2026-08-31T10:46:27-05:00 2026-01-31 414128080 Four Leaf Accounting PLLC 4727 W Bell Road Suite 45-253 Phoenix AZ 85032 990 2025-02-01 883176104 ALS United Inc ALSU 4804330760 9450 SW Gemini Drive Beaverton OR 97008 Jerry Dawson President 2026-04-20 false Lisa Stevenson P01781883 4804288640 2026-04-20 2025 Jerry Dawson 9450 SW Gemini Drive Beaverton OR 97008 765075 false X alsunited.org X 2022 AZ ALS United, Inc operates to support those living with ALS by supporting its members. It is funded primarily through its member dues from 15 independent ALS organizations across the US. 16 16 1 16 0 0 6170 15466 195740 749609 0 0 0 0 201910 765075 0 0 0 0 24750 341727 0 0 18015 220331 197542 245081 539269 -43171 225806 68190 451196 11454 171724 56736 279472 ALS United, Inc. is organized and operated exclusively for charitable, education, literary, and scientific purposes within the meaning of section 501c3 of the Internal Revenue Code, specifically to support those living with amyotrophic lateral sclerosis (ALS). The organization is funded primarily through member dues from 15 independent ALS organizations across the United States, each dedicated to serving their local ALS communities. These member organizations collaborate through ALS United to strengthen their collective impact. false false 438260 749609 ALS United, Inc. carries out its exempt purpose by serving as a collaborative organization for independent ALS service providers. Our activities include: 1. Providing coordination and shared services that benefit organizations serving the ALS community, 2. Carrying on activities and programs that strengthen local ALS support services, 3. Coordinating certain research activities with our members, and 4. Supporting the collective mission of helping those affected by ALS. The organization works with 15 independent charitable organizations, all qualified under section 501(c)(3), who pay membership dues to support this collaborative mission. Through this structure, ALS United helps strengthen and enhance the delivery of services to those affected by ALS across multiple regions. 438260 true true false true false false false false false false false false false false true false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false true 0 0 true 1 true false false false false false false false false false false false false false false false false false false false false false false false false false X 16 16 false false true false true true true true true false false false true true true true false false true false false false Jim Mortensen 4804330760 9450 SW Gemini Drive Beaverton OR 97008 Jerry Dawson President and CEO 50 X 243860 0 35394 Jim Mortensen Board Chairperson 4 X X 0 0 0 Tom Holt Board Vice Chairperson 2 X X 0 0 0 Dale Miller Board Secretary 1 X X 0 0 0 Marty Skolnick Board Treasurer 1 X X 0 0 0 Bill Nordmark Board Member 1 X 0 0 0 Toby Kucharski Board Member 1 X 0 0 0 Kathleen Boyce Board Member 1 X 0 0 0 Nancy Miringoff Board Member 1 X 0 0 0 Sheri Strahl Board Member 1 X 0 0 0 Don Polednak Board Member 1 X 0 0 0 Mark Stach Board Member 1 X 0 0 0 Mark Hershey Board Member 1 X 0 0 0 Ken McGunagle Board Member 1 X 0 0 0 Ed Chavez Former Board Member 1 X 0 0 0 Sean Keating Board Member 1 X 0 0 0 Jayne Leighton Board Member 1 X 0 0 0 243860 0 35394 1 false true false 15466 15466 Member Dues 990099 749609 749609 749609 0 0 0 0 0 0 0 0 0 0 765075 749609 0 0 323691 258953 48554 16184 18036 14429 2705 902 2589 2071 389 129 10342 10342 6475 6475 16591 16591 1361 149 1203 9 30389 23543 6693 153 11858 11858 28509 28509 0 4721 4721 Educational Materials Project 32500 32500 Advocacy Services 30000 30000 Legacy.com Campaign 12746 10196 1912 638 Group Memberships 9461 9461 0 0 0 0 539269 438260 82994 18015 68190 328861 122335 0 0 0 0 68190 451196 15000 11454 156724 11454 171724 X 56736 279472 56736 279472 68190 451196 X 225806 -3070 X false false false false false X X 15 ALS Arizona 860727136 7 false 40843 0 ALS Network 954163338 7 false 99941 0 ALS of Nevada 201531344 7 false 15001 0 ALS New Mexico 850473026 7 false 15867 0 ALS Northwest 680516066 7 false 60831 0 ALS United Connecticut 043417472 7 false 41427 0 ALS United of Georgia 581943490 7 false 40477 0 ALS United Greater Chicago 542126575 7 false 61415 0 ALS United Greater New York 133616680 7 false 100391 0 ALS United Mid-Atlantic 232387205 7 false 100392 0 ALS United North Carolina 561609591 7 false 60832 0 ALS United Ohio 311235704 7 false 40844 0 ALS United Orange County 330282720 7 false 15502 0 ALS United Rhode Island 050460482 7 false 15002 0 ALS United Rocky Mountain 841337868 7 false 40844 0 749609 false false false false false false false false false false false false false false false false false false false false false false true false 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Part IV, Section A, Line 1 Part IV, Section A, Line 1 All organizations shall be qualified charitable organizations as described in Section 501(c)(3) pursuant to either Sections 509(a)(1), 170(b)(1)(A), or 509(a)(2) of the Code, or future corresponding Code sections. Part IV, Section A, Line 1 ALS United Greater Chicago (EIN 54-2126575) is listed in Schedule A under its legal name. The organization currently conducts its operations under the name ALS United Illinois, Indiana & Missouri, reflecting its expanded service territory. The legal name on file with the IRS remains ALS United Greater Chicago. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false false true false false true 7167 false true 2500 true 15000 false false 24667 false false false false false Line 1 During the fiscal year, ALS United engaged in lobbying activities through several channels. The organization retained Thorn Run Partners as a federal lobbying firm beginning December 2025, with active legislator outreach commencing in January 2026 ($15,000). ALS United used OneClickPolitics, an advocacy software platform, to facilitate action alerts through which supporters contacted their elected officials via social media and direct outreach ($7,167). Line 1 continued The organization also maintained membership in the Coalition to Transform Advanced Care (C-TAC), a Washington DC based coalition that conducts lobbying activities on behalf of its members ($2,500). All lobbying activities were directed toward advancing policies supporting people living with ALS and improving access to care. 1,889 volunteers completed action alerts during the fiscal year, estimated at approximately 63 total volunteer hours. false false false false false false 0 false 0 0 0 0 0 false false false 0 0 0 0 0 0 0 0 0 Donations due to member organizations 6724 Research commitments 150000 156724 0 0 0 0 0 0 0 0 false true X X X false false false false false false false false false false Jerry Dawson President 243860 35394 279254 Form 990, Part VI, Line 4 On August 15, 2025, the Board of Directors approved an amendment to the organization's Amended and Restated Bylaws to change the fiscal year from a calendar year (January 1 through December 31) to February 1 through January 31, effective for the fiscal year beginning February 1, 2025. This was a correction of an error. Form 990, Part VI, Section A, Line 6 The organization has one class of voting members who are qualified charitable organizations. Each member shall designate in writing a Member Representative to be the individual through which all formal communication flows. Form 990, Part VI, Section A, Line 7a Each member is entitled to appoint one director until the number of members exceeds 17. At such time that the number of members exceed 17, then the members shall elect all directors at the annual meeting of members. Form 990, Part VI, Section A, Line 7b The voting members participate in the decisions of 1. merger, consolidation or transfer of substantially all of the assets of the organization, 2. the repeal, modification, amendment, in whole or part, or addition to the Articles of Incorporation or Bylaws or adoption of a new Articles of Incorporation or new Bylaws, 3. the liquidation or dissolution of the organization, and 4. other matters at the discretion of the officers of the board. Form 990, Part VI, Section B, Line 11b The organization provides a complete copy of this Form 990 to all members of its governing body before filing the form. Form 990, Part VI, Section B, Line 12c The organization regularly and consistently monitors and enforces compliance with the conflict of interest policy. Officers and directors are required to disclose on an ongoing basis and at least annually interests that could give rise to conflicts. Form 990, Part VI, Section B, Line 15a The process for determining compensation includes a review and approval by independent persons, comparability data, and/or contemporaneous substantiation of the deliberation and decision for the top management official. Form 990, Part VI, Section C, Line 19 The organization provides, in a timely manner, copies of all governing documents, including conflict of interest policies and financial statements when requested in writing or in person. Form 990, Part XI, Line 8 Prior period adjustment is due to an adjusting journal entry to complete a reconciliation of donations payable to members.