2026-07-16T14:28:50-05:00 2025-12-31 393647910 WIPFLI ADVISORY LLC 1502 LONDON ROAD SUITE 220 DULUTH MN 55812 990 2025-04-01 334330209 HELEN'S PINK SKY FOUNDATION HELE 6128681070 6736 BELLFLOWER DR MINNETRISTA MN 55331 MARK SCHNEIDER PRESIDENT 6128681070 2026-07-15 1 MICHAEL J PETERSON CPA P01833529 2187224705 2026-07-14 2025 2025-03-06 01:10:19Z X MARK SCHNEIDER 6736 BELLFLOWER DR MINNETRISTA MN 55331 2577311 0 X HTTPS://WWW.HOPE4HELEN.ORG/ X 2025 MN SUPPORT THE ADVOCACY, RESEARCH AND CARE FOR THOSE WITH BATTEN DISEASE & CLN2 7 7 0 20 0 0 2130266 0 0 118258 2248524 1187000 0 0 0 0 2032 1189032 1059492 1059492 0 1059492 X HELEN'S PINK SKY FOUNDATION IS COMMITTED TO ADVOCACY, RESEARCH AND CARE FOR THOSE WITH BATTEN DISEASE & CLN2. THROUGH OUR PLATFORM, YOU CAN STAY UPDATED ON HELEN'S JOURNEY, CONTRIBUTE TO THE CAUSE, AND BE A PART OF OUR GROWING COMMUNITY DEDICATED TO SUPPORTING AFFECTED FAMILIES. 0 0 1187000 1187000 0 HELEN'S PINK SKY FOUNDATION (HOPE4HELEN) ADVANCED ITS MISSION TO ACCELERATE RESEARCH, ADVOCACY, AND AWARENESS FOR CLN2 BATTEN DISEASE BY FUNDING HIGH-IMPACT SCIENTIFIC INITIATIVES AIMED AT DEVELOPING EFFECTIVE TREATMENTS AND ULTIMATELY A CURE. TO FURTHER THESE GOALS, THE FOUNDATION AWARDED $1,187,000 IN RESEARCH GRANTS TO LEADING INSTITUTIONS.THE FOUNDATION ALSO CONTINUED ITS BROADER MISSION PILLARS: ADVOCACY, AWARENESS, AND FAMILY SUPPORT BY EDUCATING THE PUBLIC ABOUT CLN2 BATTEN DISEASE, ENGAGING WITH AFFECTED FAMILIES, AND PROMOTING SCIENTIFIC UNDERSTANDING OF RARE PEDIATRIC NEURODEGENERATIVE DISEASES. THESE EFFORTS COLLECTIVELY ADVANCE THE FOUNDATION'S PURPOSE: TO BRING HOPE, PROGRESS, AND ULTIMATELY A CURE FOR CHILDREN LIKE HELEN. 1187000 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 7 7 1 0 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 MN X MARK SCHNEIDER 6128681070 6736 BELLFLOWER DR MINNETRISTA MN 55331 X MARK SCHNEIDER PRESIDENT 1.00 X X 0 0 0 DAN BORN VICE-PRESIDENT 1.00 X X 0 0 0 STEPHANIE BORN CO-VICE PRESIDENT 1.00 X X 0 0 0 NICK SCHNEIDER CO-VICE PRESIDENT 1.00 X X 0 0 0 DAVE BORN TREASURER 1.00 X X 0 0 0 MEG JACKSON SECRETARY 1.00 X X 0 0 0 TIM MEYER DIRECTOR 1.00 X 0 0 0 0 0 0 0 0 0 0 0 289579 1840687 258974 2130266 447045 289579 328787 118258 118258 2248524 0 0 118258 1187000 1187000 2032 2032 1189032 1187000 2032 0 1059392 100 0 1059492 0 0 X 0 0 0 0 0 1059492 0 1059492 0 1059492 1059492 0 X 0 0 0 X 2130266 2130266 2130266 2130266 1040951 1089315 118258 118258 2248524 X PART II, SHORT YEAR EXPLANATION: THE ORGANIZATION WAS INCORPORATED IN APRIL 2025. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED GALA 736624 289579 447045 258974 42872 5000 21941 736624 289579 447045 258974 42872 5000 21941 328787 118258 0 UNIVERSITY OF MINNESOTA FOUNDATION CENTER OF GENOME ENGINEERING MORIARITYLABS MINNEAPOLIS MN 55455 416042488 501(C)(3) 550000 0 CLN2 BATTEN DISEASE RESEARCH LATUS BIO INC 1 MARINA PARK DRIVE SUITE 1410 BOSTON MA 02210 133349872 500000 0 CLN2 BATTEN DISEASE RESEARCH THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION PO BOX 781352 PHILADELPHIA PA 191781352 232237932 501(C)(3) 137000 0 CLN2 BATTEN DISEASE RESEARCH 2 1 X AUCTION ITEMS 146 258974 FAIR MARKET VALUE 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 STEPHANIE BORN, NICK SCHNEIDER AND MARK SCHNEIDER HAVE A FAMILY RELATIONSHIP. DAN BORN AND DAVE BORN HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION A, LINE 8A PER BYLAWS OF FOUNDATION, ALL DECISIONS MUST BE MAJORITY VOTE OF ALL BOARD MEMBERS. FORM 990, PART VI, SECTION A, LINE 8B PER BYLAWS OF FOUNDATION, ALL DECISIONS MUST BE MAJORITY VOTE OF ALL BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 11B THE PRESIDENT REVIEWS THE FORM 990 PRIOR TO ITS FILING. THE REVIEW INCLUDES CONFIRMING THE ACCURACY AND COMPLETENESS OF THE INFORMATION REPORTED AND ENSURING IT REFLECTS THE ORGANIZATION'S OPERATIONS FOR THE APPLICABLE TAX YEAR. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION MAINTAINS A WRITTEN CONFLICT OF INTEREST POLICY APPLICABLE TO DIRECTORS, OFFICERS, AND MEMBERS OF BOARDDELEGATED COMMITTEES. IN ACCORDANCE WITH THE POLICY, INTERESTED PERSONS ARE REQUIRED TO DISCLOSE ANY ACTUAL OR POTENTIAL CONFLICTS OF INTEREST, INCLUDING DIRECT OR INDIRECT FINANCIAL INTERESTS, PRIOR TO THE GOVERNING BOARD'S CONSIDERATION OF THE RELEVANT TRANSACTION OR ARRANGEMENT. AFTER DISCLOSURE, THE INTERESTED PERSON IS RECUSED FROM DISCUSSION AND VOTING, AND THE DISINTERESTED MEMBERS OF THE GOVERNING BOARD DETERMINE WHETHER A CONFLICT OF INTEREST EXISTS. WHEN A CONFLICT IS IDENTIFIED, THE GOVERNING BOARD EVALUATES WHETHER THE ORGANIZATION CAN OBTAIN A MORE ADVANTAGEOUS TRANSACTION OR ARRANGEMENT FROM AN UNRELATED PARTY AND DETERMINES WHETHER THE TRANSACTION IS FAIR, REASONABLE, AND IN THE ORGANIZATION'S BEST INTEREST. ALL DISCLOSURES, DELIBERATIONS, RECUSALS, AND DECISIONS ARE DOCUMENTED IN THE BOARD OR COMMITTEE MINUTES. VIOLATIONS OF THE POLICY ARE ADDRESSED THROUGH APPROPRIATE CORRECTIVE OR DISCIPLINARY ACTION AS NECESSARY. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY OR FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC.