Nonprofit · EIN 11-1971539
THALASSEMIA FOUNDATION OF AMERICA INC
Tax-exempt · NEW YORK, NY 10001
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $3,550,630 | $2,296,214 | $1,254,416 | $7,568,909 | $657,493 | $6,911,416 |
| June 30, 2024 | 990 | $2,812,580 | $2,224,356 | $588,224 | $6,376,996 | $719,996 | $5,657,000 |
| June 30, 2023 | 990 | $2,306,555 | $2,165,404 | $141,151 | $5,550,283 | $481,507 | $5,068,776 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $3,024,305
- of which government grants
- $215,579
- Program service revenue
- $0
- Investment income
- $240,226
- Other revenue
- $286,099
Expenses
- Grants and similar amounts paid
- $250,000
- Other salaries and wages
- $792,824
- Salaries, compensation and benefits (total)
- $959,207
- Professional fundraising fees
- $0
- Accounting fees
- $121,243
- Occupancy
- $107,796
- Depreciation
- $10,039
- Program services (functional)
- $1,727,824
- Management and general (functional)
- $249,793
- Fundraising (functional)
- $318,597
Balance sheet and other
- Total assets, start of year
- $6,376,996
- Total assets, end of year
- $7,568,909
- Total liabilities, end of year
- $657,493
- Net assets, end of year
- $6,911,416
- Land, buildings and equipment
- $16,507
- Net assets without donor restrictions
- $6,167,158
- Net assets with donor restrictions
- $744,258
- Gross receipts
- $3,550,630
- Employees
- 11
- Volunteers
- 100
- Year formed
- 1954
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CRAIG BUTLER | EXECUTIVE DI Highest-paid employee | 40 | $163,942 |
| AMY SULLIVAN | MAJOR GIFTS Highest-paid employee | 40 | $105,000 |
| CARMINE ABRUZZO | DIRECTOR Trustee or director | – | $0 |
| YASMEEN ANIS-SHAH | DIRECTOR Trustee or director | – | $0 |
| TRACY ANTONELLI | DIRECTOR Trustee or director | – | $0 |
| CAMMIE BRANDOFINO | DIRECTOR Trustee or director | – | $0 |
| NUNZIO CAZZETTA | DIRECTOR Trustee or director | – | $0 |
| AMY CELENTO | DIRECTOR Trustee or director | – | $0 |
| JULIA CENZAPRANO | DIRECTOR Trustee or director | – | $0 |
| MARY ANN CERVONI-IAIA | DIRECTOR Trustee or director | – | $0 |
| JENNIE ROSE CHIECO | DIRECTOR Trustee or director | – | $0 |
| PETER CHIECO | DIRECTOR Trustee or director | – | $0 |
| MICHELLE CHIECO-LENZ | DIRECTOR Trustee or director | – | $0 |
| SARAH BAQUERI CONNOLLY | DIRECTOR Trustee or director | – | $0 |
| TERRI DIFILLIPO | DIRECTOR Trustee or director | – | $0 |
35 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ROBERT FICARRA | DIRECTOR Trustee or director | – | $0 |
| JOSEPHINE FLOOD | DIRECTOR Trustee or director | – | $0 |
| FRANK FUSARO | DIRECTOR Trustee or director | – | $0 |
| AMNISH GOEL | DIRECTOR Trustee or director | – | $0 |
| DEAN HERNAN | DIRECTOR Trustee or director | – | $0 |
| CHRISTINE HORTON | DIRECTOR Trustee or director | – | $0 |
| BEN LI | DIRECTOR Trustee or director | – | $0 |
| JOHN MANCINO | DIRECTOR Trustee or director | – | $0 |
| VALERIE MANCINO | DIRECTOR Trustee or director | – | $0 |
| STEVE MILVID | DIRECTOR Trustee or director | – | $0 |
| WILLIAM PISANO | DIRECTOR Trustee or director | – | $0 |
| LAURIE PIZZO | DIRECTOR Trustee or director | – | $0 |
| PAUL POLO | DIRECTOR Trustee or director | – | $0 |
| MICHAEL POUCHIE | DIRECTOR Trustee or director | – | $0 |
| MICHAEL PRESTO | DIRECTOR Trustee or director | – | $0 |
| THOMAS ROTOLO | DIRECTOR Trustee or director | – | $0 |
| PHIL RUTIGLIANO | DIRECTOR Trustee or director | – | $0 |
| PRANAV SAHA | DIRECTOR Trustee or director | – | $0 |
| MARIA SARADPON | DIRECTOR Trustee or director | – | $0 |
| RADHIKA SAWH | DIRECTOR Trustee or director | – | $0 |
| JOSEPH SCIAME | DIRECTOR Trustee or director | – | $0 |
| FRANK SOMMA | DIRECTOR Trustee or director | – | $0 |
| JOSEPH M TANTILLO | DIRECTOR Trustee or director | – | $0 |
| TERESA TOMAINO | DIRECTOR Trustee or director | – | $0 |
| JOSEPH DI TRAPANI | DIRECTOR Trustee or director | – | $0 |
| JAMES VENTOLA | DIRECTOR Trustee or director | – | $0 |
| ANTHONY VIOLA | DIRECTOR Trustee or director | – | $0 |
| PETER PETTINATO VMD | DIRECTOR Trustee or director | – | $0 |
| TOM WATRAL | DIRECTOR Trustee or director | – | $0 |
| JOSEPH ZURAW | DIRECTOR Trustee or director | – | $0 |
| JANICE CENZAPRANO | TREASURER Officer | – | $0 |
| RALPH COLASANTI | PRESIDENT Officer | – | $0 |
| MARIA HADJIDEMETRIOU | SECRETARY Officer | – | $0 |
| DR JANET KWIATKOWSKI | MEDICAL ADV Officer | – | $0 |
| JOSEPH VIGLIOTTI | VICE PRESIDE Officer | – | $0 |
990 for the year ended June 30, 2024: 48 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CRAIG BUTLER | EXECUTIVE DI Highest-paid employee | 40 | $165,142 |
| CARMINE ABRUZZO | DIRECTOR Trustee or director | – | $0 |
| TRACY ANTONELLI | DIRECTOR Trustee or director | – | $0 |
| CAMMIE BRANDOFINO | DIRECTOR Trustee or director | – | $0 |
| SHIRLEY CAMMILLERI | DIRECTOR Trustee or director | – | $0 |
| AMY CELENTO | DIRECTOR Trustee or director | – | $0 |
| JULIA CENZAPRANO | DIRECTOR Trustee or director | – | $0 |
| MARY ANN CERVONI-IAIA | DIRECTOR Trustee or director | – | $0 |
| THOMAS CHENG | DIRECTOR Trustee or director | – | $0 |
| JENNIE ROSE CHIECO | DIRECTOR Trustee or director | – | $0 |
| PETER CHIECO | DIRECTOR Trustee or director | – | $0 |
| MICHELLE CHIECO-LENZ | DIRECTOR Trustee or director | – | $0 |
| DR ALAN COHEN | DIRECTOR Trustee or director | – | $0 |
| SARAH BAQUERI CONNOLLY | DIRECTOR Trustee or director | – | $0 |
| TERRI DIFILLIPO | DIRECTOR Trustee or director | – | $0 |
| ANTHONY FERRINO | DIRECTOR Trustee or director | – | $0 |
| ROBERT FICARRA | DIRECTOR Trustee or director | – | $0 |
| JOSEPHINE FLOOD | DIRECTOR Trustee or director | – | $0 |
| ANTONI FOE | DIRECTOR Trustee or director | – | $0 |
| FRANK FUSARO | DIRECTOR Trustee or director | – | $0 |
| AMNISH GOEL | DIRECTOR Trustee or director | – | $0 |
| DEAN HERNAN | DIRECTOR Trustee or director | – | $0 |
| CHRISTINE HORTON | DIRECTOR Trustee or director | – | $0 |
| BEN LI | DIRECTOR Trustee or director | – | $0 |
| CINDY MORRISON | DIRECTOR Trustee or director | – | $0 |
| WILLIAM PISANO | DIRECTOR Trustee or director | – | $0 |
| LAURIE PIZZO | DIRECTOR Trustee or director | – | $0 |
| PAUL POLO | DIRECTOR Trustee or director | – | $0 |
| MICHAEL POUCHIE | DIRECTOR Trustee or director | – | $0 |
| MICHAEL PRESTO | DIRECTOR Trustee or director | – | $0 |
| THOMAS ROTOLO | DIRECTOR Trustee or director | – | $0 |
| PHIL RUTIGLIANO | DIRECTOR Trustee or director | – | $0 |
| PRANAV SAHA | DIRECTOR Trustee or director | – | $0 |
| RADHIKA SAWH | DIRECTOR Trustee or director | – | $0 |
| JOSEPH SCIAME | DIRECTOR Trustee or director | – | $0 |
| FRANK SOMMA | DIRECTOR Trustee or director | – | $0 |
| FRANK TIDONA | DIRECTOR Trustee or director | – | $0 |
| TERESA TOMAINO | DIRECTOR Trustee or director | – | $0 |
| JOSEPH DI TRAPANI | DIRECTOR Trustee or director | – | $0 |
| JAMES VENTOLA | DIRECTOR Trustee or director | – | $0 |
| ANTHONY VIOLA | DIRECTOR Trustee or director | – | $0 |
| TOM WATRAL | DIRECTOR Trustee or director | – | $0 |
| JOSEPH ZURAW | DIRECTOR Trustee or director | – | $0 |
| JANICE CENZAPRANO | TREASURER Officer | – | $0 |
| RALPH COLASANTI | PRESIDENT Officer | – | $0 |
| MARIA HADJIDEMETRIOU | SECRETARY Officer | – | $0 |
| DR JANET KWIATKOWSKI | MEDICAL ADV Officer | – | $0 |
| JOSEPH VIGLIOTTI | VICE PRESIDE Officer | – | $0 |
990 for the year ended June 30, 2023: 48 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CRAIG BUTLER | EXECUTIVE DI Highest-paid employee | 40 | $172,885 |
| CARMINE ABRUZZO | DIRECTOR Trustee or director, Officer | – | $0 |
| TRACY ANTONELLI | DIRECTOR Trustee or director, Officer | – | $0 |
| CAMMIE BRANDOFINO | DIRECTOR Trustee or director, Officer | – | $0 |
| SHIRLEY CAMMILLERI | DIRECTOR Trustee or director, Officer | – | $0 |
| AMY CELENTO | DIRECTOR Trustee or director, Officer | – | $0 |
| JULIA CENZAPRANO | DIRECTOR Trustee or director, Officer | – | $0 |
| MARY ANN CERVONI-IAIA | DIRECTOR Trustee or director, Officer | – | $0 |
| THOMAS CHENG | DIRECTOR Trustee or director, Officer | – | $0 |
| JENNIE ROSE CHIECO | DIRECTOR Trustee or director, Officer | – | $0 |
| PETER CHIECO | DIRECTOR Trustee or director, Officer | – | $0 |
| MICHELLE CHIECO-LENZ | DIRECTOR Trustee or director, Officer | – | $0 |
| DR ALAN COHEN | DIRECTOR Trustee or director, Officer | – | $0 |
| SARAH BAQUERI CONNOLLY | DIRECTOR Trustee or director, Officer | – | $0 |
| TERRI DIFILLIPO | DIRECTOR Trustee or director, Officer | – | $0 |
| ANTHONY FERRINO | DIRECTOR Trustee or director, Officer | – | $0 |
| ROBERT FICARRA | DIRECTOR Trustee or director, Officer | – | $0 |
| JOSEPHINE FLOOD | DIRECTOR Trustee or director, Officer | – | $0 |
| ANTONI FOE | DIRECTOR Trustee or director, Officer | – | $0 |
| FRANK FUSARO | DIRECTOR Trustee or director, Officer | – | $0 |
| AMNISH GOEL | DIRECTOR Trustee or director, Officer | – | $0 |
| DEAN HERNAN | DIRECTOR Trustee or director, Officer | – | $0 |
| CHRISTINE HORTON | DIRECTOR Trustee or director, Officer | – | $0 |
| BEN LI | DIRECTOR Trustee or director, Officer | – | $0 |
| CINDY MORRISON | DIRECTOR Trustee or director, Officer | – | $0 |
| WILLIAM PISANO | DIRECTOR Trustee or director, Officer | – | $0 |
| LAURIE PIZZO | DIRECTOR Trustee or director, Officer | – | $0 |
| PAUL POLO | DIRECTOR Trustee or director, Officer | – | $0 |
| MICHAEL POUCHIE | DIRECTOR Trustee or director, Officer | – | $0 |
| MICHAEL PRESTO | DIRECTOR Trustee or director, Officer | – | $0 |
| THOMAS ROTOLO | DIRECTOR Trustee or director, Officer | – | $0 |
| PHIL RUTIGLIANO | DIRECTOR Trustee or director, Officer | – | $0 |
| PRANAV SAHA | DIRECTOR Trustee or director, Officer | – | $0 |
| RADHIKA SAWH | DIRECTOR Trustee or director, Officer | – | $0 |
| JOSEPH SCIAME | DIRECTOR Trustee or director, Officer | – | $0 |
| FRANK SOMMA | DIRECTOR Trustee or director, Officer | – | $0 |
| FRANK TIDONA | DIRECTOR Trustee or director, Officer | – | $0 |
| TERESA TOMAINO | DIRECTOR Trustee or director, Officer | – | $0 |
| JOSEPH DI TRAPANI | DIRECTOR Trustee or director, Officer | – | $0 |
| JAMES VENTOLA | DIRECTOR Trustee or director, Officer | – | $0 |
| ANTHONY VIOLA | DIRECTOR Trustee or director, Officer | – | $0 |
| TOM WATRAL | DIRECTOR Trustee or director, Officer | – | $0 |
| JOSEPH ZURAW | DIRECTOR Trustee or director, Officer | – | $0 |
| JANICE CENZAPRANO | TREASURER Officer | – | $0 |
| RALPH COLASANTI | PRESIDENT Officer | – | $0 |
| MARIA HADJIDEMETRIOU | SECRETARY Officer | – | $0 |
| DR JANET KWIATKOWSKI | MEDICAL ADV Officer | – | $0 |
| JOSEPH VIGLIOTTI | VICE PRESIDE Officer | – | $0 |
Address and contacts
- Address (IRS master file)
- 330 7TH AVE STE 200, NEW YORK, NY 10001-5279
- Principal officer (990 for 2024)
- CRAIG BUTLER
- Signed the 990
- CRAIG BUTLER, EXECUTIVE DIRECTOR
- Phone
- (212) 279-8090
- Website
- WWW.THALASSEMIA.ORG
- Return prepared by
- KVLSM LLP
Mission
TO ENHANCE THE QUALITY OF PATIENTS' LIVES WHILE TAKING THE NECESSARY STEPS TOWARD FINDING A CURE FOR THIS FATAL BLOOD DISEASE.
Program accomplishments
- RESARCH GRANTS - PAYMENTS FOR MEDICAL RESEARCH TO ENHANCE KNOWLEDGE IN TREATMENT AND EVENTUAL CURE.Expenses $337,511 · grants $250,000
- PUBLIC INFORMATION - GENERAL INFORMATION FOR THE GENERAL PUBLIC: FILMS, BROCHURES, AND LEGISLATIVE SYMPOSIUM FOR THE MEDICAL PROFESSION.Expenses $359,841
- PATIENT SERVICES - BLOOD FOR PATIENTS AND DIRECT PATIENT AID.Expenses $948,485
- TO ENHANCE THE QUALITY OF PATIENTS LIVES WHILE TAKING THE NECESSARY STEPS TOWARDS FINDING A CURE.Expenses $81,987
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 11-1971539
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1975
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $7,568,909
- Income (IRS master file)
- $3,550,630
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $3,550,630 | $2,296,214 | $7,568,909 | IRS |
| 990 | June 2024 | $2,812,580 | $2,224,356 | $6,376,996 | IRS |
| 990 | June 2023 | $2,306,555 | $2,165,404 | $5,550,283 | XML |
| 990 | June 2022 | $3,029,482 | $1,903,459 | $5,144,098 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 11-1971539).
Questions about THALASSEMIA FOUNDATION OF AMERICA INC
- What is the EIN of THALASSEMIA FOUNDATION OF AMERICA INC?
- The employer identification number (EIN) of THALASSEMIA FOUNDATION OF AMERICA INC is 11-1971539.
- Is THALASSEMIA FOUNDATION OF AMERICA INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1975.
- Are donations to THALASSEMIA FOUNDATION OF AMERICA INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THALASSEMIA FOUNDATION OF AMERICA INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THALASSEMIA FOUNDATION OF AMERICA INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THALASSEMIA FOUNDATION OF AMERICA INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of THALASSEMIA FOUNDATION OF AMERICA INC?
- The 990 for the year ended June 30, 2025 names CRAIG BUTLER.
- Who are the officers and directors of THALASSEMIA FOUNDATION OF AMERICA INC?
- The 990 for the year ended June 30, 2025 lists 50 people; 2 received compensation from the organization, the highest $163,942 (CRAIG BUTLER, EXECUTIVE DI).
- How much revenue does THALASSEMIA FOUNDATION OF AMERICA INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $3,550,630, expenses of $2,296,214 and total assets of $7,568,909 at year end.
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