2026-09-22T16:06:14-07:00 2025-12-31 853683289 THE FOCUS GROUP PC 1650 MARKET STREET PHILADELPHIA PA 19103 990 2025-01-01 472277599 EMILY WHITEHEAD FOUNDATION EMIL 8145774784 441 S CENTRE ST PHILIPSBURG PA 16866 GEORGE EASTWOOD EXECUTIVE DIRECTOR 8145774784 2026-08-14 true DANA KEITH NEWSOME P02061593 2159298000 2026-09-22 2025 GEORGE EASTWOOD 441 S CENTRE PHILIPSBURG PA 16866 863836 false X WWW.EMILYWHITEHEADFOUNDATION.ORG X 2014 PA THE EMILY WHITEHEAD FOUNDATIONS MISSION IS TO SUPPORT PATIENTS AND CAREGIVERS AFFECTED BY CANCER AND RARE DISEASES, AND ADVOCATE FOR ALL PATIENTS WHO CAN BE TREATED WITH ADVANCED THERAPIES. 15 12 6 464 0 0 520981 805548 15000 23520 19681 16022 399003 -4142 954665 840948 3500 0 44198 519867 0 200099 728911 385243 773109 908610 181556 -67662 733054 771911 29704 136223 703350 635688 THE EMILY WHITEHEAD FOUNDATIONS MISSION IS TO SUPPORT PATIENTS AND CAREGIVERS AFFECTED BY CANCER AND RARE DISEASES, AND ADVOCATE FOR ALL PATIENTS WHO CAN BE TREATED WITH ADVANCED THERAPIES. false false 574934 3500 0 THE FOUNDATION PROVIDES PATIENT AND CAREGIVER SUPPORT, EDUCATION, CONNECTION AND ADVOCACY FOR INDIVIDUALS AND FAMILIES AFFECTED BY CANCER AND RARE DISEASES, WITH A PARTICULAR FOCUS ON HELPING PATIENTS NAVIGATE ADVANCED THERAPY TREATMENT PATHWAYS. BELIEVE BUNDLES OFFER COMFORT DURING TREATMENT AND CONNECT FAMILIES TO BROADER RESOURCES. INDIVIDUALIZED SUPPORT INCLUDES EDUCATIONAL RESOURCES, PEER AND PROVIDER CONNECTIONS, AND HELP NAVIGATING POTENTIAL CARE AND CLINICAL RESEARCH OPTIONS. ADVOCACY ELEVATES PATIENT VOICES AND ENGAGES STAKEHOLDERS TO REDUCE BARRIERS TO ADVANCED THERAPIES. IN 2025 THE FOUNDATION DELIVERED 570 BUNDLES, DEVELOPED 22 HOSPITAL PARTNERSHIPS, SUPPORTED 45 FAMILIES, ESTABLISHED 11 INDUSTRY PARTNERSHIPS, AND ADVOCATED AT 44 INDUSTRY AND POLICY EVENTS. BELIEVE BUNDLES IS A DIRECT PATIENT SUPPORT PROGRAM THAT PROVIDES TANGIBLE COMFORT AND ENCOURAGEMENT TO PATIENTS UNDERGOING TREATMENT. THROUGH THIS PROGRAM, THE FOUNDATION DELIVERS THOUGHTFULLY ASSEMBLED CARE PACKAGES DESIGNED TO BRIGHTEN HOSPITAL STAYS, PROVIDE EMOTIONAL SUPPORT, AND REMIND PATIENTS AND CAREGIVERS THAT THEY ARE NOT ALONE. BELIEVE BUNDLES ALSO CONNECT PATIENTS AND FAMILIES TO THE FOUNDATIONS BROADER SUPPORT RESOURCES. IN 2025 THE FOUNDATION DELIVERED BELIEVE BUNDLES TO 570 PATIENTS AND DEVELOPED 22 HOSPITAL PARTNERSHIPS TO EXPAND THE PROGRAMS REACH AND CONNECT MORE FAMILIES TO PATIENT SUPPORT AND ADVOCACY RESOURCES. PATIENT AND CAREGIVER SUPPORT PROVIDES EDUCATION, RESOURCES, CONNECTION, AND INDIVIDUALIZED ASSISTANCE TO PATIENTS, CAREGIVERS, AND FAMILIES AFFECTED BY CANCER AND RARE DISEASES. THIS PROGRAM INCLUDES ONE-ON-ONE SUPPORT, HOPE AND ENCOURAGEMENT, PATIENT- CENTERED EDUCATIONAL RESOURCES, PEER CONNECTION WITH OTHERS WHO HAVE RELEVANT LIVED EXPERIENCE, HEALTHCARE PROVIDER CONNECTION, AND HELP IDENTIFYING AND NAVIGATING POTENTIAL CARE AND CLINICAL RESEARCH OPTIONS WHEN APPROPRIATE. THE FOUNDATION DOES NOT CONDUCT CLINICAL RESEARCH THROUGH THIS PROGRAM. IN 2025, THE FOUNDATION PROVIDED PERSONALIZED ONE-ON-ONE SUPPORT TO 45 FAMILIES. ADVOCACY AND ACCESS ADVANCES THE FOUNDATIONS MISSION BY ELEVATING PATIENT AND CAREGIVER VOICES AND WORKING TO REDUCE BARRIERS TO ADVANCED THERAPIES. THE FOUNDATION ENGAGES POLICYMAKERS, RESEARCHERS, CLINICIANS, MANUFACTURERS, AND OTHER ADVANCED THERAPY STAKEHOLDERS TO HELP ENSURE THAT PATIENT EXPERIENCES INFORM TREATMENT DEVELOPMENT, HEALTHCARE DELIVERY, ACCESS DISCUSSIONS, AND PUBLIC AWARENESS. IN 2025, THE FOUNDATION ESTABLISHED 11 INDUSTRY PARTNERSHIPS, ADVOCATED AT 44 INDUSTRY AND POLICY EVENTS, AND CONTINUED TO BUILD RELATIONSHIPS ACROSS THE ADVANCED THERAPIES COMMUNITY IN SUPPORT OF BROADER ACCESS TO LIFE-SAVING TREATMENT OPTIONS. 574934 true true false false false false false false false false true false false false false false true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 4 0 6 true false false false false false false false false false false false false X 15 12 true false false false false false false true true false false true true true true true true false false false PA X X KARI WHITEHEAD 8145774784 606 PAULINE STREET PHILIPSBURG PA 16866 DARSHAN KULKARNI CHAIRMAN 4.00 X X 0 0 0 THOMAS WHITEHEAD VICE CHAIRMAN 15.00 X X 12000 0 0 KARI WHITEHEAD SECRETARY 15.00 X X 12000 0 0 JODIE POTTER TREASURER 12.00 X X 20010 0 0 TOM GARRETT BOARD OF DIRECTORS 12.00 X 0 0 0 JON CONDO BOARD OF DIRECTORS 2.00 X 0 0 0 CHRIS STOTT BOARD OF DIRECTORS 2.00 X 0 0 0 BOB MADONNA BOARD OF DIRECTORS 2.00 X 0 0 0 DIMITRI SIEGEL BOARD OF DIRECTORS 2.00 X 0 0 0 MICHELLE BERG BOARD OF DIRECTORS 2.00 X 0 0 0 KELLY GANJEI BOARD OF DIRECTORS 2.00 X 0 0 0 SUE HAGER BOARD OF DIRECTORS 2.00 X 0 0 0 SHARON KING BOARD OF DIRECTORS 2.00 X 0 0 0 ROB DOUGLAS BOARD OF DIRECTORS 2.00 X 0 0 0 TOM SMITH BOARD OF DIRECTORS 2.00 X 0 0 0 GEORGE EASTWOOD EXECUTIVE DIRECTOR 40.00 X X X 147077 0 0 KRISTINE BARRAS DIRECTOR OF DEVELOPMENT 40.00 X X X X 87446 0 0 ADAM CLARK DIRECTOR OF OPERATIONS 40.00 X X X 77885 0 0 356418 0 0 1 false false false 115258 690290 805548 HONORARIUM 611000 23520 0 0 23520 16022 0 16022 9426 115258 22888 -13462 0 -13462 MISCELLANEOUS INCOME 900099 9320 9320 0 0 9320 840948 32840 0 2560 3500 3500 298501 179099 59701 59701 124837 74903 24967 24967 96529 57919 19305 19305 675 149 229 297 9550 2101 3247 4202 130187 91035 0 39152 23729 5220 8068 10441 20277 14194 0 6083 10623 3187 4249 3187 53597 46521 1912 5164 500 110 170 220 BANK FEES 9653 2124 3282 4247 CHARITY REGISTRATION 3255 716 1107 1432 PROFESSIONAL MEMBERSHIPS 1100 242 374 484 FUNDRAISING 12201 0 0 12201 109896 93914 6966 9016 908610 574934 133577 200099 330813 262836 375797 390600 117031 1805 361 1444 1444 25000 733054 771911 29704 41223 95000 29704 136223 X 703350 635688 703350 635688 733054 771911 -67662 X false true X false false X 0 235538 355910 371549 520981 805548 2289526 0 0 0 0 0 0 0 0 0 0 0 0 235538 355910 371549 520981 805548 2289526 39536 2249990 0 0 7492 19681 16022 43195 0 196907 184769 -9952 414003 19378 805105 3137826 0.71710 0.66810 X 0 0 0 Pt II Ln 10 Other Income Part II, Line 10 Description: SPECIAL EVENT REVENUE 2021: 196907. 2022: 172412. 2023: -12230. 2024: 399003. 2025: -13462. Description: MISCELLANEOUS REVENUE 2022: 12357. 2023: 2278. 2025: 9320. Description: HONORARIUM 2024: 15000. 2025: 23520. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1805 361 1444 1444 863836 863836 863836 931498 931498 931498 GOLF FUNDRAISER 57585 48159 9426 900 0 0 5157 0 12969 BIOVT FUN RUN 21035 21035 0 0 0 0 0 0 3862 46064 46064 0 0 0 0 0 0 0 124684 115258 9426 900 0 0 5157 0 16831 22888 -13462 Pt VI, Line 8a CONTEMPORANEOUS DOCUMENTATION Pt VI, Line 8b CONTEMPORANEOUS DOCUMENTATION Pt VI, Line 11b IRS FORM 990 IS REVIEWED BY OFFICERS AND DIRECTORS PRIOR TO FILING Pt VI, Line 12c THE ORGANIZATION REQUIRES DIRECTORS, OFFICERS AND MEMBERS OF A COMMITTEE TO DISCLOSE ANY POTENTIAL CONFLICTS OF INTEREST ANNUALLY. THE BOARD REVIEWS ALL DISCLOSURE STATEMENTS ANNUALLY. COMPLIANCE IS MONITORED THROUGH BOARD OVERSIGHT AND DOCUMENTATION IN MEETING MINUTES. Other Pt III, Line 4a: PROGRAM SERVICE ACCOMPLISHMENTS : BELIEVE BUNDLES IS A DIRECT PATIENT SUPPORT PROGRAM THAT PROVIDES TANGIBLE COMFORT AND ENCOURAGEMENT TO PATIENTS UNDERGOING TREATMENT. THROUGH THIS PROGRAM, THE FOUNDATION DELIVERS THOUGHTFULLY ASSEMBLED CARE PACKAGES DESIGNED TO BRIGHTEN HOSPITAL STAYS, PROVIDE EMOTIONAL SUPPORT, AND REMIND PATIENTS AND CAREGIVERS THAT THEY ARE NOT ALONE. BELIEVE BUNDLES ALSO CONNECT PATIENTS AND FAMILIES TO THE FOUNDATIONS BROADER SUPPORT RESOURCES. IN 2025 THE FOUNDATION DELIVERED BELIEVE BUNDLES TO 570 PATIENTS AND DEVELOPED 22 HOSPITAL PARTNERSHIPS TO EXPAND THE PROGRAMS REACH AND CONNECT MORE FAMILIES TO PATIENT SUPPORT AND ADVOCACY RESOURCES. PATIENT AND CAREGIVER SUPPORT PROVIDES EDUCATION, RESOURCES, CONNECTION, AND INDIVIDUALIZED ASSISTANCE TO PATIENTS, CAREGIVERS, AND FAMILIES AFFECTED BY CANCER AND RARE DISEASES. THIS PROGRAM INCLUDES ONE-ON-ONE SUPPORT, HOPE AND ENCOURAGEMENT, PATIENT-CENTERED EDUCATIONAL RESOURCES, PEER CONNECTION WITH OTHERS WHO HAVE RELEVANT LIVED EXPERIENCE, HEALTHCARE PROVIDER CONNECTION, AND HELP IDENTIFYING AND NAVIGATING POTENTIAL CARE AND CLINICAL RESEARCH OPTIONS WHEN APPROPRIATE. THE FOUNDATION DOES NOT CONDUCT CLINICAL RESEARCH THROUGH THIS PROGRAM. IN 2025, THE FOUNDATION PROVIDED PERSONALIZED ONE-ON-ONE SUPPORT TO 45 FAMILIES. ADVOCACY AND ACCESS ADVANCES THE FOUNDATIONS MISSION BY ELEVATING PATIENT AND CAREGIVER VOICES AND WORKING TO REDUCE BARRIERS TO ADVANCED THERAPIES. THE FOUNDATION ENGAGES POLICYMAKERS, RESEARCHERS, CLINICIANS, MANUFACTURERS, AND OTHER ADVANCED THERAPY STAKEHOLDERS TO HELP ENSURE THAT PATIENT EXPERIENCES INFORM TREATMENT DEVELOPMENT, HEALTHCARE DELIVERY, ACCESS DISCUSSIONS, AND PUBLIC AWARENESS. IN 2025, THE FOUNDATION ESTABLISHED 11 INDUSTRY PARTNERSHIPS, ADVOCATED AT 44 INDUSTRY AND POLICY EVENTS, AND CONTINUED TO BUILD RELATIONSHIPS ACROSS THE ADVANCED THERAPIES COMMUNITY IN SUPPORT OF BROADER ACCESS TO LIFE-SAVING TREATMENT OPTIONS. Pt VI, Line 18 IRS FORM 990 IS POSTED ON THE ORGANIZATIONS WEBSITE Pt VI, Line 2 THOMAS WHITEHEAD (VICE CHAIRMAN) AND KARI WHITEHEAD(SECRETARY) ARE MARRIED Pt VI, Line 19 THE ORGANIZATIONS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. Form 990, Part IX, Line 24e SPECIAL EVENT EXPENSE 2399. 528. 815. 1056. Form 990, Part IX, Line 24e FAMILY SUPPORT SERVICES 53181. 53181. 0. 0. Form 990, Part IX, Line 24e EDUCATION AWARENESS AND ADVOCACY 36225. 36225. 0. 0. Form 990, Part IX, Line 24e MISCELLANEOUS 2127. 468. 723. 936. Form 990, Part IX, Line 24e COST OF DIRECT BENEFIT TO DONORS 15964. 3512. 5428. 7024.