Nonprofit · EIN 11-2734849
NATIONAL MPS SOCIETY INC
Tax-exempt · DURHAM, NC 27703
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $5,554,247 | $2,747,970 | $2,806,277 | $6,619,926 | $226,815 | $6,393,111 |
| December 31, 2024 | 990 | $2,108,438 | $2,506,869 | -$398,431 | $3,874,160 | $260,484 | $3,613,676 |
| December 31, 2023 | 990 | $2,296,659 | $2,758,261 | -$461,602 | $4,013,909 | $286,091 | $3,727,818 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $4,819,156
- Membership dues
- $1,675
- Program service revenue
- $447,650
- Investment income
- $402,848
- Net gain from sales of assets
- $323,663
- Net income from fundraising events
- -$175,060
- Other revenue
- -$115,407
Expenses
- Grants and similar amounts paid
- $489,588
- Compensation of officers, directors and key employees
- $428,704
- Other salaries and wages
- $566,180
- Salaries, compensation and benefits (total)
- $1,144,767
- Professional fundraising fees
- $0
- Legal fees
- $29,451
- Accounting fees
- $33,799
- Occupancy
- $63,599
- Travel
- $155,073
- Depreciation
- $29,679
- Program services (functional)
- $2,115,293
- Management and general (functional)
- $398,621
- Fundraising (functional)
- $234,056
Balance sheet and other
- Total assets, start of year
- $3,874,160
- Total assets, end of year
- $6,619,926
- Total liabilities, end of year
- $226,815
- Net assets, end of year
- $6,393,111
- Land, buildings and equipment
- $28,529
- Publicly traded securities
- $4,801,662
- Net assets without donor restrictions
- $956,987
- Net assets with donor restrictions
- $5,436,124
- Gross receipts
- $6,595,629
- Employees
- 14
- Volunteers
- 75
- Year formed
- 1985
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| TERRI KLEIN | PRESIDENT & Officer | 55 | $156,391 | $4,692 |
| SCOTT LOILER | CSO Officer | 40 | $133,077 | $3,992 |
| MATTHEW ELLINWOOD | CSO Officer | 40 | $64,025 | $1,921 |
| SHARON KING | COO Officer | 40 | $62,865 | $1,740 |
| CARL KAPES | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| STEPHANIE COZINE | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| STEVE AMY HOLLAND | BOARD CHAIRM Trustee or director, Officer | 1 | $0 | $0 |
| MAUREEN COTE | VICE CHAIRMA Trustee or director, Officer | 1 | $0 | $0 |
| STEVEN CHESSER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| COLLEEN KRAFT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TAMARA CULLERE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LISA BERRY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SHERI LUEB | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SCOTT LYNN HOPKINS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PATRICIA ESPINAL | DIRECTOR Trustee or director | 1 | $0 | $0 |
1 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JASON MADISON | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MATTHEW ELLINWOOD | CSO Officer | 40 | $167,019 | $5,011 |
| TERRI KLEIN | PRESIDENT & Officer | 55 | $137,445 | $4,123 |
| LYNN SCOTT HOPKINS | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| MAUREEN COTE | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| LISA TODD | BOARD CHAIRM Trustee or director, Officer | 1 | $0 | $0 |
| STEVE AMY HOLLAND | VICE CHAIRMA Trustee or director, Officer | 1 | $0 | $0 |
| STEPHANIE COZINE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TAMARA CULLERE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LISA BERRY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CARL KAPES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PATRICIA ESPINAL | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JASON MADISON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| STACEY MONTGOMERY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SHERI WISE | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 16 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MATTHEW ELLINWOOD | CSO Officer | 40 | $162,589 | $4,878 |
| TERRI KLEIN | PRESIDENT & Officer | 55 | $130,785 | $3,815 |
| NICOLE BENNETT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MAUREEN COTE | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| STEPHANIE COZINE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TAMARA CULLERE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| STEVE AMY HOLLAND | VICE CHAIRMA Trustee or director, Officer | 1 | $0 | $0 |
| LYNN SCOTT HOPKINS | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| AUSTIN NOLL | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LISA TODD | BOARD CHAIRM Trustee or director, Officer | 1 | $0 | $0 |
| SHERI WISE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MERCEDES JOHNSON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CARL KAPES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PATRICIA ESPINAL | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JASON MADISON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| STACEY MONTGOMERY | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 1007 SLATER RD STE 220, DURHAM, NC 27703-8057
- In care of
- % LISA TODD
- Principal officer (990 for 2025)
- TERRI KLEIN, 1007 SLATER ROAD 220, DURHAM, NC 27703
- Signed the 990
- CARL KAPES, TREASURER
- Phone
- (919) 806-0101
- Website
- WWW.MPSSOCIETY.ORG
- Return prepared by
- LANGDON & COMPANY LLP
Mission
THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).
Program accomplishments
- THE SOCIETY FUNDED APPROXIMATELY 7 RESEARCH GRANTS DURING 2025 FOR THE PURPOSE OF FINDING TREATMENTS AND CURES FOR MPS AND RELATED DISEASES. THE CHIEF SCIENTIFIC OFFICER (CSO) LEADS THE SOCIETYS STRATEGIC DIRECTION IN RESEARCH, NEWBORN SCREENING, AND EMERGING SCIENCE INITIATIVES. THIS ROLE OVERSEES THE DEVELOPMENT AND FUNDING OF RESEARCH PROGRAMS TO ADDRESS UNMET MEDICAL NEEDS IN MPS AND ML DISORDERS, GUIDES ADVOCACY FOR NEWBORN SCREENING EXPANSION, AND EVALUATES INNOVATIVE SCIENTIFIC ADVANCEMENTS. THE CSO COLLABORATES WITH ACADEMIC, CLINICAL, AND INDUSTRY PARTNERS TO DRIVE PROGRESS IN TREATMENT AND DIAGNOSIS, AND ENSURES ALIGNMENT WITH THE ORGANIZATIONS MISSION TO SUPPORT FAMILIES AND ACCELERATE CURES.Expenses $612,165 · grants $335,225
- THE NATIONAL MPS SOCIETY PROVIDES COMPREHENSIVE SUPPORT TO FAMILIES AFFECTED BY MPS AND ML THROUGH ITS FAMILY SUPPORT AND PATHWAYS PROGRAMS. AT THE TIME OF DIAGNOSIS AND BEYOND, LICENSED SOCIAL WORKERS ENGAGE FAMILIES THROUGH IN-HOME VISITS AND ONGOING GUIDANCE, HELPING THEM NAVIGATE THE COMPLEX CHALLENGES OF LIVING WITH A RARE DISEASE. THE SOCIETY ALSO OFFERS CRITICAL FINANCIAL ASSISTANCE, INCLUDING FUNDING FOR MEDICAL EQUIPMENT, EDUCATIONAL AND BEREAVEMENT SCHOLARSHIPS, EXTENDED HOSPITAL STAYS, MEDICAL TRAVEL, AND CONFERENCE PARTICIPATION. THESE SERVICES ENSURE FAMILIES RECEIVE COMPASSIONATE, PRACTICAL SUPPORT. IN THE CROSSING PATHS PROGRAM EXPANDS EQUITABLE ACCESS TO EDUCATION, CLINICAL STUDIES, AND CRITICAL RESOURCES FOR FAMILIES AFFECTED BY MPS AND ML IN UNDERSERVED INNER-CITY AND RURAL COMMUNITIES. THROUGH OUTREACH, PARTNERSHIPS, AND TAILORED SUPPORT, THE PROGRAM BRIDGES GEOGRAPHIC AND SOCIOECONOMIC BARRIERS, ENSURING FAMILIES HAVE THE KNOWLEDGE AND OPPORTUNITIES TO PARTICIPATE IN CLINICAL RESEARCH AND RECEIVE SPECIALIZED CARE.Expenses $482,034 · grants $154,363
- THE SOCIETY PROVIDED INFORMATION SERVICES AND EDUCATIONAL SUPPORT FOR AFFECTED FAMILIES (NEWSLETTERS, SYNDROME BOOKLETS, FACT SHEETS, WEBSITE, DIRECTORY) AND INCREASED PUBLIC AWARENESS OF THESE RARE GENETIC DISEASES (CONFERENCES & ADVOCACY).Expenses $1,021,094 · revenue $447,650
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 11-2734849
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1986
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $6,619,926
- Income (IRS master file)
- $6,595,629
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $5,554,247 | $2,747,970 | $6,619,926 | XML |
| 990 | December 2024 | $2,108,438 | $2,506,869 | $3,874,160 | XML |
| 990 | December 2023 | $2,296,659 | $2,758,261 | $4,013,909 | XML |
| 990 | December 2022 | $1,837,186 | $2,686,456 | $4,525,008 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 11-2734849).
Questions about NATIONAL MPS SOCIETY INC
- What is the EIN of NATIONAL MPS SOCIETY INC?
- The employer identification number (EIN) of NATIONAL MPS SOCIETY INC is 11-2734849.
- Is NATIONAL MPS SOCIETY INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1986.
- Are donations to NATIONAL MPS SOCIETY INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NATIONAL MPS SOCIETY INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NATIONAL MPS SOCIETY INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NATIONAL MPS SOCIETY INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of NATIONAL MPS SOCIETY INC?
- The 990 for the year ended December 31, 2025 names TERRI KLEIN.
- Who are the officers and directors of NATIONAL MPS SOCIETY INC?
- The 990 for the year ended December 31, 2025 lists 16 people; 4 received compensation from the organization, the highest $156,391 (TERRI KLEIN, PRESIDENT &).
- How much revenue does NATIONAL MPS SOCIETY INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $5,554,247, expenses of $2,747,970 and total assets of $6,619,926 at year end.
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