Nonprofit · EIN 04-3503931
CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC
Tax-exempt · AUSTIN, TX 78735
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $8,901,903 | $8,480,440 | $421,463 | $3,998,049 | $2,221,453 | $1,776,596 |
| December 31, 2024 | 990 | $9,205,905 | $9,491,939 | -$286,034 | $3,169,764 | $1,777,156 | $1,392,608 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $4,581,730
- of which government grants
- $280,038
- Membership dues
- $3,320,858
- Program service revenue
- $4,289,736
- Investment income
- $30,437
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $735,637
- Other salaries and wages
- $3,349,121
- Salaries, compensation and benefits (total)
- $4,978,709
- Professional fundraising fees
- $0
- Legal fees
- $5,334
- Accounting fees
- $87,354
- Occupancy
- $24,010
- Travel
- $28,883
- Depreciation
- $16,100
- Program services (functional)
- $6,104,185
- Management and general (functional)
- $1,992,655
- Fundraising (functional)
- $383,600
Balance sheet and other
- Total assets, start of year
- $3,169,764
- Total assets, end of year
- $3,998,049
- Total liabilities, end of year
- $2,221,453
- Net assets, end of year
- $1,776,596
- Land, buildings and equipment
- $30,632
- Publicly traded securities
- $879,927
- Net assets without donor restrictions
- $1,776,596
- Gross receipts
- $8,901,903
- Employees
- 33
- Volunteers
- 1,100
- Year formed
- 2000
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CHRIS DECKER | PRESIDENT & CEO Officer | 40 | $338,654 | $42,998 |
| NICOLE HARMON | CHIEF OPERATIONS OFFICER Officer | 40 | $240,327 | $29,897 |
| CHARLES SHADLE | HEAD OF DATA SCIENCE OPERATIONS Highest-paid employee | 40 | $192,381 | $27,550 |
| BESS LEROY NIETO | HEAD OF STANDARDS DEVELOPMENT Highest-paid employee | 40 | $177,255 | $27,922 |
| ANTHONY CHOW | ED OF STRATEGY AND INNOVATION Highest-paid employee | 40 | $183,000 | $16,137 |
| GERRY CAMPION | SENIOR SOFTWARE ENGINEER Highest-paid employee | 40 | $180,307 | $15,228 |
| JULIE SMILEY | VP, DATA SCIENCES Highest-paid employee | 40 | $174,804 | $8,515 |
| BROOKE HINKSON | CHAIR Trustee or director, Officer | 3 | $0 | $0 |
| JONATHAN CHAINEY | CHAIR-ELECT Trustee or director, Officer | 2 | $0 | $0 |
| ERIK PULKSTENIS | PAST-CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| CHRISTINA REITH | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MIHOKO OKADO | DIRECTOR Trustee or director | 2 | $0 | $0 |
| WENJUN BAO | DIRECTOR Trustee or director | 2 | $0 | $0 |
| KAREN CURRAN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DAVID HARDISON | DIRECTOR Trustee or director | 2 | $0 | $0 |
5 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LISA LIN | DIRECTOR Trustee or director | 2 | $0 |
| RHONA O'DONNELL | DIRECTOR Trustee or director | 2 | $0 |
| PATRICK NADOLNY | DIRECTOR Trustee or director | 2 | $0 |
| CATHERINE CHRONAKI | DIRECTOR Trustee or director | 2 | $0 |
| WENDY LAXTON | TREASURER Officer | 2 | $0 |
990 for the year ended December 31, 2024: 23 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CHRIS DECKER | PRESIDENT & CEO (AS OF 1/1/24) Officer | 40 | $324,220 | $47,487 |
| PETER VAN REUSEL | CHIEF STANDARDS OFFICER Highest-paid employee | 40 | $287,695 | $0 |
| SHEILA LEAMAN | VP GLOBAL RELATIONS (UNTIL 12/31/24) Officer | 40 | $220,273 | $40,024 |
| DAVID E EVANS | FORMER PRESIDENT & CEO Officer | 40 | $220,202 | $29,981 |
| RHONDA FACILE | VP, DEV. & PARTNERS (UNTIL 9/26/24) Officer | 40 | $188,836 | $29,705 |
| CHARLES SHADLE | HEAD OF DATA SCIENCE OPERATIONS Highest-paid employee | 40 | $200,052 | $13,579 |
| BESS LEROY NIETO | HEAD OF STANDARDS DEVELOPMENT Highest-paid employee | 40 | $173,665 | $31,217 |
| CHRISTINE CONNOLLY | HEAD OF STANDARDS PROJECTS Highest-paid employee | 40 | $181,045 | $11,960 |
| ANTHONY CHOW | EXECUTIVE DIR., STRATEGY & INNOVATION Highest-paid employee | 40 | $177,915 | $12,386 |
| ERIK PULKSTENIS | CHAIR Trustee or director, Officer | 3 | $0 | $0 |
| BROOKE HINKSON | CHAIR-ELECT Trustee or director, Officer | 2 | $0 | $0 |
| PAM HOWARD | PAST-CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| CHRISTINA REITH | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MIHOKO OKADA | DIRECTOR Trustee or director | 2 | $0 | $0 |
| WENJUN BAO | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JONATHAN CHAINEY | DIRECTOR Trustee or director | 2 | $0 | $0 |
| KAREN CURRAN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DAVID HARDISON | DIRECTOR Trustee or director | 2 | $0 | $0 |
| PANDU KULKARNI | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DOMINIC LABRIOLA | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LISA LIN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| HIROSHI MASUMOTO | DIRECTOR Trustee or director | 2 | $0 | $0 |
| RHONA O'DONNELL | DIRECTOR Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 7500 RIALTO BLVD STE 1-250, AUSTIN, TX 78735-8556
- In care of
- % PERSONAL HEALTH TECHNOLOGIES
- Principal officer (990 for 2025)
- CHRIS DECKER, 7500 RIALTO BLVD 1-250, AUSTIN, TX 78735
- Signed the 990
- CHRIS DECKER, CEO
- Phone
- (512) 363-5826
- Return prepared by
- AAFCPAS INC
Mission
TO CREATE CONNECTED STANDARDS ACROSS THE STUDY INFORMATION LIFECYCLE TO ENABLE ACCESSIBLE, INTEROPERABLE, AND REUABLE DATA FOR MORE MEANINGFUL AND EFFECTIVE RESEARCH.
Program accomplishments
- IN 2024, CDISC INTRODUCED A STRATEGIC ROADMAP TO EXPAND AND ENABLE STANDARDS DRIVEN AUTOMATION ACROSS THE END-TO-END STUDY INFORMATION LIFECYCLE FROM STUDY DESIGN THROUGH RESULTS. TO REALIZE THIS VISION, CDISC IS MOBILIZING ITS WORK AROUND THREE KEY PILLARS: EXPAND & CONNECT, ENABLE & AUTOMATE, AND ENGAGE & ADOPT. THESE THREE STRATEGIC PILLARS POSITION CDISC AND THE INDUSTRY FOR FUTURE INNOVATION AND TRANSFORMATION. WITH EXPAND & CONNECT, WE AIM TO EMBRACE AND ADOPT DIGITAL STUDY DESIGN, CREATING CONNECTED STANDARDS ACROSS THE CLINICAL RESEARCH INFORMATION LIFECYCLE WHILE DEFINING A CLEAR PIPELINE FOR INTEGRATING NEW DATA SOURCES. THROUGH ENABLE & AUTOMATE, WE DEVELOP READY-TO-USE IMPLEMENTATION STANDARDS THAT ARE ENABLED THROUGH TECHNOLOGY, REDUCE VARIABILITY AND FOCUSED ON INTEROPERABILITY AND AUTOMATION. FINALLY, ENGAGE & ADOPT ESTABLISHES A CONTINUOUS FEEDBACK LOOP ACROSS THE CDISC COMMUNITY, PRIORITIZING THE NEEDS OF PRODUCERS AND CONSUMERS TO LOWER THE BARRIER TO STANDARDS USE, AND INCREASING COMMUNICATION TO BETTER ENABLE OUR STAKEHOLDERS.THIS YEAR, AS WE CELEBRATED OUR 25TH ANNIVERSARY HIGHLIGHTING KEY PARTNERSHIPS, VOLUNTEERS AND IMPACT. WE INITIATED AND ADVANCED 360I, MOVING THE INDUSTRY TOWARD A DYNAMIC AND STANDARDS-DRIVEN DATA FLOW WITH OVER 80+ CONTRIBUTORS LEADING TEAMS (DESIGN, BUILD, AND RUN), INNOVATION CHALLENGES, AND ROUNDTABLES TO SHAPE THE FUTURE OF CLINICAL RESEARCH. THE DESIGN TEAM DEVELOPED DETAILED USER STORIES SPANNING FROM STUDY DESIGN THROUGH STUDY AMENDMENT AND DEMONSTRATED THE ABILITY TO LEVERAGE THE DIGITAL PROTOCOL TO AUTOMATE DOWNSTREAM. A KEY ACHIEVEMENT WAS EMBEDDING CONFORMANCE CONSIDERATIONS FROM THE OUTSET, USING CORE AND CDISC OPEN RULES TO ENSURE STANDARDS CONFORMANCE THROUGHOUT THE LIFECYCLE. THE BUILD TEAM SUCCESSFULLY GENERATED DEFINE.XML AND SHELL DATASETS FROM THE DIGITAL PROTOCOL IDENTIFYING THE METADATA NEEDED FOR AUTOMATION. THE RUN TEAM DEMONSTRATED THE ABILITY TO PROCESS DATA FROM A WIDE RANGE OF SOURCES (E.G., CRF, FHIR RWD, DHT) AND LEVERAGING OPEN SOURCE TOOLS TO AUTOMATE THE GENERATION OF SDTM DATA SETS FROM UPSTREAM DIGITAL STUDY DESIGN INFORMATION. STRATEGIC COLLABORATIONS STRENGTHENED THIS MOMENTUM, SUPPORTING MODERNIZATION, EXPANDING DIGITAL STANDARDS, AND IMPROVING INTEROPERABILITY ACROSS STUDY STARTUP AND DATA EXCHANGE. OUR EVENTS AND EDUCATION OFFERINGS ALSO SAW STRONG ENGAGEMENT, BUILDING SKILLS, EXPANDING UNDERSTANDING, AND FOSTERING DEEPER ALIGNMENT ACROSS THE COMMUNITY.2025 TECHNICAL MILESTONES: -AI INNOVATION CHALLENGE LAUNCHED TO GALVANIZE GLOBAL INNOVATORS TO ADVANCE THE DIGITIZATION AND AUTOMATION OF CLINICAL RESEARCH THROUGH AI, ML, AND CDISC STANDARDS. WITH 22 SUBMISSIONS ACROSS THREE TECHNICALLY COMPLEX USE CASES, THE CHALLENGE DELIVERED PRACTICAL, STANDARDS-DRIVEN SOLUTIONS THAT STRENGTHEN INTEROPERABILITY, ACCELERATE DIGITAL PROTOCOL DEVELOPMENT, AND ENABLE END-TO-END TRACEABILITY. -CDISC OPEN SOURCE ALLIANCE (COSA) PARTNERED ACROSS THE GLOBAL COMMUNITY MET QUARTERLY THROUGHOUT THE YEAR TO SHOWCASE THEIR OPEN-SOURCE SOLUTIONS INCLUDING HACKATHONS AND MORE THAN 15 OPEN SOURCE SOLUTION DEMOS AND 8 OSS ADDITIONS TO THE REPOSITORY. -TECHNOLOGY VENDOR ROUNDTABLE INITIATED TO BRING TOGETHER CDISC MEMBERS FOCUSING ON TECHNOLOGY SOLUTIONS IN A COLLABORATIVE ENVIRONMENT TO SUPPORT CDISC'S DIGITAL TRANSFORMATION. PARTICIPANTS DISCUSSED THE FUTURE OF CLINICAL TRIAL INNOVATION BY ENSURING THAT CDISC STANDARDS ARE PRACTICAL AND IMPLEMENTABLE IN MODERN DIGITAL WORKFLOWS. IT SUPPORTS THE BROADER 360I INITIATIVE BY HELPING VENDORS AND DEVELOPERS DISCUSS TOOLS THAT INTEGRATE SEAMLESSLY WITH CDISC'S STRUCTURED METADATA AND DIGITAL PROTOCOL MODELS. -TMF MARKED A MAJOR MILESTONE AS IT BECAME THE OFFICIAL CDISC TMF STANDARD, TRANSFORMING TMF RM V4 INTO VERSION 1 OF A UNIFIED, INTEROPERABLE FRAMEWORK FOR CLINICAL TRIAL DOCUMENTATION. ADDITIONALLY, THE GLOBAL TMF COMMUNITY ADVANCED INTO THE COLLABORATIVE CDISC TMF COMMUNITY, EMBRACING A DATA-DRIVEN, MACHINE-READABLE FUTURE THAT WILL ENABLE DECENTRALIZED TRIALS, REAL-TIME OVERSIGHT, AND STREAMLINED COMPLIANCE -UNIFIED STUDY DEFINITIONS MODEL V4.0 INCLUDES AN IMPLEMENTATION GUIDE, LOGICAL MODEL, CONTROLLED TERMINOLOGY, API SPECIFICATIONS, CONFORMANCE RULES TO SUPPORT USAGE OF USDM. USDM V3.0 CONFORMANCE RULE SPECS PROVIDES THE TECHNICAL GUIDANCE USED TO ASSERT THAT ANY GIVEN STUDY DEFINITION SOLUTION CONFORMS TO USDM V3.0. -CARDIAC IMAGING SUPPLEMENT TO THE DUCHENNE MUSCULAR DYSTROPHY TA USER GUIDE V1.0 DEVELOPED IN PARTNERSHIP WITH THE C-PATH DUCHENNE REGULATORY SCIENCE CONSORTIUM (D-RSC), THE SUPPLEMENT TO THE DMD TAUG INCLUDES NEW CONTROLLED TERMINOLOGY, AND SDTM AND ADAM EXAMPLES FOR CARDIOVASCULAR TESTS. -DEFINE-XML V2.1.8 & V2.1.9 RELEASES INCLUDES THE DEFINE-ENUMERATIONS SCHEMA FILE THAT REFLECTS THE RELEASE OF CT P59. -CDISC OPEN RULES ENGINE (CORE) V0.14.0 ENABLES JSONATA RULES (USDM CONFORMANCE RULES). -CT RELATIONSHIPS V1.0 FOR SDTM V1.7, SDTMIG V3.3, SDTMIG-MD V1.1 DEFINES RELATIONSHIPS BETWEEN PUBLISHED CT CODELISTS/TERMINOLOGY SUBSETS AND THE CDISC VARIABLES, TESTS, PARAMETERS, AND NON-STANDARD VARIABLES (NSVS) PUBLISHED IN SDTMIGS, TAUGS, AND REGULATORY DOCUMENTS. -BIOMEDICAL CONCEPTS BROWSER ALLOWS USERS TO EFFICIENTLY SEARCH, FILTER, AND LOCATE THE LATEST BCS AND SDTM DATASET SPECIALIZATIONS IN THE CDISC LIBRARY. -QRS PORTAL FEATURES QRS PACKAGES OF MACHINE-READABLE CONTENT INCLUDING BCS, SDTM CT, SDTM DATASET SPECIALIZATIONS, AND ODM FILES; 2 PACKAGES RELEASED; 18 QRS SUPPLEMENTS RELEASED. -ECRF PORTAL CONSISTS OF READY-TO-USE, CDASH-COMPLIANT, ANNOTATED ECRFS, AVAILABLE IN PDF, HTML AND XML FORMATSExpenses $4,629,083 · revenue $280,038
- EDUCATION - IN 2025 CDISC EDUCATION TRAINED 800 INDIVIDUALS WITH EXPANDED EDUCATION OFFERINGS INCLUDING 8 NEW TRAININGS, EQUIPPING THE GLOBAL CDISC COMMUNITY WITH PRACTICAL TOOLS AND KNOWLEDGE TO IMPLEMENT STANDARDS MORE EFFECTIVELY. INSTRUCTORS LED 77 TRAININGS FOR TRAINEES FROM 130+ ORGANIZATIONS REPRESENTING 35 COUNTRIES.Expenses $603,022 · revenue $865,958
- EVENTS - CDISC HELD 7 GLOBAL EVENTS (UNITED STATES, SWITZERLAND, JAPAN, CHINA, KOREA AND INDIA) ACROSS THREE CONTINENTS WITH MORE THAN 1,400+ ATTENDEES FOSTERED COLLABORATION AND KNOWLEDGE SHARING ACROSS THE CLINICAL RESEARCH COMMUNITY GATHERING TO NETWORK, SHARE THEIR EXPERTISE, BEST PRACTICES, AND LESSONS LEARNED ABOUT LEVERAGING CDISC STANDARDS TO BRING EFFICIENCIES AND CLARITY TO DATA. 2025 BROUGHT TOGETHER PROFESSIONALS FROM A WIDE RANGE OF ROLES, INCLUDING MANAGERS, DIRECTORS, OPERATIONS EXPERTS, AND EXECUTIVES. THIS DIVERSE ATTENDEE BASE REFLECTS OUR ABILITY TO ENGAGE LEADERS AND PRACTITIONERS ALIKE, FOSTERING MEANINGFUL DIALOGUE AND COLLABORATION ACROSS ALL LEVELS OF THE INDUSTRY. ATTENDEES PARTICIPATED FROM VARIOUS ORGANIZATIONS IN PHARMACEUTICAL, CRO, TECHNOLOGY, ACADEMIC AND RESEARCH INSTITUTIONS. CDISC ALSO SUPPORTED EXTERNAL EVENTS THROUGHOUT THE YEAR WITH OUR PARTNER ORGANIZATIONS.Expenses $857,770 · revenue $1,171,028
- PARTNERSHIPS & COLLABORATION CDISC HAS OVER 400 MEMBER ORGANIZATIONS ACROSS 27 COUNTRIES. OUR IMPACT AS AN ORGANIZATION IS MULTIPLIED BY OUR COLLABORATIONS WITH OUR GLOBAL PARTNERS INCLUDING REGULATORY AGENCIES AND PATIENT FOUNDATIONS. THROUGH PARTNERSHIP, WE CAN CONTINUE TO ADVANCE INTEROPERABLE STANDARDS ACROSS A WIDE RANGE OF THERAPEUTIC AREAS SO GREATER CLARITY IS ACHIEVED, MORE POWERFUL RESEARCH IS CONDUCTED, AND MORE MEANINGFUL CONNECTIONS ARE DISCOVERED. AND AS OUR DEDICATION AND COLLABORATION CONTINUE TO GROW, SO TOO WILL OUR COLLECTIVE IMPACT ON GLOBAL HEALTH.Expenses $14,310 · revenue $1,972,712
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 04-3503931
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2011
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E052)
- Assets (IRS master file)
- $3,998,049
- Income (IRS master file)
- $8,901,903
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | – | – | – | IRS |
| 990 | December 2024 | – | – | – | IRS |
| 990 | December 2023 | $9,333,128 | $11,224,779 | $3,979,569 | IRS |
| 990 | December 2022 | $8,105,543 | $9,610,015 | $5,085,701 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.
Questions about CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC
- What is the EIN of CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC?
- The employer identification number (EIN) of CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC is 04-3503931.
- Is CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2011.
- Are donations to CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC?
- The 990 for the year ended December 31, 2025 names CHRIS DECKER.
- Who are the officers and directors of CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC?
- The 990 for the year ended December 31, 2025 lists 20 people; 7 received compensation from the organization, the highest $338,654 (CHRIS DECKER, PRESIDENT & CEO).
- How much revenue does CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $8,901,903, expenses of $8,480,440 and total assets of $3,998,049 at year end.
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