Nonprofit · EIN 13-2298956
CHILDRENS TUMOR FOUNDATION
Tax-exempt · NEW YORK, NY 10017
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $19,738,640 | $19,009,492 | $729,148 | $30,677,831 | $3,908,305 | $26,769,526 |
| December 31, 2023 | 990 | $16,447,289 | $18,828,152 | -$2,380,863 | $30,074,603 | $4,353,703 | $25,720,900 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $18,893,523
- of which government grants
- $7,495
- Program service revenue
- $25,665
- Investment income
- $853,571
- Net gain from sales of assets
- $18,321
- Net income from fundraising events
- -$117,186
- Net income from sales of inventory
- $47,195
- Other revenue
- -$34,119
Expenses
- Grants and similar amounts paid
- $5,493,525
- Compensation of officers, directors and key employees
- $1,624,552
- Other salaries and wages
- $3,930,491
- Salaries, compensation and benefits (total)
- $6,787,095
- Professional fundraising fees
- $0
- Legal fees
- $129,951
- Occupancy
- $105,413
- Travel
- $464,498
- Depreciation
- $216,151
- Program services (functional)
- $15,925,351
- Management and general (functional)
- $1,526,148
- Fundraising (functional)
- $1,557,993
Balance sheet and other
- Total assets, start of year
- $30,074,603
- Total assets, end of year
- $30,677,831
- Total liabilities, end of year
- $3,908,305
- Net assets, end of year
- $26,769,526
- Land, buildings and equipment
- $13,632
- Publicly traded securities
- $7,941,032
- Net assets without donor restrictions
- $17,535,493
- Net assets with donor restrictions
- $9,234,033
- Gross receipts
- $20,862,188
- Employees
- 55
- Volunteers
- 1,000
- Year formed
- 1978
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ANNETTE BAKKER | PRESIDENT Officer | 37.5 | $404,743 | $63,609 |
| BRIGID GARELIK | CHIEF MEDICAL OFFICER Officer | 37.5 | $343,266 | $61,369 |
| SIMON VUKELJ | CHIEF MARKETING OFFICER Officer | 37.5 | $246,075 | $30,844 |
| MONICA SOHN | CHIEF GROWTH OFFICER Officer | 37.5 | $258,750 | $12,578 |
| IRENE MORGANSTERN | DIRECTOR, PRECLINICAL INITIATIVES Highest-paid employee | 37.5 | $183,952 | $54,103 |
| BARBARA GALLAGHER | VICE PRESIDENT OF DEV. Highest-paid employee | 37.5 | $172,066 | $43,386 |
| SARAH BOURNE | SR. VP, FINANCE AND OPERATIONS Officer | 37.5 | $194,226 | $9,091 |
| JENNIFER CHING | DIRECTOR, HUMAN RESOURCES Highest-paid employee | 37.5 | $160,108 | $38,274 |
| AMY BOULAS | VP DEV. PTP AND FIELD BASED EVENTS Highest-paid employee | 37.5 | $151,528 | $34,925 |
| MICHELE PRZYPYSZNY | CHIEF ADVANCEMENT OFFICER Highest-paid employee | 37.5 | $166,864 | $4,026 |
| CAROL KALAGHER | BOARD MEMBER (OUTGOING) Trustee or director | 1 | $0 | $0 |
| DANIEL ALTMAN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DANIEL GILBERT | BOARD MEMBER (OUTGOING) Trustee or director | 1 | $0 | $0 |
| ED STERN | BOARD MEMBER (OUTGOING) Trustee or director | 1 | $0 | $0 |
| EMILY PARKER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
24 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| FRANK HAUGHTON | BOARD MEMBER Trustee or director | 1 | $0 |
| GABRIEL GROISMAN | CHAIR Trustee or director, Officer | 1 | $0 |
| GEORGE THURONYI | BOARD MEMBER Trustee or director | 1 | $0 |
| JAISHRI BLAKELEY | BOARD MEMBER Trustee or director | 1 | $0 |
| KENNETH RUDD | BOARD MEMBER Trustee or director | 1 | $0 |
| LAURA GRANNEMAN | BOARD MEMBER Trustee or director | 1 | $0 |
| LINDA H MARTIN | CHAIR EMERITUS Trustee or director | 1 | $0 |
| LIZ RODBELL | VICE CHAIR Trustee or director, Officer | 1 | $0 |
| LU LE | BOARD MEMBER Trustee or director | 1 | $0 |
| MARK OPPENHEIMER | BOARD MEMBER Trustee or director | 1 | $0 |
| MONTSE MONTANER PICART | BOARD MEMBER Trustee or director | 1 | $0 |
| RANDALL STANICKY | BOARD MEMBER Trustee or director | 1 | $0 |
| RB HARRISON | TREASURER Trustee or director, Officer | 1 | $0 |
| RICHARD HORVITZ | CHAIR EMERITUS Trustee or director | 1 | $0 |
| RICHARD SOLL | BOARD MEMBER Trustee or director | 1 | $0 |
| ROBERT BRAININ | BOARD MEMBER (OUTGOING) Trustee or director | 1 | $0 |
| ROGER - KETCHA NGASSAM | BOARD MEMBER Trustee or director | 1 | $0 |
| SALLY GOTTESMAN | BOARD MEMBER Trustee or director | 1 | $0 |
| SCOTT PLOTKIN | BOARD MEMBER Trustee or director | 1 | $0 |
| SIMONE MANSO | BOARD MEMBER Trustee or director | 1 | $0 |
| STEVEN MCKENZIE | BOARD MEMBER Trustee or director | 1 | $0 |
| TRACY GALLOWAY | BOARD MEMBER Trustee or director | 1 | $0 |
| VICKI MATCH SUNA | BOARD MEMBER Trustee or director | 1 | $0 |
| WADE CLAPP | BOARD MEMBER Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 39 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ANNETTE BAKKER | PRESIDENT Officer | 37.5 | $412,592 | $59,453 |
| MICHELE PRZYPYSZNY | CHIEF ADVANCEMENT OFFICER Highest-paid employee | 37.5 | $277,958 | $39,253 |
| SIMON VUKELJ | CHIEF COMMUNICATIONS OFFICER Highest-paid employee | 37.5 | $244,315 | $29,891 |
| BARBARA GALLAGHER | VICE PRESIDENT OF DEV. Highest-paid employee | 37.5 | $168,523 | $40,682 |
| BRIGID GARELIK | CHIEF MEDICAL OFFICER Officer | 37.5 | $184,927 | $21,095 |
| SARAH BOURNE | VP, FINANCE AND OPERATIONS Officer | 37.5 | $188,572 | $10,812 |
| AMY BOULAS | VP DEV. PTP AND FIELD BASED EVENT Highest-paid employee | 37.5 | $145,668 | $42,940 |
| PATRICE PANCZA | VP, EXTERNAL RELATIONS Highest-paid employee | 37.5 | $156,477 | $30,509 |
| ANITA GRIBBEN | BOARD MEMBER (OUTGOING) Trustee or director | 1 | $0 | $0 |
| CAROL KALAGHER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| CAROLYN SETLOW | BOARD MEMBER (OUTGOING) Trustee or director | 1 | $0 | $0 |
| DANIEL ALTMAN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DANIEL GILBERT | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| ED STERN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| EMILY PARKER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| FRANK HAUGHTON | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| GABRIEL GROISMAN | CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| GEORGE THURONYI | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| JOHN GOLFINOS | BOARD MEMBER (OUTGOING) Trustee or director | 1 | $0 | $0 |
| KENNETH RUDD | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| LINDA H MARTIN | CHAIR EMERITUS Trustee or director | 1 | $0 | $0 |
| LIZ RODBELL | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| MARK OPPENHEIMER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| MONTSE MONTANER PICART | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| RANDALL STANICKY | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| RB HARRISON | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| RICHARD HORVITZ | CHAIR EMERITUS Trustee or director | 1 | $0 | $0 |
| RICHARD SOLL | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| ROBERT BRAININ | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| ROGER - KETCHA NGASSAM | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| SALLY GOTTESMAN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| SCOTT PLOTKIN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| SIMONE MANSO | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| STEVEN MCKENZIE | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| STUART SUNA | BOARD MEMBER (OUTGOING) Trustee or director | 1 | $0 | $0 |
| TERRI RAWSON | BOARD MEMBER (OUTGOING) Trustee or director | 1 | $0 | $0 |
| TRACY GALLOWAY | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| VICKI MATCH SUNA | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| WADE CLAPP | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 697 3RD AVENUE 418, NEW YORK, NY 10017-4003
- Principal officer (990 for 2024)
- ANNETTE BAKKER PHD, 697 3RD AVENUE 418, NEW YORK, NY 10017
- Signed the 990
- ANNETTE BAKKER PHD, PRESIDENT
- Phone
- (212) 344-6633
- Website
- WWW.CTF.ORG
- Return prepared by
- CBIZ ADVISORS LLC
Mission
OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF.
Program accomplishments
- RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITONALLY, OUR PORGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH.Expenses $11,061,408 · grants $5,493,525 · revenue $108,732
- PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE AND NF WALK PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR.Expenses $4,863,943
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 13-2298956
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1984
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H50Z)
- Assets (IRS master file)
- $30,677,831
- Income (IRS master file)
- $20,862,188
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $19,738,640 | $19,009,492 | $30,677,831 | XML |
| 990 | December 2023 | $16,447,289 | $18,828,152 | $30,074,603 | XML |
| 990 | December 2022 | $16,990,325 | $15,815,548 | $32,079,774 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-2298956).
Questions about CHILDRENS TUMOR FOUNDATION
- What is the EIN of CHILDRENS TUMOR FOUNDATION?
- The employer identification number (EIN) of CHILDRENS TUMOR FOUNDATION is 13-2298956.
- Is CHILDRENS TUMOR FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1984.
- Are donations to CHILDRENS TUMOR FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CHILDRENS TUMOR FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CHILDRENS TUMOR FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CHILDRENS TUMOR FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of CHILDRENS TUMOR FOUNDATION?
- The 990 for the year ended December 31, 2024 names ANNETTE BAKKER PHD.
- Who are the officers and directors of CHILDRENS TUMOR FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 39 people; 10 received compensation from the organization, the highest $404,743 (ANNETTE BAKKER, PRESIDENT).
- How much revenue does CHILDRENS TUMOR FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $19,738,640, expenses of $19,009,492 and total assets of $30,677,831 at year end.
Other nonprofits in NEW YORK
- MICHAEL J FOX FOUNDATION FOR PARKINSONS RESEARCH EIN 13-4141945 · last filed 990 for 2025
- PUBLIC HEALTH SOLUTIONS EIN 13-5669201 · last filed 990 for 2025
- PARKINSONS FOUNDATION INC EIN 13-1866796 · last filed 990 for 2025
- LICR FUND INC EIN 13-3573053 · last filed 990 for 2024
- CARDIOVASCULAR RESEARCH FOUNDATION EIN 52-1752653 · last filed 990 for 2024
- GLOBAL ALLIANCE FOR TB DRUG DEVELOPMENT INC EIN 13-4128413 · last filed 990 for 2024
- INTERNATIONAL BRAIN RESEARCH ORGANIZATION EIN 88-4372025 · last filed 990 for 2024
- CANCER RESEARCH INSTITUTE INC EIN 13-1837442 · last filed 990 for 2025