Nonprofit · EIN 13-1930701
CYSTIC FIBROSIS FOUNDATION
Tax-exempt · BETHESDA, MD 20814
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $355,798,320 | $439,138,919 | -$83,340,599 | $4,986,222,387 | $292,597,881 | $4,693,624,506 |
| December 31, 2023 | 990 | $292,016,280 | $443,404,599 | -$151,388,319 | $4,885,921,122 | $292,964,822 | $4,592,956,300 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $95,892,260
- Program service revenue
- $3,272,736
- Investment income
- $231,324,892
- Royalties
- $12,346,115
- Net gain from sales of assets
- $144,422,865
- Net income from gaming
- $4,531
- Other revenue
- $25,308,432
Expenses
- Grants and similar amounts paid
- $202,017,166
- Compensation of officers, directors and key employees
- $7,377,657
- Other salaries and wages
- $103,316,517
- Salaries, compensation and benefits (total)
- $143,748,863
- Professional fundraising fees
- $353,500
- Legal fees
- $610,499
- Accounting fees
- $515,914
- Occupancy
- $7,667,521
- Travel
- $2,562,131
- Depreciation
- $2,645,604
- Program services (functional)
- $346,709,365
- Management and general (functional)
- $57,319,385
- Fundraising (functional)
- $35,110,169
Balance sheet and other
- Total assets, start of year
- $4,885,921,122
- Total assets, end of year
- $4,986,222,387
- Total liabilities, end of year
- $292,597,881
- Net assets, end of year
- $4,693,624,506
- Land, buildings and equipment
- $9,729,248
- Publicly traded securities
- $2,761,100,818
- Net assets without donor restrictions
- $4,673,524,731
- Net assets with donor restrictions
- $20,099,775
- Gross unrelated business income
- $35,543,466
- Gross receipts
- $1,863,238,088
- Employees
- 875
- Volunteers
- 56,403
- Year formed
- 1955
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOHN C MAHLER JR MD | CHIEF INVESTMENT OFFICER Key employee | 40 | $1,866,868 | $75,759 |
| EARL A LEE | MANAGING DIRECTOR, INVESTMENTS Highest-paid employee | 40 | $1,226,269 | $368,483 |
| ANDREW LEWIS | MANAGING DIRECTOR, INVESTMENTS Highest-paid employee | 40 | $1,363,454 | $38,260 |
| ERIC KOEHRSEN | MANAGING DIRECTOR, INVESTMENTS Highest-paid employee | 40 | $976,105 | $304,602 |
| MICHAEL P BOYLE MD | PRESIDENT & CEO Trustee or director, Officer | 40 | $1,054,388 | $220,763 |
| IRENA BARISIC | EVP & CHIEF OPERATING & FINANCIAL OFFICER Officer | 40 | $761,939 | $82,616 |
| GENTIANA S AROVAS | MANAGING DIRECTOR, INVESTMENTS OPERATIONS Highest-paid employee | 40 | $642,532 | $177,127 |
| JOHN P CLANCY MD | SVP, CLINICAL RESEARCH Key employee | 40 | $669,826 | $95,378 |
| ALBERT FARO MD | Chief Medical Officer Beg. 7/1/2024 Key employee | 40 | $571,672 | $99,918 |
| STEVEn ROWE MD | EVP, Chief Scientific Officer Key employee | 32 | $534,655 | $132,551 |
| MICHAEL B CAVADEL | SVP, CHIEF LEGAL OFFICER Officer | 40 | $558,135 | $103,062 |
| ENRIQUE LIN SHIAO PHD | Principal of Mission Related Investments Highest-paid employee | 40 | $507,691 | $81,951 |
| BRUCE MARSHALL MD | Chief Medical Officer Ending 7/1/2024 Key employee | 40 | $515,472 | $34,656 |
| CAROLE B GRIEGO MD | TRUSTEE Trustee or director | 3 | $0 | $0 |
| DAVID A MOUNT | TREASURER Trustee or director | 5 | $0 | $0 |
14 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DODZIE SOGAH PHD | TRUSTEE Trustee or director | 3 | $0 |
| DOMINIC J CARUSO | TRUSTEE Trustee or director | 3 | $0 |
| ELISE EBERWEIN | TRUSTEE Trustee or director | 3 | $0 |
| ERIC R OLSON PHD | VICE CHAIR Trustee or director | 5 | $0 |
| ERIC SCHNEIDER MD | TRUSTEE Trustee or director | 3 | $0 |
| JESSICA H BOYD MD | TRUSTEE Trustee or director | 3 | $0 |
| JOHN S WEINBERG | EXECUTIVE VICE CHAIR Trustee or director | 5 | $0 |
| KATE O'DONNELL | TRUSTEE Trustee or director | 3 | $0 |
| KC BRYAN WHITE | CHAIR Trustee or director | 8 | $0 |
| LOUIS A DEFALCO | VICE CHAIR Trustee or director | 5 | $0 |
| PAUL A MOTENKO | TRUSTEE Trustee or director | 3 | $0 |
| ROBERT H NIEHAUS | VICE CHAIR Trustee or director | 5 | $0 |
| STEVEN SHAK MD | TRUSTEE Trustee or director | 3 | $0 |
| TERESA L ELDER | VICE CHAIR Trustee or director | 5 | $0 |
990 for the year ended December 31, 2023: 28 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOHN C MAHLER JR | CHIEF INVESTMENT OFFICER Key employee | 40 | $2,747,771 | $74,825 |
| MICHAEL P BOYLE MD | PRESIDENT & CEO Trustee or director, Officer | 40 | $1,372,546 | $100,236 |
| EARL A LEE | MANAGING DIRECTOR, INVESTMENTS Highest-paid employee | 40 | $1,114,424 | $282,686 |
| ANDREW LEWIS | MANAGING DIRECTOR, INVESTMENTS Highest-paid employee | 40 | $1,268,837 | $49,610 |
| ERIC KOEHRSEN | MANAGING DIRECTOR, INVESTMENTS Highest-paid employee | 40 | $949,505 | $269,002 |
| BRUCE MARSHALL MD | EVP & CHIEF MEDICAL OFFICER Key employee | 40 | $741,926 | $36,032 |
| JOHN P CLANCY MD | SVP, CLINICAL RESEARCH Key employee | 40 | $659,434 | $89,921 |
| IRENA BARISIC | EVP, CHIEF OPER/FIN OFFICER Officer | 40 | $692,433 | $50,204 |
| GENTIANA S AROVAS | MANAGING DIRECTOR, INVESTMENTS Highest-paid employee | 40 | $541,296 | $190,441 |
| ALBERT FARO | VP CLINICAL AFFAIRS Highest-paid employee | 40 | $517,875 | $124,895 |
| MICHAEL B CAVADEL | SVP, CHIEF LEGAL OFFICER Officer | 40 | $494,693 | $81,854 |
| WILLIAM SKACH MD | EVP & CHIEF SCIENTIFIC OFFICER Former | 40 | $277,714 | $1,590 |
| PRESTON W CAMPBELL III MD | FORMER CEO & STRATEGIC ADVISOR Former | 40 | $241,993 | $15,498 |
| LOUIS A DEFALCO | VICE CHAIR Trustee or director | 5 | $0 | $0 |
| CAROLE B GRIEGO MD | TRUSTEE Trustee or director | 3 | $0 | $0 |
| KATE O'DONNELL | TRUSTEE Trustee or director | 3 | $0 | $0 |
| DODZIE SOGAH PHD | TRUSTEE Trustee or director | 3 | $0 | $0 |
| DAVID A MOUNT | TREASURER Trustee or director | 3 | $0 | $0 |
| ROBERT H NIEHAUS | VICE CHAIR Trustee or director | 5 | $0 | $0 |
| ERIC R OLSON PHD | VICE CHAIR Trustee or director | 5 | $0 | $0 |
| DOMINIC J CARUSO | TRUSTEE Trustee or director | 3 | $0 | $0 |
| PAUL A MOTENKO | TRUSTEE Trustee or director | 3 | $0 | $0 |
| TERESA L ELDER | VICE CHAIR Trustee or director | 5 | $0 | $0 |
| ERIC SCHNEIDER MD | TRUSTEE Trustee or director | 3 | $0 | $0 |
| STEVEN SHAK MD | TRUSTEE Trustee or director | 3 | $0 | $0 |
| JOHN S WEINBERG | EXECUTIVE VICE CHAIR Trustee or director | 5 | $0 | $0 |
| KC BRYAN WHITE | CHAIR Trustee or director | 8 | $0 | $0 |
| JESSICA H BOYD MD | TRUSTEE Trustee or director | 3 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 4550 MONTGOMERY AVESTE 1100 N, BETHESDA, MD 20814-0000
- In care of
- % MICHAEL P BOYLE MD
- Mailing address (990-N for 2014)
- PO BOX 1668, Wilsonville OR 970701668
- Principal officer (990 for 2024)
- MICHAEL P BOYLE MD, 4550 MONTGOMERY AVENUE 1100n, BETHESDA, MD 20814
- Principal officer (990-N for 2014)
- David Norman, 2481 Donegal Ct, West Linn OR 97068
- Signed the 990
- MICHAEL P BOYLE MD, PRESIDENT & CEO
- Phone
- (301) 951-4422
- Website
- www.battleforthebridge.com
- Return prepared by
- KPMG LLP
Mission
SEE SCHEDULE O
Program accomplishments
- Medical Program Expenses. SEE SCHEDULE O.Expenses $306,392,964 · grants $198,809,390 · revenue $16,435,185
- Education Program Expenses. See Schedule O.Expenses $22,163,320
- Community Service Program Expenses. SEE SCHEDULE O.Expenses $18,153,082 · grants $3,207,776
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 13-1930701
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1957
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G200)
- Assets (IRS master file)
- $4,986,222,387
- Income (IRS master file)
- $1,863,238,088
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $355,798,320 | $439,138,919 | $4,986,222,387 | IRS |
| 990-T | December 2024 | – | – | – | IRS |
| 990 | December 2023 | $292,016,280 | $443,404,599 | $4,885,921,122 | XML |
| 990-T | December 2023 | – | – | – | IRS |
| 990 | December 2022 | $248,630,352 | $396,664,114 | $4,735,058,992 | IRS |
| 990-T | December 2022 | – | – | – | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-T | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-T | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990-N for 2014 Officer: David Norman | December 31, 2014 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-1930701).
Questions about CYSTIC FIBROSIS FOUNDATION
- What is the EIN of CYSTIC FIBROSIS FOUNDATION?
- The employer identification number (EIN) of CYSTIC FIBROSIS FOUNDATION is 13-1930701.
- Is CYSTIC FIBROSIS FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1957.
- Are donations to CYSTIC FIBROSIS FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CYSTIC FIBROSIS FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CYSTIC FIBROSIS FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CYSTIC FIBROSIS FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of CYSTIC FIBROSIS FOUNDATION?
- The 990 for the year ended December 31, 2024 names MICHAEL P BOYLE MD.
- Who are the officers and directors of CYSTIC FIBROSIS FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 29 people; 13 received compensation from the organization, the highest $1,866,868 (JOHN C MAHLER JR MD, CHIEF INVESTMENT OFFICER).
- How much revenue does CYSTIC FIBROSIS FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $355,798,320, expenses of $439,138,919 and total assets of $4,986,222,387 at year end.
Other nonprofits in BETHESDA
- HJF MEDICAL RESEARCH INTERNATIONAL INC EIN 52-2322791 · last filed 990 for 2025
- AMERICAN GASTROENTEROLOGICAL ASSOCIATION INSTITUTE INC EIN 36-6066325 · last filed 990 for 2025
- CURESEARCH FOR CHILDRENS CANCER EIN 95-4132414 · last filed 990 for 2024
- HOPE CONNECTIONS FOR CANCER SUPPORT INC EIN 20-3792198 · last filed 990 for 2025
- DIABETES ACTION RESEARCH AND EDUCATION FOUNDATION EIN 52-1714027 · last filed 990 for 2025
- THE STIFF PERSON SYNDROME RESEARCH FOUNDATION INC EIN 84-2291780 · last filed 990-PF for 2025
- UNITED PORPHYRIAS ASSOCIATION EIN 87-4143089 · last filed 990 for 2024
- TRACYS KIDS INC EIN 26-3835257 · last filed 990 for 2025
All nonprofits in BETHESDA · Maryland · Voluntary health associations and medical disciplines