Nonprofit · EIN 04-3594491
SPASTIC PARAPLEGIA FOUNDATION INC
Tax-exempt · O FALLON, MO 63368
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $1,742,632 | $1,418,562 | $324,070 | $3,551,338 | $1,334,190 | $2,217,148 |
| December 31, 2024 | 990 | $1,730,780 | $899,593 | $831,187 | $3,089,987 | $1,210,040 | $1,879,947 |
| December 31, 2023 | 990 | $1,324,845 | $1,928,614 | -$603,769 | $3,308,442 | $2,277,085 | $1,031,357 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $1,590,580
- Program service revenue
- $32,940
- Investment income
- $119,112
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $1,121,008
- Compensation of officers, directors and key employees
- $30,700
- Other salaries and wages
- $20,000
- Salaries, compensation and benefits (total)
- $52,230
- Professional fundraising fees
- $12,500
- Legal fees
- $2,670
- Accounting fees
- $37,848
- Program services (functional)
- $1,267,412
- Management and general (functional)
- $86,865
- Fundraising (functional)
- $64,285
Balance sheet and other
- Total assets, start of year
- $3,089,987
- Total assets, end of year
- $3,551,338
- Total liabilities, end of year
- $1,334,190
- Net assets, end of year
- $2,217,148
- Net assets without donor restrictions
- $2,217,148
- Gross receipts
- $1,742,632
- Employees
- 1
- Volunteers
- 100
- Year formed
- 2002
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Linda Arnold | Fundraising and Relationship Development Manager Key employee | 35 | $32,500 | $32,500 |
| Lorri Steiner | Treasurer Officer | 6 | $30,700 | $30,700 |
| Hank Chiuppi | Secretary/Director Trustee or director, Officer | 20 | $0 | $0 |
| John Cobb | Director Trustee or director | 2 | $0 | $0 |
| Tina Croghan | Director Trustee or director | 5 | $0 | $0 |
| Frank Davis | Director Trustee or director | 2 | $0 | $0 |
| Dina Landphair | Director Trustee or director | 5 | $0 | $0 |
| Greg Pruitt | President/Director Trustee or director, Officer | 40 | $0 | $0 |
| Jim Sheorn | Vice President/Director Trustee or director, Officer | 30 | $0 | $0 |
| Carina Thurgood | Director Trustee or director | 2 | $0 | $0 |
| Jackie Wellman | Director Trustee or director, Officer | 2 | $0 | $0 |
| Becki Cochran | Director Trustee or director | 2 | $0 | $0 |
| Sara Kramer | Director Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2024: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lorri Steiner | Treasurer Officer | 10 | $38,350 |
| Corey Braastad | Director Trustee or director | 2 | $0 |
| Hank Chiuppi | Secretary/Director Trustee or director | 15 | $0 |
| John Cobb | Director Trustee or director | 5 | $0 |
| Tina Croghan | Director Trustee or director | 5 | $0 |
| Frank Davis | Director Trustee or director | 5 | $0 |
| Dina Landphair | Director Trustee or director | 5 | $0 |
| David Lewis | Treasurer Trustee or director | 2 | $0 |
| Greg Pruitt | President/Director Trustee or director | 30 | $0 |
| Jim Sheorn | Vice President/Director Trustee or director | 30 | $0 |
| Carina Thurgood | Director Trustee or director | 2 | $0 |
| Jackie Wellman | Director Trustee or director | 5 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Corey Braastad | Director Trustee or director | 5 | $0 |
| Hank Chiuppi | Secretary/Director Trustee or director, Officer | 30 | $0 |
| John Cobb | Director Trustee or director | 10 | $0 |
| Tina Croghan | Director Trustee or director | 10 | $0 |
| Frank Davis | Director Trustee or director | 5 | $0 |
| Dina Landphair | Director Trustee or director | 10 | $0 |
| David Lewis | Treasurer Trustee or director, Officer | 5 | $0 |
| Greg Pruitt | President/Director Trustee or director, Officer | 30 | $0 |
| Jim Sheorn | Vice President/Director Trustee or director, Officer | 30 | $0 |
| Carina Thurgood | Director Trustee or director | 5 | $0 |
| Jackie Wellman | Director Trustee or director | 10 | $0 |
Address and contacts
- Address (IRS master file)
- 6952 CLAYBORNE DR, O FALLON, MO 63368-6202
- In care of
- % DAVID LEWIS
- Principal officer (990 for 2025)
- Greg Pruitt, 1801 Byrd Road, Mayfield, KY 42066
- Signed the 990
- Lorri Steiner, Treasurer
- Phone
- (877) 773-4483
- Website
- www.sp-foundation.org
Mission
1. To fund scientific research to discover the cures for hereditary spastic paraplegia and primary lateral sclerosis. 2. To provide information about the disorders to patients and their loved ones, and to the general public. 3. To provide emotional support to patients and their loved ones
Program accomplishments
- Scientific research grants are awarded to academic researchers in universities both in the United States and internationally. A Scientific Advisory Board generally reviews and ranks grant proposals received. The Foundation funds only the top ranked proposals using the same ranking criteria for each proposal. Grants are divided into up to five installments. The first installment is issued after a countersigned Research Grant Agreement is returned to the Foundation. Each of the remaining installments are issued after a satisfactory progress report or final report from the researcher. The amount above reflects the amount of grant expense in 2025.Expenses $1,121,008 · grants $1,121,008
- The Foundation holds an annual conference each year for individuals suffering from the disease, their families, and caregivers. Researchers speak about primary lateral sclerosis and hereditary spastic paraplegia, including updates on the current state of their research. Attendees meet others affected by the disorders, typically the first time these individuals have met others with the same condition in person. Attendees pay a registration fee to attend.Expenses $122,042 · revenue $32,350
- The Foundation prints and distributes "Synapse", a periodical about the disorders, activities of the Foundation, and articles about research.Expenses $11,762
- Software to facilitate advocacy of rare diseases, grant accounting, Sponsorships/Grants to organizations with complementary services to Spastic Paraplegia Foundation, Inc.Expenses $12,600
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 04-3594491
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2002
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G48)
- Assets (IRS master file)
- $3,551,338
- Income (IRS master file)
- $1,742,632
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $1,742,632 | $1,418,562 | $3,551,338 | XML |
| 990 | December 2024 | $1,730,780 | $899,593 | $3,089,987 | IRS |
| 990 | December 2023 | $1,324,845 | $1,928,614 | $3,308,442 | XML |
| 990 | December 2022 | $1,249,081 | $748,401 | $2,855,492 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 04-3594491).
Questions about SPASTIC PARAPLEGIA FOUNDATION INC
- What is the EIN of SPASTIC PARAPLEGIA FOUNDATION INC?
- The employer identification number (EIN) of SPASTIC PARAPLEGIA FOUNDATION INC is 04-3594491.
- Is SPASTIC PARAPLEGIA FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2002.
- Are donations to SPASTIC PARAPLEGIA FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SPASTIC PARAPLEGIA FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SPASTIC PARAPLEGIA FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SPASTIC PARAPLEGIA FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of SPASTIC PARAPLEGIA FOUNDATION INC?
- The 990 for the year ended December 31, 2025 names Greg Pruitt.
- Who are the officers and directors of SPASTIC PARAPLEGIA FOUNDATION INC?
- The 990 for the year ended December 31, 2025 lists 13 people; 2 received compensation from the organization, the highest $32,500 (Linda Arnold, Fundraising and Relationship Development Manager).
- How much revenue does SPASTIC PARAPLEGIA FOUNDATION INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $1,742,632, expenses of $1,418,562 and total assets of $3,551,338 at year end.
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