| Tom Warner | Director Trustee or director | 0.7 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 8 E 41ST STREET 8TH FLOOR, NEW YORK, NY 10017-6290
- Principal officer (990 for 2024)
- KANDI PICKARD, 1155 15TH STREET NW SUITE 540, WASHINGTON, DC 20005
- Signed the 990
- John Short, Treasurer
- Phone
- (800) 221-4602
- Website
- WWW.NDSS.ORG
- Return prepared by
- C E A SCHOLTES AND ASSOCIATES
Mission
The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Program accomplishments
- COMMUNITY ENGAGEMENT - SEE SCHEDULE OExpenses $2,160,607 · grants $148,872 · revenue $214,995
- RESOURCES AND SUPPORT - SEE SCHEDULE OExpenses $1,340,009 · grants $17,002 · revenue $65,950
- ADVOCACY AND PUBLIC POLICY - SEE SCHEDULE OExpenses $1,093,316 · grants $6,151
- NATIONAL BUDDY WALKrevenue $155,250
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 13-2992567
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1979
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $12,363,529
- Income (IRS master file)
- $7,120,560
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $4,702,778 | $5,721,193 | $12,363,529 | XML |
| 990-T | June 2025 | – | – | – | IRS |
| 990 | June 2024 | $4,012,682 | $5,273,290 | $12,985,609 | XML |
| 990-T | June 2024 | – | – | – | IRS |
| 990 | June 2023 | $3,354,289 | $4,160,847 | $13,503,862 | XML |
| 990 | June 2022 | $3,651,955 | $3,391,372 | $13,076,710 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-2992567).
Questions about NATIONAL DOWN SYNDROME SOCIETY
- What is the EIN of NATIONAL DOWN SYNDROME SOCIETY?
- The employer identification number (EIN) of NATIONAL DOWN SYNDROME SOCIETY is 13-2992567.
- Is NATIONAL DOWN SYNDROME SOCIETY tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1979.
- Are donations to NATIONAL DOWN SYNDROME SOCIETY tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NATIONAL DOWN SYNDROME SOCIETY file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NATIONAL DOWN SYNDROME SOCIETY due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NATIONAL DOWN SYNDROME SOCIETY last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of NATIONAL DOWN SYNDROME SOCIETY?
- The 990 for the year ended June 30, 2025 names KANDI PICKARD.
- Who are the officers and directors of NATIONAL DOWN SYNDROME SOCIETY?
- The 990 for the year ended June 30, 2025 lists 26 people; 2 received compensation from the organization, the highest $197,048 (KANDI PICKARD, President & CEO).
- How much revenue does NATIONAL DOWN SYNDROME SOCIETY have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $4,702,778, expenses of $5,721,193 and total assets of $12,363,529 at year end.
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