Nonprofit · EIN 04-3462719
ALS THERAPY DEVELOPMENT FOUNDATION INC
Also known as HEYWOOD JAMES
Tax-exempt · WATERTOWN, MA 02472
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $16,066,902 | $13,127,937 | $2,938,965 | $22,324,694 | $3,067,290 | $19,257,404 |
| December 31, 2024 | 990 | $13,406,171 | $12,879,065 | $527,106 | $23,052,170 | $4,418,122 | $18,634,048 |
| December 31, 2023 | 990 | $11,558,482 | $11,160,593 | $397,889 | $20,012,651 | $5,001,719 | $15,010,932 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $14,817,715
- of which government grants
- $981,635
- Program service revenue
- $623,964
- Investment income
- $339,712
- Net income from fundraising events
- $285,511
- Other revenue
- $285,511
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $477,519
- Other salaries and wages
- $4,457,888
- Salaries, compensation and benefits (total)
- $6,093,591
- Professional fundraising fees
- $31,723
- Legal fees
- $339,114
- Accounting fees
- $53,639
- Occupancy
- $1,627,190
- Depreciation
- $357,328
- Program services (functional)
- $11,887,087
- Management and general (functional)
- $590,721
- Fundraising (functional)
- $650,129
Balance sheet and other
- Total assets, start of year
- $23,052,170
- Total assets, end of year
- $22,324,694
- Total liabilities, end of year
- $3,067,290
- Net assets, end of year
- $19,257,404
- Land, buildings and equipment
- $804,936
- Publicly traded securities
- $11,371,232
- Net assets without donor restrictions
- $19,257,404
- Gross receipts
- $17,148,115
- Employees
- 65
- Volunteers
- 500
- Year formed
- 1999
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| FERNANDO VIEIRA | CEO AND CSO Trustee or director, Officer | 40 | $436,433 | $35,609 |
| ALAN GILL | VP OF RESEARCH Highest-paid employee | 40 | $194,572 | $12,913 |
| CAROL HAMILTON | SENIOR VP OF DEVELOPMENT Highest-paid employee | 40 | $177,160 | $9,765 |
| KYLE R DENTON | SENIOR DIRECTOR, CELL BIOLOGY Highest-paid employee | 40 | $173,063 | $9,391 |
| THEO HATZIPETROS | SENIOR DIRECTOR OF PHARMACOLOGY Highest-paid employee | 40 | $161,717 | $13,010 |
| DANIELLE BOYCE | PRINC. INVEST., REAL WORLD EVIDENCE Highest-paid employee | 40 | $139,506 | $4,817 |
| LYNNE NIETO | BOARD CHAIR Trustee or director, Officer | 2.5 | $0 | $0 |
| STEVEN PERRIN PHD | VICE CHAIR Trustee or director, Officer | 2.5 | $0 | $0 |
| THEODORE REICH JD CPA | TREASURER AND BOARD MEMBER Trustee or director, Officer | 2.5 | $0 | $0 |
| DR STANLEY H APPEL MD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ALEXANDER CAPPELLO | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| DR SPIROS JAMAS SCD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JAMES ALLEN HEYWOOD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JOHN B HEYWOOD PHD SCD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ROB RODIN | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
8 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| PAUL SALLABERRY | BOARD MEMBER Trustee or director | 2.5 | $0 |
| ROBERT SEPUCHA | BOARD MEMBER Trustee or director | 2.5 | $0 |
| JENNY DWYER | BOARD MEMBER Trustee or director | 2.5 | $0 |
| MIKE SMITH | BOARD MEMBER Trustee or director | 2.5 | $0 |
| JULIE SWAN | BOARD MEMBER Trustee or director | 2.5 | $0 |
| KENT JACKSON BRANSFORD MD | BOARD MEMBER Trustee or director | 2.5 | $0 |
| TOM ENGELLENNER | BOARD MEMBER Trustee or director | 2.5 | $0 |
| JAY AGARWAL | BOARD MEMBER Trustee or director | 2.5 | $0 |
990 for the year ended December 31, 2024: 23 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| FERNANDO VIEIRA | CEO AND CSO Trustee or director, Officer | 40 | $386,901 | $28,032 |
| ALAN GILL | VP OF RESEARCH Highest-paid employee | 40 | $188,954 | $19,776 |
| CAROL HAMILTON | VP OF DEVELOPMENT Highest-paid employee | 40 | $172,628 | $14,505 |
| KYLE R DENTON | DIRECTOR, CELL BIOLOGY Highest-paid employee | 40 | $158,381 | $26,707 |
| THEO HATZIPETROS | DIRECTOR OF PHARMACOLOGY Highest-paid employee | 40 | $155,581 | $13,972 |
| MEGHAN BUCO | SENIOR DIRECTOR OF MARKETING & COMMUNICATIONS Highest-paid employee | 40 | $135,001 | $20,819 |
| LYNNE NIETO | CHAIRMAN Trustee or director, Officer | 2.5 | $0 | $0 |
| STEVEN PERRIN PHD | VICE CHAIR Trustee or director, Officer | 2.5 | $0 | $0 |
| THEODORE REICH JD CPA | TREASURER AND BOARD MEMBER Trustee or director, Officer | 2.5 | $0 | $0 |
| DR STANLEY H APPEL MD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ALEXANDER CAPPELLO | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| DR SPIROS JAMAS SCD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JAMES ALLEN HEYWOOD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JOHN B HEYWOOD PHD SCD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ROB RODIN | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| PAUL SALLABERRY | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ROBERT SEPUCHA | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JENNY DWYER | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| MIKE SMITH | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JULIE SWAN | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| KENT JACKSON BRANSFORD MD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ANDREW NIBLOCK | BOARD MEMBER (LEFT IN DEC 2024) Trustee or director | 2.5 | $0 | $0 |
| TOM ENGELLENNER | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
990 for the year ended December 31, 2023: 24 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| FERNANDO VIEIRA | CEO AND CSO Trustee or director, Officer | 40 | $320,000 | $20,011 |
| ALAN GILL | VP OF RESEARCH Highest-paid employee | 40 | $182,421 | $13,214 |
| CAROL HAMILTON | VP OF DEVELOPMENT Highest-paid employee | 40 | $165,724 | $8,146 |
| THEO HATZIPETROS | DIRECTOR OF PHARMACOLOGY Highest-paid employee | 40 | $150,899 | $20,236 |
| KYLE R DENTON | DIRECTOR, CELL BIOLOGY Highest-paid employee | 40 | $150,194 | $8,434 |
| KENNETH THOMPSON | VP OF FACILITY OPERATION Highest-paid employee | 40 | $129,202 | $19,011 |
| LYNNE NIETO | CHAIRMAN (AS OF 5/2023) Trustee or director, Officer | 2.5 | $0 | $0 |
| AUGIE NIETO | CHAIRMAN (UNTIL 2/2023) Trustee or director, Officer | 2.5 | $0 | $0 |
| STEVEN PERRIN PHD | VICE CHAIR Trustee or director, Officer | 2.5 | $0 | $0 |
| THEODORE REICH JD CPA | TREASURER AND BOARD MEMBER Trustee or director, Officer | 2.5 | $0 | $0 |
| DR STANLEY H APPEL MD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ALEXANDER CAPPELLO | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| DR SPIROS JAMAS SCD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JAMES ALLEN HEYWOOD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JOHN B HEYWOOD PHD SCD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ROB RODIN | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| PAUL SALLABERRY | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ROBERT SEPUCHA | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JENNY DWYER | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| MIKE SMITH | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| JULIE SWAN | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| KENT JACKSON BRANSFORD MD | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| ANDREW NIBLOCK | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
| TOM ENGELLENNER | BOARD MEMBER Trustee or director | 2.5 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 480 ARSENAL ST STE201, WATERTOWN, MA 02472-2805
- In care of
- % MAUREEN LISTER
- Principal officer (990 for 2025)
- DR FERNANDO VIEIRA, 480 ARSENAL STREET 201, WATERTOWN, MA 02472
- Signed the 990
- DR FERNANDO VIEIRA, CEO/CSO
- Phone
- (617) 441-7200
- Website
- WWW.ALS.NET
- Return prepared by
- AAFCPAS INC
Mission
OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
Program accomplishments
- ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.Expenses $11,887,087 · revenue $623,964
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 04-3462719
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1999
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H80)
- Assets (IRS master file)
- $22,324,694
- Income (IRS master file)
- $17,148,115
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $16,066,902 | $13,127,937 | $22,324,694 | XML |
| 990 | December 2024 | $13,406,171 | $12,879,065 | $23,052,170 | XML |
| 990 | December 2023 | $11,558,482 | $11,160,593 | $20,012,651 | XML |
| 990 | December 2022 | $11,364,169 | $9,829,539 | $21,051,525 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.
Questions about ALS THERAPY DEVELOPMENT FOUNDATION INC
- What is the EIN of ALS THERAPY DEVELOPMENT FOUNDATION INC?
- The employer identification number (EIN) of ALS THERAPY DEVELOPMENT FOUNDATION INC is 04-3462719.
- Is ALS THERAPY DEVELOPMENT FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1999.
- Are donations to ALS THERAPY DEVELOPMENT FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ALS THERAPY DEVELOPMENT FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ALS THERAPY DEVELOPMENT FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ALS THERAPY DEVELOPMENT FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of ALS THERAPY DEVELOPMENT FOUNDATION INC?
- The 990 for the year ended December 31, 2025 names DR FERNANDO VIEIRA.
- Who are the officers and directors of ALS THERAPY DEVELOPMENT FOUNDATION INC?
- The 990 for the year ended December 31, 2025 lists 23 people; 6 received compensation from the organization, the highest $436,433 (FERNANDO VIEIRA, CEO AND CSO).
- How much revenue does ALS THERAPY DEVELOPMENT FOUNDATION INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $16,066,902, expenses of $13,127,937 and total assets of $22,324,694 at year end.
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