2026-06-09T16:25:36-07:00 2025-12-31 202850969 FITZPATRICK & TUCKER INC 4040 MOORPARK AVE STE 112 SAN JOSE CA 95117 990EZ 2025-01-01 830665732 National Council On Severe Autism NATI 4083141655 PO Box 26853 San Jose CA 95159 Jill Escher President 2026-06-09 true Kathleen Fitzpatrick P00448977 4082495300 2025 2025-03-06 01:10:19Z X ncsautism.org X X 160443 X 116876 33664 9423 0 0 0 0 480 160443 119195 804 70995 190994 -30551 250862 220311 X 250862 220448 250862 220448 137 250862 220311 TO PURSUE RECOGNITION, POLICY AND SOLUTIONS FOR THE SURGING POPULATION OF INDIVIDUALS, FAMILIES AND CAREGIVERS AFFECTED BY SEVERE FORMS OF AUTISM AND RELATED DISORDERS Recognition & Awareness: In 2025, the National Council on Severe Autism (NCSA) significantly expanded its national reach and engagement through strategic digital communications and infrastructure investment. NCSA delivered 187,914 newsletters to subscribers nationwide, amplifying information and advocacy on issues affecting individuals and families impacted by severe autism. On Facebook, NCSA achieved a net gain of 8,022 followers (+32.7%) with 72.9% of growth driven by Reels and 27.1% driven by Posts. Total followers at year-end reached 32,857. NCSA also invested in upgrading media relations and advocacy software, enhancing tools for the reach and influence of our National Grassroots Network. Through its Authentic Awareness Video Campaign, NCSA gave caregivers an accessible platform to publish first-person videos of their families stories, which were featured across NCSAs website, social media, and YouTube channel. In December, NCSA also ran an artwork campaign that named a person with severe autism as its Artist of the Year for 2026, highlighting the creativity, individualism, and beauty beyond the bounds of words for individuals with severe autism. In 2025, NCSA earned over 1,000 media mentions with an estimated reach exceeding 3.18 billion, and was featured in multiple national publications including but not limited to Disability Scoop, Politico, Newsweek, The New York Times, The Washington Times, NPR, News Nation, and BBC. 64685 Policy & Advocacy: In 2025, NCSA strengthened its policy infrastructure and expanded its National Grassroots Network (NGN), nearing 2,000 members nationwide. NCSA hired its first Legal and Policy Fellow for the 202526 academic year. The NGN held monthly meetings for state chairs to address national issues, while state chapters convened virtually to discuss state-specific priorities. NCSA held its first D.C. fly-in event, with 131 advocates representing 30 states holding more than 150 meetings with congressional offices. NCSA conducted a national survey of family caregivers of individuals with severe autism and published the results via webinar and also PDF on our website. In September, NCSA held its first Voices for the Voiceless Advocacy Week, which included 4.5 hours of online pre-training. 162 participants took part, meeting with legislators in an accessible format. The organization is continuing plans for the 2026 in-person fly-in in July and two virtual fly-ins in the spring and fall. NCSA launched its book club for social engagement and civics/advocacy training in 2025 with 30 registrants in the spring and 42 registrants in the fall. Multiple chapters participated in advanced advocacy at the state level, including testifying at legislative hearings, drafting and promoting specific legislation, and participating in multi-group disability conferences. State chapters have made significant progress on caregiver support, group home safety, and health care access. NCSA onboarded new national leadership volunteers as coordinators in Community Engagement, Government Affairs, Public Relations, Development and Digital Content. NCSA leadership continues to engage in targeted meetings with ACL, HHS, NIH, and CMS on matters most important to our community such as housing, equitable representation, research priorities, and funding allocations. Members attended INSAR and other relevant conferences, and the organization continues to collaborate with other nonprofit advocacy groups to find areas of common ground with an attitude of including diverse views to eliminate the long-standing discrimination and exclusion of severe autism in mainstream discourse. 88185 Solutions & Resources: NCSA hosted webinars on topics including exploring the complexities of epilepsy and seizures in autism, integrated health care, innovative housing, hospital care for special care, and understanding development & behavior. NCSA hosted a podcast discussing the similar disparities and discourse between the communities of severe autism and severe mental illness, addressing the harms that ensued from monolithic modern policy that sanitizes disability, and discussing the realities of the types of supports and collaborations that may bring real solutions to these marginalized populations. NCSA families served as significant cohort segments for studies such as Quality of Life of Mothers of Severely Autistic Children Under the Age of 22 by Chele Weiglein (Liberty University); Caregiver Adherence to Behavioral Recommendations by the PCORI-Awarded SPARC project, and Parents Caring for Autistic Adults by Jess Wellington (Penn State University). NCSA proudly supported promising research for Understanding Severity of SIB by Joseph Patrick Boyle (UC Davis) and co-hosted Supporting People with Autism and Catatonia through Education and Support (SPACES) with Autism Science Foundation and Autism Speaks. The NCSA Board of Directors published three new formal position statements in 2025: Medicaid and Healthcare Access, Applied Behavior Analysis, and Medicaid HCBS Settings Rule. 32580 185450 Jill Escher President 15.00 0 Amy Lutz Vice President 5.00 0 Gloria Satriale Secretary 3.00 0 Mark Kendall Treasurer 3.00 0 false false false false false false false 0 0 0 false 0 0 false CA JILL ESCHER PO BOX 26853 SAN JOSE CA 95159 4083141655 false false false false false false false false true false false NONE NONE true X 37813 93030 148876 137151 116876 533746 8490 33664 42154 0 0 0 37813 93030 148876 145641 150540 575900 0 0 575900 8549 9423 17972 0 8549 9423 17972 0 480 480 37813 93030 148876 154190 160443 594352 0.96900 0.98230 0.03020 0.01770 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false 15000 15000 175994 190994 38199 9550 false 38199 38199 57299 15000 15000 9550 9550 14325 Other Revenue.1 Meta $480 Other Expenses.1001 Advertising and Promotion $572 Other Expenses.1002 Office Expenses $184 Other Expenses.1005 Travel $1717 Other Expenses.1012 Insurance $1571 Other Expenses.1 Software & Apps $47883 Other Expenses.2 Conference Expenses $18292 Other Expenses.5 Merchant Account Fees $292 Other Expenses.6 DUES & SUBSCRIPTIONS $255 Other Expenses.7 Licenses & Permits $204 Other Expenses.8 Bank Charges $25 Total Liabilities.1 Wells Fargo - CC - Beginning $0 Wells Fargo - CC - Ending $137