2026-08-04T11:16:44-06:00 2025-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2025-01-01 263776187 Team Telomere Inc % Dave Chan TEAM 2082151347 PO Box 7405 Missoula MT 59807 DAVE CHAN Treasurer 2082151347 2026-08-04 true JOHN MULLINS P01429307 2027706371 2026-08-04 2025 2025-03-06 01:10:19Z X Dave Chan PO Box 7405 Missoula MT 59807 674132 false X teamtelomere.org X 2009 NY See Schedule O. 6 6 1 15 0 0 313626 557641 100878 100080 11281 14511 2689 1900 428474 674132 137714 247578 0 239340 158328 0 74039 239657 151957 616711 557863 -188237 116269 316239 399894 42025 9411 274214 390483 See Schedule O. false false 401768 247578 100080 Team Telomere expanded community support, education, advocacy, and research for the Telomere Biology Disorder community. The organization served 750 individuals and engaged 300 clinicians and researchers across multiple countries. Key accomplishments included hosting 11 Community Chats/Open Forums with 147 registrants, mailing 23 Care Packages and 10 Legacy Boxes, convening at Camp Sunshine with 70 attendees, 9 expert talks, and 20 one-on-one sessions, distributing 163 clinical guidelines, expanding resources with one-pagers, Spanish translations, and video education, launching a digital natural history study with Citizen Health, convening the 2025 Micro Meeting with 121 attendees from 11 countries, and funding research through the Shark Tank Grant, Uplifting Athletes Young Investigator Draft Pick, and Trail Fund Grant. 401768 true true false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 2 0 true 1 true false false false false false false false false false false false false X 6 6 false false false false false false false true true false false true true true true false false true true false AK AL AR AZ CA CO CT DC FL GA HI IL KS KY MA MD ME MI MN MO MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN UT VA WA WI WV X The Organization 2082151347 PO Box 7405 Missoula MT 59807 Katherine Stevens Executive Director 40.00 0.00 X 130000 0 0 Dave Chan Treasurer 1.00 0.00 X X 0 0 0 Allison Kiene President 2.00 0.00 X X 0 0 0 Nicole Bjerke Vice President 2.00 0.00 X X 0 0 0 Kendall Davis Secretary 1.00 0.00 X X 0 0 0 Heidi Carson Director 2.00 0.00 X 0 0 0 Susan Insley Director 1.00 0.00 X 0 0 0 130000 0 0 1 false false false 557641 557641 Summit Sponsorship 900099 92000 92000 Program Income 900099 8080 8080 100080 14511 14511 0 Miscellaneous 900099 1900 1900 1900 674132 101980 0 14511 247578 247578 130000 78000 26000 26000 17837 7006 10831 10491 6057 2446 1988 17337 17337 15859 5610 10249 11065 933 9745 387 1075 1075 1256 1256 44 44 101237 54458 1159 45620 1958 1958 Care Packages 2126 2126 557863 401768 82056 74039 79010 117210 191330 282684 45899 316239 399894 12025 9411 30000 42025 9411 X 269214 275611 5000 114872 274214 390483 316239 399894 116269 0 X true X false true false X 161908 699661 280328 313626 557641 2013164 161908 699661 280328 313626 557641 2013164 397199 1615965 15 15131 11281 14511 40938 6508 49346 2668 2689 1900 63111 2117213 0.76330 0.83930 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true University of Pennsylvania 125 South 31st St Philadelphia PA 19104 231352685 501c3 25000 Research Uplifting Athletes 8 Atkinson Dr Unit 574 Doylestown PA 18901 341986485 501c3 10000 Research Baylor College of Medicine One Baylor Plaza BCM 310 Houston TX 77030 741613878 501c3 30000 Research Boston Childrens Hospital 300 Longwood Ave Boston MA 02115 042774441 501c3 169375 Research The Trustees of Columbia University 615 W 131st Mc 8741 New York NY 10027 133901821 501c3 5000 Research 5 Scholarships Form 990 governing body review Part VI line 11 The Organization reviews the 990 form at a board meeting prior to submitting to the IRS. Conflict of interest policy compliance Part VI line 12c The Organization enforced compliance with its conflict of interest policy by reviewing it periodically at board meetings. CEO executive director top management comp Part VI line 15a The Organization uses the following methods to establish compensation packages for its employees: Form 990 of Similar Organizations, Compensation Survey, Approval by The Board. Other officer or key employee compensation Part VI line 15b The Organization uses the following methods to establish compensation packages for its employees: Form 990 of Similar Organizations, Compensation Survey, Approval by The Board. Governing documents etc available to public Part VI line 19 The Organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. General explanation attachment Mission Statement: The mission of Team Telomere is to empower individuals worldwide impacted by Telomere Biology Disorders with information and support services, to advance improved diagnosis through education and advocacy, and to accelerate the medical and scientific communitys research in finding causes, effective treatments, and a path towards a cure.