Nonprofit · EIN 01-0759380
SPINAL MUSCULAR ATROPHY FOUNDATION
Tax-exempt · NEW YORK, NY 10106
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-PF | $19,527,538 | $4,733,792 | $14,793,746 | $50,173,258 | $3,857,685 | $46,315,573 |
| December 31, 2023 | 990-PF | $12,507,750 | $3,641,528 | $8,866,222 | $33,691,989 | $2,221,271 | $31,470,718 |
Financial details: 990-PF for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $36,925
- Interest
- $2,225,312
- Other income
- $17,265,301
Expenses
- Grants and similar amounts paid
- $3,125,181
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $884,500
- Disbursements for charitable purposes
- $2,774,807
- Excise tax on investment income
- $270,784
Balance sheet and other
- Total assets, start of year
- $33,691,989
- Total assets, end of year
- $50,173,258
- Total liabilities, end of year
- $3,857,685
- Net assets, end of year
- $46,315,573
- Fair market value of assets
- $50,173,258
- Qualifying distributions
- $2,774,807
- Net investment income
- $19,480,858
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-PF for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KAREN CHEN 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | CHIEF EXECUTIVE OFFI Highest-paid employee | 40 | $575,000 | $20,478 |
| KELLY HOWELL 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR Highest-paid employee | 40 | $185,000 | $20,478 |
| YING QIAN 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR OF STRAT. & Highest-paid employee | 40 | $104,325 | $20,478 |
| DINAKAR SINGH 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | BOARD CHAIRMAN | 1 | $0 | $0 |
| DOUGLAS COLE MD 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| GERALD FISCHBACH MD 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| ANDREW KNIGHT 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| JONATHAN LEFF 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| HELEN MEATES 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| STEPHEN MIKITA ESQ 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| JULI OH ESQ 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | TREASURER | 1 | $0 | $0 |
| SIMON PRISK ESQ 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| STORY LANDIS 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| LOREN ENG 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | PRESIDENT | 15 | $0 | $0 |
990-PF for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KAREN CHEN 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | CHIEF EXECUTIVE OFFI Highest-paid employee | 40 | $575,000 | $19,271 |
| KELLY HOWELL 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR Highest-paid employee | 40 | $185,000 | $19,271 |
| YING QIAN 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR OF STRAT. & Highest-paid employee | 40 | $104,325 | $19,271 |
| DINAKAR SINGH 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | BOARD CHAIRMAN | 1 | $0 | $0 |
| DOUGLAS COLE MD 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| GERALD FISCHBACH MD 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| ANDREW KNIGHT 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| JONATHAN LEFF 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| HELEN MEATES 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| STEPHEN MIKITA ESQ 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| JULI OH ESQ 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | TREASURER | 1 | $0 | $0 |
| SIMON PRISK ESQ 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| STORY LANDIS 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | DIRECTOR | 1 | $0 | $0 |
| LOREN ENG 970 W BROADWAY STE E PMB 140, JACKSON, WY 83001 | PRESIDENT | 15 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 888 7TH AVE STE 400, NEW YORK, NY 10106-0401
- In care of
- % SMA FOUNDATION
- Signed the 990-PF
- DINAKAR SINGH, BOARD CHAIRMAN
- Phone
- (646) 253-7100
- Website
- WWW.SMAFOUNDATION.ORG
- Return prepared by
- PKF O'CONNOR DAVIES ADVISORY LLC
What it must file and when
IRS records say it files Form 990-PF. Private foundations file every year. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-PF on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-PF on file |
IRS record
- EIN
- 01-0759380
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Private non-operating foundation
- Donations deductible (Pub 78)
- Private foundation, 30% limit
- Exempt since
- 2003
- Accounting year ends
- December
- Files
- Form 990-PF
- Category (NTEE)
- Education (B99)
- Assets (IRS master file)
- $50,173,258
- Income (IRS master file)
- $19,527,538
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-PF | December 2024 | $19,527,538 | $4,733,792 | $50,173,258 | IRS |
| 990-PF | December 2023 | $12,507,750 | $3,641,528 | $33,691,989 | XML |
| 990-PF | December 2022 | – | – | – | IRS |
| 990-PF | December 2021 | – | – | – | IRS |
| 990-PF | December 2020 | – | – | – | IRS |
| 990-PF | December 2018 | – | – | – | IRS |
| 990-PF | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 01-0759380).
Questions about SPINAL MUSCULAR ATROPHY FOUNDATION
- What is the EIN of SPINAL MUSCULAR ATROPHY FOUNDATION?
- The employer identification number (EIN) of SPINAL MUSCULAR ATROPHY FOUNDATION is 01-0759380.
- Is SPINAL MUSCULAR ATROPHY FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2003.
- Are donations to SPINAL MUSCULAR ATROPHY FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Private foundation, 30% limit).
- Which annual return does SPINAL MUSCULAR ATROPHY FOUNDATION file?
- Form 990-PF. Private foundations file every year.
- When is the next return of SPINAL MUSCULAR ATROPHY FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SPINAL MUSCULAR ATROPHY FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-PF for the year ended December 2024.
- Who are the officers and directors of SPINAL MUSCULAR ATROPHY FOUNDATION?
- The 990-PF for the year ended December 31, 2024 lists 14 people; 3 received compensation from the organization, the highest $575,000 (KAREN CHEN, CHIEF EXECUTIVE OFFI).
- How much revenue does SPINAL MUSCULAR ATROPHY FOUNDATION have?
- On its 990-PF for the year ended December 31, 2024 it reported revenue of $19,527,538, expenses of $4,733,792 and total assets of $50,173,258 at year end.
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