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Nonprofit · EIN 11-2519726

DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC

Also known as D E B R A OF AMERICA INC

Tax-exempt · BOULDER, CO 80302

Financials

$2.6M$1.6M2023$3.2M$3.6M2024$2.4M$2.4M2025
Revenue Expenses · by fiscal year end
Financials of DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$2,413,481$2,411,650$1,831$1,345,597$83,304$1,262,293
December 31, 2024990$3,150,804$3,631,440-$480,636$1,369,762$109,300$1,260,462
December 31, 2023990$2,604,819$1,572,705$1,032,114$1,940,472$199,374$1,741,098
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$1,918,816
Program service revenue
$62,038
Investment income
$91
Net income from fundraising events
$428,691
Other revenue
$432,536

Expenses

Grants and similar amounts paid
$0
Compensation of officers, directors and key employees
$315,000
Other salaries and wages
$631,873
Salaries, compensation and benefits (total)
$1,173,448
Professional fundraising fees
$0
Occupancy
$68,181
Travel
$62,341
Program services (functional)
$2,123,028
Management and general (functional)
$74,962
Fundraising (functional)
$213,660

Balance sheet and other

Total assets, start of year
$1,369,762
Total assets, end of year
$1,345,597
Total liabilities, end of year
$83,304
Net assets, end of year
$1,262,293
Net assets without donor restrictions
$783,382
Net assets with donor restrictions
$478,911
Gross receipts
$2,547,846
Employees
8
Volunteers
10
Year formed
1979
State of legal domicile
NY

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensationOther / benefits
BRETT KOPELANEXECUTIVE DIRECTOR
Officer
40$303,406$22,729
J ALEC ALEXANDERTREASURER
Trustee or director, Officer
0$0$0
RICHARD GALLAGHERCHAIR EMERITUS
Trustee or director
0$0$0
ROBERT RYAN Ph DDIRECTOR
Trustee or director
0$0$0
JOHN LEESECRETARY
Trustee or director, Officer
0$0$0
WILLIAM CORNMANDIRECTOR
Trustee or director
0$0$0
JAMES WETRICHDIRECTOR
Trustee or director
0$0$0
LESLIE RADERDIRECTOR
Trustee or director
0$0$0
ANGELA CHRISTIANO PhDDIRECTOR
Trustee or director
0$0$0
RYAN FULLMERPresident
Trustee or director, Officer
0$0$0
ROB RAYLVice President
Trustee or director, Officer
0$0$0
990 for the year ended December 31, 2024: 12 people
NameTitleHours / weekCompensationOther / benefits
BRETT KOPELANEXECUTIVE DIRECTOR
Officer
40$304,910$9,450
J ALEC ALEXANDERTREASURER
Trustee or director, Officer
1$0$0
RICHARD GALLAGHERCHAIR EMERITUS
Trustee or director
1$0$0
ROBERT RYAN Ph DDIRECTOR
Trustee or director
1$0$0
JOHN LEESECRETARY
Trustee or director, Officer
1$0$0
WILLIAM CORNMANDIRECTOR
Trustee or director
1$0$0
JAMES WETRICHDIRECTOR
Trustee or director
1$0$0
LESLIE RADERDIRECTOR
Trustee or director
1$0$0
ANGELA CHRISTIANO PhDDIRECTOR
Trustee or director
1$0$0
RYAN FULLMERPresident
Trustee or director, Officer
1$0$0
ROB RAYLVice President
Trustee or director, Officer
1$0$0
Jouni UittoDirector
Trustee or director
1$0$0
990 for the year ended December 31, 2023: 13 people
NameTitleHours / weekCompensation
BRETT KOPELANEXECUTIVE DIRECTOR
Key employee
40$283,417
J ALEC ALEXANDERTREASURER
Trustee or director, Officer
1$0
ANDREW TAVANICHAIR
Trustee or director, Officer
1$0
RICHARD GALLAGHERCHAIR EMERITUS
Trustee or director
1$0
ROBERT RYAN Ph DDIRECTOR
Trustee or director
1$0
JOHN LEESECRETARY
Trustee or director, Officer
1$0
WILLIAM CORNMANDIRECTOR
Trustee or director
1$0
JAMES WETRICHDIRECTOR
Trustee or director
1$0
LESLIE RADERDIRECTOR
Trustee or director
1$0
ANGELA CHRISTIANO PhDDIRECTOR
Trustee or director
1$0
THOMAS TRIMARCHIDIRECTOR
Trustee or director
1$0
RYAN FULLMERDIRECTOR
Trustee or director
1$0
ROB RAYLDIRECTOR
Trustee or director
1$0

Address and contacts

Address (IRS master file)
1023 WALNUT ST STE 100, BOULDER, CO 80302-5236
In care of
% BRETT KOPELAN
Principal officer (990 for 2025)
BRETT KOPELAN, 1023 WALNUT ST SUITE 100, BOULDER, CO 80302
Signed the 990
BRETT KOPELAN, Executive Director
Phone
(212) 868-1573
Return prepared by
Nanavaty Davenport Studley White

Mission

DEBRA IS DEDICATED TO FINDING A CURE FOR EBIDERMOLYSIS BULLOSA " EB" WHICH EFFECTS 1 OUT OF EVERY 50,000 LIVE BIRTHS IN THE UNITED STATES TODAY. EB IS A GENETICALLY BASED DISEASE CHARACTERIZED BY CHRONIC, PAINFULL BLISTERING. THE SKIN AND MUCOUS MEMBRANES ARE SO FRAGILE THAT THE SLIGHTEST TOUCH CAN CAUSE SEVERE BLISTERING INSIDE AND OUTSIDE THE BODY. PRESENT AT BIRTH, EB EFFECTS MEN AND WOMEN OF ALL RACES AND ETHNIC GROUPS, AND SOMETIMES, WHEN THERE IS NO FAMILY HISTORY. IT OCCURS AS THE RESULT OF A SPONTANEOUS GENETIC MUTATION. TODAY, THERE IS NO CURE OR TREATMENT FOR EB, EXCEPT DAILY WOUND CARE AND BANDAGING. GENETIC RESEARCH IS MAKING PROGRESS TOWARDS TREATMENTS AND A CURE.

990 for the year ended December 31, 2025

Program accomplishments

  • PUBLIC AND PROFESSIONAL EDUCATION - EDUCATE THE PUBLIC & HEALTH PROFESSIONALS ABOUT DYSTROPHIC EPIDERMOLYSIS BULLOSA "EB"
    Expenses $299,853
  • PATIENT & FAMILY SERVICES - PROVIDE SERVICES FOR THE PEOPLE WITH EB AND THEIR FAMILIES THROUGH NEWSLETTERS, COUNSELING, PEER SUPPORT SERVICES, CONFERENCES AND SEMINARS
    Expenses $1,628,269
  • ADVOCACY - NETWORK WITH OTHER PROFESSIONAL ORGANIZATIONS AND MEET KEY LEGISLATORS TO INFORM THEM OF EB AND SECURE RESEARCH FUNDS
    Expenses $44,977
  • RESEARCH
    Expenses $149,929

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
11-2519726
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1982
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$1,345,597
Income (IRS master file)
$2,547,846

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$2,413,481$2,411,650$1,345,597IRS
990December 2024$3,150,804$3,631,440$1,369,762IRS
990December 2023$2,604,819$1,572,705$1,940,472XML
990December 2022$3,356,992$1,969,058$2,090,353IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2019–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 11-2519726).

Questions about DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC

What is the EIN of DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC?
The employer identification number (EIN) of DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC is 11-2519726.
Is DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1982.
Are donations to DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC?
The 990 for the year ended December 31, 2025 names BRETT KOPELAN.
Who are the officers and directors of DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC?
The 990 for the year ended December 31, 2025 lists 11 people; 1 received compensation from the organization, the highest $303,406 (BRETT KOPELAN, EXECUTIVE DIRECTOR).
How much revenue does DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSN OF AMERICA INC have?
On its 990 for the year ended December 31, 2025 it reported revenue of $2,413,481, expenses of $2,411,650 and total assets of $1,345,597 at year end.

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