Nonprofit · EIN 05-0577683
LEWY BODY DEMENTIA ASSOCIATION INC
Tax-exempt · LILBURN, GA 30047
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $5,102,891 | $4,440,540 | $662,351 | $10,756,254 | $461,964 | $10,294,290 |
| December 31, 2024 | 990 | $4,977,169 | $4,040,700 | $936,469 | $9,612,448 | $330,287 | $9,282,161 |
| December 31, 2023 | 990 | $3,641,562 | $3,055,794 | $585,768 | $8,179,993 | $222,751 | $7,957,242 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $4,332,106
- of which government grants
- $541,531
- Program service revenue
- $476,719
- Investment income
- $292,238
- Net gain from sales of assets
- $26,988
- Other revenue
- $1,828
Expenses
- Grants and similar amounts paid
- $564,522
- Compensation of officers, directors and key employees
- $238,479
- Other salaries and wages
- $1,795,937
- Salaries, compensation and benefits (total)
- $2,455,511
- Professional fundraising fees
- $4,009
- Legal fees
- $3,184
- Accounting fees
- $28,400
- Occupancy
- $29,378
- Travel
- $143,181
- Program services (functional)
- $3,653,488
- Management and general (functional)
- $553,088
- Fundraising (functional)
- $233,964
Balance sheet and other
- Total assets, start of year
- $9,612,448
- Total assets, end of year
- $10,756,254
- Total liabilities, end of year
- $461,964
- Net assets, end of year
- $10,294,290
- Publicly traded securities
- $8,701,745
- Net assets without donor restrictions
- $9,995,663
- Net assets with donor restrictions
- $298,627
- Gross receipts
- $6,519,174
- Employees
- 21
- Volunteers
- 200
- Year formed
- 2003
- State of legal domicile
- SC
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ALLISON FELDMAN | Executive Director Officer | 40 | $229,278 | $9,200 |
| KEITH FARGO | Director of Scientific Initiatives Highest-paid employee | 40 | $189,140 | $7,566 |
| SUDHIR SIVAKUMARAN | Chief Scientific Officer Highest-paid employee | 40 | $140,385 | $3,077 |
| JULIA WOOD | Director of Professional & Community Education Highest-paid employee | 40 | $122,566 | $1,514 |
| ANGELA TAYLOR | Vice President of Strategic Partnerships Highest-paid employee | 40 | $118,752 | $3,300 |
| LENA FUNG | Director of Development Highest-paid employee | 40 | $113,500 | $3,200 |
| CARLA ABDELNOUR | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| GENELL GREENBERG | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| JEFFREY JACOB | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| SARAH SUNG | PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| ANGELA LUNDE | MEMBER Trustee or director | 2 | $0 | $0 |
| ANITHA RAO MD | MEMBER Trustee or director | 2 | $0 | $0 |
| JEFFREY BODINGTON | MEMBER Trustee or director | 2 | $0 | $0 |
| JENNIFER GOLDMAN | MEMBER Trustee or director | 2 | $0 | $0 |
| MARY-KAY BOLER | MEMBER Trustee or director | 2 | $0 | $0 |
1 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| RODNEY WITCHER | MEMBER Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ALLISON FELDMAN | EXECUTIVE DIRECTOR Officer | 40 | $229,285 | $9,023 |
| KEITH FARGO | DIRECTOR OF SCIENTIFIC INITIATIVES Highest-paid employee | 40 | $181,919 | $7,138 |
| ANGELA TAYLOR | VICE PRESIDENT OF STRATEGIC INITIATIVES Highest-paid employee | 40 | $155,931 | $6,118 |
| IAN RICHARD | VICE PRESIDENT OF DEVELOPMENT Highest-paid employee | 40 | $137,931 | $4,635 |
| JULIA WOOD | DIRECTOR OF PROFESSIONAL AND COMMUNITY EDUCATION Highest-paid employee | 40 | $110,030 | $0 |
| SARAH SUNG | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| MARSHALL CANNON | VICE PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| CARLA ABDELNOUR | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| ROGER BEAN | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| ANITHA RAO MD | MEMBER Trustee or director | 1 | $0 | $0 |
| RODNEY WITCHER | MEMBER Trustee or director | 1 | $0 | $0 |
| ANGELA LUNDE | MEMBER Trustee or director | 1 | $0 | $0 |
| JEFFREY JACOB | MEMBER Trustee or director | 1 | $0 | $0 |
| GENELL GREENBERG | MEMBER Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 15 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ALLISON FELDMAN | EXECUTIVE DIRECTOR Officer | 40 | $217,028 | $6,632 |
| KEITH FARGO | DIRECTOR OF SCIENTIFIC INITIATIVES Highest-paid employee | 40 | $173,405 | $4,038 |
| ANGELA TAYLOR | VICE PRESIDENT OF STRATEGIC INITIATIVES Highest-paid employee | 40 | $149,328 | $4,548 |
| IAN RICHARD | VICE PRESIDENT OF DEVELOPMENT Highest-paid employee | 40 | $128,310 | $3,538 |
| JULIA WOOD | DIRECTOR OF PROFESSIONAL & COMMUNITY EDUCATION Highest-paid employee | 40 | $105,429 | $0 |
| SHANNON MCCARTY-CAPLAN | PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| MARSHALL CANNON | CO-VICE PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| ANDY MATTEIS | CO-VICE PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| SARAH SUNG | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| ROGER BEAN | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| ANITHA RAO MD | MEMBER Trustee or director | 2 | $0 | $0 |
| RODNEY WITCHER | MEMBER Trustee or director | 2 | $0 | $0 |
| ANGELA LUNDE | MEMBER Trustee or director | 2 | $0 | $0 |
| CARLA ABDELNOUR | MEMBER Trustee or director | 2 | $0 | $0 |
| JEFFREY JACOB | MEMBER Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 912 KILLIAN HILL RD SW STE 105, LILBURN, GA 30047-8976
- Principal officer (990 for 2025)
- ALLISON FELDMAN, 912 Killian Hill Road SW, Lilburn, GA 30047
- Signed the 990
- ALLISON FELDMAN, EXECUTIVE DIRECTOR
- Phone
- (404) 935-6444
- Website
- www.lbda.org
- Return prepared by
- Mauldin & Jenkins LLC
Mission
THROUGH OUTREACH, EDUCATION, AND RESEARCH,WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS.
Program accomplishments
- LEWY BODY DEMENTIA ASSOCIATION, INC. (LBDA) PROVIDES INFORMATION ON LEWY BODY DEMENTIAS TO CAREGIVERS, FAMILIES, PROFESSIONALS, AND THE GENERAL PUBLIC, AND ENCOURAGES SCIENTIFIC ADVANCEMENTS. LBDA PROGRAMS INCLUDE A NATIONAL SUPPORT GROUP NETWORK, EXTENSIVE WEBSITE AND ONLINE COMMUNITIES, EMAIL AND TOLL FREE TELEPHONE HELP LINES, AND INFORMATION PACKETS AND BROCHURES. LBDA REPRESENTATIVES ATTEND SCIENTIFIC CONFERENCES, HOST EXHIBITS AT NATIONAL MEDICAL CONFERENCES, AND SUPPORT THE LBDA SCIENTIFIC ADVISORY COUNCIL. THROUGH LBDA'S RESEARCH CENTERS OF EXCELLENCE GRANT PROGRAM, LBDA HELPS FUND ACADEMIC RESEARCH CENTERS DELIVERING CLINICAL CARE, OUTREACH, AND EDUCATION OF PUBLIC AND PROFESSIONALS.Expenses $2,098,077
- IN FURTHERANCE OF ITS MISSION TO SUPPORT THOSE WITH LBD, CAREGIVERS, AND RESEARCH RELATED TO THE DISEASE, THE ASSOCIATION ENTERS INTO CONTRACTS WITH OUTSIDE ENTITIES TO ASSIST THEM WITH EDUCATION, SUPPORT, SURVEYS, EMAIL CAMPAIGNS AND RESEARCH EFFORTS ADDRESSING THE DISEASE.Expenses $1,555,411 · grants $564,522 · revenue $476,719
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 05-0577683
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2004
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G96)
- Assets (IRS master file)
- $10,756,254
- Income (IRS master file)
- $6,519,174
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $5,102,891 | $4,440,540 | $10,756,254 | IRS |
| 990 | December 2024 | $4,977,169 | $4,040,700 | $9,612,448 | IRS |
| 990 | December 2023 | $3,641,562 | $3,055,794 | $8,179,993 | XML |
| 990 | December 2022 | $4,183,987 | $2,648,788 | $7,321,282 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 05-0577683).
Questions about LEWY BODY DEMENTIA ASSOCIATION INC
- What is the EIN of LEWY BODY DEMENTIA ASSOCIATION INC?
- The employer identification number (EIN) of LEWY BODY DEMENTIA ASSOCIATION INC is 05-0577683.
- Is LEWY BODY DEMENTIA ASSOCIATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2004.
- Are donations to LEWY BODY DEMENTIA ASSOCIATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does LEWY BODY DEMENTIA ASSOCIATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LEWY BODY DEMENTIA ASSOCIATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LEWY BODY DEMENTIA ASSOCIATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of LEWY BODY DEMENTIA ASSOCIATION INC?
- The 990 for the year ended December 31, 2025 names ALLISON FELDMAN.
- Who are the officers and directors of LEWY BODY DEMENTIA ASSOCIATION INC?
- The 990 for the year ended December 31, 2025 lists 16 people; 6 received compensation from the organization, the highest $229,278 (ALLISON FELDMAN, Executive Director).
- How much revenue does LEWY BODY DEMENTIA ASSOCIATION INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $5,102,891, expenses of $4,440,540 and total assets of $10,756,254 at year end.
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