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Nonprofit · EIN 01-0515187

ALSTROM SYNDROME INTERNATIONAL

Tax-exempt · BURLESON, TX 76028

Financials

$254K$235K2023$257K$174K2024$440K$233K2025
Revenue Expenses · by fiscal year end
Financials of ALSTROM SYNDROME INTERNATIONAL by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$440,037$233,006$207,031$387,522$1,525$385,997
December 31, 2024990$256,802$174,244$82,558$180,966$0$180,966
December 31, 2023990$253,997$234,661$19,336$98,408$0$98,408
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$439,998
Program service revenue
$0
Investment income
$0
Net income from sales of inventory
$39
Other revenue
$39

Expenses

Grants and similar amounts paid
$0
Compensation of officers, directors and key employees
$38,887
Other salaries and wages
$53,728
Salaries, compensation and benefits (total)
$95,559
Professional fundraising fees
$2,461
Accounting fees
$5,055
Occupancy
$592
Travel
$37,773
Program services (functional)
$121,715
Management and general (functional)
$81,355
Fundraising (functional)
$29,936

Balance sheet and other

Total assets, start of year
$180,967
Total assets, end of year
$387,522
Total liabilities, end of year
$1,525
Net assets, end of year
$385,997
Net assets without donor restrictions
$385,997
Gross receipts
$440,037
Employees
3
Volunteers
13
Year formed
2003
State of legal domicile
TX

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
RAQUEL TUCKEREXECUTIVE DIRECTOR
Officer
0$37,500
CHASE PALMERPRESIDENT
Officer
0$19,500
JENNIFER POTTERTREASURER
Officer
0$0
MICHAEL KIRBYSECRETARY
Officer
0$0
990 for the year ended December 31, 2024: 16 people
NameTitleHours / weekCompensation
Raquel TuckerCEO start 11132024
Officer
30$19,545
Gina DenbowChair
Trustee or director, Officer
15$18,000
Chase A PalmerPresident
Trustee or director, Officer
15$18,000
Eric BeresfordCEO end 10242024
Officer
30$15,000
Chelsey KostickDirector
Trustee or director
0.1$0
Michelle MarshallDirector
Trustee or director
0.1$0
Clair FrancomanoDirector
Trustee or director
0.1$0
Edward M ConlonDirector
Trustee or director
0.1$0
Sarah DurfeyDirector
Trustee or director
0.1$0
Pietro MaffeiDirector
Trustee or director
0.1$0
Selma DuzleniDirector
Trustee or director
0.1$0
Mary SmartDirector
Trustee or director
0.1$0
Robert MarshallDirector
Trustee or director
0.1$0
Jennifer FarleyVice President
Trustee or director, Officer
0.1$0
Michael J KirbySecretary
Trustee or director, Officer
0.1$0
Jennifer PotterTreasurer
Trustee or director, Officer
0.1$0
990 for the year ended December 31, 2023: 15 people
NameTitleHours / weekCompensation
Chase A PalmerPresident
Trustee or director, Officer
0.1$16,500
Eric J BeresfordCEO
Trustee or director, Officer
0.1$16,500
Gina DenbowChair
Trustee or director, Officer
0.1$16,500
Selma DuzleniDirector
Trustee or director
0.1$0
Pietro MaffeiDirector
Trustee or director
0.1$0
Sarah DurfeyDirector
Trustee or director
0.1$0
Edward M ConlonDirector
Trustee or director
0.1$0
Chelsey KostickDirector
Trustee or director
0.1$0
Mary SmartDirector
Trustee or director
0.1$0
Clair FrancomanoDirector
Trustee or director
0.1$0
Shelly MarshallDirector
Trustee or director
0.1$0
Jennier PotterDirector
Trustee or director, Officer
0.1$0
Jennifer FarleyVice President
Trustee or director, Officer
0.1$0
Michael J KirbySecretary
Trustee or director, Officer
0.1$0
Robert P MarshallDirector
Trustee or director, Officer
0.1$0

Address and contacts

Address (IRS master file)
251 SW WILSHIRE BLVD STE 124-304, BURLESON, TX 76028-4779
In care of
% RAQUEL TUCKER
Principal officer (990 for 2025)
CHASE PALMER, 251 SW WILSHIRE BLVD Ste 124304, BURLESON, TX 76028
Signed the 990
RAQUEL TUCKER, EXECUTIVE DIRECTOR
Phone
(817) 734-9721
Return prepared by
Triple D Financial

Mission

OUR MISSION IS TO PROVIDE SUPPORT, INFORMATION, AND COORDINATION WORLD-WIDE TO FAMILIES AND PROFESSIONALS EFFECTIVELY TREATING ALSTROM SYNDROME AS WE WORK TOWARD A CURE.

990 for the year ended December 31, 2025

Program accomplishments

  • EDUCATION: ASI PROVIDED INFORMATION TO FAMILIES, HEALTHCARE PROFESSIONALS, RESEARCHERS, AND THE PUBLIC, REGARDING ALSTROM SYNDROME. OUR HANDBOOK IS AVAILABLE TO SEND TO ALL FAMILIES. OUR OUTREACH FOCUSED ON INCREASING THE AWARENESS AND UPDATING INFORMATION FOR OUR FAMILIES WORLD-WIDE.
    Expenses $40,572
  • RESEARCH: ASI SUPPORTED RESEARCH EFFORTS RELATED TO ALSTROM SYNDROME BY COLLABORATING WITH RESEARCHERS, MEDICAL PROFESSIONALS TO ADVANCE SCIENTIFIC UNDERSTUDY OF THE DISEASE. ACTIVITIES INCLUDED SUPPORTING A REGISTRY, COLLECTING PATIENT INFO, AND WORKING TOWARDS BIOBANK SAMPLE COLLECTION.
    Expenses $40,572
  • FAMILY SUPPORT: ALSTROM SYNDROME INTERNATIONAL PROVIDED SUPPORT AND RESOURCES TO INDIVIDUALS AND FAMILIES AFFECTED BY ALSTROM SYNDROME THROUGH RETREATS, SUPPORT PROGRAMS, NETWORKING, AND DIRECT COMMUNICATION WITH FAMILIES WORLD-WIDE. ASI HELPED CONNECT FAMILIES TO MEDICAL PROFESSIONALS AND COMMUNITY SUPPORT WHILE PROMOTING AWARENESS AND IMPROVING THE QUALIFY OF LIFE FOR THOSE AFFECTED BY THIS RARE DISEASE.
    Expenses $40,571

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
01-0515187
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1999
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Human services (P820)
Assets (IRS master file)
$387,522
Income (IRS master file)
$440,037

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$440,037$233,006$387,522XML
990December 2024$256,802$174,244$180,966IRS
990December 2023$253,997$234,661$98,408XML
990-EZDecember 2022–––IRS
990-EZDecember 2021–––IRS
990-EZDecember 2020–––IRS
990-EZDecember 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 01-0515187).

Questions about ALSTROM SYNDROME INTERNATIONAL

What is the EIN of ALSTROM SYNDROME INTERNATIONAL?
The employer identification number (EIN) of ALSTROM SYNDROME INTERNATIONAL is 01-0515187.
Is ALSTROM SYNDROME INTERNATIONAL tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1999.
Are donations to ALSTROM SYNDROME INTERNATIONAL tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does ALSTROM SYNDROME INTERNATIONAL file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of ALSTROM SYNDROME INTERNATIONAL due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did ALSTROM SYNDROME INTERNATIONAL last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of ALSTROM SYNDROME INTERNATIONAL?
The 990 for the year ended December 31, 2025 names CHASE PALMER.
Who are the officers and directors of ALSTROM SYNDROME INTERNATIONAL?
The 990 for the year ended December 31, 2025 lists 4 people; 2 received compensation from the organization, the highest $37,500 (RAQUEL TUCKER, EXECUTIVE DIRECTOR).
How much revenue does ALSTROM SYNDROME INTERNATIONAL have?
On its 990 for the year ended December 31, 2025 it reported revenue of $440,037, expenses of $233,006 and total assets of $387,522 at year end.

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